Literature Review

Over 240 advocates rally in DC for the future of care at home: National Alliance for Care at Home hosts Inaugural Advocacy Week on Capitol Hill National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 9/12/25 More than 240 care at home care advocates from across the country met with over 275 congressional offices this week to discuss key legislative and regulatory priorities for expanding access to home-based care services. The meetings were part of the 2025 National Alliance for Care at Home’s inaugural Advocacy Week. Alliance Advocacy Week brings together leaders, advocates, and supporters to unite as one voice for care at home, driving positive legislative change and shaping the future of care to ensure broader access to the life-changing home care services for all Americans. 

A workflow initiative to increase the early palliative care referral rate in patients with advanced cancer MDedge - Federal Practitioner - Quality Improvement; by Judy Lim, MD and Linda D. Nguyen, DNP, NP-C, MD; 9/3/25 ... The American Society of Clinical Oncology and the World Health Organization recommend that every patient with advanced cancer should be treated by a multidisciplinary palliative care team early in the course of the disease and in conjunction with anticancer treatment. Despite the documented benefits and the recommendations, early PC is still not often offered in clinical practice. 

Bipartisan home health legislation introduced to protect Medicare beneficiaries and lower Medicare costs National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 9/4/25 The National Alliance for Care at Home (the Alliance) issued the following statement today in response to the introduction of the Home Health Stabilization Act of 2025. This bipartisan legislation, introduced by Representatives Kevin Hern (R-OK) and Terri Sewell (D-AL), would protect home health care by pausing the devastating payment cuts proposed in the Centers for Medicare & Medicaid Services’ (CMS) CY 2026 Home Health Prospective Payment System proposed rule. 

Reflections on the 20th anniversary of Hurricane Katrina - from Jamey Boudreaux, Executive Director for the Louisiana-Mississippi Hospice & Palliative Care OrganizationSpecial Guest Reflections for Hospice & Palliative Care Today; by Jamey Boudreaux; 8/28/25

Everyone deserves a dignified death. But will everyone get one? U.S. News & World Report; Commentary by Tom Koutsoumpas; 8/18/25 Before hospice care first came to the United States in the 1970s, the experience of dying in America was often a cold and lonely one. Most people spent their final days in stark, unfamiliar hospital rooms – places that felt more like holding cells than spaces of comfort – often without the warmth, dignity or closeness of those they loved most. ... Nonprofit hospices that are grounded in their communities deliver comprehensive support to patients and families and reinvest every dollar back into mission-driven services. They have consistently delivered some of the highest-quality outcomes for patients and families. ... The National Partnership for Healthcare and Hospice Innovation, which I founded in 2015, supports nonprofit hospices in upholding high standards and making sure end-of-life care is delivered with compassion – not profit – in mind. We have advocated for policies that put patients first, strengthen hospice regulations and advance quality, community-based care.

Association releases first-ever guideline on use of blood tests to diagnose Alzheimer’s disease McKnights Long-Term Care News; by Donna Shryer; 7/29/25 The Alzheimer’s Association has issued its first clinical practice guideline on the use of blood tests to help diagnose Alzheimer’s disease in people with cognitive impairment. Released at the 2025 Alzheimer’s Association International Conference this week, the guideline establishes performance thresholds that blood-based biomarker tests must meet before they can be used in specialized memory care settings. ... “This is a pivotal moment in Alzheimer’s care,” said Maria C. Carrillo, PhD, the Association’s chief science officer and a guideline co-author. “For the first time, we have a rigorously evidence-based guideline that empowers clinicians to use blood biomarker tests confidently and consistently.”

National Alliance CEO Dr. Steve Landers: Hospice reform should mean more care, not less Hospice News; by Jim Parker; 7/28/25 Hospice reform efforts should focus on allowing for “more care, not less,” according to National Alliance for Care at Home CEO Dr. Steve Landers. Key elements of this should include home-based respite care and a payment system for high-acuity palliative services that hospice patients often lose out on due to the costs. ... “It means innovation in care, home-based respite services, better payment models for people that need things like dialysis or palliative radiation,” Landers said at the Alliance’s Financial Summit in Chicago. “That is that reform we’re talking about.” ... Landers also said that attempts at hospice reform should not “carve-in” hospice into Medicare Advantage. Bringing hospice under Medicare Advantage would undermine patient choice, adversely impact timely access to care and leave providers with lower reimbursement rates, according to the Alliance, the National Partnership for Healthcare and Hospice Innovation (NPHI) and LeadingAge

The Alliance’s CaringInfo Program launches new “Planning for In-Home Care” section National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 7/16/25 CaringInfo.org, a program of the National Alliance for Care at Home (the Alliance), is expanding its resources with a new website section – “Planning for In-Home Care” – as well as a brand refresh to align with its growing audience. CaringInfo provides free resources to educate and empower patients and caregivers to make informed decisions about home, serious illness, and end-of-life care and services. While CaringInfo began with a focus on serious illness and end-of-life care and support, the program’s content is expanding to provide information and resources on the full spectrum of home-based care services. As a first step in this expansion, CaringInfo has launched “Planning for In-Home Care,” a new section on the website focused on the various types of care available at home.

Hospice Foundation of America mourns passing of David J. Abrams – HFA board member and leader Hospice Foundation of America (HFA), Washington, DC; Press Release; 7/8/25 David J. Abrams, 85, a longtime member of the Hospice Foundation of America (HFA) Board of Directors, died on July 8. Abrams, who oversaw operations at HFA from its formative years until 2007, leaves in his wake a legacy of service and commitment to hospice care in the United States. “David’s passing will be deeply felt by many, both personally and professionally. Through his leadership positions at HFA, for many years, he greatly advanced the knowledge and quality of hospice caregivers throughout the palliative care community,” said Thomas J. Spulak, chairman of HFA’s Board of Directors. “As a friend and colleague to many, we will all miss his smile, care, concern, and intellect that he brought to us every day. David will never be forgotten.”

Alliance Statement on House passage of Reconciliation Bill: Medicaid provisions threaten home and community-based services for millions of vulnerable Americans National Alliance for Care at Home, Alexandira, VA and Washington DC; Press Release; 7/3/25 The National Alliance for Care at Home (the Alliance) issued the following statement today in response to the House’s passage of the “One Big Beautiful Bill Act,” also known as the Reconciliation bill, which now heads to President Trump’s desk for his signature. “The Alliance is deeply troubled by the Medicaid provisions within the One Big Beautiful Bill Act, which has passed both chambers of Congress and now awaits President Trump’s signature,” said Alliance CEO Dr. Steve Landers. “These provisions—including work requirements, reduced provider taxes, and new cost-sharing mandates—prioritize short-sighted budget savings over the health and wellbeing of our most vulnerable citizens who rely on home and community-based services (HCBS).”

Teleios announces addition of Sharon S. Richardson Community Hospice Teleios Collaborative Network (TCN), Hendersonville, NC; by Tina Gentry; 6/17/25 Teleios Collaborative Network (TCN) announced the addition of Sharon S. Richardson Community Hospice (SSRCH) as a member. Since 2007, SSRCH has been providing compassionate care and quality of life to all those in need through its hospice and palliative care programs. Although most patients are served wherever they call home, they offer a beautiful inpatient center for patients when needed. In addition to these services, SSRCH also provides grief support to the community and offers the We Honor Veterans and No One Dies Alone programs.

How thanatology is driving hospice care innovation Hospice News; by Holly Vossel; 6/13/25 Thanatologists examining dying and grief practices have uncovered significant trends shaping hospice and bereavement care models in recent years. Thanatology is derived from the Greek word for death, “thanatos.” It is commonly described as the study or description of death, dying and loss and the psychological, social, cultural, biological and spiritual aspects of these processes. Editor's Note: Unfortunately, this article failed to identify the first and leading thanatology organization for end-of-life care professionals, ADEC, the Association for Death Education and Counseling: the thanatology association, at www.adec.org, celebrating its 50th anniversary in 2026. Though this article says "several studies have examined ...," ADEC's 50 years of leaders and members have included countless groundbreaking, prolific researchers, authors, academicians, and clinicians throughout our hospice field: William Worden (a founding member), Robert Neimeyer, Ken Doka, and so many more. When you see the "FT" or "CT" credential, you can know that this person has earned the professional credential "Fellow in Thanatology" or "Certified in Thanatology."

Florida Hospice and Palliative Care Association celebrates leaders of compassion at 2025 Annual Awards of ExcellenceFHPCA press release; 6/9/25At its 2025 Annual Forum held in Orlando, the Florida Hospice and Palliative Care Association (FHPCA) proudly recognized extraordinary individuals and teams who have set the standard for excellence in hospice and palliative care across the state. The Annual Awards of Excellence... highlight the leaders, caregivers, collaborators, and changemakers who embody the heart of the hospice mission. [Congratulations to these Honorees:]