Literature Review

This Scottsdale art class helps adults with memory loss 'live in the moment' AZCentral, Scottsdale, AZ; by Alexandra Hardle; 12/1/24 ... Anne Halvorson and her mother, Nancy Halvorson, have been attending Memory Lounge since 2022. Nancy was diagnosed with Alzheimer's the year prior, Anne said. Nancy lives in an assisted living facility, but she spent much of her career as a music therapist working with children with special needs in the public school system, Anne said. Since her mother was already naturally drawn to art, the two became frequent attendees of Memory Lounge after hearing of the program through Hospice of the Valley. "It's been a lifesaver for us. It has given my mother an outlet for all of her creativity, which she has in abundance," Anne said. Memory Lounge also allows Anne's mother the chance to use a different part of her brain and to learn something new. It's also a space for her to simply socialize and talk about something other than her doctor's appointments and where she's living, Anne said.

Softly into the night - An end of life love story Billings Gazette, Billings, MT; by Joseph Scheller; 11/29/24 This is a picture story about life — of joys and sadness, of challenges and struggles and sacrifice. It’s a story about dementia and caregiving. It’s a story about souls and spirit and deepening devotion. Mostly, though, this is a love story. It begins with Wayne Roberts, a big and burley guy with a Harley but as personable and approachable as they come. ... It was simple, really. When he wasn’t at work, he was caring for his wife, Lynne, who had onsets of dementia. When he was at work, he was thinking of her. I wasn’t looking for a story about caregiving but there was a warmth and openness about Wayne and Lynne that tugged me to tell one through my camera. ... [With] their comfort and trust, I became part of their world, in a way, and was able to photograph most anything. They were mostly simple scenes of daily living and caring, some sensitive, some not, and as dementia stole more and more of Lynne’s mind, her world got smaller and Wayne was her only gateway to it. He paved it with tenderness. ... [Click on the title's link to see photos and read this inspirational story.] 

Hospice of the Chesapeake launches new dementia program amid ‘urgent, significant’ need Hospice News; by Holly Vossel; 11/25/24 Hospice of the Chesapeake has unfurled a new dementia care program aimed at providing improved emotional, educational and practical support for patients and their caregivers as their conditions progress. Demographic trends were among the key factors that drove the program forward, said Monica Escalante, chief strategy and information officer at Hospice of the Chesapeake. The Maryland-based hospice and palliative care provider has seen a significant increase in demand for dementia care amid a growing population of seniors with Alzheimer’s disease and related conditions across its service region, which spans four counties in the state.

Local hospice organization announces dementia care program for patients and caregivers Southern Maryland News Net; 11/19/24 Hospice of the Chesapeake has launched a new and innovative dementia care program for dementia patients and their caregivers. The program, in collaboration with The National Partnership for Healthcare and Hospice Innovation (NPHI), The Center to Advance Palliative Care (CAPC) and Aliviado Health, includes free access to the “Dementia Care Patient & Caregiver Resource Guide,” which provides the best-in-class resource for dementia care. The goal is to improve the quality of life for dementia patients, reduce hospitalizations and ease burdens for families and caregivers.Editor's note: The National Partnership for Healthcare and Hospice Innovation (NPHI) is a sponsor for our newsletter.

Prevalence of unrecognized cognitive impairment in federally qualified health centersJAMA Network Open; Ambar Kulshreshtha, MD, PhD; Erik S. Parker, PhD; Nicole R. Fowler, PhD; Diana Summanwar, MD; Zina Ben Miled, PhD; Arthur H. Owora, PhD; James E. Galvin, MD; Malaz A. Boustani, MD, MPH; 10/24This cross-sectional study found that unrecognized cognitive impairment is ubiquitous among older adults from underrepresented, minoritized racial and ethnic groups and those who are socially vulnerable receiving primary care from FQHCs [federally qualified health centers]. To overcome the disparity in early detection of cognitive impairment, timely, equitable, scalable, and sustainable detection approaches need to be developed.

End-of-Life health care service use and cost among Medicare decedents with neurodegenerative diseasesNeurology; by Whitley W Aamodt, Chuxuan Sun, Nabila Dahodwala, Holly Elser, Andrea L C Schneider, John T Farrar, Norma B Coe, Allison W Willis; 11/24We conducted a retrospective study of Medicare Part A and B beneficiaries with Alzheimer disease (AD), Parkinson disease (PD), or amyotrophic lateral sclerosis (ALS) who died in 2018. Decedents diagnosed with malignant brain tumors or pancreatic cancer served as non-neurodegenerative comparators... Persons with neurodegenerative diseases in the United States are more likely to visit the ED and less likely to use inpatient and hospice services at EoL than persons with brain or pancreatic cancer. These group differences may stem from prognostic uncertainty and reflect inadequate EoL care practices, requiring further investigation to ensure more timely palliative care and hospice referrals.

High-risk medications in persons living with dementia-A randomized clinical trialJAMA Internal Medicine; Sonal Singh, MD, MPH; Xiaojuan Li, PhD, MSPH; Noelle M. Cocoros, DSc, MPH; Mary T. Antonelli, PhD, RN, MPH; Ramya Avula, MS; Sybil L. Crawford, PhD; Inna Dashevsky, MS; Hassan Fouayzi, PhD, MS; Thomas P. Harkins, MA, MPH; Kathleen M. Mazor, EdD; Ashley I. Michnick, PharmD, PhD; Lauren Parlett, PhD; Mark Paullin, MS; Richard Platt, MD, MSc; Paula A. Rochon, MD, MPH; Cassandra Saphirak, MA; Mia Si, MS; Yunping Zhou, MS; Jerry H. Gurwitz, MD; 10/24Question: Does a one-time mailed educational intervention to patients and their clinicians reduce prescribing of antipsychotics, sedative-hypnotics, and strong anticholinergic agents in community-dwelling persons living with Alzheimer disease (AD) or AD-related dementias (ADRD)? In this randomized clinical trial of 12,787 patients, there were no clinically meaningful or statistically significant differences from the mailed educational intervention compared with usual care in continued use of medications targeted for deprescribing. These findings suggest medication-specific educational mailings targeting patients with AD or ADRD and their clinicians are not effective in reducing the use of high-risk medications.

Longer hospice stays among dementia patients save Medicare dollars Hospice News; by Holly Vossel; 11/4/24 Hospice utilization has tripled among patients diagnosed with Alzheimer’s disease and related dementias (ADRD) during the past two decades. The trend has ignited concerns about these patients’ lengths of stay, as well as praise for hospices’ cost-savings potential. Massachusetts Institute of Technology (MIT) researchers analyzed Medicare fee-for-service claims spanning between 1999 and 2019, including data on hospice billing, patient enrollment, hospitalizations, health costs and chronic condition indicators. Roughly 14.7% of ADRD patients utilized hospices services in 2019, nearly triple the 4.4% of patients who received this care in 1999, according to the research, which was published in the National Bureau of Economic Research. The research compared billing claims among nonprofit and for-profit providers to explore spending associated with longer hospice stays among dementia patients. ...

Aging studies researchers receive $1.8M to educate dementia care providers on palliative care University of South Florida - College of Behavioral and Community Sciences; by School of Aging Studies; 10/30/24Faculty in the School of Aging Studies have been awarded $1.8 million from the National Institutes of Health (NIH): National Institute on Aging to support their work of implementing and analyzing the impact of a palliative care education intervention for staff in assisted living facilities caring for people living with dementia. Debra Dobbs, PhD, is the principal investigator on the project, and Lindsay Peterson, PhD, Hongdao Meng, MD, PhD, MPH, and William Haley, PhD, will serve as co-investigators. The team will also be collaborating with investigators from UNC-Chapel Hill, Miami University, Penn State, University of Iowa, Workforce & Quality Innovations, and community hospices from Chapters Health Systems and Empath Health.

[UK] Symptom management for people with advanced dementia who are receiving end of life careCurrent Opinion in Supportive and Palliative Care; Maria Drummond , Bridget Johnston; 10/24Recent studies indicate that people with advanced dementia often experience significant unmet palliative care needs, particularly regarding symptom management. Palliative care for people with advanced dementia is currently inadequate due to a lack of tailored interventions, poor symptom management, and disjointed care systems. Enhancing training for caregivers, fostering interdisciplinary collaboration, and focusing on integrated care approaches across home and institutional settings are crucial to improving quality of life and symptom control for people with advanced dementia.

Millennials are reporting a mysterious wave of memory problems. What’s going on? Globe Magazine, Boston, MA; by Felice J. Freyer; 10/21/24 ... Memory lapses are expected as we age, but there’s evidence that many younger people — in the prime of life, ages 20 to 50 — are losing their grip on thoughts, struggling to retain new information and retrieve old knowledge. Experts blame the way we live and the world we live in, abuzz with distracting technologies amid endless demands on our time and minds. Dr. Andrew E. Budson, a Boston University neurologist who specializes in memory disorders in older adults, runs into younger people whenever he gives a talk. Inevitably, someone in their 30s or 40s will approach him afterward with: My memory is terrible. . . . I know I’m young, but I’m concerned I’m getting Alzheimer’s disease. ... [Click on the title's link to continue reading.]

Home health care and place of death in Medicare beneficiaries with and without dementiaGerontologist; Hyosin Dawn Kim , Paul R Duberstein, Anum Zafar, Bei Wu, Haiqun Lin , Olga F Jarrín; 11/24Home health care supports patient goals for aging in place. Use of home health care during the last 3 years of life was associated with reduced rates of inpatient death without hospice, and increased rates of home death with hospice. Increasing affordable access to home health care can positively affect end-of-life care outcomes for older Americans and their family caregivers, especially those with dementia.

A compassionate guide to caring for someone with dementia: 5 essential tips NBC-4 Washington, DC; 10/14/24 According to the World Health Organization, more than 55 million people worldwide are living with dementia, with over 10 million new cases each year. Dementia encompasses a range of brain conditions that lead to a decline in cognitive function, affecting a person's ability to manage everyday tasks. While the disease can present unique challenges for both medical professionals and caregivers, there is hope in the growing understanding of how to best support those affected. ...