Literature Review

Family and friends deliver early Christmas cheer to woman in final days of her life  CBS News, Antioch, IL; by Dana Kozlov and Tracy O'Brien; 10/16/24 Driving by a home in the far northwest suburbs, you might wonder what happened to Halloween, as each day more Christmas decorations keep showing up. The answer is a touching tribute to a loving mom, wife and friend; with a special message for everyone. Voices of holiday cheer rang outside a home on a warm fall day in Antioch during a festive gathering for Jamie Haley, a woman loved by many, watching from the front window. "It couldn't be better. I could not be happier," Jamie said. Hearing those words, you wouldn't realize Haley is in the final stages of her life, with hospice coming daily. Known for her lifelong love of Christmas, her family is bringing the joy of the season to her in a big way. "Everybody is showing up and strangers are showing up," said her daughter, Anna. "It's Christmas for as long as it can be. We just love her so much.  … We are going to love her until we have to miss her." ... [Click on the title's link to continue reading this beautiful story.]

‘It’s more like hope’: New hospice patient’s Halloween wish come true WTOC 11, Pooler, GA; by Jasmine Butler; 10/14/24 Tons of candy, a bunch of costumes and hundreds of people. That is what a neighborhood in Pooler looked like as people gathered for a Layla Alacan, who recently entered Hospice Care. “She is so sweet when she wants to be and she’ll cuddle up and give kisses, she’s the definition of a sour patch kid. She’s super sour and then super sweet after,” said Layla’s mother, Courtney Alacan. She has a big personality, but she’s fighting a big battle. Layla has a rare terminal disorder called 4H Leukodystrophy. ... It’s an experience her parents Courtney and Nick Alacan know all too well. “Our first child Jamie also had the condition. And she unfortunately passed in April of 2023,” said Alacan. So, they’re vowing to make her wildest dreams come true. ... “[We]  asked her what her favorite holiday was and she said Halloween," said Alacan. “Thinking we would have 40 or 50 kids come through and just you know, have a nice little night. Then, it blew up and now we’re here and we couldn’t be more grateful," said Alacan. An entire community, celebrating Halloween a little early but also rooting on the six-year-old with enough spunk, for them all. 

Women’s Club donates to local hospice care workers The Point/Plover Metro Wire, Portage County, WI; by Metro Wire Staff; 10/11/24 The GFWC-Stevens Point Women’s Club donated more than 60 caregiver baskets to Heartland Hospice in Stevens Point during its Oct. 10 meeting. The baskets were assembled by members to show gratitude for the care hospice workers provide to their patients. The GFWC-Stevens Point Women’s Club, founded in 1895, is part of the General Federation of Women’s Clubs (GFWC), an international organization established in 1890 that focuses on community improvement through volunteer service.Editor's note: November's Hospice & Palliative Care Month is near. What community groups might want to provide simple, meaningful thank-you's to your hospice staff?

Couple who volunteers together, shares the same joy Envision - Greater Fond du Lac, WI; contact Betty Wallerser; 10/7/24 For the past nine years, Matthew Davis, a Green Lake resident, has been spending a good amount of his days volunteering with SSM Health at Home Hospice – Green Lake. “A friend of mine mentioned volunteering for hospice telling me that it was the most rewarding thing he had ever done, so I thought I’d give it a try,” according to Matthew. A handful of stories and memories later, Matthew is still volunteering for SSM Health at Home Hospice – Green Lake. ... In 2023, Matthew’s wife, Becky, also started volunteering for SSM Hospice at Home Hospice in Green Lake.  “I always wanted to be a hospice volunteer,” Becky shares. “I worked in physical therapy for 25 years and had a comfort level with patients I knew some people didn’t have. When a close friend of mine passed away on hospice, I knew it was my time to sign up.” Matthew and Becky are one of several couples who volunteer in hospice and are a great asset to the Volunteer Services team, as they both visit with several hospice patients a week.

West Des Moines teacher battling cancer hopes to inspire his community KCCI Des Moine, IA; by Nicole Tam; 10/4/24 Luke Miller's passion is teaching. Two and a half years ago, he faced the biggest test of his life. "I went into the doctor with a pain on my side," Miller said. An MRI showed tumors in his liver that spread from his colon. "I was told I might have a year to live and I would never have surgery," Miller said. He beat those odds but the battle continues. Through it all, nothing stopped him from doing what he loved. ... This fall, Miller stepped away from the classroom. Even as he goes through a hospice at EveryStep's Kavanagh House, the students are still with Mr. Miller. His room is filled with handwritten notes, pictures and reminders of hope. ... At Westridge Elementary School, starting from the outside as people are driving to school to the inside, there are signs of support for Miller including the digital message board and posters in the hallway. "We want to support the Millers, not only now but in the future as well. We want them to know we'll always be here for them because Luke was always here for us," Troy Ellerbroek, Westridge Elementary School teacher, said. 

Family matriarch crosses ocean swim off bucket list Star News Group, Manasquan, NJ; by Alex Dyer; 10/3/24 Dorothy Jean “Dot” Temple ventured into the rough surf, her arms supported by loved ones, her feet tickled by sea foam and soft sand. Wading in the ocean is an ordinary pleasure. But on this day, it was special for Temple and for everyone who came to watch her enjoy the water. At age 93, it’s no longer an easy task for Temple to indulge in her love of ocean swimming, an activity in which she had excelled for a majority of her life. ... Dot was recently admitted to the hospital, where the family was not “sure if she would survive the night.” Afterwards, she was put on hospice, where she was advised to cease her medication. “We were heartbroken at the prospect of possibly losing her, but in typical Nanny fashion…she is holding her own and is still doing great — all things considered,” said Gasetel. “A strong-headed woman, she has been very vocal that before she passes, she absolutely must go swimming in the ocean one more time; so that’s exactly what we did.”

Bringing Penelope home The Chronicle of The Horse; by Sarah K. Susa; 10/1/2024 Angie was 35 when she, her husband, and son moved into their first home. It was red brick with a big picture window and a pasture out front where their horses could graze. It was almost a dream come true. Almost, because Angie was dying. The lump she’d found just two years earlier had metastasized, multiple times. In the beginning doctors cut off both breasts, hoping to take the cancer with them. But the disease was stealthy, hiding somewhere inside, then popping up here and there: liver, lymph nodes, spine, brain. She was pumped full of chemo. Blasted with radiation. Time and again, surgeons opened her up, removing any fragments of the disease that they could. Then they’d stitch her back together, hoping to buy her more time. But eventually, Angie was told, there was nothing more to do. Hospice was called. A hospital bed in Angie’s new living room allowed her to watch the horses graze from the picture window, her favorite feature of the house. Her son, just 5, would perch on the window’s deep sill, quietly building Legos and trying to process what was happening around him. And it was all happening so fast. 

I asked my dad to write my wedding speech after he was given 6 months to live. I'm holding on to it for my special day. AOL.com - Insider; by Lara Rodwell; 9/29/24 ... I remember the moment my dad told me he had six months to live like it was yesterday. ... "Lar, we need to have a chat," he said, hovering beside the edge of the bed. "I've received some news. It's not good." ... Wrapped in the comforting arms of my dad, I blurted, "Dad, you're not going to walk me down the aisle one day." ... During one sleepless night, it hit me. I wanted to create a keepsake where my dad and I could write letters, share memories and process our feelings, together. I found a tatty old notebook and wrote my first letter to him. ... The very first thing I asked him at the end of the letter, ink smudged with tears, was if he could write his wedding speech for me. ... It was a hot summer's morning, the day my dad died in the care of our local hospice. He'd been there for three weeks — in a lot of pain, stabilized by a lot of morphine — surrounded by his family. .... Later that day, ... amongst pages of financial practicalities and funeral wishes, there was a folder of white envelopes addressed to each of us - his wife and four children. On the front of mine read "Lar...". On the back: "Your wedding speech." To this day, the envelope remains sealed, tucked away at the bottom of my "dad box" — along with the notebook we shared, photo albums of memories, and a collection of swimming medals he wanted me to show his grandkids one day. ...

89-year-old SoCal hospice patient wished he could skydive again, so his care team made it happen ABC-7 Los Angeles, CA; by Leticia Juarez; 9/27/24 Gary Patmor has lived a life of adventure and at 89 years old, the retired aerospace engineer is showing age doesn't mean adventures have to end. So he chose to go skydiving. "Oh, it is just fun exciting," he said. While he is a man of few words, Patmor is a man with plenty of stories he could tell. He's logged more than 1,300 jumps out of civilian, military, antique and experimental aircrafts. ... He survived 38 malfunctioning parachutes and he even doubled for Steve McQueen on film.  ... His backstory has been an incredible journey he has shared with others. "He was actually also the first person to mount a Sony camera and jump out of a plane," said Jocelyn Brito, a social worker for Suncrest Hospice in Riverside where Patmor is now a patient. ... "One of the things that he wanted to do was he wanted to skydive again," said Jessica Fields with Suncrest Hospice. "So we had to make sure that we got the doctor clearance, of course, and then the skydiving company to be able to consent to that before we offered it." On Friday afternoon, Patmor boarded a plane at Sky Dive Elsinore, making him the  oldest skydiver of the day. At 13,000 feet, he took a leap, strapped to an instructor and made his descent to the ground where his wife and Suncrest Hospice staff members cheered him on.

Celebrate patients’ creativity ehospice; by Fair Havens Hospice, United Kingdom; 9/23/24 Fair Havens hospice recently held an inspiring art exhibition to showcase patients’ artwork produced during a range of wellbeing sessions. The exhibition at Fair Havens hospice in Prittlewell, Southend-on-Sea, showcased over 30 pieces of artwork, including acrylics and watercolours to embroidery and creative writing, all created by patients living with incurable illnesses. There was also the opportunity for people to get creative and take part in activities such as pebble painting and memory box decorating. The artwork on show had all been created by adults supported by the hospices’ Wellbeing Team through various creative therapy workshops and one-to-one sessions. ... Amongst some of the artwork were collages created in the ‘I AM’ workshop, which aimed to provide a space for patients to reflect on the things that are most important to them and express this using colour, textures, and words.

Improv for Caregivers receives a grant from the New Hampshire State Council on the Arts EINPressWire; by A. A. Cristi; 9/23/24 The New London Barn Playhouse received an arts in health grant from the New Hampshire State Council on the Arts to continue and expand their Improv for Caregivers program through a larger umbrella program titled “Improv for a Cause.” “Improv for a Cause” will encompass two communication programs that use a similar process to reach different communities. The first, Improv for Caregivers, in partnership with Lake Sunapee Region VNA & Hospice, is an ongoing communication workshop series for those who care for loved ones with dementia and Alzheimer's. ... Each improv workshop session combines insight from healthcare professionals with improvisational theatre techniques, with a goal of developing new communication skills, strategies to cope with stress, flexibility in relationships, and an understanding of loved ones' changing perspectives. With guidance from the VNA and caregivers in the community, the team of actors prepare short scenarios that portray situations caregivers commonly face, such as sundowning, taking away car keys, collaborating with care staff, and hallucinations. ...

Woman explains viral video of brother with hospice nurses before he died ABC News - GMA; Shafiq Najib; 9/20/24 Marcella Brown's little brother, Omar Mamoe, died of appendix cancer at 34. A woman explained the story behind the viral video of her brother going on a walk and having fun with the nurses during his final days in hospice before his death. In an Instagram video shared by Marcella Brown of Austin, Texas, recently, her late brother Omar Mamoe can be seen sitting in a wheelchair as he was about to exit his room accompanied by the nurses who entertained him by rapping to a song, "It Was a Good Day," by Ice Cube. The clip, which has garnered over 5 million views, was taken eight days before Mamoe died, showing how he kept his spirits high and brought smiles to those around him. Speaking to "Good Morning America," Brown said she shared the video last month because she was feeling sad at the time, thinking about her late brother. "The video came up, and it just made me feel happy, and it just reminded me that towards the end of his life, like there were these little moments that were good," she said. [Click on the title's link to view the video and read more.]Editor's note: Omar's care was provided by Hospice Austin's Christopher House. Click here (and scroll down) for a different, beautiful video story about Omar and his family.