Literature Review

Improving community-based palliative care explanations: Insights from persons declining servicesAmerican Journal of Hospice & Palliative Care; by Kira G Sheldon, Kathryn H Bowles, Elizabeth A Luth; 8/25Beneficiaries and caregivers had mixed understandings of palliative care, including: no knowledge, belief that it was the same as or pre-hospice, and accurate, but often one-dimensional understandings of it. Participants recommended providing individualized, tailored explanations focused on the person's health concerns in simple language with follow-up materials to improve engagement with palliative care. Small adjustments to how palliative care is explained may increase understanding among older adults and caregivers, particularly among those with limited or inaccurate knowledge. Among those familiar with palliative care, providing accessible and clear explanations customized to the person's specific care needs can further broaden understanding and increase perceived relevance.

Training and practice gaps in nursing home palliative care: A cross-sectional study Journal of the American Geriatrics Society (AGS); by Manali Saraiya, Molly A. Nowels, Rose L. Carlson, Jerad H. Moxley, Catherine A. Riffin, Evan Plys, M. Carrington Reid, Isabella Hastings, Taimur Mirza, Ronald D. Adelman, Daniel Shalev; 9/7/25 We conducted a cross-sectional survey of clinical employees (N = 398) at seven NHs within a single integrated health system in New York State to (1) gauge attitudes toward and knowledge about palliative care, (2) estimate the extent of engagement with advance care planning, and (3) elicit perceptions of the most valuable components of palliative care for NH residents. ... Despite support for palliative care, gaps in knowledge and clinical engagement persist and vary by discipline. Discipline-tailored training and program design may improve palliative care delivery in NHs and help ensure more consistent, value-aligned care for residents with serious illness.

What do physicians want at the end? An international qualitative study on physicians’ personal end-of-life preferences and what influences them Palliative Care and Social Practice; by Sarah Mroz, Frederick Daenen, Sigrid Dierickx, Freddy Mortier, Ludovica De Panfilis, Luca Ghirotto, Toby Campbell, Kenneth Chambaere, and Luc Deliens; 7/4/25 Research Results: ... Most physicians prefer to avoid aggressive and life-prolonging treatment, physical and mental suffering, and being a burden. They prioritize being in a peaceful environment and communication with loved ones. Various factors influence preferences including cultural, social, and religious beliefs, and legislative environment, but most significant are the deaths of loved ones and clinical practice. Death and dying become normalized the more they are reflected upon and discussed, and this process can also provide personal growth which helps physicians provide better care to patients and families.

Simulation, flipped classroom, and reflective dialogue in socioemotional training in end-of-life care: Perspectives of nursing students Journal of Hospice & Palliative Nursing (HPNA); by María Lanza, Rebeca Abajas, Mar Aparicio Aparicio, Ángeles Melero, Carmen Ortego; 8/1/25The implementation of active methodologies in end-of-life education can play a crucial role in stimulating participatory learning and facilitating the acquisition of socioemotional competencies. ... From the students’ perspective, simulation, reflective dialogue, and flipped classroom enhance the conceptual learning process and facilitate students’ socioemotional preparation to face this complex and challenging professional situation. Editor's Note: Today’s tech-savvy nursing students show that simulation, reflective dialogue, and flipped classrooms build the person-centered qualities hospice and palliative care need. Use these methods—inside and outside the classroom—to improve patient/family care, teamwork, and self-care. For more information: 

Would you go to a local Death Cafe? It's a chance to eat cake and talk end-of-life issues Times Telegram, Utica, NY; by Amy Neff Roth; 8/12/25 Key Points:

Monastery dig uncovers details about 8th century end-of-life care Care Home Professional; by Stephen Hall; 8/4/25 Archaeologists have picked up their trowels to learn more about how people lived, died and were cared for at the site of an 8th-9th century monastery in Cookham. The remains of the monastery were first discovered in 2021 in a test excavation by staff from the University of Reading’s Archaeology Department and volunteers from local archaeological societies. ... Thomas Hayes, director of the university’s field school, told the BBC this year they had found evidence of illness and treatment in human remains, including bedsores, suggesting palliative care may have taken place.

S.2287 - Palliative Care and Hospice Education and Training Act Congress.gov, 199th Congress (2025-2026); bill sponsored by Sen. Tammy Baldwin; introduced 7/15/25 Introduction: To amend the Public Health Service Act to increase the number of permanent faculty in palliative care at accredited allopathic and osteopathic medical schools, nursing schools and other programs, including social work, physician assistant, and chaplaincy education programs, to promote education and research in palliative care and hospice, and to support the development of faculty careers in academic palliative and hospice care. [Click on the title's link the full document.]

Be on the lookout for this new Medicare scam Las Vegas Review-Journal; by Toni King; 7/24/25 Dear Toni: A hospice agent recently came knocking on the doors in my neighborhood saying he represented Medicare. He was giving away hospice gifts and told me that I could receive these Medicare services at no charge for me and my husband. I told him that I did not give out personal information to anyone that I do not know. Now, I’m concerned that I could have made a mistake. Should I call and ask if this Medicare service is still available? —Deidre, Katy, Texas Dear Deidre: Medicare is not giving away anything free! This is a new scam that is targeting America’s Medicare population.  ...Editor's Note: Though we’ve addressed this topic repeatedly in recent months, ongoing awareness and community education remain essential. Please continue seeking opportunities to collaborate with media outlets in your service areas to help inform and protect vulnerable populations. Use the following articles—previously featured in our newsletter—as reference points:

Carter, Bera introduce bill to strengthen palliative and hospice care workforce United States Representative Buddy Carter, Washington, DC; Press Release; 7/17/25Reps. Earl L. “Buddy” Carter (R-GA) and Ami Bera, M.D. (D-CA) today introduced the Palliative Care and Hospice Education and Training Act (PCHETA), bipartisan legislation to invest in training, education, and research for the palliative care and hospice workforce, allowing more practitioners to enter these in-demand fields. ... "As a pharmacist, I understand the toll burnout takes on the health care industry, and I am committed to bolstering the workforce so nurses, doctors, and all health care workers can continue to pursue their passion for helping others,” said Rep. Carter. "As a doctor, I know how important it is to provide patients with comfort, clarity, and support when they’re facing serious illness,” said Rep. Bera. “The Palliative Care and Hospice Education and Training Act is a smart, bipartisan step to ensure more health care professionals are trained to deliver this kind of care."Editor's Note: Bravo to this pharmacist and physician bipartisan team for introducing this bill. Go to the article and scroll down to this press release's long list of "Supporting Organizations."

‘Little Golf’ and Grill brings community together for hospice The Monroe Times, Monroe, WI; 7/11/25 The Monroe Clinic & Hospital Foundation’s annual “Little Golf” and Grill event, held on June 17, once again brought together community members for an evening filled with laughter, camaraderie, and purpose. The event began with an afternoon of mini golf at Swissland Miniature Golf in New Glarus. Hospice volunteers and staff provided games and fun facts about hospice throughout the course until the Alp Horns signaled the transition to a festive dinner and program under the tent at Chalet Landhaus Inn. During the program, the Colden Family shared their hospice story and gratitude for their loved one’s care so that “they could be family, not caretakers”. Thanks to the generous support of local businesses, donors, and attendees, the event raised $78,853 in support of local hospice care. This brings the total raised over the event’s 33-year history to more than $1,084,000.

[India] Enhancing palliative care through university-community partnerships: A systematic review of models, impacts, and challengesBMC Palliative Care; Alaka Chandak, Priyadarshini Bhalchandra Kulkarni; 6/25This systematic review highlights the deep potential of university–community partnerships (UCPs) to act as agents of change in palliative care education and service provision. Such collaborations complementarily improve the quality of life of the elderly while availing healthcare students with essential experiential learning opportunities. Exceptional models, such as the CARE program, illustrate the double benefit of improved community welfare and the creation of effective empathetic professionals with the capability to cater to the complex demands of caring.

Avera Medical Minute: Family shares their experience with hospice care Dakota News Now, Sioux Falls, SD; by Dakota News Now staff; 6/30/25 Hospice care is more than just medical support. At the Dougherty Hospice House, it can be considered a home away from home, where staff aim to offer patients and their families the assistance and comfort they need during this difficult time. In this Avera Medical Minute, one Sioux Falls family shares how, thanks to the hospice team, they were able to focus on spending time with their loved one. Craig Lloyd was known as a development leader in the Sioux Falls community, building homes and more throughout the city. “He had a big heart, so he just kept trying to improve things, his thought was always ‘God put me on this Earth to make it better,’” said Craig’s wife, Pat Lloyd. ... Craig was also in Florida at the time when he needed hospice care and Pat credits the work of Avera and the hospice team in making a smooth transition for Craig from there to home in Sioux Falls and then to Dougherty Hospice House.

Students organize death café to discuss the inevitable Fairfield University, Fairfield, CT; by Brad Thomas; 6/27/25 The annual event gathered more than 50 students and faculty from assorted disciplines for meaningful conversations about death and dying. ... [Student Jillian O'Brien '25] helped organize the second annual Death Café during her final semester at Fairfield. She and her classmates in “End-of-Life Communication,” an interdisciplinary course taught by Michael Pagano, PhD, wished to build on the success of last year’s event by continuing to create a space for meaningful conversation about death and dying. At the event, they led thoughtful table discussions about how their perspectives and ways of communicating about death have evolved.