Literature Review

Palliative care legislation exploding at state level, but policy gaps remain, study reveals McKnights Home Care: by Adam Healy; 10/27/25 States are becoming increasingly focused on palliative care. Since 2009, the number of palliative care-related bills introduced at the state level has grown at a rapid pace, according to a new study published in JAMA Network Open. ... Of the 819 bills introduced between 2009 and 2023, roughly 30% were eventually passed into law. ... Bills related to palliative care quality and public awareness bills were the most likely to pass, it found. Meanwhile, relatively few bills governing palliative care workforce, clinical skill building and patient rights passed during the study period.

WHO strengthens palliative care across the eastern Mediterranean to improve quality of life fundsforNGOs; Press Release; 10/29/25 The Seventy-second session of the WHO Regional Committee for the Eastern Mediterranean marked a historic step forward for health systems in the Region, as Member States endorsed resolution EM/RC72/R.4 on palliative care. The decision represents a transformative commitment to support individuals living with life-limiting illnesses, chronic conditions, and frailty, ensuring that care extends beyond treatment to dignity and compassion. ... [While] 2.4 million people in the Region need palliative care each year, less than 1% currently receive it. ... The resolution calls for countries to integrate palliative care into national health strategies, guarantee access to essential medicines such as oral opioids, and incorporate palliative care education into health professional training.

Hospice organizations: 5 tips for building a direct-to-consumer campaign McKnights Home Care; by Andrew Robinson; 10/22/25 [... Why] are so many hospice organizations so reliant on waiting for families to find you through referrals? Referrals usually come too late. And families are left scrambling to make sense of their options. This is why direct-to-consumer marketing is not only appropriate, it’s essential. Here are five tips on how to effectively create and execute hospice direct-to-consumer marketing.

Hospice market expands at 9.6% CAGR, projected to hit USD 182.1 billion Market.Us Media; by Trishita Deb; 10/26/25 The Global Hospice Market is projected to reach USD 182.1 billion by 2033, growing from USD 72.8 billion in 2023 at a CAGR of 9.6%. ... Challenges:

Correctional health and oncologist perspectives on strategies to improve cancer care in US prisons-A qualitative studyJAMA Network Open; by Christopher R. Manz, Brett Nava-Coulter, Emma Voligny, Daniel A. Gundersen, Alexi A. Wright; 10/25Individuals diagnosed with cancer while incarcerated in US prisons have worse mortality than nonincarcerated individuals. In this qualitative study of clinicians delivering cancer care for incarcerated individuals, participants identified pragmatic strategies to improve cancer screening and treatment that address most identified barriers to care in US prisons. Application of these strategies may be associated with mitigation of disparities in cancer survival for incarcerated individuals. Participants identified strategies to improve care addressing nearly all previously identified barrier themes, including strategies for (1) conducting screening in prisons; (2) bringing cancer treatment into prisons and centralizing care; (3) using telehealth, navigators, and early oncologist involvement to improve care coordination; (4) improving communication and social support; (5) improving symptom management, access to palliative medicine, and end-of-life care; and (6) delivering patient-centered care. Strategies require implementation by prisons, prison clinicians, oncologists, oncology practices, and policymakers.

Should an AI copy of you help decide if you live or die? Doctors share top concerns of AI surrogates aiding life-or-death decisions. Ars Technica; by Ashley Belanger; 10/20/25 For more than a decade, researchers have wondered whether artificial intelligence could help predict what incapacitated patients might want when doctors must make life-or-death decisions on their behalf. It remains one of the most high-stakes questions in health care AI today. But as AI improves, some experts increasingly see it as inevitable that digital “clones” of patients could one day aid family members, doctors, and ethics boards in making end-of-life decisions that are aligned with a patient’s values and goals.

Where comfort and nutrition meet: A case series of children with severe neurologic impairment receiving home parenteral nutrition at the end of lifeNutrition in Clinical Practice; by Dana Steien, Erin Alexander, Molissa Hager, Andrea Armellino, Megan Thorvilson; 9/25Increasingly, home parenteral nutrition (HPN) ... is used for intractable feeding intolerance (IFI), which can occur near the end of life (EOL) in children with severe neurological impairment (SNI). [Four cases were retrospectively examined and we] found that the pediatric palliative care team (PPCT) was involved in all cases during HPN decision-making and planning. The pediatric nutrition support team (PNST) and PPCT collaborated to provide individualized, goal-directed care. All [patients] were enrolled in hospice while receiving HPN. HPN at EOL requires careful ethical consideration, particularly of autonomy because families often find comfort in providing nutrition.

Pediatric home-based palliative care and hospice: Characterizing and comparing the populationsJournal of Pain and Symptom Management; by Ben Reader, Sibelle Aurelie Yemele Kitio, Steven M Smith; 9/25Home-based palliative care (HBPC) and hospice programs offer support for children with complex life-shortening conditions. However, there is little comparison of the characteristics and care trajectories of children and young adults enrolled in HBPC versus hospice, particularly across different age groups. Of 113 participants, hospice recipients were younger (median 2 vs. 7 years; ...), more likely to have an oncologic diagnosis, and had a higher mortality during the study period (69.6% vs. 22.1%; ...). HBPC participants had more hospital admissions, longer inpatient stays, and more outpatient visits. Subgroup analyses of children ≥1 year revealed diagnosis and code status differences, with hospice participants more likely to have 'allow natural death' orders and experience a code status change. 

Economic benefits of investment in palliative care: An appraisal of current evidence and call to actionJournal of Pain and Symptom Management; by Liz Gwyther, Maya Jane Bates, Bach Tran, Liz Grant, Richard Harding, Eric L. Krakauer, Peter May, Eve Namisango, MR Rajagopa, Eleanor Reid, Charles Normand; 9/25This article summarises the literature suggesting that palliative care can provide cost savings to society as a whole (health systems, patients, families) as well as providing good care in line with patient preferences. The evidence indicates that palliative care is effective in providing patient-centred care, in managing symptoms and patient distress, and in saving money for both the family and the health system. Funding mechanisms for palliative care may exist in high-income countries, but many low-and middle-income countries do not yet have sustainable mechanisms of funding palliative care services.

Chesapeake Supportive Care and Southern Maryland House Calls partner to expand access to in-home palliative care in Calvert County Southern Maryland News Net, Chesapeake, MD; 10/16/25 Chesapeake Supportive Care (CSC), the palliative care arm of Hospice of the Chesapeake, is excited to announce a new partnership with Southern Maryland House Calls (SMHC), a trusted leader in home-based geriatric care, to enhance access to palliative care services for residents of Calvert County. ... “Southern Maryland House Calls has been an exceptional partner in caring for our shared patients,” Becky Miller, President and CEO of Hospice of the Chesapeake, said. “Together, we’re building on that relationship to help more people access the kind of care that truly improves quality of life.”

The pitfalls that derail home health providers’ new palliative care efforts Home Health Care News; by Joyce Famakinwa; 10/14/25 ... Though home health-operated palliative care is a rarity, companies like Visiting Nurse Health System, Contessa Health and Compassus have managed to successfully incorporate these services into their broader care delivery model. When structuring an effective palliative care services program, there are some common pitfalls home health providers should avoid. “One of the biggest ones is positioning palliative care as early hospice,” Nikki Davis, senior vice president of palliative care programs at Contessa, said at Home Health Care News’ FUTURE conference. “And just make sure that there’s also clear eligibility and referral pathways, so that when you’re partnering with your home health and hospice teams, you have those processes in place, so that it’s very clear who’s eligible for palliative care.”

Stiff person syndrome in the hospice patient: A case report and discussion  Journal of Palliative Medicine; by Molly Svendsen, B Parker Layton, Shiri Etzioni, Mark Edwin; 10/13/25 Stiff Person Syndrome (SPS) is a rare, progressive autoimmune neurological disorder characterized by painful spasms, muscle rigidity, and heightened sensitivity to external stimuli. Management often relies on therapies that fall outside standard hospice formularies, creating challenges in end-of-life care for affected individuals. ... This case highlights the need for flexible, patient-centered approaches in hospice care for rare neurological conditions like SPS. Continuation of disease-specific therapies for symptom palliation can be ethically and clinically appropriate when integrated with clear goals of care. 

‘Lack of urgency’ a top cause of hospice admissions delays, industry consultants say McKnight Home Care; by Adam Healy; 10/9/25 Hospices’ delays in admitting patients can bog down operations and stifle growth. To avoid holdups, providers should act with urgency and prioritize outside-the-box thinking, industry consultants at Transcend Strategy Group recommended. ... Transcend Strategy Group recently released a new insights guide titled “Driving Sales and Admissions Success in Hospice Care.” The guide reveals hospice providers’ top reasons for admissions delays, the problems caused by these delays, and the strategies providers can use to clear bottlenecks. The insights guide noted that admissions delays are problematic for both providers and their clients. ... Hospices should get creative to solve admissions problems, Transcend’s experts agreed. Rather than look for a tool or technology to help speed up operations, look internally to identify practices that prevent care from being delivered, they said.