Literature Review

Healing hearts: How palliative care staff reunited a father with his daughters after nearly 40 years apart The Daily Scan - Cancer; by Sondi Bruner; 11/25/24, published in our newsletter 11/25/24Leah Duval and Tanya Ellis don’t have many childhood memories of their father. They recall fragments, like his bright smile and building snowmen in the backyard. And then one day, when they were three and five years old, Glenn Ellis disappeared completely. ​As the girls grew up, they learned their father had schizophrenia, which they guessed played a large role in his disappearance. ... The family searched for years in the 1980s and never found him. The sisters had no choice but to move forward with their lives, though they never gave up hope that their father was still out there. ... Then, on May 14th 2024, nearly 40 years after their father vanished from their hometown in Ontario, Tanya received an unexpected phone call from across the country. It was from Siobhan Gallagher, a social worker at May’s Place Hospice in Vancouver, BC. She had a patient named Glenn Ellis, and he was looking for his daughters. [Click on the title's link to read this story.] ... “People can hold onto grudges for their entire life and they don’t allow healing to happen,” says Tanya. “Have an open heart and an open mind. Just let things go, because we’re just all humans trying to do the best we can in this world.”

Hospice staff at UVM Home Health and Hospice vote to form union Vermont Biz - Vermont Business Magazine; by Tim, The University of Vermont Health Network - Home Health & Hospice; 6/6/25 After six months of organizing, a majority of the roughly 85 Hospice staff at UVM Home Health and Hospice voted Thursday to formalize their union. Hospice United will represent Nurses, LNAs, Social Workers, Chaplains, Bereavement Coordinators, Volunteers Coordinators, Cooks, and Admin Support in both the McClure Miller Respite House and the community-based team. ... With a 88% voting yes, this victory marks the establishment of union representation at every one of UVM Health Network’s seven locations. Once the votes are certified, staff will begin the process of bargaining their first contract with the UVMHN administration.  

Provider MiraSol Health launches new Behavioral Health Program Hospice News; by Jim Parker; 6/3/25 MiraSol Health has launched a new behavioral health program designed to amplify emotional and psychological support for its hospice and palliative care patients. Branded as Rays of Hope Behavioral Health, the program offers individual and group therapy sessions, both in person and via a secure telehealth platform. Through Rays of Hope, MiraSol’s licensed therapists will help address anticipatory grief, caregiver stress, loss and other struggles that patients and families face during a time of chronic, serious or terminal illness.

MLN Fact Sheet: Creating an efffective Hospice Plan of CareCenters for Medicare & Medicaid Services, Medicare Learning Network (MLN); 5/10/25 The hospice plan of care (POC) maps out needs and services given to a Medicare patient facing a terminal illness, as well as the patient’s family or caregiver. CMS data shows that some hospice POCs are incomplete or not followed correctly. This fact sheet educates on creating and coordinating successful hospice POCs. The primary goal of hospice care is to meet the holistic needs of an individual and their caregiver and family when curative care is no longer an option. To support this goal:

ALS and mental health: The importance of caring for the whole person ALS Association; by Amber Johnstone, MSW, LISW-S; retrieved from the internet 5/27/25 ... May is ALS Awareness Month and also Mental Health Awareness month. ALS and Mental Health go hand in hand. One of the first things I tell newly diagnosed individuals that I work with is that ALS affects the whole family. And to be truthful, it affects many more than just that nuclear family unit. A person living with ALS is like a pebble thrown into a pond. That first splash is the biggest, but then the water ripples all the way out to the edges of the pond. Those ripples are all the people with which the person with ALS shares their journey. ... The ALS Association understands how important mental health can be.  ... The ALS Association is proud to offer ALS Academy to community healthcare professionals and caregivers.  ALS Academy is free, online, self-paced, catalog of ALS education videos.  

"You're next": People are sharing the last words they heard someone say as they were dying, and they're not all inspiring BuzzFeed; by Mike Spohr; 5/21/25There's so much we don't understand about the end of life. Recently, we shared a post where Quora users shared their experiences being present for the final moments of someone's life...and hearing their last words. Well, as it turns out, BuzzFeed's readers wanted to share their experiences hearing someone's last words too, so we rounded them up here:

What is it like to die? University of Minnesota’s VR experience offers some answers. The Minnesota Star Tribune; by Richard Chin; 5/2/25 Our reporter returned from the Embodied Labs experience with some thoughts on what he’d like his last hours to look like. When the University of Minnesota offered to let me experience what it’s like to die, naturally I said yes. Aren’t we all morbidly curious about the undiscovered country, as Hamlet put it, from which no traveler returns? Except this time, happily, I would get to return because it would be a virtual death, an experience in a VR studio that’s part of the university’s Health Sciences Library system.

The future of dying with Dr. Ira Byock | Pop 1205 Practice of the Practice; podcast by Joe Sanok with Dr. Ira Byock; 5/14/25 How can we embrace conversations about death and dying? What is the healing power of forgiveness and connection in end-of-life care? When we face morality, how can we transform fear into meaningful connections? In this podcast episode, Joe Sanok speaks about the future of dying with Dr. Ira Byock. .. In this podcast: 

He was dying, Alabama sent him back to prison anyway AdvanceLocal - AL.com - Alabama Media Group; by Renuka Rayasam; 5/12/25 Brian Rigsby was lying with his right wrist shackled to a hospital bed in Montgomery, Alabama, when he learned he didn’t have long to live. ... Rigsby decided to stop efforts to treat his illness and to decline lifesaving care, a decision he made with his parents. And Rigsby’s mother, Pamela Moser, tried to get her son released to hospice care through Alabama’s medical furlough policy, so that their family could manage his end-of-life care as they saw fit. But there wasn’t enough time for the furlough request to be considered. After learning that Rigsby was on palliative care, the staff at YesCare, a private prison health company that has a $1 billion contract with the Alabama Department of Corrections, told the hospital it would stop paying for his stay and then transferred him back to Staton Correctional Facility in Elmore, according to the hospital record his mom provided to KFF Health News. Moser never saw or spoke to her son again. “The last day I went to see him in the hospital, I was hoping he would take his last breath,” said Moser, a former hospice nurse. “That is how bad I didn’t want him to go to the infirmary” at the prison. A week later, Rigsby died ... in the infirmary, according to his autopsy report. Officials at the corrections department and YesCare did not respond to requests for comment.

It's time to talk about LGBTQ+ elder care Psychology Today - Caregiving; by Stephanie Sarazin, M.P.P.; 5/6/25 A once-hidden story is helping us think about queer kinship and caregiving. Key points:

New York State Department of Health announces revision of Medical Orders for Life-Sustaining Treatment (MOLST) form New York State Department of Health, Albany, NY; 5/2/25 The New York State Department of Health announced the revision of the Medical Orders for Life-Sustaining Treatment (MOLST) Form, a form that records a patient's preferences for life-sustaining treatments, such as CPR, ventilation, and other interventions, to ensure all patients are considered. The comprehensive revision was a collaboration of the Department, New York State Office for People with Developmental Disabilities (OPWDD), the New York State Office of Mental Health (OMH), and the MOLST Statewide Implementation Committee. ... All information regarding the MOLST, including the form, supporting checklists, glossary, and instructions are available on the NYSDOH Center for Hospice & Palliative Care's webpage.

Breaking with the status quo in end-of-life care through de-implementation Journal of Internal Medicine; by Chetna Malhotra and Ellie Bostwick Andres; 4/17/25... In the realm of serious illness, many patients undergo interventions that may marginally prolong life but often sacrifice quality of life and entail significant costs. These interventions, categorized as ‘low-value care’, often involve complex procedures, frequent hospitalizations and intense medical management, leading to considerable discomfort, reduced functional ability and overall decreased well-being and calling into question the efficiency and effectiveness of current end-of-life (EOL) care practices. ... How to conduct de-implementation in EOL contexts:

[Switzerland] Comforting styles of serious illness conversations: a Swiss wide factorial survey studyBMC Medicine; by Robert Staeck, Carsten Sauer, Steven M. Asch & Sofia C. Zambrano; 4/14/25 Background: Serious illness conversations can cause discomfort in patients, potentially impeding their understanding and decision-making. Identifying ways in which physicians can reduce this discomfort may improve care. This study investigates which physician communication styles and characteristics individuals perceive as comforting in physician–patient serious illness conversations. ...  Methods: We conducted a nationwide online factorial survey in German, French, and Italian with 1572 Swiss participants from the public (51.4% women) aged 16 to 94. ...Conclusions: Taking time, providing clear information, and ensuring continuity of care are pivotal in enhancing comfort. Also relevant are the expression of sadness, physician self-disclosure, and a prior relationship with the patient.