Literature Review
9/11 Remembrances Today
09/20/26 at 03:55 AM9/11 Remembrances TodayHospice and Palliative Care Today; compiled by Joy Berger; 9/10/26 In hospice and palliative care, we understand grief's long reach — the "normal" losses we companion daily, and the tragic ones that live on in us for a lifetime. Today marks 25 years since that morning.
Medicare moments: The scarcity of Medicare caregiver benefits
09/20/26 at 03:50 AMMedicare moments: The scarcity of Medicare caregiver benefits Allied News; by Joel Mekler; 9/14/26 ... AARP and the National Alliance for Caregiving released the 2025 Caregiving in the U.S. report, their newest update since 2020. This comprehensive document offers an in-depth look at the evolving landscape of family caregiving for adults, highlighting key trends, challenges, and potential reforms. A key discovery is the swift growth in family caregiving. Almost 25% of adults — 63 million Americans — spent the last year caring for an adult (59 million) or a child (4 million) with complex medical needs or disabilities, marking a 45% increase since 2015. This trend underscores the essential role of family caregivers and exposes systemic shortcomings that place significant burdens on them, highlighting the pressing need for reforms.
Hospice Home & Garden Tour raises $40K+ for Granite VNA
09/20/26 at 03:45 AMHospice Home & Garden Tour raises $40K+ for Granite VNA The Laconia Daily Sun, Laconia, NH; Press Release; 9/15/26 Nearly 500 attendees explored four exceptional properties in East Alton and Wolfeboro during Granite VNA’s annual Hospice Home & Garden Tour on July 15. The tour raised more than $40,000 to support the agency’s hospice services. Guests enjoyed an afternoon experiencing rich history through architecture and thoughtfully designed and renovated interiors and taking in stunning views of Lake Winnipesaukee from three of the properties.
Former VA nurse charged with intentionally abusing hospice patient
09/20/26 at 03:40 AMFormer VA nurse charged with intentionally abusing hospice patient News 8 Now, La Crosse/Toma, WI; by Sam Shilts; 9/10/26 A former registered nurse at the Tomah Veterans Affairs Medical Center faces a felony charge after prosecutors say she intentionally removed oxygen from a dying hospice patient, causing him great bodily harm. Beth Marie Holtz, 53, of New Berlin, was charged Wednesday in Monroe County court with intentionally abusing a patient causing great bodily harm. An arrest warrant was issued the same day. According to the criminal complaint, the incident occurred Aug. 17, 2025, involving a 75-year-old patient who had been admitted to hospice with pulmonary fibrosis and had a medical order for continuous oxygen supply.
Inspiring a culture of ownership through mutual accountability-A health care system's approach to connecting bedside expertise with boardroom strategy
09/20/26 at 03:35 AMInspiring a culture of ownership through mutual accountability-A health care system's approach to connecting bedside expertise with boardroom strategyNursing Management; by Torry Robinson, Stuart Downs; 8/26A health care system's approach to integrating the American Association of Critical-Care Nurses Healthy Work Environment (HWE) standards across organizational levels demonstrates a replicable pathway for aligning bedside expertise with boardroom strategy, an essential linkage in organizational strategic planning. This article describes one health care system's 3-year journey in embedding the HWE framework throughout the deployment of the nursing strategy. Following operationalization of HWE as a component of the nursing strategic framework, the health care system achieved sustained improvement across all domains of the Healthy Work Environment Assessment Tool (HWEAT), bolstering an organizational commitment to continuously improve and measure practice-environment health. This transparent, high-visibility approach emphasizes accountability from the Chief Nurse Executive to frontline nurses, underpinning a shared commitment that aligns clinical practice with organizational strategy. Organizations that embed HWE into their nursing strategic plan empower nurses at every level to shape and share ownership of the practice environment.
LifeCare Home Health & Hospice Family launches new website to make finding home-based care easier
09/20/26 at 03:30 AMLifeCare Home Health & Hospice Family launches new website to make finding home-based care easier The Best Times, Irving, TX; by LifeCare Home Health Family; 9/14/26 LifeCare Home Health & Hospice Family has launched a new corporate website designed to make it easier for patients, families, referral partners and healthcare professionals to understand LifeCare's growing family of companies and connect with home health, hospice and in-home care services in their communities. Introduced earlier this year, the new website at lchhfamily.com serves as a centralized digital resource for LifeCare's network of locally operated healthcare organizations.
U.S. hospices with a 5-star CMS family caregiver survey rating
09/20/26 at 03:25 AMU.S. hospices with a 5-star CMS family caregiver survey ratingHospice & Palliative Care Today; 9/6/26... This list was compiled directly from CMS's official downloadable dataset — "Hospice care – Provider CAHPS Hospice Survey Data" (August 2026 release) — available on the CMS Provider Data Catalog. Every hospice below has a "SUMMARY_STAR_RATING" (Family Caregiver Survey Rating) of 5 out of 5 in that file. You can look up any individual hospice, or search by ZIP code, on Care Compare.
Retired educator gives back to grieving children at Camp Braveheart
09/20/26 at 03:20 AMRetired educator gives back to grieving children at Camp Braveheart WJAR-10, NBC, Cranston, RI; by Patrice Wood; 9/9/26 Young hearts come together at Camp Braveheart in Rhode Island and Massachusetts. And the first person to greet them when they get off the bus is Harry Potter. Potter is a retired Rhode Island school educator with a famous name and a heart of gold. They come Camp Braveheart to begin to heal after the death of a loved one. Braveheart is now in its 20th year and much of that time, Potter has been a trusted counselor. "The little kids think I'm magical. You see them running around the camp saying, 'Harry Potter, Harry Potter,'" Potter said. That connection eventually opens the door for a more serious conversation.
Perceived importance of good death components among patients with advanced cancer and family caregivers
09/20/26 at 03:15 AMPerceived importance of good death components among patients with advanced cancer and family caregivers JAMA Network; by Hammoda Abu-Odah, PhD, Gulbeyaz Can, PhD, Sotirios Plakas, PhD, Juanjuan Zhao, PhD, Xixi Wang, MSN, Alexandros Stergiou, MSc(c), Ourania Govina, PhD, Kimya Kilicaslan, PhD, Bahar Ozdemir, MD, Matthew J. Allsop, PhD, Mitsunori Miyashita, PhD, Alex Molassiotis, PhD, Janelle Yorke, PhD, and Frances Kam Yuet Wong, PhD; 9/14/26Importance: Although the concept of a good death is central to palliative care policy and practice, empirical evidence is largely derived from high-income Western or single-country contexts, limiting cross-setting relevance.Objective: To determine the importance of good death components, compare priorities across settings, and examine patient–caregiver differences and setting-by-role interactions. ... Conclusions and Relevance: In this cross-sectional study, patients with advanced cancer and family caregivers across 5 settings shared a broad aspiration for a good death, but priorities varied across settings. Emotional peace, dignity, and family connection were consistently highly valued. These findings suggest that culturally sensitive palliative care models should recognize both shared end-of-life priorities and setting-specific meanings of a good death.
Hospice Alliance marks 45 years of care Sept. 25
09/20/26 at 03:10 AMHospice Alliance marks 45 years of care Sept. 25 Racine County Eye, Pleasant Prairie, WI; 9/14/26 Hospice Alliance is celebrating 45 years of serving families in southeastern Wisconsin, marking an anniversary that dates to Sept. 25, 1981, when community members founded the organization to expand access to end-of-life care and family support. ... The organization’s services include care provided in private homes, assisted living and skilled nursing facilities, as well as at its Hospice Alliance Hospice House in Pleasant Prairie, according to the announcement. The nonprofit said it remains guided by a mission of “Adding Life to Days” and provides care regardless of a patient’s ability to pay.
CMS posts revised Model Election Statement and Addendum
09/20/26 at 03:05 AMCMS posts revised Model Election Statement and Addendum CMS; compiled by Guest Editor, Judi Lund Person; 9/10/26 CMS has posted the revised model election statement and addendum to the CMS website, which includes language for the mandatory addendum effective October 1, 2026. Hospice providers can use these model forms as the guide to the revised form. Pay particular attention to using the forms with an August 2026 date.
Sunday newsletters
09/20/26 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
Aviva Senior Living partners with Empath Tidewell Hospice to support Tikvah, Sarasota’s first Jewish hospice program
09/20/26 at 03:00 AMAviva Senior Living partners with Empath Tidewell Hospice to support Tikvah, Sarasota’s first Jewish hospice program NEWSnet, Sarasota, FL; by EIN Presswire; 9/15/26 Aviva Senior Living is proud to partner with Empath Tidewell Hospice, Sarasota’s leading provider of end-of-life care, to launch a new Jewish hospice program called Tikvah. Led by Sepi Ackerman, Director of Jewish Community Development at Tidewell Hospice, Tikvah is the first program of its kind in Sarasota. It offers specialized services to honor the wishes of Jewish patients and help keep them comfortable during their final days. ... The program provides many services, such as service boxes that bring religious traditions like Shabbat to a patient’s bedside, on-call clergy through a coalition of local rabbis, Jewish vigils, Jewish music, and more. Patients and families can join Tikvah for free as part of their existing Tidewell care.
I have learned a great deal from losing...
09/20/26 at 03:00 AMI don't think I've ever learned any deep, lasting, like-changing lessons on the crest of success. I have learned very little from winng, but I have learned a great deal from losing. ~Dr. Chuck Swindoll
Compassionate leadership: Is it compatible with profit-driven health care?
09/19/26 at 03:30 AMMissed opportunities for goals-of-care conversations in a patient with end-stage juvenile Huntington’s disease: A case report
09/19/26 at 03:25 AMMissed opportunities for goals-of-care conversations in a patient with end-stage juvenile Huntington’s disease: A case reportAmerican Journal of Hospice & Palliative Medicine; by Ignacio Borque, Nuria Perez ´ de Lucas, Alicia Gonzalez, Eduardo Bruera; 8/26Juvenile Huntington’s disease (JHD) is a rare, severe neurodegenerative disorder with early onset, high symptom burden, and a predictable trajectory toward advanced disability and premature death. Despite this, goals-of-care (GOC) conversations and advance care planning are often delayed, leading to reactive, crisis-driven decisions and increased emotional burden for families and clinicians. We present a 30-year-old woman with genetically confirmed JHD, diagnosed at age 14, who declined progressively over more than 15 years. Despite longstanding neurological follow-up and repeated hospital admissions, palliative care referral occurred only 20 days before death. Late palliative care integration limited anticipatory planning and shifted complex decisions into a stage with little room for deliberation, when cognitive and clinical deterioration constrained meaningful participation.
Palliative care and hospice utilization in patients with relapsed or refractory diffuse large B-cell lymphoma in the era of CART and novel immunotherapies
09/19/26 at 03:20 AMTop ten tips palliative care clinicians should know when caring for seriously ill patients with stimulant use disorders
09/19/26 at 03:15 AMTop ten tips palliative care clinicians should know when caring for seriously ill patients with stimulant use disordersJournal of Palliative Medicine; by Rebekka DePew, Nicole Dussault, Kyle Quirk, Erin Vipler, Josh Borris, Sandra DiScala, Teddy Scheel, Katrina Nickels, Gregg Robbins-Welty, Janet Ho; 8/26Stimulant use disorder (StUD) is common in the hospice and palliative care (PC) setting, though guidance for clinicians remains limited. Stigma around stimulant use is widespread and can lead to impaired clinician/patient communication, poor symptom control, and lower quality of care. PC clinicians should be able to diagnose StUD, understand the potential pharmacologic and nonpharmacologic management options, engage with patients in a trauma-informed way, and refer to addiction medicine colleagues when appropriate. When utilizing opioids for pain management, PC clinicians should be aware of the impact of stimulant use on opioid risk and toxicity. In this article, a multidisciplinary group of PC, hospice, addiction medicine, psychiatry, ethics, and pharmacy clinicians presents ten practical tips for caring for seriously ill patients with current or prior StUD.
Personalized sedation goals for agitated end-of-life delirium: Secondary analysis of RECORD trial
09/19/26 at 03:10 AMIntegrating care across the life course supports goal-aligned end-of-life care
09/19/26 at 03:05 AMIntegrating care across the life course supports goal-aligned end-of-life careNature - Communications Medicine; by M. Courtney Hughes; 7/26As global populations age and lifespan increases, health systems too often conceptualize “healthy aging” and “end-of-life care” as distinct phases. Yet emerging evidence from geroscience, palliative care, and health systems science suggests that aging and dying lie on a continuum of adaptation and care.
Saturday newsletters
09/19/26 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
The role of hospice and palliative care in addressing climate change
09/19/26 at 03:00 AMThe role of hospice and palliative care in addressing climate changeAmerican Journal of Hospice & Palliative Medicine; by Erik S. Carlson, Nisha Shah, Jill Denny, Aldebra Schroll, Daniel Mahoney, Sarah Schear, Kate Jennings, Collins Uzuegbu, David Harris, Bhargavi Chekuri, Cecilia Sorensen, Janet Bull, Chris Jones; 8/26Climate change is a defining global health challenge of our time, acting as a threat multiplier that erodes decades of health gains and worsens social inequities. People living with serious illness, the population served by Hospice and Palliative Care (HaPC) professionals, are particularly vulnerable to these impacts. While leading health organizations have acknowledged the public health implications of climate change, HaPC has remained largely absent from this discourse. This narrative review and framework proposal situates the field’s competencies within the growing climate and health literature and identifies avenues through which HaPC can contribute to addressing climate change. We argue that HaPC professionals — drawing on strengths in serious illness communication, interdisciplinary collaboration, and person-centered care — are uniquely positioned to advance equitable climate adaptation and mitigation at the individual, organizational, and societal levels.
