Literature Review

National Alliance CEO Dr. Steve Landers: Hospice reform should mean more care, not less Hospice News; by Jim Parker; 7/28/25 Hospice reform efforts should focus on allowing for “more care, not less,” according to National Alliance for Care at Home CEO Dr. Steve Landers. Key elements of this should include home-based respite care and a payment system for high-acuity palliative services that hospice patients often lose out on due to the costs. ... “It means innovation in care, home-based respite services, better payment models for people that need things like dialysis or palliative radiation,” Landers said at the Alliance’s Financial Summit in Chicago. “That is that reform we’re talking about.” ... Landers also said that attempts at hospice reform should not “carve-in” hospice into Medicare Advantage. Bringing hospice under Medicare Advantage would undermine patient choice, adversely impact timely access to care and leave providers with lower reimbursement rates, according to the Alliance, the National Partnership for Healthcare and Hospice Innovation (NPHI) and LeadingAge

Hochul weighs political risk of aid-in-dying bill Fingerlakes1.com, Seneca Falls, NY; by Staff Report; 7/18/25 Gov. Kathy Hochul is under pressure as she considers signing New York’s Medical Aid in Dying Act, a controversial bill allowing terminally ill patients access to life-ending medication, according to Politico. The bill has strong support from advocates and many voters, but faces fierce opposition from religious groups and conservatives. Hochul, a practicing Catholic eyeing reelection, must balance public opinion, personal beliefs, and political risk.

VA announces expanded burial benefits for those under VA-provided hospice care Tri-State Alert; by Staff Report; 7/11/25 The Department of Veterans Affairs announced today it has temporarily expanded burial benefits for certain Veterans, per the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act. The new law specifies eligible Veterans are those who are discharged from VA-provided medical or nursing care to receive VA-provided hospice care at their home and who pass away between July 1, 2025, and Oct. 1, 2026. Previously, Veterans who died at home under VA hospice care after discharge from VA-provided medical or nursing care were not always eligible for a full VA burial allowance. The Dole Act addresses that gap.

Medicaid provisions threaten home and community-based services for millions of vulnerable Americans National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 7/3/25The National Alliance for Care at Home (the Alliance) issued the following statement today in response to the House’s passage of the “One Big Beautiful Bill Act,” also known as the Reconciliation bill, which now heads to President Trump’s desk for his signature. “The Alliance is deeply troubled by the Medicaid provisions within the One Big Beautiful Bill Act, which has passed both chambers of Congress and now awaits President Trump’s signature,” said Alliance CEO Dr. Steve Landers. “These provisions—including work requirements, reduced provider taxes, and new cost-sharing mandates—prioritize short-sighted budget savings over the health and wellbeing of our most vulnerable citizens who rely on home and community-based services (HCBS).” The home care community advocated throughout the legislative process for Congress to mitigate these harmful Medicaid provisions.

Trump administration to end 988 suicide prevention specialized service for LGBTQ+ youth in JulyCNN; by Jacqueline Howard; 6/18/25The 988 Suicide & Crisis Lifeline’s specialized services for LGBTQ+ youth will no longer be in operation starting July 17, according to a statement from the US Department of Health and Human Services’ Substance Abuse and Mental Health Services Administration (SAMHSA). ... According to the latest data from SAMHSA, more than 14.5 million people have called, texted or sent chats to the 988 Lifeline and have been transferred to a crisis contact center since July 2022. Nearly 1.3 million of those were routed to the LGBTQ+ specialized service.Editor's Note: This 988 LGBTQ+ specialized option was piloted in September 2020, expanded on March 6, 2025, and rolled out fully nationwide in July 2023. This data translates to approximately 1,250 LGBTQ calls per day; 52 calls per hour; 1 call per minute. Who--in your world of family and friends--might this ultimately affect? Research, data, and personal stories (sure to be in each of our circles of family and friends) tell us why this matters. A resource for you to use is The Handbook of LGBTQIA-inclusive Hospice and Palliative Care, 2nd edition by Kimberly D. Acquaviva. This handbook is the first place winner, 2024 American Journal of Nursing Book of the Year Award in Palliative Care and Hospice.

Map shows assisted dying laws across US Newsweek; by Jasmine Laws; 6/13/25 New York has recently joined a number of other U.S. states that have made assisted dying legal. The state's Senate approved a bill on Monday allowing constituents with terminal diagnoses to end their lives on their own terms, and the legislation is now headed to Governor Kathy Hochul for her to sign into law. There are currently 10 states, as well as the District of Columbia, that have passed laws making medical assistance in dying (MAID) legal, according to Death With Dignity, and a number of others are considering similar legislation this year. Why It Matters: Assisted dying laws are extremely divisive ... across the globe. [Click on the title's link for the map and more information.]

Rosen introduces bipartisan bills to expand access to palliative care, hospice careJacky Rosen, U.S. Senator for Nevada, Washington, DC; 6/5/25 U.S. Senator Jacky Rosen, co-founder and co-chair of the bipartisan Senate Comprehensive Care Caucus, announced the introduction of a pair of bipartisan bills to expand access to palliative and hospice care. The Expanding Access to Palliative Care Act with Senators Barrasso (R-WY), Baldwin (D-WI), and Fischer (R-NE) would establish a demonstration project through Medicare to expand access to palliative care at the time of diagnosis of serious illness or injury. The Improving Access to Transfusion Care for Hospice Patients Act with Senators Barrasso (R-WY) and Baldwin (D-WI) would carve out payment for transfusion services within the Medicare hospice benefit, allowing for separate billing to Medicare for transfusions. This would improve access to hospice care for patients who rely on transfusion care to maintain quality of life.

Nevada lawmakers pass slate of healthcare bills aimed at fraud, access and transparency ABC 13 KTNV, Las Vegas, NV; by Abel Garcia; 6/3/25 Nevada lawmakers have passed a series of healthcare bills that could impact they way you and your family receive care in Southern Nevada. ... 

Illinois House passes bill allowing terminally ill people to end their lives with physician’s help Chicago Tribune, Springfield, IL; by Jeremy Gorner and Addison Wright; 5/30/25 Legislation that would allow terminally ill people to end their lives with the help of a doctor was narrowly passed by the Illinois House and now heads to the Senate. It marks the first time a medical aid in dying bill has passed through one legislative chamber in Illinois since advocates unsuccessfully pushed for the practice to be legalized in the state last year. The bill passed late Thursday by a 63-42 vote, just three votes more than the minimum number required for bills to pass the House by a simple majority, with a handful of Democrats joining Republicans in voting against it.

Colorado end-of-life care residency requirement challenged Bloomberg Law; by Ryan Autullo; 5/22/25 A terminally ill Minnesota man is asking a federal court to let doctors in Colorado administer drugs to him so he can die peacefully there, a challenge to the state’s residency requirement in accessing end-of-life care. Prohibiting Colorado doctors from giving non-residents drugs to ease suffering in their final months is unconstitutional, lawyers for Jeff McComas wrote in a complaint filed Thursday in the US District Court for the District of Colorado.

Disproportionate impact: Supreme Court narrows disproportionate share hospital reimbursement to Supplemental Security Income cash recipients The National Law Review; by Vinay Kohli, Matthew J. Westbrook, D. Austin Rettew; 5/23/25 The U.S. Supreme Court has issued a significant ruling affecting hospitals that serve low-income Medicare beneficiaries, narrowing the interpretation of the Disproportionate Share Hospital (“DSH”) payment formula. In Advocate Christ Medical Center v. Kennedy, the Court determined that only Medicare patients who were eligible to receive a cash Supplemental Security Income (“SSI”) payment during the month of their hospitalization may be included in the calculation for additional DSH reimbursement. This decision represents a setback for more than 200 hospitals that had advocated for a broader, more inclusive definition of SSI entitlement, potentially reducing the financial support available for treating Medicare’s poorest patients. 

Iowa legislature passes "Mason's Law," with assistance from Children's Respite Homes of America, paving way for 1st Pediatric Palliative Care Center License in the nation Cision PRWeb; by Children's Respite Homes of America; 5/16/25 Iowa has made history. With final approval from both chambers of the Iowa Legislature, "Mason's Law" (House File HF 933) has officially passed, making Iowa the first state poised to authorize a specialized Pediatric Palliative Care Center license. This landmark legislation now awaits the Governor's signature—anticipated before the end of June—and is set to transform how children with life-limiting conditions receive care in Iowa and beyond. Named in memory of Mason Sieck, a young child who passed away in 2021, Mason's Law represents the tireless advocacy of Mason's parents, Shanna and Curtis Sieck. 

Congress offers new plan for Medicaid cuts, raising fresh concerns among HCBS advocates McKnights Home Care; by Adam Healy; 5/13/25 House Republicans on Sunday [5/11] introduced a new budget reconciliation that outlines exactly how Medicaid cuts could take shape. Home- and community-based services advocates quickly spoke out in opposition to the bill. [Various leaders responded.]