Literature Review

Amedisys honors 47 employees with annual Spirit of Excellence awardGlobeNewswire; 2/3/25Amedisys, a leading provider of home health, hospice and high-acuity care services, has recognized 47 employees with the prestigious Spirit of Excellence Awards, one of the company’s highest honors. [Click on the press release link above for the list of 47 winners - congratulations!]

Risk factors for and health status of socially isolated adultsJAMA Network Open; Tarun Ramesh, BS; Kushal Kadakia, MSc; Marcela Horvitz-Lennon, MD, MPH; Joshua Breslau, PhD, ScD; Hao Yu, PhD; 1/25In 2023, the Surgeon General issued an advisory on the epidemic of loneliness and social isolation, calling for more research and policy interventions to address these challenges. The overall prevalence of social isolation in our study was 3%, which is lower than other determinants of health, such as smoking, poverty, and inadequate health insurance. Our results indicate 3 broad and likely interrelated populations at risk for social isolation, including racial and ethnic minority groups, those with financial insecurity (ie, unemployed, uninsured, lower income), and those with chronic health conditions, with depression being a large factor. We also found that the socially isolated adults reported worse health status compared with those without social isolation.

Over a quarter of adolescents, young adults with cancer who want to die at home do not Healio; by Jennifer Byrne; 2/20/25 More than one-fourth of adolescents and young adults with cancer who wished to die at home did not attain this goal, according to research published in JAMA Network Open. Researchers conducted a retrospective cohort study that included adolescents and young adults (AYA; age range, 12 to 19 years) with cancer who died between 2003 and 2019. The cohort included patients treated at Dana-Farber Cancer Institute, Kaiser Permanente Northern California or Kaiser Permanente Southern California. ... Healio spoke with Odejide about the rationale for the study, the importance of the findings, and strategies oncologists can employ to ensure more goal-concordant end-of-life care for AYA patients with advanced cancers. [Click here for Helio's discussion with the lead researcher, Oreofe O. Odejide, MD, MPH, associate professor of medicine at Dana-Farber Cancer Institute.]  Editor's note: Examine this JAMA article, which we posted in our Saturday Research issue, 1/18/25: "Preferred and actual location of death in adolescents and young adults with cancer."

Hospice of the Chesapeake Advanced Cardiac Care Program seeks to reduce hospital visits Southern Maryland News Net; Press Release; 2/20/25Hospice of the Chesapeake, in collaboration with the American Heart Association (AHA) and the National Partnership for Healthcare and Hospice Innovation (NPHI) announces the Advanced Cardiac Care Program to address one of the nation’s largest killers of Americans – heart disease. Each year, more Americans die from heart disease than any other condition, including cancer. Heart disease is also a leading cause of hospitalization: patients with congestive heart failure alone account for more than one million inpatient admissions annually. "By offering heart disease patients the right educational resources, we empower them to take control of their health,” Hospice of the Chesapeake Vice President of Medical Affairs & Hospice Medical Director Dr. Sonja Richmond said. “The resources available through the Advanced Cardiac Care Program can help patients and caregivers better manage their condition, reducing the likelihood of hospital visits and improving their quality of life.” ... Carole Fisher, President of NPHI [said,] “Far too many die alone in a hospital or nursing facility, when instead our hospice teams could care for them wherever they reside and they could enjoy a far higher quality of life surrounded by loved ones.”Editor's note: Links to Hospice of the Chesapeake; AHA'sHospice Care" webpage; NPHI's Advanced Cardiac Care Program.   

3 bold and disruptive strategies to retain top-performing leaders Forbes; by Dr. Cheryl Robinson; 2/19/25 ... The Global Leadership Forecast 2025 by DDI reveals a concerning trend: leaders are burning out at unprecedented rates. With 40% of leaders contemplating resignation due to burnout, top talent is either stepping down or disengaging, leaving organizations vulnerable to performance decline and talent gaps. The stakes are high. ...

[UK - St. Christopher's Hospice] Woman with rare brain disease dances with husband for first time in yearsReposted in Daily Journal from Talker News, Tupelo, MS; by Isobel Williams; 2/20/25 This is the touching moment an elderly woman living with a rare brain disease slow danced with her husband - for the first time in years. Constance Bartholomew, 69, has progressive supranuclear palsy (PSP), a neurological condition which has left her struggling to walk. The disorder - which is estimated to affect around 4,000 people in the UK - can cause problems with balance, movement, vision, speech and swallowing. Constance began physiotherapy at St. Christopher's Hospice in Sydenham, south-east London in September last year - at which point husband Dennis, 72, joked he would pay a million pounds to dance with her again. Upon hearing the remark, rehab assistant Ralitsa Angelova ... made it her mission to make it happen.  ... “She is unable to walk, to articulate, her eyesight has failed. It’s a terrible condition. I wouldn’t wish it on anyone. But she is fully aware. There is absolutely nothing wrong with her memory or comprehension. ..." The video has been released as hospices in London come together to change perceptions of hospice care and highlight the vital importance of gifts in wills to their holistic palliative care services for adults and children in their communities. The hospices are taking part in the This is Hospice Care campaign, a national collaboration of 143 hospices across England, Scotland and Wales, brought together by Hospice UK.Editor's note: St. Christopher's Hospice--founded by Dame Cicely Saunders--is the home for modern day hospice care.  Click here for a YouTube video of Constance and Dennis. Click here for the article we posted on 2/21 about the UK's "This Is Hospice Care" initiative.

New ACS research finds low uptake of supportive care at the end-of-life for patients with advanced cancer EurekAlert! - American Association for the Advancement of Science (AAAS); Peer-Reviewed Publication by American Cancer Society; 2/21/25  Despite considerable efforts to improve the quality of end-of-life care in the United States, a new retrospective study led by American Cancer Society (ACS) researchers revealed that close to half of patients with advanced cancer received potentially aggressive care at the end-of-life at the expense of supportive care. The findings are out today in the Journal of the American Medical Association (JAMA) Health Forum. ... Study results showed only one-quarter of patients diagnosed with advanced cancer received any palliative care in the last 6 months of life, and those who received it did so mainly in the month of death. Overall, 45% of decedents experienced any indicator of potentially aggressive care. There was an increase in the mean number of acute care visits (from 14.0 to 46.2 per 100 person-months), hospice use (from 6.6 to 73.9 per 100 person-months), palliative care (from 2.6 to 26.1 per 100 person-months), and advanced care planning (from 1.7 to 12.8 per 100 person-months) over the last 6 months of life. ... Editor's note: Click here for the research article, "Contemporary Patterns of End-of-Life Care Among Medicare Beneficiaries With Advanced Cancer."

HHS job cuts mount: 4 notes Becker's Hospital Review; Madeline Ashley; 2/18/25 HHS saw further job cuts on Feb. 15 across agencies including the CDC, FDA and National Institutes of Health, including around 1,000 NIH terminations, after a Trump administration order to eliminate "nearly all" HHS probationary employees, Bloomberg reported Feb. 16. Here are four things to know: [click on the title's link to continue reading]

The case for a 4-day workweek for nurse managers Becker's Clinical Leadership; by Kelly Gooch: 2/18/25 Four-day workweeks lead to an improved work-life balance for nurse managers, nurse leaders at Philadelphia-based Fox Chase Cancer Center argue in a new paper shared with Becker's. "A 4-Day Workweek for Nurse Leaders: Unveiling the Lessons Learned" is based on a study conducted at the 100-bed specialty cancer center. The study aims to evaluate the influence of a four-day workweek on nurse leaders' perceptions of workload and job satisfaction. Results of the study were published Feb. 17, and included 24 care delivery units and 43 nursing directors, managers and assistant nurse managers.

Wilton’sTurnover Shop surpasses historic milestone — $1 million in donations to Visiting Nurse & Hospice  Good Morning Wilton, Wilton, CN; by Reader Contributed to GMW; 2/7/25 A legacy of generosity has reached a historic milestone — the Turnover Shop of Wilton has surpassed $1 million in lifetime donations to Waveny LifeCare Network’s Visiting Nurse and Hospice. This extraordinary achievement, 80 years in the making, continues to fuel the Network’s Patient Care Fund, ensuring that home care and hospice services remain accessible to those in need, regardless of financial circumstances. “This milestone is a powerful testament to the impact of community-driven generosity,” Homecare at Waveny Vice President Carol Smith said. ... As two deeply rooted nonprofit organizations, Waveny’s Visiting Nurse & Hospice and the Turnover Shop share a mission of service, dedication and heartfelt support for their community. 

Reimagining care and research for Amyotrophic Lateral SclerosisJAMA Neurology; Suma Babu, MBBS, MPH; Joshua M. Sharfstein, MD; Eva L. Feldman, MD, PhD; 1/25Amyotrophic lateral sclerosis (ALS) is a fatal neurological disease involving progressive motor neuron degeneration. In 2022, US Congress and the National Institutes of Health (NIH) commissioned the National Academies of Science, Engineering and Medicine (NASEM) to identify priorities to make ALS a livable disease within a decade. After extensive deliberations and input from the public, researchers, and persons with lived experience, the committee released its report, Living With ALS. To accelerate progress in patient care and therapeutics, one of the report’s major recommendations was for the National Institute of Neurological Disorders and Stroke (NINDS) to fund a clinical trials network dedicated to ALS that is distributed across diverse geographic regions and integrated within a novel hub-and-spoke system of care and research for ALS. The hubs are ALS Centers of Excellence that provide patient care and research, both basic and clinical, while the spokes represent a large number of community and regional ALS clinics that provide care and link to hubs for research. By integrating ALS clinical trials within this structure, we have the potential to transform ALS care, drive innovation in ALS therapeutic development, and pave the way for breakthroughs in other neurodegenerative diseases. 

[Updated] Trump administration suspends hospice Special Focus Program Hospice News; by Jim Parker; 2/14/25 The Trump Administration has suspended implementation of the hospice Special Focus Program. Finalized in the 2024 home health payment rule, the program is designed to identify poor performing hospices, mandate quality improvement and in some cases impose additional penalties. However, stakeholders in the hospice space have contended that the agency’s methodology for selecting hospices for the program is deeply flawed. Notice of the suspension appeared [Friday, 2/14] on the U.S. Centers for Medicare & Medicaid Services (CMS) website.Editor's note: Click here for "Hospice leaders applaud CMS’s decision to reevaluate Special Focus Program, call for meaningful reforms," posted 2/17/25.

Teleios announces completion of Boomer End-of-Life Care Survey Teleios Collaborative Network (TCN), Hendersonville, NC; by Tina Gentry; 2/12/25 Teleios Collaborative Network (TCN) announced the completion of its survey titled “What Baby Boomers Want in End-of-Life Care.” This survey aimed to gain insights into the healthcare preferences and needs of the Baby Boomer generation as they age, transition into retirement and seek end-of-life care. On February 5th, TCN’s Visioneering Council, which comprises member CEOs, C-Suite staff, and marketing managers, gathered to discuss the survey results and explore the best ways to utilize this information to enhance patient care. Before reviewing TCN’s survey findings, Matthew Wilkinson from NPHI and Bill Keane from Emergence presented results from NPHI’s “Aging and End of Life Care Survey.” Additionally, Dr. Terry Fulmer provided insights from the John A. Hartford Foundation’s survey titled “What Older Adults Want from Health Care.” TCN President and CEO Chris Comeaux said, “Over my career, we have been honored to care for the greatest generation. Now that we are at the dawn of the baby boomers being the majority of those we will be honored to care for as they enter their twilight years. Knowing what they expect, what they care about, what they do not want to worry about, all of this is such important data to ensure hospice over the next 30 years is providing an even greater service to patients and families. That’s what this study was looking to accomplish. It’s a great start in that direction.”