Literature Review

Stitched with love: Allied’s memory bears offer comfort to grieving families in Northeast Pennsylvania WVIA News - PBS/NPR, Scranton, PA; by Lydia McFarlane; 10/27/25 Barbara Rushinski received a bear made of her partner’s pajamas after he passed in hospice care at Allied Services. She was so moved, she put her sewing skills to good use and joined the team of volunteers making the bears for grieving families in Northeast Pennsylvania. ... Allied offers its memory bears to grieving families whose loved ones died in hospice. ... Joyce Wizda started the program at Allied more than six years ago when she joined the healthcare system as a social worker. ... She estimates the volunteers make about 150 bears a year. ... Wizda encourages families to send in clothing items from their loved one’s closet to ease their grieving journey.

How to manage financial caregiving for an aging parent AOL.com; by Kerry Hannon; 10/25/25Steering end-of-life financial decisions for an aging parent is not a job many of us would choose. But we do — and feel our way through the messy emotions as best we can. ...[From an interview:] "[Your mom] was rejected for hospice care, which is covered by Medicare. Can you elaborate on that?""That was just such a slap in the face because it's a hard decision to go to hospice. ... My mom made that decision for herself, but my brother, the doctors, and me had to be on board with it in order for her to do it. The only reason they rejected her is because they thought she would be too costly. They do a cost-benefit analysis of how long that person is going to last— how much [in] resources is she going to consume? They decided that her diagnosis was too murky to justify putting her on hospice at that point. I finally found another hospice company to accept her. And she died in two weeks."

Ensuring safe, effective transitions to hospice Hospice News; by Jim Parker; 10/22/25 Trust, coordination among staff and speedy processes are essential to hospice referral management. This is according to new research from Transcend Strategy Group. For the consulting firm’s most recent Insights Report it conducted in-depth interviews with hospice admissions and business development professionals to identify recurring themes, barriers and opportunities. ... “We have to remember that for the person calling this is probably one of the worst days of their life — if it’s a family member, or if they’re calling on behalf of themselves — and they need help urgently,” Tony Kudner, chief strategy officer for Transcend Strategy Group, told Hospice News.

Hospice social worker and nurse perceptions of the usability of a hospice live discharge protocol (LDP)American Journal of Hospice & Palliative Medicine; by Stephanie P. Wladkowski, Susan Enguídanos, Tracy A. Schroepfer; 9/25Live discharges from hospice are often distressing for patients, caregivers, and hospice providers alike, disrupting care continuity and leading to emotional and logistical challenges. Despite Medicare’s discharge planning requirement, no standardized process currently exists for hospice-initiated discharges, resulting in variable quality of care transitions.  An explicit Live Discharge Protocol has strong potential to enhance the quality and consistency of a live discharge from hospice care. The LDP provides a framework to help smooth the transition from hospice care and provides patients and families with post-discharge support. Feedback from hospice professionals affirmed the relevance and usability of each step within the LDP, while also identifying opportunities for refinement for future implementation.

Mental healthcare delivery in palliative care: Patient and caregiver perspectives Journal of Pain and Symptom Management; by Mia Pattillo, Jeffers Guthrie, Molly Nowels, Maureen Ekwebelem, Karolina Sadowska, Milagros Silva, M Carrington Reid, Daniel Shalev; 10/8/25 ... Results: Participants described strong therapeutic relationships with palliative care clinicians, who offered informal mental health support through conversations, medication management, and referrals.  ...Conclusions: Patients and caregivers view integrated mental healthcare as a valuable addition to palliative care. Integration models should include specialist mental health providers, address caregiver needs, and offer flexible delivery formats. Palliative care's transdiagnostic scope, interdisciplinary structure, and psychosocial orientation make it a strategic site for integrated care.

Rehab patients practice skills by building hospice care packages as Oak Park police and Lincoln Rx donate supplies. Feiga Bowick connects it all.  The Detroit Jewish News; by Rochel Burstyn; 10/9/25 ... Small steps can quickly snowball and make a big difference. Feiga Bowick, LMSW, CDP, the manager of Social Services and Community Engagement at PARC Home Care and Hospice of Southeast Michigan, ... [described] her recent hospice collaboration with Life Skills Village ... a rehabilitation center mainly for patients who have developmental delays and traumatic brain injuries. “I met with their occupational therapist ...: "How could these patients help others in a way that would be helpful to their own recovery?” Bowick said. “Many patients at Life Skills Village are working on fine motor skills and organizational skills, and we decided to try and get items together so they could create care packages for PARC hospice patients — while practicing their skills.” [Continue reading this inspirational story.]

The expanding role of family medicine in Alzheimer's Disease and other dementias Patient Care; by Grace Halsey; 10/7/25 [From the 2025 Family Medicine Experience conference] Family medicine's unique position in dementia management spans initial diagnosis through end-of-life care. ... Dementia Staging: Clinical Assessment and Hospice EligibilityFor practical bedside assessment and hospice determination, the Functional Assessment Staging Tool (FAST) proves particularly valuable.1 The FAST scale includes 7 main stages, progressing from no impairment (stage 1) through severe dementia requiring total care (stage 7). Stage 7 breaks down further into substages (7a-7f) that capture specific functional losses including ambulation, independent sitting, smiling, and head control. Eligibility for hospice care generally requires FAST stage 7c or beyond, indicating ... [continue reading this important criteria] Editor's Note: Leaders must understand hospice eligibility criteria when setting census goals, guiding teams, and communicating with families. Getting it wrong risks fraudulent billing, angry caregivers when live discharges occur, or too little care that comes too late. Getting it right ensures dignity, humanity, and meaningful final moments amid dementia's long goodbyes—true measures of compassionate hospice dementia care.

Studying connection at life’s end: Dean’s distinguished research fellowship captures social realities of dying individuals Royal Purple - founded 1901, La Crosse, WI; by UW-La Crosse University Marketing & Communications; 10/6/25 ... The project was sparked in late 2024 when [senior Maddi Jo] Baumann approached [faculty menot Angela] Geraci with an idea rooted in personal experience and public health urgency. Inspired in part by the U.S. Surgeon General’s advisory on the loneliness epidemic, Baumann wondered: What happens socially to people who are dying? Key findings: what drives social change at the end of life? The team’s early findings point to several factors that influence social relationships during the dying process:

'I spent 36 years holding dying patients' hands' BBC News, Ireland; by Grace Shaw; 10/5/25 For hospice nurse Trish Carling, holding a dying patient's hand through the dark hours of the night was a privilege to share. The 66-year-old has just retired after 36 years working in palliative care at St Michael's Hospice in Harrogate. Her first shift was in November 1989, and she has worked almost every Christmas Eve and New Year's Eve since. Despite the demands of the job, she originally chose the pathway because it worked around family life when her children were young. "At first I found the night shifts practical - they then became my preferred hours," she said. ... [Continue reading]Editor's Note: In what ways do you honor your longtime employees? How do you tell their stories of passionate compassion? Of loyalty to your core mission through changing times and operational practices? So many of these valued employees began in a pre-digital era. Imagine: before cell phones, the internet, websites, electronic employee files, EMR systems, and so much more. Crucial employee data can get lost especially during organizational name changes, Mergers & Acquistions, or a short-term leave of absence. Let this article be a catalyst for you to research and honor your employees with long tenures. Without their faithful foundations, your work today would not be the same.

Grieving someone who’s still here Psychology Today; by Bob Uslander, MD; 10/2/25 Grief does not always begin after death. For many families facing dementia, terminal illness, or a slow decline, it arrives before the final goodbye—quietly, persistently, and often without recognition. This is known as anticipatory grief: the emotional process of mourning a loved one who is still alive. As a palliative care physician, I see this every day. Spouses tell me they feel like they have already lost their partner. Adult children struggle with the reversal of roles, becoming the caregiver to the parent who once cared for them. Caregivers often oscillate between love, exhaustion, guilt, and detachment. None of this means they are doing it wrong. It means they are grieving.

Strengthening mental health literacy enhances job well-being in palliative care Oncology Nures Advisor; by Megan Garlapow, PhD; 10/1/25 Positive mental health literacy (PMeHL) significantly improved job well-being among palliative care nurses, with job crafting acting as a partial mediator in this relationship, according to a study published in BMC Psychology. These results highlight the importance of psychological resources and proactive role adjustments for supporting nurses working in high-stress palliative care settings.Editor's Note: "Job crafting" is the process by which employees actively shape and redefine their roles to enhance job satisfaction, engagement, and meaning in their work. 

Rise in late-stage lung cancer in nonsmokers highlights need for awareness and screening Medscape Medical News; by Evra Taylor; 9/5/25 ... The common thinking is that lung cancer is a smoker’s disease, but that isn’t the full picture, Jessica Moffatt, PhD, vice president of programs and health system partnerships at Lung Health Foundation in Toronto, told Medscape Medical News. ... Moffatt and her colleagues are working to dispel the stigma that smokers “get what they deserve.” Rosalyn Juergens, MD, professor of oncology at McMaster University in Guelph, Ontario, and president of Lung Cancer Canada, said, “If you find out someone has lung cancer, your first question shouldn’t be ‘Did you smoke?’ It should be ‘What can I do to help you along this journey?’ ”