Literature Review

All posts tagged with “Education | Community.”



Celebrating Father’s Day when Dad is on hospice

06/13/25 at 03:00 AM

Celebrating Father’s Day when Dad is on hospice Roze Room Hospice, Culver City, CA; retrieved from www.rozeroom.org on 6/12/25Father’s Day is often synonymous with backyard cookouts, gifts, cards and large family gatherings. Honoring your father or a father figure means celebrating the role this important person has played in your life. It can be a sentimental day where we slow down and consider the gift this person has been in our lives. But if your father is in hospice care, Father’s Day can take on even more significance. You may believe the day will be filled with sadness and unease. But truly capturing this day will be a gift to your dad and all those who love him. Here are five ways to celebrate Father’s Day when your dad is on hospice.

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Four Seasons offers virtual dementia training

06/12/25 at 03:00 AM

Four Seasons offers virtual dementia training Four Seasons, Flat Rock, NC; Press Release; 6/10/25 Four Seasons is excited to now offer Virtual Dementia Training to the community! The Virtual Dementia Tour (VDT) is a patented, ground-breaking, and evidence-based method of building a greater understanding of dementia. This training will be provided free for community groups or faith-based communities. There is a cost for external healthcare staff training. Learn more or schedule a training by contacting Mary Jo Powers (Four Seasons Director of Home Care) or Jenny Martin (Four Seasons Home Care Recruitment & Training Coordinator) at 828.696.0946 or HomeCareVM@FourSeasonsCFL.org. ... “Virtual Dementia Training helps caregivers better understand what their patients’ and loved ones’ lives are like. The training helps foster empathy and patience to ensure the best care and quality of life for those living with dementia. We are honored to bring this impactful training to our communities,” says Dr. Ruth Thomson, DO, MBA, HMDC, FAAHPM, FACOI, Four Seasons Chief Medical Officer.

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Surviving grief: A guide for older Coloradans, or anyone, experiencing loss

06/10/25 at 03:00 AM

Surviving grief: A guide for older Coloradans, or anyone, experiencing loss CPR News; by Nell London; 6/8/25 ... “Grief really is a universal experience,” said Jenn Flaum, executive director of the HeartLight Center, a Colorado nonprofit that provides grief support and education. Grief afflicts people at every age, but the longer you live, the more likely you will find yourself facing this powerful emotion. Indeed, many older people can feel under siege. ... Here are takeaways ... :

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Sister Grace spent her life helping the homeless. Now in hospice, she reflects on legacy and lessons

06/09/25 at 03:00 AM

Sister Grace spent her life helping the homeless. Now in hospice, she reflects on legacy and lessons WXXI News NPR, Rochester, NY; by Gino Fanelli; 6/6/25Sister Grace Miller smiles as she props herself up in her hospice bed and gently teases her strands of chestnut brown hair. “How does my hair look?” she asks. It’s the type of remark one would expect from Miller. Sister Grace is many things: a radical compassionate, a devout follower of the Catholic faith, a civil disruptor, and a wielder of a sharp, slightly sardonic wit. ... The 89-year-old champion for the homeless and destitute is dying, in hospice care at a congregation home on Carter Street. But her spirit is alive and well. “I would fight with them over whatever, whatever the people needed,” Miller said, referring to the county and city administrations she often tangled with over the years. “I would fight for the people. ... She said it was, ultimately, an undying, uncompromising commitment to the work she does as a fierce and fearless advocate for the poor.

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Death literacy is fostering positive conversations about the end

06/09/25 at 03:00 AM

Death literacy is fostering positive conversations about the end Counterpunch; by Caren Martineau; 5/30/25 “[D]eath literacy is defined as the knowledge and skills that make it possible to understand and act upon the end-of-life and death care options,” according to a 2024 article in the journal Palliative Care and Social Practice, and its four foundational pillars: knowledge, skills, experiential learning, and social action. ... The U.S. Census named 2024 as the start of “Peak 65,” a period that will last through 2027. Around 4.1 million Americans are expected to turn 65 each year from 2024 to 2027 (approximately 11,000 a day). By 2030, all baby boomers will be 65 or older. Implications of “Peak 65” include:

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For Public Awareness: If you think you may have experienced Medicare hospice fraud, call 1-800-Medicare to report it.

06/06/25 at 02:00 AM

Public: If you think you may have experienced Medicare fraud, call 1-800-Medicare to report it. Posted on X; by Mehmet Oz, "DrOzCMS"; 6/2/25 There’s a Medicare scam out there that can really hurt people, and I want to make sure you’re aware! People are targeting older Americans to trick them to sign up for Hospice without their knowledge.   If you think you may have experienced fraud, call 1-800-Medicare to report it.  To learn more, go to http://Medicare.gov/fraud.

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Experts warn of scams during Medicare Fraud Prevention Week

06/05/25 at 03:30 AM

Experts warn of scams during Medicare Fraud Prevention Week Public News Service; by Suzanne Potter; 6/4/25 Medicare loses $60 billion to $80 billion a year to fraud and this year, for Medicare Fraud Prevention Week, your local Senior Medicare Patrol has good advice on how to spot a con. There are plenty of scams to be aware of. Karen Joy Fletcher, communications director with the nonprofit California Health Advocates, said beware if a caller asks to verify your Medicare number, claiming the program needs to send out a new type of card. ... ... Caregivers can be on the lookout for medical equipment arriving at the house even though the beneficiary never ordered it. Another red flag? A stranger may approach you in a parking lot asking you to sign up for new, free Medicare services like house cleaning or meals, which are then fraudulently billed to the government. ... Another scam involves tricking people into unknowingly signing up for hospice care. It is especially dangerous, because once a person is on hospice, Medicare will only approve palliative care and could mistakenly deny an essential surgery or medication.

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[UK] Students face the realities of hospice care in powerful visit

05/29/25 at 03:00 AM

[UK] Students face the realities of hospice care in powerful visitDevonLive; by Lewis Clarke; 5/27/25 A visit to Exeter Hospice gave South Devon UTC students a moving insight into care careers—and the deep compassion behind them. Students from South Devon UTC in Newton Abbot have been given a rare glimpse into the realities of end-of-life care during a visit to Exeter Hospice, in what educators described as an eye-opening and inspiring experience. The visit formed part of the students’ health and social care curriculum and broader enrichment programme. Involving pupils from Years 10 to 13, the day provided an in-depth look at the range of careers within the hospice setting—from nursing and palliative care to occupational therapy, physiotherapy, counselling, and volunteer coordination.

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Mount Sinai establishes Steven S. Elbaum Family Center for Caregiving

05/26/25 at 03:00 AM

Mount Sinai establishes Steven S. Elbaum Family Center for Caregiving Mount Sinai, New York, NY; Press Release; 5/20/25 Mount Sinai announced that it will establish the Steven S. Elbaum Family Center for Caregiving, a groundbreaking initiative designed to improve how America's health care system recognizes and supports caregivers. Allison J. Applebaum, PhD, an expert in the psychological needs of caregivers and a Professor of Geriatrics and Palliative Medicine at the Icahn School of Medicine at Mount Sinai, will lead the new Center. Dr. Applebaum joined Mount Sinai in early September from Memorial Sloan Kettering Cancer Center, where she was the founding director of the Caregivers Clinic, an innovative program providing targeted psychosocial care to family caregivers of patients with cancer, from diagnosis through bereavement.  

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Experts discuss what hospice and palliative care are and how they can help

05/26/25 at 03:00 AM

Experts discuss what hospice and palliative care are and how they can help ideastream public media; by Leigh Barr; 5/21/25Contemplating a life-limiting or life-changing illness or even death can be difficult topics for Americans.  Last year, USA Today conducted a survey which found about 30% of Americans surveyed found it difficult to talk about or even contemplate their own mortality. When it comes to managing serious illness or the final phase of life, surveys show that a majority of Americans say they have at least heard of hospice or palliative care but most admit they may not know a lot about either topic. We're going to talk about both to begin Wednesdays “Sound of Ideas” and try to dispel some of the myths that may surround hospice and palliative care. 

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NorthStar Care Community launches 'Life's Big Moments' campaign to initiate nationwide conversation about end-of-life hospice care

05/20/25 at 03:00 AM

NorthStar Care Community launches 'Life's Big Moments' campaign to initiate nationwide conversation about end-of-life hospice care PR Newswire, Ann Arbor, MI; by NorthStar Care Community; 5/19/25 NorthStar Care Community has launched Life's Big Moments, a campaign that celebrates the beauty of life's journey from the big milestones to the small, everyday moments that leave the deepest impact on our well-being and purpose. The campaign aims to initiate conversation and awareness around end-of-life care while also raising money to benefit the members of NorthStar Care Community. Companies, organizations, and individuals are invited to support these efforts throughout the campaign, focusing on recognizing the needs of our Veterans.

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6 ways to successfully implement clinical communication tools

05/20/25 at 03:00 AM

6 ways to successfully implement clinical communication tools Forbes; by Judit Sharon; 5/19/25 In the high-stakes environment of healthcare, communication breakdowns can have life-or-death consequences. Yet too often, hospitals and healthcare systems assume that simply deploying new clinical communication and collaboration (CC&C) tools will solve the problem. The reality is more complex: Successful implementation depends just as much on operational alignment, cultural change and thoughtful execution as it does on the technology itself. To turn communication tools into real transformation, here are six ways to drive successful CC&C adoption.

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What is at-home hospice care and how it works near NYC

05/20/25 at 03:00 AM

What is at-home hospice care and how it works near NYC Medical Device News Magazine; 5/19/25 

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Dementia patient discharged from hospice over Medicare requirement. Here’s why it happened

05/15/25 at 03:00 AM

Dementia patient discharged from hospice over Medicare requirement. Here’s why it happened WKMG-6, Deltona, FL; by Erika Briguglio and Louis Bolden; 5/14/25A Volusia County family is left scrambling after their loved one is abruptly dropped from hospice care. To qualify for hospice, patients must have a life expectancy of six months or less. However, for dementia patients, the prognosis can be unpredictable. Hospice care can be extended as long as the patient continues to meet Medicare requirements. Unfortunately, these requirements are why Amy Yates lost coverage for her 91-year-old grandmother. ... “I think it’s she hasn’t died fast enough, and it’s costing them money that they don’t want to spend,” Yates told News 6. ... What Yates’ family is dealing with is what Medicare calls live discharge, and they are not alone. The Hospice Foundation of America reports that 17% of people in 2022 who were admitted to hospice care were discharged; about 6% of the total caseload was discharged because they no longer met Medicare requirements for care under the hospice benefit.Editor's note: What are your hospice stats for live discharges? For Length of Stay (LOS)? This factor--with the face-to-face recertification requirement--is crucial. Unfortunately, many hospices misused President Jimmy Carter's extraordinarily long LOS with misleading information about hospice care. They watered down "end-of-life" care and never mentioned anything about a basic recertification process. Warm, user-friendly language can be used with integrity, authenticity, and patient/caregiver support.

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Interim HealthCare expands Alzheimer’s offerings through new partnership

05/02/25 at 03:00 AM

Interim HealthCare expands Alzheimer’s offerings through new partnership Home Health Care News; by Audrie Martin; 4/30/25 Interim HealthCare has expanded its Alzheimer’s care program through a new partnership with the Alzheimer’s Association. The partnership, announced on Wednesday, will enable Interim to bolster its existing Alzheimer’s offerings through additional educational programs and opportunities to participate in Alzheimer’s Association events.

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A powerful film chronicles one man’s last days within a loving community for all to witness.

05/02/25 at 03:00 AM

A powerful film chronicles one man’s last days within a loving community for all to witness. Monterey County Now, Seaside, CA; by Pam Marino; 5/1/25 Facing certain death from a brain tumor, Ethan “E3” Sisser adopted a mantra. “I am embodied. I am empowered. I am ecstatic,” the 36-year-old would tell himself, in order to ward off oncoming seizures, carry himself through pain or recite for his many followers on social media. “E3” became his nickname. We see Sisser, looking into the camera, recite the mantra early in the documentary, The Last Ecstatic Days, released in 2024. We also meet his hospice and palliative care physician, Aditi Sethi, who leaves her position to become his death doula and friend. She fulfills his wishes for a peaceful death surrounded by a caring community, filmed for others to learn from. Director Scott Kirschenbaum – who made one of the definitive documentaries about birth, These Are My Hours – spent the last two weeks of Sisser’s life near his side with a camera, capturing each moment.

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[United Kingdom] New UK Centre hopes to change public attitudes towards grief

04/29/25 at 03:00 AM

[United Kingdom] New UK Centre hopes to change public attitudes towards grief University of Bristol, Bristol, UK; Press Release; 4/24/25 Grief affects everyone but is still very much a taboo subject in the UK. A new Centre - the first of its kind in the UK - hopes to shift public attitudes towards grief and create communities that are compassionate and connected in their support of people who are bereaved. The Centre for Grief Research and Community Engagement (Grief Centre) at the University of Bristol is launched today [24 April]. The Grief Centre will focus on interdisciplinary and multidisciplinary research into grief, death and loss, aiming to increase understanding of these fundamental aspects of being human and provide the space for new thinking, ideas and approaches.

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Prevention of acute hospital transfers for long-term care residents at the end of life

04/24/25 at 02:00 AM

Prevention of acute hospital transfers for long-term care residents at the end of life American Journal of Hospice and Palliative Medicine (AJHPM); by Kirsten Lanpher, DMS, MSPA, PA-C and Kirsten Brondstater, DMS, MSPAS, PA-C; 3/24/25 Findings: Long-term care residents are a vulnerable population with advanced comorbidities who often require high acuity care and are subject to preventable transfers to the hospital at the EOL. These disruptions in EOL care cause harm and complications, negatively impacting quality of care. The consequences of these events can be mitigated with early advance care planning to include documentation of EOL care goals, onsite medical clinicians to make critical decisions and provide care within LTC facilities, and adequate staffing with proper palliative and hospice care training. Conclusion: Immediate action is needed to advocate for this high risk population and implement interventions to prevent hospital transfers at the EOL, therefore improving quality of care and positively influencing LTC residents’ EOL experience.

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When they don't recognize you anymore

04/23/25 at 02:30 AM

When they don't recognize you anymore The New York Times - The New Old Age; by Paula Span; 4/20/25 People with dementia often forget even close family members as the disease advances. "It can throw people into an existential crisis," one expert said. [Additional access may require subscription.]

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Closing the gap in end-of life care coverage: The role of nonprofits in policy advocacy

04/15/25 at 03:00 AM

Closing the gap in end-of life care coverage: The role of nonprofits in policy advocacy Forbes; by James Dismond; 4/14/25... As the demand for end-of-life care grows, so will the gap between the care that patients need and what they receive. ... Workforce shortages, restrictive regulations, outdated reimbursement models and misconceptions around hospice services are keeping millions of Americans from accessing quality hospice and palliative care services. ... These barriers disproportionately affect low-income families, rural communities and communities of color. ... Unlike for-profit entities, we can prioritize community needs over shareholders. We can prioritize patient well-being over profits—or, to say it more directly, we put people over profits. And I’ve seen firsthand how advocacy can drive progress. Nonprofits must engage in:

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Family Hospice partners with Alzheimer’s Association to expand educational outreach

04/10/25 at 03:10 AM

Family Hospice partners with Alzheimer’s Association to expand educational outreach EIN Presswire.com, Atlanta, GA; by Brittany Brown; 4/8/25 Family Hospice announces an official partnership with the Alzheimer’s Association, Georgia Chapter, to enhance educational outreach and raise awareness of available resources for individuals facing Alzheimer’s or other dementia.This collaboration will provide families, caregivers, and healthcare professionals with critical information on hospice and Alzheimer’s and dementia-related support. As part of this effort, Family Hospice and the Alzheimer's Association are planning an upcoming statewide initiative in Georgia aimed at expanding awareness and support. Both organizations will share educational materials at community events and through social media to ensure families and caregivers have access to the guidance they need. [Continue reading ...]

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Conversations today to empower tomorrow: VITAS Healthcare elevates National Healthcare Decisions Day

04/10/25 at 02:00 AM

Conversations today to empower tomorrow: VITAS Healthcare elevates National Healthcare Decisions Day VITAS Healthcare; Press Release; 4/7/25 Only one in three adults in the United States have a written advance directive, a document critical in providing guidance to medical teams regarding one’s end-of-life wishes. As a pioneer and national leader in hospice and palliative care, VITAS Healthcare advocates for National Healthcare Decisions Day (April 16) and advance care planning––regardless of a person’s age or health status....  On April 16, VITAS will host a free webinar, Advance Directives and Advanced Care Planning, exploring the history, application and types of advance directives. VITAS Regional Medical Director Heather Veeder, MD, will provide practical advice to help healthcare professionals engage in difficult but necessary conversations with patients and families/caregivers. [Continue reading ...]

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Art meets history, grief, boots and landscapes at First Friday Artwalk

04/09/25 at 03:00 AM

Art meets history, grief, boots and landscapes at First Friday Artwalk Steamboat Pilot & Today, Northwest Colorado; by John Componeschi; 4/3/25  April’s First Friday Artwalk will celebrate artistic diversity and storytelling, both of which form the framework of the Yampa Valley’s creative arts community. [Published 4/3/25, before Fri. 4/4/25] ... An emotionally powerful exhibit entitled “Good Grief” will open at the Depot Art Center, ... The works of Krystal Mackey will be presented in partnership with Northwest Colorado Health’s Hospice program. Mackey, who has a background in design and architecture, created the series as an emotional coping outlet. Her pastel on sanded paper and digital drawing pieces offer the viewer an honest and vulnerable exploration of grief. Selected works were displayed during “Tuesdays with Morrie” at Perry-Mansfield in March. “Grief may be scary, sad and hard to look at,” said Mackey. “But it’s worth it.” Influenced by artists Chagall, Kandinsky, Warhol and Lichtenstein, Mackey’s style combines vibrant color with feeling- and grief-based introspection. The exhibit invites viewers to reflect on whether grief has affected them and if they would benefit from talking about their experiences with it.

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What to do if a loved one is evacuated from a nursing home or assisted living

04/07/25 at 03:10 AM

What to do if a loved one is evacuated from a nursing home or assisted living AARP; by Emily Paulin; 1/10/25, updated 1/23/25 Running from a wildfire is a terrifying ordeal for anyone. But there’s added fear for those who have limited mobility, rely on medical equipment or suffer from dementia and struggle to comprehend what is happening. ... Evacuating these vulnerable, high-needs residents is a complex and precarious operation. Family members may be unsure of how to find their loved one or what to do to support them in a disaster situation. We’ve gathered advice from disaster response and long-term care experts on five topics to help family caregivers navigate these situations.

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Terri Schiavo's death 20 years ago sparked lingering debate about death and politics

04/07/25 at 03:00 AM

Terri Schiavo's death 20 years ago sparked lingering debate about death and politics USA Today; by Marc Ramirez; 3/31/25 Monday [March 31st marked] 20 years since the death of Terri Schiavo, whose landmark case became the symbol of the "right to die" movement, generated political controversy and sparked public outcry as her husband and family members took their fight over her fate to the courts. Schiavo died on March 31, 2005, after a dragged-out legal and political battle ... The case thrust discussions about end-of-life care into the public consciousness, a topic that continues to provoke heightened emotions among Americans. “It became the most reviewed, debated end-of-life case in history,” said Arthur Caplan, who heads the division of medical ethics at New York University’s Grossman School of Medicine. [Continue reading ...]

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