Literature Review

North Texas doctor helps parents facing infant loss deal with the unimaginableCBS News - Texas; by Andrea Lucia, Lexi Salazar, Katie Standing; 2/25/25[Background story for parents Yvette and Thoms Ngo upon dealing with the news that their in-utero baby girl Zoe was diagnosed with Trisomy 13, would likely miscarry, or die soon after birth. Dr. Terri Weinman, their neonatologist offered rich palliative care interventions and support.] "When we met Dr. Weinman and her team the first time, she would say things like, 'So, what are we going to do when Zoey is here,' which changed my mindset completely," Yvette Ngo said. ... For the first time, the Ngos began to consider what Zoey's life, short as it might be, could look like. "It made us more comfortable with the situation, I mean as comfortable as you can be," Thomas Ngo said. "She just gave us hope." Zoey was born on April 18, 2024. She met her parents, her siblings and her grandparents. She was baptized. "They made us little crafts and mementos for us to take home, like footprints, really ways to help cherish Zoey's life," Yvette Ngo said. "They took her heartbeat and recorded it for us. Little things that we wouldn't necessarily think of." Zoey even had a chance to go home. But after 36 hours of life, Zoey passed away in her father's arms. The perinatal palliative care Zoey received remains rare. But for families like the Ngos, it provides a small sense of control when it's needed most. "Being able to plan so much in advance and think about all the different scenarios and how we wanted it," Yvette Ngo said. " I think, looking back on our time with Zoey..." "We wouldn't have done anything differently," Thomas Ngo said. Editor's note: Pair this with "Improving knowledge, confidence, and skills in perinatal bereavement care through simulation in baccalaureate nursing students," posted 2/24/25.

Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study BMC Palliative Care - Part of Springer Nature, Open Acces; by Annica Lagerin, Christina Melin-Johansson, Bodil Holmberg, Tove Godskesen, Elin Hjorth, Lena Junehag, Carina Lundh Hagelin, Anneli Ozanne, Johan Sundelöf & Camilla Udo; 2/19/25... This study aimed to gain an in-depth understanding of healthcare professionals’ (HCPs) experiences of existential conversations with patients with PC needs and their next-of-kin by generating a theoretical model. ... To emphasize the importance of ethical competence for quality patient care, particularly in PC, a combination of care ethics, clinical proficiency, relational skills and effective communication is essential. ... The potential obstacles we identified that require attention include the need for managers ... to support HCPs by allowing time for reflection, developing new routines, and providing education focused on existential conversations in PC. However, the main contribution of this study is the description of the interdisciplinary strategies HCPs used to establish meaningful, existential conversations by maintaining presence, as this paved the way for trusting conversations with patients and next-of-kin. Editor's note: Pair this with today's article "Why being trustworthy is a leadership hack that drives success."

How OU Health's Professional Practice Model is defining nursing excellence Health Leaders; by G Hatfield; 2/24/25 This model enables [Oklahoma University] OU Health to elevate nursing education, practice, and outcomes, says this CNE. ... Stefanie Beavers, DNP, RN, NEA-BC, chief nurse executive at OU Health, and HealthLeaders Exchange  ... The Concept: A professional practice model, according to Beavers, is an evidence-based practice that aligns organizational values with a framework driven by research and outcomes. The goal is to elevate nursing excellence and patient outcomes, but also to solidify the identity of the organization's teams. The OU Health Nursing Professional Practice Model was developed based on the Joanne Duffy Quality Caring Model, so that the organization could take caring behaviors and integrate them into OU Health’s values.

Improving knowledge, confidence, and skills in perinatal bereavement care through simulation in baccalaureate nursing studentsState Nurses Associations - Kansas State Nurses Association; by Shelby True, MSN, RN; Libby Rosen, PhD, RN, IBCLC; Ashley Seematter MSN, RN; Jeri Harvey & Karly Lauer, MSN, RN; 2/20/25Many baccalaureate nursing programs throughout the United States thread concepts of bereavement and end-of-life care throughout their curriculum. However, a standardized education program for nursing students that increases the knowledge, confidence level, and application of skills a nurse must possess when providing perinatal bereavement care is often absent from the curriculum (Sorce & Chamberlain, 2019).  Perinatal loss can have a profound impact on parents and their loved ones, leading to emotional, psychological, physical, and spiritual trauma that deeply affects the lives of those involved. The nursing care each parent receives at the time of the loss may be remembered for years to come and is crucial to determining the nature of the grieving process (Sorce & Chamberlain, 2019). ... To improve the knowledge, confidence, and skill level of nurses providing perinatal bereavement care, a role-play perinatal bereavement simulation was developed and implemented in two Midwestern universities’ baccalaureate nursing programs in the maternal/newborn courses. Editor's note: Having served our hospice's Pediatrics Team for four years, the grief of parents, grandparents, siblings affected me deeply. I remember vividly a young mom unable to physically leave her baby's body with the hospital's nurse. Gently, we held her baby together. Over the course of about 15 minutes, the mother gradually shifted the weight of holding her baby over to me, before the hardest task of her life--leaving the hospital without her child. (It was Christmas week. I bawled when I got home.) Visiting them at the funeral home and after in their home, I experienced horrible, disenfranchised comments and attitudes from others (especially a local preacher). Leaders: tune into your pediatric hospice and palliative team members. What specialized support and education do they need? And, we never know what personal stories of perinatal bereavement those around us continue to carry. 

Innovations in serious illness care with Bree Owens Teleios Collaborative Network (TCN); podcast by Chris Comeaux; 2/19/25 In this episode of TCNtalks, host Chris Comeaux interviews Bree Owens, a licensed clinical social worker and co-founder of The Holding Group.  They discuss Bree’s journey in the healthcare field, particularly in Palliative Care. Bree shares insights on learning the importance of meaningful conversations with patients and their families about care options, which led her to the unique model of The Holding Group.  Her organization has created space, hence the name The Holding Group, for a patient-centered approach, helping patients and their families find the right care at the right place and at the right time.  Bree emphasizes the significance of informed consent and the role of social workers in facilitating these discussions to enhance patient outcomes and satisfaction.

The talk nurses don't talk about enough: Death and dying Nurse.org - Nurse Converse podcast; by "Courtney" DNP, APRN, AGNP-C; 2/11/25 ... Nursing and medical curricula extensively cover subjects such as pathophysiology, pharmacology, and anatomy, yet they often fail to provide structured training on effective communication regarding death and dying. In the podcast, the hosts recall their own educational experiences, noting that they were not equipped with the tools or frameworks necessary to engage in these sensitive discussions. One telling example from a medical course on difficult conversations revealed that when students were asked if they had received any training on the subject, not a single hand was raised. 

Avow completes $35,000 training grant provided by FutureMakers Coalition Florida Weekly - Fort Myers Edition, Fort Myers, FL; 2/12/25 Avow recently completed the Healthcare Leadership course as part of a $35,000 grant awarded by FutureMakers Coalition at Collaboratory. Made possible by nearly $23 million in federal funding from the Economic Development Administration’s Good Jobs Challenge, FutureMakers Coalition connects those who need to reskill and/or upskill any, including underemployed and unemployed, Southwest Florida residents with training for industry-recognized credentials and, ultimately, careers with local employers committed to this partnership.

At-home care providers focus on unlocking worker potential, learn from failed initiatives Home Health Care News; by Audrie Martin; 2/11/25 With ongoing caregiver staffing and retention challenges, at-home care organizations are looking to leverage the employees already on the payroll, maximizing their potential in order to benefit from the full range of their skills. ... “At the end of the pandemic, we were experiencing high levels of burnout,” John Gochnour, president and COO of Pennant, said ... “We asked employees what we needed to focus on as an organization, and our focus became how we develop C-suite level leaders. We started the tagline 100 CEOs. We’ve expanded that now to include chief clinical officers (CCO) and chief business development officers.” ... “We looked at our clinical workforce,” he said. “It’s filled with people who go out every day and change the lives of their patients. And the question we asked was, how do you ensure those people are led by leaders who inspire them, motivate them and help them live up to their potential?” ...

Researchers outline new research priorities in neuropalliative care UNC Health and UNC School of Medicine, Chapel Hill, NC; by Winnie K. Lau, MD and David Y. Hwang, MD2/7/25... An emerging field, termed “neuropalliative care,” has taken shape over the past few years to help provide impactful, holistic care for patients with serious neurological disease. And now, experts in the field are seeking ways to improve the overall wellbeing of their patients and loved ones through the power of research. ... A special communication in JAMA Neurology, first-authored by Winnie K. Lau, MD, a neurocritical care physician and associate professor of neurology and senior-authored by David Y. Hwang, MD, professor of neurology and division chief of neurocritical care, describes needed research that can help advance patient care, including:

Special Series: Betty Ferrell Journal of Pain and Symptom Management; 1/25, reposted in our newsletter from our Saturday Research Issue, 2/1/25 [A wonderful collection of articles honoring Betty Ferrell, including:]

Does confronting mortality make our lives more meaningful? | The Ethical Life podcast SC Now, Florence, SC; podcast hosts Richard Kyte and Scott Rada; 1/29/25 Hosts Richard Kyte and Scott Rada discuss how our awareness of mortality shapes the way we live. Kyte begins by discussing how ancient philosophers, particularly the Stoics, believed we should keep death constantly in mind, [helping] us avoid self-deception about our mortality and the tendency to become overly attached to material possessions and markers of success. Later, the hosts discuss how major religions have grappled with the question of what happens after death. ... Rada and Kyte share their personal reflections on mortality. ... Kyte says he ponders it daily, not in a morbid way, but to remind himself to use his finite time wisely. They discuss how people near the end of life often shift their priorities to relationships, forgiveness and small joys. 

Remembering the Holocaust with little-known story about a Jewish refugee and Cicely Saunders: Honoring the International Holocaust Remembrance Day - 80th Anniversary of the liberation of Auschwitz

Stories of bereavement: Examining medical students’ reflections on loss and griefOmega-Journal of Death and Dying; Johanna Shapiro, Nicholas Freeman, Alexis Nguyen, Nancy Dang, Yasaman Lorkalantari; 12/24Medical students in this study reported similar reactions to personal and professional loss, with some expected differences, such as students who experienced professional loss more often noting compassion for others and more frequently discussing managing the feelings of others, the importance of skill acquisition, processing personal emotions and team support. Students experiencing personal loss understandably appeared more focused on their own grief and more often commented about feelings of helplessness and numbness. Students in both groups reported little about how they coped with their grief or about receiving either informal or institutional support. The similarity of the essays, while due to many factors, may suggest internalizing pressures to conform to socially desirable narratives. Medical educators and clinical supervisors should help students develop effective coping skills in response to loss, provide better institutional support, and encourage students to tell authentic stories about their experiences of loss and grief.