Literature Review

Nurses' encounters with patients having end-of-life dreams and visions in an acute care setting - A cross-sectional survey studyJ Adv Nurse, by Alison Hession, Tim Luckett, David Currow, Michael Barbato; 1/31/24Results: Fifty-seven nurses participated from a workforce of 169 (34% response rate), of whom 35 (61%) reported they had encountered end-of-life dreams and visions. The nature of end-of-life dreams and visions encountered was similar to those reported in previous studies by patients and clinicians. Nurses generally held positive attitudes towards end-of-life dreams and visions but identified an unmet need for education and training on this aspect of end-of-life care.Editor's Note: This research was in Australia, yet has global applications. For U.S. leaders, call on your chaplains, many of whom are trained pastoral counselors to sensitively support and explore patient's "dreams and visions," in non-manipulative ways.

In-cure-able isn’t un-care-able: Pope’s February intention is the terminally ill Aleteia, by Kathleen N. Hattrup; 1/30/24In the month of February, Pope Francis is inviting the whole Church to pray for a renewed commitment to the terminally ill and their families. ... The World Day of the Sick was established in 1992 by John Paul II. Pope Francis explains that “when some people talk about terminal illnesses, there are two words they often confuse: incurable and un-care-able. But they are not the same.”

Mom enters hospice in final days of cancer and releases viral song for 7-year-old sonPeople, by Jordan Greene; 1/25/24Cat Janis shared her final wish – for her song 'Dance You Outta My Head' which she wrote for her 7-year-old son — to go viral. 

A psychologist offers advice on 'being there' for aging parentsForbes, by Mark Travers; 1/22/24As our parents age, we find ourselves on a challenging emotional journey, one that often remains unspoken but deeply felt. It’s the journey of anticipatory grief, a complex mix of emotions and thoughts that arise as we witness our parents becoming older, weaker and more frail. This concept, often overshadowed by post-loss grief, is equally devastating.

The psychological experience of grandparents: proposal of a qualitative clinical assessment tool in pediatric palliative careClin Pract, by Alexandra Jóni Nogueira and Maria Teresa Ribeiro; 1/4/24Compared to parental caregivers and healthy siblings, grandparents are underexplored in the literature and clinical practice. The aim of the present study is to propose a psychological experience assessment tool of grandparents in this context. 

Increasing longevity, decreasing health quality: A close look at American health trendsBNN, by Ayesha Mumtaz; 1/16/24Recent data paints a concerning picture of Americans’ health despite an increase in longevity. While people are living longer, the quality of their health during these extended years is deteriorating. 

Black caregivers' symptom management, cultural, and religious experiences with home hospice careJournal of Pain and Symptom Management, by Taeyoung Park, Danetta H Sloan, Dulce M Cruz-Oliver, Manney Cary Reid, Sara Czaja, Ronald D Adelman, Ritchell Dignam, Veerawat Phongtankuel; 8/23 Objectives: This study seeks to address this knowledge gap by applying qualitative methods to understand Black/African American caregivers' experiences around symptom management, cultural, and religious challenges during home hospice care.

The importance of emotional support services in mental healthYonkers Times, 1/8/24... ROLE IN HOSPCE CARE: In hospice settings, emotional support is crucial for helping both patients and their families manage the complex emotions associated with terminal illness. This support includes providing a safe space for expressing feelings like fear, grief, and anxiety and offering coping strategies. It aims to ease the emotional burden and improve the quality of life ..., recognizing the profound impact that a terminal diagnosis can have on both patients and their loved ones.

Death anxiety impairs self-esteem, quality of life in older adults with chronic diseaseMcKnights Long-Term Care News, by Kristen Fischer; 1/4/24No surprise here: A new study that shows anxiety about dying can affect self-esteem and quality of life among people with chronic diseases. The authors said they’d like to see more interventions to bolster self-esteem and lower death anxiety in middle-aged and older adults who have chronic diseases. The study was published on Tuesday in BMC Psychiatry. The negative consequences of chronic diseases like cancer, diabetes and cardiovascular disease (along with the unpredictability of death) makes middle-aged and elderly adults who have these diseases more vulnerable to death anxiety, the authors wrote. 

How to live: What the dying tell usPsychology Today, by Tasha Seiter; 1/2/24Subtitle: The top regrets of the dying and how we can use them to better our lives.Bronnie Ware, a hospice nurse, asked the dying what they regretted most. While it may have been too late for her patients, their answers can tell us about how we should be living while we still have the chance. Here are the top five regrets of the dying, according to her research (both qualitative and quantitative):

Palliative Care Consultation and Family-Centered Outcomes in Patients With Unplanned Intensive Care Unit AdmissionsJournal of Palliative MedicineJamie T Nomitch, et.al.December 25, 2023Context: Hospitalized patients who experience unplanned intensive care unit (ICU) admissions face significant challenges, and their family members have unique palliative care needs. Objectives: To identify predictors of palliative care consultation among hospitalized patients with unplanned ICU admissions and to examine the association between palliative care consultation and family outcomes.Conclusions: For patients experiencing unplanned ICU admission, palliative care consultation often happened after transfer and was associated with illness severity, comorbid illness, and hospital site. Patient death was associated with family symptoms of psychological distress.

The Language of Hospice Can Help Us Get Better at Discussing DeathTIMEDecember 18, 2023Just because death is inevitable doesn’t make it easy or natural to talk about. In a new study, researchers wondered if hospice workers—experts in end-of-life care—had lessons to teach the rest of us when it came to speaking with patients and families about death. Daniel Menchik, an associate professor of sociology at the University of Arizona who studies the use of language in different fields of medicine, spent eight months sitting in on team meetings at a hospice care facility that were also open to patients’ families. ... In the study, Menchik noticed that hospice workers used three different types of verbs in meetings with family members: predictive, subjunctive, and imperative. Predictive verbs are used to assert things about the future and include words like “will” and “going to.” Imperative verbs carry a similar firmness, but include a call to action; the most common one Menchik encounters in medical settings is “should.” Subjunctive verbs convey some sort of personal stance when talking about the future. “Think,” “feel,” “want,” and many other expressive phrases fall in this category. When a family starts hospice care, “their capabilities to engage in intense conversations [about death] are usually pretty limited,” Menchik says. But he believes that hospice workers help bridge that gap by minimizing their use of imperative verbs. In meetings he observed, imperative verbs made up just 17% of the verb phrases used by hospice professionals. That’s fairly uncommon in medicine. Editor's Note: Use this article to examine the language used in your team meetings; to strengthen your orientation of employees from non-hospice settings; to engage your admissions nurses in a lively dialogue about its applicability to their experiences with patients and families.