Literature Review

The evolving landscape of Amyotrophic Lateral Sclerosis: A fatal disease!  Delveinsight; 9/24/24 Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disease characterized by the progressive degeneration of motor neurons, leading to muscle weakness, paralysis, and ultimately, death. ... Despite ALS being relatively rare, affecting 2-5 per 100,000 people worldwide, the question Is ALS on the rise? is gaining attention. While global prevalence has not significantly increased, improved diagnostic techniques, earlier detection, and greater awareness have led to a more accurate identification of ALS cases. Many researchers believe that enhanced surveillance and better tools for genetic testing are uncovering more cases than previously recognized, rather than a true rise in the disease’s incidence. However, with an aging global population, the burden of ALS may grow, as age is a major risk factor. Editor's note: Do you provide disease-specific training for your staff? ALS patients' and families' needs are unique. A significant disease comparison is between ALZ (Alzheimer's) and ALS. With ALZ (Alzheimer's), the brain decreases its abilities to function while the body can remain strong; the person is mobile with cognitive limitations. In contrast, with ALS, the body decreases its abilities to function while the brain/mind/emotions can remain strong. The person is immobile with cognitive awareness, but extreme physical limitations in communicating one's thoughts, emotions, and needs. ALS-specific communication tools provide crucial help for all. For more information in your location, visit The ALS Association's USA map.

How palliative care-ACO partnerships could reduce health disparities Hospice News; by Holly Vossel; 9/18/24 Palliative care providers engaging in Accountable Care Organization (ACO) relationships have the potential to make significant strides in bridging inequitable gaps of access. Groups of physicians, hospitals and other health care providers voluntarily join forces in ACOs, which are designed to offer high-quality, coordinated care to Medicare patients. Collaborating or contracting with ACO networks can help palliative care providers better understand and address the leading barriers among underserved populations as they move across the continuum, said Empath Health CEO Jonathan Fleece. The ACO reimbursement landscape includes incentives and quality measures designed to improve outcomes based on population needs. Providing palliative care through ACO relationships can result in greater potential to address patients’ full scope of medical, non-medical and psychosocial needs further upstream in their illness trajectories, Fleece stated, speaking at the recent Hospice News Palliative Care Virtual Summit.

Honoring National Hispanic Heritage Month CMS.gov - CMS Office of Minority Health Menu; for 9/15-10/15 September 15 through October 15 is National Hispanic Heritage Month, a time to honor the 63.7 million Hispanic people living in the United States. This month, the Centers for Medicare & Medicaid Services Office of Minority Health (CMS OMH) would like to raise awareness of the health disparities that impact Hispanic Americans and highlight efforts to reduce gaps in health care. Hispanic Americans are at greater risk of various health conditions due to a lack of preventive care and health insurance, as well as language barriers. In 2022, almost 28% of Hispanic adults didn’t have health insurance compared to Black (13.3%), White (7.4%), and Asian (7.1%) adults. Resources:

When should you refer patients with COPD to palliative care? Physician's Weekly; by Jennifer Philip; 9/17/24 Researchers identified 17 major and 30 minor criteria to guide physicians in referring their patients with COPD to specialty palliative care. ...

How music therapy helps this young cancer patient in Louisville hold on to 'pure joy' ABC WHAS-11, Louisville, KY; by Brooke Hasch; 9/17/24Music therapists come prepared for any mood, hoping to bring light to a dark situation. Within the Norton Healthcare system, they help patients cope with pain, discomfort, and anxiety often associated with hospitalization. Brett Northrup's the music therapist for Norton Children's Cancer Institute, a role he stepped into 13 years ago. "I didn't know it existed, and then when I discovered this field, I said, 'this is it. This is what I'm going to do the rest of my life,'" he said. Northrup doesn't miss a beat when a patient's in need of a smile or a moment of normalcy. He's been there many times for 4-year-old Trey Lowman, who's gone through more than most people will in a lifetime. ... "When you put [Trey] and Brett together, it's magic," [Trey's mom] said. "He's full of joy and that's one thing that cancer hasn't been able to take from him."

Global collaboration launches culturally inclusive palliative care education tool Hospice News; by Holly Vossel; 9/16/24 An international collaboration has led to the development of a new palliative care training tool aimed at improving quality and equitable access. Health systems across the globe are recognizing a growing need to boost the supply of providers able to care for a swelling, aging population of serious and terminally ill patients. Rising demand was among the driving forces behind the newly unveiled COllaboratively DEveloped culturalY Appropriate and inclusive Assessment tool for Palliative Care Education (CODE-YAA@PC-EDU). The palliative care education tool was developed in concert by the Council of Europe, the World Health Organization (WHO) and the United Nations. The organizations joined forces to design a sustainable training model that could build up the palliative workforce. The project is supported in part by the research network European Cooperation in Science and Technology (COST).

Quality indicators for palliative care established European Cooperation in Sciene and Technology (COST); 9/12/24 Palliative care aims to improve the quality of life of patients and their families facing problems associated with life-threatening illnesses. The World Health Organization (WHO) reports that each year, an estimated 56.8 million people, including 25.7 million in the last year of life, need palliative care. ... To tackle these issues, the Council of Europe, WHO, and the United Nations have addressed these problems and established international standards and recommendations to improve palliative care worldwide. ... Teaching palliative care demands a culturally sensitive and inclusive curriculum, a specific mix of skills and expertise, and innovative teaching methods. European recommendations exist for undergraduate medical, nursing, psychology, and social work education and postgraduate training in medicine. ...

Telehealth palliative care helps people living with advanced cancer Cancer Health; by Liz Highleyman; 9/9/24 Virtual palliative care can be as effective as in-person care, according to a recent study. Oncology palliative care is intended to relieve symptoms and improve quality of life. It is not the same as hospice care, and it can help people at any stage of cancer. National guidelines recommend integrating palliative care from the time of diagnosis for people with advanced cancer, but it is underutilized in part due to a shortage of trained providers. This study included 1,250 adults at 22 U.S. cancer centers who were diagnosed with advanced non-small-cell lung cancer. They had palliative care sessions every four weeks conducted either via video or in person. After six months, quality-of-life scores were equivalent in the two groups. They also did not differ significantly in terms of depression or anxiety, coping skills, understanding treatment goals or perception of their prognosis.

A dying wish: Longtime hospice volunteer has a challenge for GV Green Valley News, Green Valley, AZ; by Dan Shearer; 9/10/24 ... The woman who walked alongside dying patients as a hospice volunteer for more than 20 years is now herself in hospice. She smiles but says the glistening in her eyes are sad tears. But cancer hasn't taken her joy, and she’s emotionally strong enough to meet with a reporter in her final weeks to make a request of Green Valley: Please consider taking up just the kind of work she’s been doing for two decades. It’s tough, but it comes with lessons and blessings that last a lifetime. ...

Hospice of the Foothills announces umbrella name, Foothills Compassionate Care YubaNet.com; by Hospice of the Foothills; 9/10/24 As we celebrate 45 years as this community’s only nonprofit hospice, Hospice of the Foothills is excited to announce that we are formalizing our structure a bit to fit all of our programs under one all-encompassing organizational name. Going forward, Hospice of the Foothills, Sierra Community Palliative Care, Foothills Gift & Thrift Stores, and our Bereavement Programs will operate under the unified umbrella of Foothills Compassionate Care. Each program/service will maintain its name and identity but will be united under one umbrella.  We feel his strategic alignment will highlight all that we do more clearly and reinforce our commitment to providing compassionate, community-centered care without changing the ownership, staff, or core mission that our community has trusted for years. ... This is not about changing what works; it’s about creating a formal structure that reflects the comprehensive care we’ve always provided.

Rita and Alex Hillman Foundation announces $500,000 in funding for nine projects to improve serious illness and end of life care Globe Newswire; by Rita & Alex Hillman Foundation; 9/10/24 The Rita and Alex Hillman Foundation ... announced nine grants to support innovative, early-stage interventions that address the serious illness and end of life needs of marginalized populations. The $500,000 in funding, part of a collaborative effort with The Arthur Vining Davis Foundations, will advance nursing-driven initiatives that improve care for diverse populations and expand access to high-quality end of life services. ... This year’s grants demonstrate a commitment to the design, development, and delivery of better and more equitable care. The 2024 HSEI grant recipients are:

10 ways to improve cancer patients' transition to skilled nursing facilities: Viewpoint Becker's Hospital Review; by Elizabeth Gregerson; 9/5/24Physicians from the New York City-based Memorial Sloan Kettering Cancer Center have shared insights on how to better manage care when an oncology patient transfers from the hospital to a skilled nursing facility setting. ... The authors are oncologist Daniel Lage, MD, palliative care physician Craig Blinderman, MD, and emergency medicine physician Corita Grudzen, MD. ... [Among the] 10 recommendations from the editorial: ... Documentation should be provided to the skilled nursing facility team if an oncologist believes harm from future cancer treatment outweighs potential benefits or believes the patient has a poor prognosis. This will allow palliative care or hospice conversations to occur more urgently. Oncologists and palliative care clinicians can schedule, with hopeful reimbursement for,  telehealth visits for patients in skilled nursing facilities.

Creating a palliative care clinic for patients with cancer pain and substance use disorderJournal of Pain and Symptom Management; Sachin S Kale, Gennaro Di Tosto, Laura J Rush, Justin Kullgren, Deborah Russell, Martin Fried, Blessing Igboeli, Julie Teater, Katie Fitzgerald Jones, Devon K Check, Jessica Merlin, Ann Scheck McAlearney; 8/24Opioids are a first-line treatment for severe cancer pain. However, clinicians may be reluctant to prescribe opioids for patients with concurrent substance use disorders (SUD) or clinical concerns about non-prescribed substance use. We created the Palliative Harm Reduction and Resiliency Clinic, a palliative care clinic founded on harm reduction principles and including formal collaboration with addiction psychiatry. The formal collaboration with addiction psychiatry and the integration of harm reduction principles and practices into ambulatory palliative care improved our ability to provide treatment to a previously underserved patient population with high symptom burden.