Literature Review
All posts tagged with “Clinical News | Culture.”
Why Black, Hispanic, and Asian patients hesitate to opt for palliative care: Deep metaphors from patients, community leaders, and clinicians with shared cultural identities to shape more effective outreach
10/25/25 at 03:40 AMWhy Black, Hispanic, and Asian patients hesitate to opt for palliative care: Deep metaphors from patients, community leaders, and clinicians with shared cultural identities to shape more effective outreachJournal of Palliative Medicine; by Anthony L Back, MaryGrace S King, Kathy C Shaw, Kelly Willis, Malcolm Brooks, Arigun Bayaraa, Leon He, Vanessa Herman, Ivan Sanchez, Lindsay Zaltman, Marian S Grant; 9/25In the United States, national data show that Black, Hispanic, and Asian patients are less likely than White patients to receive palliative care (PC) despite comparable or greater symptom burden. We enrolled 15 patients (5 Black, 5 Hispanic, 5 Asian), 8 community leaders (5 Black, 3 Hispanic, 1 Asian), and 6 palliative care clinicians (2 Black, 2 Hispanic, 2 Asian). Patients' images about their experiences of being offered PC revealed the metaphor of "inside/outside"-a sense of simultaneous inclusion and exclusion with regard to their community and also the medical system. The patients' sense of belonging and protection felt from their communities was demonstrated in images that evoked the metaphor of "home," as a physical and emotional place with a sense of belonging. The metaphor of home as a place of belonging was mirrored in community leader and PC clinician interviews.
End-of-life care in the austere military environment
10/25/25 at 03:25 AMEnd-of-life care in the austere military environmentMilitary Medicine; by Jason David, Stevan Fairburn, Hayden Fogle, Nicholas Dulin, Russell Day; 9/25Throughout the Global War on Terror (GWOT), the U.S. military built a revolutionary capacity to deliver life-saving care-even in austere environments-through rapid evacuation, far-forward providers and resources, and advances in prehospital and trauma-critical care. However, the operational reality of future Large Scale Combat Operations (LSCO), as evidenced by wars in Ukraine, Sudan, and Gaza, will be marked by high casualty rates and limited medical resources. [This review] ... explores how medical providers must shift from curative to comfort-focused care, often without formal palliative training, and how end-of-life care protocols must be integrated into doctrine, triage systems, and commander education. We offer pragmatic guidance on clinical decision-making, communication strategies with both medical and non-medical leaders, and the delivery of pain relief, emotional support, and dignity at the end of life-even in forward-deployed, under-resourced settings.
Impact of the Affordable Care Act on palliative and hospice care utilization among patients with gastrointestinal cancers: An interrupted time series analysis
10/18/25 at 03:05 AMImpact of the Affordable Care Act on palliative and hospice care utilization among patients with gastrointestinal cancers: An interrupted time series analysisJournal of Palliative Medicine; by Eshetu Worku, Selamawit Woldesenbet, Mujtaba Khalil, Timothy M Pawlik; 9/25The Affordable Care Act (ACA) aimed to expand insurance coverage, improve health outcomes, and reduce costs. We assessed the impact of the ACA on hospice or palliative care utilization among [Medicare] patients with stage IV gastrointestinal (GI) cancer. Patients from minority racial groups ... and those in moderate ... and high ... Social Vulnerability Index (SVI) counties were less likely to use palliative care in both pre- and post-ACA eras. Palliative care use was associated with $2,633 lower total expenditure. Conclusion: ACA implementation did not improve palliative care utilization for racial minorities and high SVI groups.
LGBTQ+ history project: The need to preserve LGBTQ+ histories of rural America
10/15/25 at 03:00 AMLGBTQ+ history project: The need to preserve LGBTQ+ histories of rural America Watermark Out News; by Lauren Rowello; 10/14/25 ... Resources importantly emerged as people formally organized — bringing critical health care and hospice networks during the HIV/AIDS crisis, for instance, and launching LGBTQ+ voices into expansive advocacy careers. Across the US, some of the most impactful voices for change have come from rural regions. ... Editor's Note: For more on this interface with the birth of hospice care in the US, examine "The AIDS Epidemic’s Lasting Impact on Hospice Care for LGBTQ+ Populations," by Holly Vossel, Hospice News, 6/28/24. Pair these with today's post, "Inside the hospice that feels like home: How Omega House catches those who fall through the cracks."
What we get wrong about death, according to end-of-life workers
10/13/25 at 03:00 AMWhat we get wrong about death, according to end-of-life workers Yahoo Lifestyle, originally appeared on HuffPost; by Monica Torres; 10/10/25 The one big thing that people have in common is that we all will die, and we likely will experience the death of someone we love, too. ... That’s why it can help to hear the insights of people who see death all the time, because understanding it now can help us better process grief about others and feel more at ease when thinking about our own mortality. ...
Bridging gaps in palliative care for undocumented immigrants using the social determinants of health framework
10/11/25 at 03:45 AMBridging gaps in palliative care for undocumented immigrants using the social determinants of health frameworkAmerican Journal of Hospice and Palliative Medicine; by Lisa Cross, Rachael Salguero; 9/25Systemic policies and inequities, rather than immigration status itself, create barriers to health. In the United States, an estimated 11 million individuals live without legal authorization, a population that faces profound challenges in accessing equitable care. These barriers pose particular difficulties for palliative care nurses in recognizing and addressing the needs of undocumented immigrants. Identifying nursing interventions in this manner aligns with the overarching goals of the American Nurses Association and reflects the principles of ethical compassionate palliative nursing.
Beyond bars: Evaluating end-of-life care and surrogate decision-making for hospitalized incarcerated persons
10/11/25 at 03:40 AMBeyond bars: Evaluating end-of-life care and surrogate decision-making for hospitalized incarcerated personsJournal of Palliative Medicine; by Zack Watson, Julie Brown, Abhinav Vyas, Stacey Tillman, Sumi Misra, Rajiv Agarwal, Cheryl Gatto, Allison McCarthy, Mohana Karlekar; 9/25Incarcerated persons (IPs) retain the constitutional right to health care, yet they face unique challenges in accessing palliative care (PC) and designating surrogates, especially when incapacitated. We present two cases of hospitalized IPs with life-limiting illnesses who experienced significant barriers in identifying and engaging surrogates. Both cases underscore the effect of delays in communication with surrogates and restricted end-of-life (EOL) visitation due to correctional policies. These delays limited the delivery of optimal interdisciplinary PC and bereavement support. Despite clear legal guidance under the Tennessee Health Care Decisions Act, misinformation and procedural ambiguity among medical and correctional staff impeded timely and appropriate care.
Implementation of the Age-Friendly Health Systems Initiative in the Department of Veterans Affairs: 5 years of improving quality for older veterans
10/11/25 at 03:30 AMImplementation of the Age-Friendly Health Systems Initiative in the Department of Veterans Affairs: 5 years of improving quality for older veteransINQUIRY: The Journal of Health Care Organization, Provision, and Financing; by Andrea Wershof Schwartz, Shivani K. Jindal, Kimberly A. Wozneak, Robert E. Burke; 9/25The Age-Friendly Health Systems initiative (AFHS) was developed to spread principles of high-quality care for older adults using the 4Ms Framework: What Matters, Medications, Mentation and Mobility. In 2020, the Veterans Health Affairs (VA) set a goal to become an AFHS, given nearly half of Veterans are over aged 65. In conclusion, this paper demonstrates that the first 5 years of Age-Friendly Health Systems initiative within the VA have resulted in significant spread of the 4Ms, reaching hundreds of teams and thousands of Veterans over a broad geographic area and multiple care settings. However, much work remains to continue to spread and study AFHS within the VA, an urgent priority given the aging Veteran population who deserve person-centered care focused on what matters to them. The early results of AFHS implementation in the VA offer a promising model for implementing Age-Friendly care within a large health care system.
For this doctor, LGBTQ+ care is about the mission and the moment
10/10/25 at 02:00 AMFor this doctor, LGBTQ+ care is about the mission and the moment American Medical Association (AMA); by Timothy M. Smith; 10/8/25 ... [Shail Maing, MD] is a hematology-oncology and palliative care physician at Dana-Farber Cancer Institute (DFCI), in Boston, where she is also the inaugural DFCI Network health equity and inclusion liaison. In addition to her work caring for patients, Dr. Maingi’s passion is advocacy, particularly on health inequities for LGBTQ+ patients. She was the founding chair of the American Academy of Hospice and Palliative Medicine’s LGBTQ Special Interest Group. “We’re living in a very diverse world, with much more acceptance and acknowledgement that health care is for everybody—that there are differences that are unexplored, and we can't pretend everybody has the same set of needs,” said Dr. Maingi ...
How personalized medicine empowers patients and cuts healthcare costs
10/05/25 at 03:00 AMHow personalized medicine empowers patients and cuts healthcare costs Becker's Hospital Review; by Mary Sirois; 10/1/25 ... How do we unlock a new era of healthcare excellence? The answer lies in a fundamental shift: personalized care delivered within a truly patient-centered framework that improves satisfaction for patients and clinicians while enabling better clinical, operational, and financial outcomes across the healthcare ecosystem. ... Imagine a healthcare system where:
Not everything is delirium at the end of life: A case report
10/04/25 at 03:15 AMNot everything is delirium at the end of life: A case reportAnnals of Palliative Medicine; by Daniel Gilbey, Eduardo Bruera, Patricia S Bramati; 9/25In this report, we highlight the challenges faced by clinical teams diagnosing and managing delirium, in particular when a language barrier is present. Case description: A patient in his late sixties with low English proficiency with a metastatic neuroendocrine tumor was transferred to a palliative care unit on non-invasive bilevel ventilation. He appeared to become delirious and agitated, trying to remove the face mask, wriggling in bed, and tapping the bedrails. Haloperidol and lorazepam were required when non pharmacological interventions failed to calm him down. The following morning, the patient was able to explain that the positive-pressure facemask was suffocating him and that he could not breathe. So, he was transitioned to high-flow oxygen via nasal cannula, and within a few hours, his respiratory distress significantly improved, and he regained his previous self.
What makes a good death?
09/22/25 at 02:00 AMWhat makes a good death? GeriPal - A Geriatrics and Palliative Care Podcast for Every Healthcare Professional; by Alex Smith with Karen Steinhauser, Rasa Mikelyte and Edison Vidal; 9/18/25What is a “good death”? How should we define it, and who gets to decide? Is the concept of a “good death” even useful? ... In today’s podcast, we are honored to have Karen join us to discuss this pivotal study and the nature of a “good death”. We are also joined by Rasa Mikelyte and Edison Vidal, co-authors of a recent study comparing the perspectives of people with dementia in the UK and Brazil on what constitutes a good death. In addition to exploring the nature of a good death and their individual studies, we will discuss:
Suicide bereavement among Black-Americans: Evidence from the General Social Survey
09/20/25 at 03:20 AMSuicide bereavement among Black-Americans: Evidence from the General Social SurveyOmega-Journal of Death and Dying; by William Feigelman, Julie Cerel, John McIntosh, Nina Gutin, Alice C. Edwards; 8/25Limited research attention has focused on examining the diverging adaptations of American Blacks and Whites to suicide losses. We utilized the 2016 General Social Survey, which included questions related to experiencing suicide bereavement, investigating hypotheses past studies suggested predicting Blacks face more grieving difficulties than their White counterparts. This data did not confirm any evidence of heightened grief or mental health problems among the Black respondents. Owing to the limited number of measurements of mental health assessments more research will be needed to confirm these findings.
Developing competencies to advance health care access and quality for Latino, Hispanic, and Spanish origin populations-A consensus statement
09/13/25 at 03:45 AMDeveloping competencies to advance health care access and quality for Latino, Hispanic, and Spanish origin populations-A consensus statementJAMA Network Open; by Débora H. Silva, John A. Davis Rodríguez, Hector Rasgado-Flores, Pilar Ortega, Deion Ellis, Fernando Sánchez Mendoza, Victor Cueto, Fabiola Quintero-Rivera, Norma Iris Poll-Hunter, Minerva Romero Arenas, Kenneth Lee Dominguez, Juan Emilio Carrillo, José E. Rodríguez, John Paul Sánchez; 8/25Question: What competencies and milestones are essential for advancing health equity for Latina, Latino, Latinx, Latine, Hispanic, and Spanish Origin (LHS+) populations? Since the 1970s, the LHS+ population has increased 6-fold and grown to be the largest ethnic or racial group in the US and accounts for approximately 20% of the US population. The LHS+ health equity competencies and milestones resulting from this study add to prior work by creating a blueprint for standardization and broader application of such educational experiences on a national level. As a tool to enhance CBME [competency-based medical education ] efforts aligned with care for LHS+ populations, the competencies may aid educators and institutions through an LHS+–informed lens in conducting gap analyses for the development of local curricula, developing teaching and assessment materials, supporting the professional development of learners and faculty, and facilitating educational scholarship.
[Global] Palliative care for special populations
09/04/25 at 02:00 AM[Global] Palliative care for special populations ehospice; by Howard Kinyua; 9/1/25
Serious illness and end of life in LGBTQIA+ older adults
08/30/25 at 03:30 AMSerious illness and end of life in LGBTQIA+ older adultsDelaware Journal of Public Health; by Sarah Matthews; 7/25Gender-affirming care is just as important during serious illness and end of life. Typically, gender-affirming hormone therapy is maintained throughout life to provide masculinizing or feminizing effects as desired. At end-of-life, it may be the person’s wish to continue hormones even if the medication poses additional risk. Whenever possible, gender expression preferences of LGBTQIA+ elders should be honored. TRANSforming Choices Healthcare Decisions Starter Guide is an excellent resource for transgender, gender-diverse, and gender-expansive people to make choices about their healthcare including gender-affirming care. Funeral directives are available to ensure that LGBTQIA+ elders’ funeral wishes are followed, including name, pronouns, and presentation of the body.
Advance care planning in Hispanic populations with Parkinson’s Disease: Investigating disparities in end-of life care
08/30/25 at 03:25 AMAdvance care planning in Hispanic populations with Parkinson’s Disease: Investigating disparities in end-of life careClinical Parkinsonism & Related Disorders; by Taylor Peabody, Monica Abou-Ezzi, Lucila Hernandez, Henry Moore, Silvia Vargas-Parra, Alberto Cruz, Danielle S. Shpiner; 8/25ACP [advance care planning] is a topic of increasingly recognized importance among the PD [Parkinson's disease] research and patient communities. Despite evidence that many people with PD across ethnic groups consider this topic important, our study showed that Hispanic people with PD may have less access and experience with this aspect of care. These findings represent an important area for future study, so that all people with PD can benefit from the opportunity to participate in ACP if in alignment with their goals of care.
The Faith Care Family Project: A pilot intervention for African American dementia family caregivers
08/23/25 at 03:15 AMThe Faith Care Family Project: A pilot intervention for African American dementia family caregiversAmerican Journal of Alzheimer's Disease and Other Dementias; Noelle L Fields, Ling Xu, Ishan C Williams, Fayron Epps, Samantha Tinker; 8/25The Faith Care Family (FCF) Project was a telephone based, volunteer-led intervention for African American Alzheimer’s disease and related dementias (AD/ADRD) family caregivers that was piloted in one predominantly African American church. Church volunteers indicated overall significant improvements knowledge of AD/ADRD after the training as well as after the intervention. Quantitative results indicated that caregivers increased their knowledge of dementia, reported improved coping skills, and reported increased positive aspects of caregiving. Feeling a connection, normalizing the challenges of caregiving, gaining or reinforcing knowledge, and sharing community resources were themes from qualitative interviews with the family caregivers.
[Canada] Palliative care access and use among homeless individuals: A scoping review
08/23/25 at 03:00 AM[Canada] Palliative care access and use among homeless individuals: A scoping reviewBMC Palliative Care; by Ashley Rodericks-Schulwach, Ravi Gokani, Lynn Martin; 7/25Homeless individuals experience unique needs and challenges when PC. Many of the challenges experienced are related to the stigma of homelessness– it negatively impacts the relationship people have with PC professionals as well as creates barriers to access. Implementation of integrated and intersectoral PC programs that employ harm reduction approaches is needed to ensure that people experiencing homelessness receive PC that promotes dignity and comfort. Specialized staff training to work with this population is also needed to improve quality of PC care provided. Future research that employs an intersectional lens to better understand the needs of sub-groups within the homeless population is needed, as is use of consistent terminology related to PC services to ensure both understanding and generalizability of findings.
NorthStar Care Community announces partnership with Beads of Courage
08/22/25 at 03:00 AMNorthStar Care Community announces partnership with Beads of Courage Fox 17 - West Michigan;by Nicole Stoner; 8/19/25 Beads Of Courage is an organization that helps pediatric patients document their health journey through beads of different sizes, shapes, and colors. ... NorthStar Care Community, already established for their compassion in pallative and hospice care, has announced a partnership with Beads Of Courage. This time, the partnership honors patients entering hospice care through their own treatment stages, milestones, and moments of courage. ... In addition, the Carry A Bead Initiative invites the public to support these patients on their journey during end-of-life care by carrying a NorthStar Bead with them, then returning it with a message of encouragement. The bead is then gifted to someone in hospice care, ensuring that these patients are not alone in their health journey.
[Belgium] Christian perspectives on palliative sedation: A literature study
08/16/25 at 03:55 AM[Belgium] Christian perspectives on palliative sedation: A literature studyBMC Palliative Care; Jonathan Lambaerts, Bert Broeckaert; 7/25Overall, there is a positive but cautious attitude towards palliative sedation in the four major Christian traditions. All recognise that palliative sedation can help alleviate patient suffering. They remain cautious in their support, however, as they consider the line between palliative sedation and life-ending treatments (e.g. euthanasia) to be too blurred. Moreover, the Christian traditions are aware that lowering the level of consciousness is not without its problems.
Opportunities and barriers to artificial intelligence adoption in palliative/hospice care for underrepresented groups-A technology acceptance model–based review
08/16/25 at 03:30 AMOpportunities and barriers to artificial intelligence adoption in palliative/hospice care for underrepresented groups-A technology acceptance model–based reviewJournal of Hospice and Palliative Nursing; by Xu, Tuzhen; Rose, Gloria M.; 8/25Underrepresented groups (URGs) in the United States, including African Americans, Latino/Hispanic Americans, Asian Pacific Islanders, and Native Americans, face significant barriers to accessing hospice and palliative care. Factors such as language barriers, cultural perceptions, and mistrust in healthcare systems contribute to the underutilization of these services. Recent advancements in artificial intelligence (AI) offer potential solutions to these challenges by enhancing cultural sensitivity, improving communication, and personalizing care. However, barriers such as limited generalizability, biases in data, and challenges in infrastructure were noted, hindering the full adoption of AI in hospice settings.
Social relationships and end-of-life quality among older adults in the United States: The impacts of marital, kinship, and network ties
08/16/25 at 03:20 AMSocial relationships and end-of-life quality among older adults in the United States: The impacts of marital, kinship, and network ties The Journals of Gerontology; by Kafayat Mahmoud, Deborah Carr; 7/25We examine marital status differences in recent decedents’ end-of-life care and gender differences therein, and the role of other social ties (children, siblings, network members) in influencing the quality of end-of-life care. Divorced decedents fared poorly on multiple outcomes, being less likely than married or widowed persons to receive excellent care and to have personal care needs met. Divorced and widowed decedents were less likely to receive respectful treatment relative to married decedents. We found no significant gender differences in these patterns. Persons with more siblings and network members had superior pain management. Hospital patient advocates could also aid those who lack close kin at the end of life.
Black and white older adults’ end-of-life experiences: Does hospice use mitigate racial disparities?
08/16/25 at 03:15 AMBlack and white older adults’ end-of-life experiences: Does hospice use mitigate racial disparities? The Journals of Gerontology; by Clifford Ross, Brina Ratangee, Emily Schuler, Zheng Lian, Benmun Damul, Deborah Carr, Lucie Kalousová; 7/25Racial disparities in end-of-life care are well documented, but less is known about how these inequalities shape assessments of death quality. Proxies for Black decedents reported higher perceived death quality than those for White decedents, despite evidence of greater structural disadvantage. However, perceived care concordance was significantly lower among Black decedents. Hospice care was associated with improved perceived death quality for Black decedents but not for Whites. When accounting for socioeconomic and death experience controls, hospice care did not moderate perceived care concordance.
Field notes from the end of life: My thoughts on living while dying
08/12/25 at 03:00 AMField notes from the end of life: My thoughts on living while dying Texarkana Gazette, Texarkana, TX; 7/26/25 As friends are quick to tell me, we are all living with dying. True enough. Especially because I'm 76, or, as my late husband, Alec, would say, "too old to die young." But it's still disturbing to get official notice of your imminent demise. ... In a series of stories, I'll be sharing my field notes as I make my way from here to there, in the hope that others might find it useful. ... When I start feeling grim about my situation, I'm finding it useful to take a "Would it help?" moment to consider whether my response can improve the situation or help me cope.
