Erin and Travis Jean’s son, Felix, died in infancy from a rare skin disorder. Here’s what they’d like other families to know about losing a child.

Erin and Travis Jean’s son, Felix, died in infancy from a rare skin disorder. Here’s what they’d like other families to know about losing a child. 
The Boston Globe; by Kara Baskin; 7/12/24 
In March 2022, Erin and Travis Jean’s son, Felix, died at two-and-a-half months old from complications associated with epidermolysis bullosa (EB), a rare genetic skin disorder that causes severe peeling and blisters. He was cared for in the NICU at Mass General Hospital before spending his final days at home. ...

• "What do you want parents to take away from your story?"
• "Feel everything. ... It’s OK to set boundaries and do what feels right. There’s no right or wrong. There’s certainly no rulebook for parenting, or parenting after a loss. Just know that you did everything you could, and you’re doing things right." ...
• "What would you like families who haven’t endured the loss of a child to know about interacting with someone who has?"
• "My biggest piece of advice is to educate yourself on grief and loss. I think it’s the only thing that really ties us all together. It’s the only inevitable in this life."