Literature Review

Lanterns light up the sky in east Wichita to remember lost loved ones on Memorial Day ABC KAKE, Wichita, KS; by Jocelyn Schifferdecker; 5/26/25 About a hundred lanterns lit up the sky Monday night at the Harry Hynes Memorial Hospice memory garden in East Wichita. Each lantern floating on the water told its own special story. [Candace] Dudley says [her husband] Ricky died about a year and a half ago from colon cancer. ... She says she misses him every day and she's thankful for Lanterns of Life because it gave her an opportunity to remember him. "My heart is full tonight. Making his lanyard, I made it very special ... I did all four sides with a lot of thought and put a lot of love into it because he was the love of my life," she said while holding back tears.The event is arranged by Harry Hynes Memorial Hospice. Organizers say they hope lighting a lantern for their lost loved one will bring them peace in some way. ... The event also featured food trucks, music, and more. This was the first year the hospice held it but it says it doesn't plan for it to be the last.

When patients die: A myeloma specialist grieves Medscape; by Manni Mohyuddin, MD; 5/28/25 ... We form such beautiful bonds with patients as we guide them through the highs and lows of treatment. And that is why I struggled so profoundly with the abrupt separation created by a transition of a patient to hospice. How can it be okay for me to be seeing a patient weekly (and sometimes more often) for such a long time and then suddenly never see them again after they transition to hospice? How can we just disappear from their lives at such a critical juncture? I understand that I may not have more chemotherapy to offer, but I at least can offer emotional support, validation, and my friendship. ...Editor's note: Continue reading this powerful commentary. Taking this further, do you have HIPAA compliant systems in place to notify the patient's oncologist or pre-hospice primary physician of the death? 

What it’s like to be…a hospice nurse Behavioral Scientist; by Dan Heath; 5/22/25 Comforting patients as they prepare to transition, navigating end-of-life regrets and frayed relationships, and providing support and advice for fearful families with Heather Meyerend, a retired hospice nurse. How does she know when the end is imminent? And what has the work taught her about the different ways we deal with death? In each episode of What It’s Like to Be…, bestselling author Dan Heath speaks with someone about what it’s like to walk in their (work) shoes.

Hospice volunteer donates 10,000 gift cards to cancer patients AZ Family - CBS-5, Phoenix, AZ; by Tianna Morimoto; 5/20/25 One Valley man has made a difference in times of need for those who may be losing hope by donating thousands of gift cards, and that’s Something Good. Jeff Lewis volunteers with Hospice of the Valley and was recently recognized for donating 10,000 grocery gift cards to help cancer patients in need. Jeff is a cancer survivor and has made it his mission to help those going through treatments with no family or support. He created a nonprofit called the Froth and Bubble Foundation. Every month, the foundation provides gift cards to more than 100 people in the Valley who are struggling financially. Often, these patients have to decide between paying for food, medicine or doctor bills, and these gift cards can help them with their bills or other necessities to survive. ... “These gift cards help families bridge the gap when they need food and are juggling bills and feeling stressed,” said Hospice of the Valley Executive Director Debbie Shumway. “He is a servant leader who quietly gives back and makes a huge difference, one person at a time.” Thank you, Jeff, for all you do to help others!

‘Marathon’ effort to refine end-of-life wound coding runs on McKnights Long-Term Care News; by Kimberly Marselas; 5/28/25 Two key wound care groups are finalizing a proposal for new codes that would help skilled nursing providers avoid newly created diagnoses gaps for end-of-life skin breakdown that could lead to missed reimbursement and potential liability risks. The push comes a year and a half after nursing homes won the right to stop coding wounds that occur as part of dying as pressure injuries, which can hurt their quality ratings. But they also lost any way to code or acknowledge treatment of such skin failure in the Minimum Data Set. ...

New Mexico legalizes medical use of psilocybin JD Supra; by Patrick Clark and Jennifer Pacicco; 5/20/25 On April 7, 2025, New Mexico became the third state to legalize psilocybin (colloquially known as “magic mushrooms” or “shrooms”) for medical purposes. New Mexico is the first state to legalize psilocybin via legislation and not a ballot initiative, like its predecessors Colorado and Oregon. Under the new law—the “Medical Psilocybin Act”—the following qualifying conditions are listed as eligible for psilocybin treatment: “(1) major treatment-resistant depression; (2) post-traumatic stress disorder; (3) substance use disorders; (4) end-of-life care.” The law also allows the New Mexico Department of Health to promulgate regulations that would add qualifying conditions to that list. ... Employers are not required to accommodate employees under the influence of psilocybin at work.

Q&A: Addressing palliative care in dialysis settings Physician's Weekly; interview with Jane O. Schell, MD; 5/20/25 Jane O. Schell, MD, discusses factors that impact use of palliative care in dialysis settings for patients in the United States, as well as potential solutions. 

Good grief: Personal stories show hope still exists after loss ABC KTRK-13; by Brittaney Willmore; 5/19/25 Stories are at the heart of the memorial garden at Bo's Place. The building, with its red brick entryway, tall trees, basketball court, and patio, was intentionally designed on the outside to look almost like two arms, reaching out and welcoming in those who find themselves there as guests, but leave feeling like it's home. Carmichael Khan is familiar with the garden, which isn't made up of plants in this particular case, but of rocks that serve a very distinct purpose. Resting in the palm of his hand is his daughter's rock, which says, "Just bee." "That's why you see bees there. You just want to become. You also want to sit with your grief and just be," Khan explains. Rocks represent, but don't replace late loved ones, and painting them with personality just one of the many ways meant to help grieving children, adults, and families at Bo's Place cope with one of the most difficult parts of life -- death. 

‘Don’t be sad. I’ve had a great life’: John Shakespeare on the art of livingOur Community Now; by Peter FitzSimons; 5/18/25 JS [John Shakespeare]: I’m a realist at heart, Pete, and once I know that something is irreversible I have no choice but to accept it. There is a certain sense of peace that comes from acceptance. It eliminates the need to ask “why me?” and “if only”. Fitz: I have been told, wonderfully, that since that outpouring of love for you last Friday, there has been a small uptick in your prognosis?JS: Haha, I think I just had a big adrenaline rush from that one! Hard not to feel better with 209 people you love, in turn, lining up to hug you! ... [ More dialogue]Fitz: What you are going through will soon enough confront all of us, as we come face to face with our mortality. What advice do you have for us? JS: My motto is “accept, adjust, adapt”. The key is to be able to accept something that can’t be changed. Only then will you find some peace. Otherwise, it will be a battle with the unmovable. Sort out your financials so that your family will be as secure as possible, and that will give yourself a sense of relief to carry into your final days. Have as much fun as your energy levels allow!

New standards could transform palliative care for dementia patients McKnights Long-Term Care News; by Donna Shryer; 5/15/25 An Invited Commentary published Wednesday [5/14/ in JAMA Network Open highlights vital new consensus on when to refer dementia patients to specialist palliative care. The commentary, authored by Laura J. Morrison, MD, from Yale University School of Medicine, analyzes the Delphi survey study, which established the first international agreement on palliative care referral criteria for dementia patients.The Delphi survey study, led by Yuchieh K. Chang, DO, and colleagues, brought together 63 experts from five continents who identified 15 major criteria for specialist palliative care referral, grouped into five categories: dementia type, symptom distress, psychosocial factors, comorbidities and hospital use. Each major criterion was considered sufficient on its own to warrant referral, even for patients expected to live more than two years. Additionally, the study outlined 42 minor criteria, which could be used in combination to justify a referral decision.

Exploring overlooked collaborative opportunities during end-of-life care Medical Xpress; by Institute of Science Tokyo; 5/14/25 [This study's researchers describe:] "Bereaved family members broadly recollected the mixed regretful actions and decisions that should have been taken during the end-of-life care process. Coordination and cooperation challenges that existed between health care professionals and family caregivers emerged as factors that impeded these actions at the time." [They identified three types of] unintended, percolated work (UPW). ...

Palliative and end-of-life care during critical cardiovascular illness: A scientific statement from the American Heart Association American Heart Association; by Erin A. Bohula, MD, DPhil, Michael J. Landzberg, MD, Venu Menon, MD, FAHA, Carlos L. Alviar, MD, Gregory W. Barsness, MD, FAHA, Daniela R. Crousillat, MD, Nelia Jain, MD, MA, Robert Page II, PharmD, MSPH, FAHA, Rachel Wells, PhD, MSN, and Abdulla A. Damluji, MD, PhD, MBA, FAHA on behalf of the American Heart Association Acute Cardiac Care and General Cardiology Committee of the Council on Clinical Cardiology; and Council on Cardiovascular and Stroke Nursing; 5/15/25 Abstract: Cardiac intensive care units are witnessing a demographic shift, characterized by patients with increasingly complex or end-stage cardiovascular disease with a greater burden of concomitant comorbid noncardiovascular disease. Despite technical advances in care that may be offered, many critically ill cardiovascular patients will nevertheless experience significant morbidity and mortality during the acute decompensation, including physical and psychological suffering. Palliative care, with its specialized focus on alleviating suffering, aligns treatments with patient and caregiver values and improves overall care planning. Integrating palliative care into cardiovascular disease management extends the therapeutic approach beyond life-sustaining measures to encompass life-enhancing goals, addressing the physical, emotional, psychosocial, and spiritual needs of critically ill patients. This American Heart Association scientific statement aims to explore the definitions and conceptual framework of palliative care and to suggest strategies to integrate palliative care principles into the management of patients with critical cardiovascular illness.

Living with grief caused by your child’s death Bonner County Daily Bee, Sandpoint, ID; by Kathy Hubbard; 5/14/25 “The challenge for many people is to speak about their feelings after the death of a child,” Tami Feyen, RN, manager of Bonner Community Hospice said. “If you haven’t gone through it, you can’t imagine what it’s like.” We were talking about the “tree” with the heart-shaped “leaves” that “grows” in the Children’s Healing Garden. This memorial, designed by artist Betty Gardner was installed in 2019 with the idea that people who had lost a child would have a comforting place to come to remember their loved one(s).