Literature Review

Live discharge of hospice patients with Alzheimer’s Disease and Related Dementias: A systematic reviewAmerican Journal of Hospice and Palliative Medicine, by Stephanie P Wladkowski, Cara L Wallace, Kathryn Coccia, Rebecca C Hyde, Leslie Hinyard, Karla T Washington; 2/24This systematic review summarizes the growing body of evidence on live discharge among hospice patients with Alzheimer's Disease and related dementias (ADRD), a clinical subpopulation that disproportionately experiences this often burdensome care transition.

A study of how Americans die may improve their end of lifeMedical Xpress, by Rutgers University; 1/24/24A Rutgers Health analysis of millions of Medicare records has laid the groundwork for improving end-of-life care by demonstrating that nearly all older Americans follow one of nine trajectories in their last three years of life.

Senior living providers can tap into $25 million grant to develop dementia-specific respite servicesMcKnights Senior Living, by Kimberly Bonvissuto; 2/7/24Senior living operators who provide, or are considering providing, respite services for family caregivers of people living with dementia can apply for a piece of $20 million in grant funding. The Alzheimer’s Association will use a $25 million, five-year grant award from the US Department of Health and Human Services’ Administration for Community Living to establish a new Center for Dementia Respite Innovation tasked with making respite services and service providers more dementia-capable. 

Hospice providers must be better regulatedScientific American, 2/1/24 (updated from last week's publication)Too many hospice providers in the U.S. are run by private equity and for-profit corporations. A lack of regulation allows them to provide abysmal end-of-life care.

Hospice Benefit Policy Manual updates related to the addition of Marriage and Family Therapists or Mental Health Counselors to the Hospice Interdisciplinary TeamCMS; 1/22/24Change Request 13437 (PDF) purpose is to manualize changes to the hospice interdisciplinary group (IDG) to include Marriage and Family Therapists (MFTs) or Mental Health Counselors (MHCs). Publisher's note: Also see CMS Hospice Open Door Forum (November 29, 2023) Q&A.

U.S. News & World Report: How to choose a hospice provider and questions to askU.S. News & World Report, by Claire Wolters; 2/14/24Hospice is a critical piece of end-of-life care for many families. Here's how to determine if hospice care is a good fit for you. [Includes "Questions to Ask Yourself," "Questions to Ask Your Hospice Provider," and "How to Choose a Hospice Provider."]Editor's Note: This high profile article provides concise information and questions for the public. Do your marketing materials address these questions? For CMS hospice CAHPS and HHS quality ratings, examine the National Hospice Locator, which provides information about every known hospice in the United States.

The Last Portrait: Local photo exhibition captures different takes on dyingUtica Observer Dispatch, by Amy Neff Roth; 2/9/24... The 26 black-and-white photos, taken by local photographer Mark DiOrio, all capture moments in the life of someone who has been diagnosed with a terminal illness.  “I wanted to photograph them because they’ve been given news that nobody wants to hear,” DiOrio explained. “They’ve been given the news that it’s going to be their time soon. And when you’re given that kind of news, you have choices to make on how you handle it. I felt that these people, what they had to say and the emotions that they communicated in that moment were invaluable.”

Medicare is booming, and providers are bracing themselvesModern Healthcare, by Alex Kacik; 2/12/24The aging of the baby boomers means Medicare enrollment growth is expected to exceed that of other major payers.

'Be a game-changer': Insights on leadership for Black History MonthBecker's Hospital Review, by Kelly Gooch; 2/8/24In honor of Black History Month in February, Becker's Hospital Review asked what it means to be a Black leader in healthcare. Here, Black healthcare leaders share how their heritage and culture infuses their leadership philosophies and adds purpose to their roles.

Hospice Nurse Shares The unexplained experience with a patient that changed her view on death and dyingYour Tango, by Nia Tipton; 1/29/24Death is the most mysterious part of the cycle of life for many individuals. What happens when we die? Is it peaceful? Is it scary? The unknown of what becomes of our souls once our physical presence leaves this Earth can be a daunting thought, but a hospice nurse named Julie offered some insight that she was a firsthand witness to after an elderly patient she'd been looking after passed away.

A guide to paying for hospice care at homeMediaFeed.org, by Claire Samuels; 1/23/24 According to the Centers for Medicare & Medicaid Services, which sets benchmarks for hospice care costs based on the payments they make to providers, here’s what two types of in-home hospice care will cost in 2024’s fiscal year ... [Additional descriptions include insurance, Medicare, Medicaid, VA health care, private health insurance.]

Advance care planning reaches underserved across U.S. recruitment continues for National Institutes of Health (NIH) ResearchHospice Foundation of America; 1/18/24Community outreach leaders and liaisons are urged to apply to serve as hosts for the Project Talk Trial, a national, 5-year research project funded by National Institutes of Health that seeks to evaluate the effectiveness of advance care planning conversations and whether those discussions result in advance care planning actions. ... The project is specifically focused on underserved communities of people who historically have the poorest access to healthcare services and the lowest engagement in advance care planning, which include racial and ethnic minorities, low-income individuals, and rural populations.

Hospice providers must be better regulatedScientific American, 2/1/24 (updated from last week's publication)Too many hospice providers in the U.S. are run by private equity and for-profit corporations. A lack of regulation allows them to provide abysmal end-of-life care.