Literature Review

Palliative care legislation exploding at state level, but policy gaps remain, study reveals McKnights Home Care: by Adam Healy; 10/27/25 States are becoming increasingly focused on palliative care. Since 2009, the number of palliative care-related bills introduced at the state level has grown at a rapid pace, according to a new study published in JAMA Network Open. ... Of the 819 bills introduced between 2009 and 2023, roughly 30% were eventually passed into law. ... Bills related to palliative care quality and public awareness bills were the most likely to pass, it found. Meanwhile, relatively few bills governing palliative care workforce, clinical skill building and patient rights passed during the study period.

AHA responds to OSTP request on AI policies for health care American Hospital Association; by Ashley Thompson, AHA Senior Vice President, Public Policy Analysis and Development; 10/27/25 ... On behalf of our nearly 5,000 member hospitals, health systems and other health care organizations, our clinician partners — including more than 270,000 affiliated physicians, 2 million nurses and other caregivers — and the 43,000 health care leaders who belong to our professional membership groups, the American Hospital Association (AHA) appreciates the opportunity to provide comment on the Office of Science and Technology Policy (OSTP) request for information (RFI) regarding regulatory reform on artificial intelligence (AI). ... [Our] members have urged that policy frameworks strike the appropriate balance of flexibility to enable innovation while ensuring patient safety. The AHA offers four categories of recommendations to maximize the potential for AI to improve care, accelerate innovation and support the health care workforce.

The Family Caregiver Act—Safeguarding the human care chainJAMA Pediatrics; by Eli Y. Adashi, I. Glenn Cohen; 9/25On August 9, 2024, Jay Robert Pritzker, governor of Illinois, signed into law House Bill (HB) 2161 (Public Act 103-0797), likely the nation’s leading caregiving antidiscrimination legislation. The new law, which took effect January 1, 2025, prohibits employment discrimination against individuals saddled with family caregiving responsibilities. It is by dint of the enactment of HB 2161 that Illinois became the sixth state or district to legally require some form of this employee protection. Alaska, Delaware, Maine, Minnesota, New York, and Washington, DC, precede it, though some of these limit their protection to parents. Moreover, HB 2161 defines personal care as activities wherein a family member assumes responsibility for one or all of the basic needs of an ailing relative, replete with the provision of emotional support and/or transportation to medical appointments. A covered family member may include a child, stepchild, spouse, domestic partner, sibling, parent, mother-in-law, father-in-law, grandchild, grandparent, or a stepparent.Assistant Editor's note: "The Human Care Chain"--what a wonderfully descriptive title this is to describe the Illinois law. Those words evoke strong images of connectedness, humanness, caring, compassion, dedication, goodness, and love. As end-of-life and serious illness care providers, we understand the tremendous value, comfort and necessity of The Human Care Chain.

70% of Americans oppose Medicare home health cuts, national poll finds National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 9/4/25A new national poll by Fabrizio Ward, commissioned by the National Alliance for Care at Home (the Alliance), finds that seven in ten Americans oppose the Centers for Medicare & Medicaid Services’ (CMS) 2026 Medicare home health proposed rule, which would slash Medicare home health funding by an additional 9%, or $1.1 billion, next year. These cuts would put lifesaving home health care for millions of Americans at risk, particularly seniors and those with disabilities, while doing nothing to address fraud, waste, and abuse occurring in the home health payment system.  

With time running out, advocates mount push for telehealth, hospital-at-home extensions McKnights Home Care; by Adam Healy; 8/15/25 With the Sept. 30 expiration date approaching for telehealth flexibilities implemented during the COVID-19 pandemic, industry advocates are urging lawmakers to pass a two-year extension. “We have only 48 days to avert a telehealth shutdown on October 1, and we’re relying on continued bipartisan, bicameral support to win the day,” Kyle Zebley, executive director of American Telemedicine Association Action and senior vice president of public policy for the ATA, said Thursday [8/14] in a statement.

Inmate serving life for murdering Lancaster County woman in 2015 seeks compassionate release Fox 43, Lancaster County, PA; by Keith Schweigert; 8/8/25 A state prison inmate serving a life sentence for killing a Lancaster County woman after she ended their relationship in 2015 has filed a petition asking for a compassionate release so that he can die at home, according to court records. Randall Shriner, 68, has less than six months left to live due to stage-five kidney disease, according to an emergency petition filed by his attorney on July 30. ... According to the Pennsylvania Institutional Law Project, the statute allows courts to grant a compassionate release under two circumstances:

Major health groups push Congress to keep protecting state medical marijuana laws from federal interference Marijuana Moment; by Kyle Jaeger; 7/16/25 A coalition of 45 marijuana advocacy and medical groups—including Americans for Safe Access (ASA), U.S. Pain Foundation, National Multiple Sclerosis Society, Epilepsy Foundation of America and more—are calling on congressional lawmakers to ensure that state medical cannabis programs remain protected under spending legislation that’s advancing. ... The rider that protects state medical cannabis laws from federal interference, meanwhile, has been part of federal law since 2014 but requires renewal on an annual basis as part of appropriations legislation. 

The Alliance champions community-based solutions at Senate palliative care briefing National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 6/4/25 The National Alliance for Care at Home (the Alliance) played a lead role in [Wednesday's] Senate Comprehensive Care Caucus briefing, which focused on expanding access to palliative care services for patients with serious illness. The bipartisan event, hosted by Senators Jacky Rosen (D-NV), John Barrasso (R-WY), Tammy Baldwin (D-WI), and Deb Fischer (R-NE), underscored the need for innovative models that deliver person-centered care in the home and community. Hillary Loeffler, Vice President of Policy & Regulatory Affairs for the Alliance, moderated the panel discussion, guiding thoughtful conversation on access, workforce, and innovation in care delivery. 

Q&A with Jim Obergefell on the future of Supreme Court's gay marriage ruling, LGBTQ rights Fremont News Messenger; by Laura A. Bischoff; 6/1/25 In 2013, Ohioans Jim Obergefell and John Arthur flew on a medical jet to exchange vows in Maryland where same-sex marriage was legal at the time. With Arthur in hospice care for amyotrophic lateral sclerosis, time was slipping away for the Cincinnati couple and their home state of Ohio prohibited same-sex marriage. Days after their tarmac wedding, civil rights attorney Al Gerhardstein showed them a blank Ohio death certificate. "Do you guys understand that when John dies, his last record as a person will be wrong here, where it says marital status at the time of death?" Gerhardstein told them. "Ohio will say John was unmarried. And Jim, your name will not be here, where it says surviving spouse name." Brokenhearted and angry at the idea of not being recognized by Ohio, Arthur and Obergefell told Gerhardstein, yes, they wanted to do something about it. Arthur didn't live to see the fruits of that decision: On June 26, 2015, in a 5-4 decision in Obergefell v. Hodges, the U.S. Supreme Court decided states must allow for same-sex marriages and must recognize those solemnized in other states. Arthur died in October 2013 at the age of 48.

Disproportionate impact: Supreme Court narrows disproportionate share hospital reimbursement to Supplemental Security Income cash recipients The National Law Review; by Vinay Kohli, Matthew J. Westbrook, D. Austin Rettew; 5/23/25 The U.S. Supreme Court has issued a significant ruling affecting hospitals that serve low-income Medicare beneficiaries, narrowing the interpretation of the Disproportionate Share Hospital (“DSH”) payment formula. In Advocate Christ Medical Center v. Kennedy, the Court determined that only Medicare patients who were eligible to receive a cash Supplemental Security Income (“SSI”) payment during the month of their hospitalization may be included in the calculation for additional DSH reimbursement. This decision represents a setback for more than 200 hospitals that had advocated for a broader, more inclusive definition of SSI entitlement, potentially reducing the financial support available for treating Medicare’s poorest patients. 

In the wake of HICPAC: How APIC is leading the fight to preserve national infection prevention standards Infection Control Today, Branbury, NJ; by Tori Whitacre Martonicz; 5/13/25 The Trump administration has disbanded a federal advisory committee that guided efforts to prevent the spread of infections in health care facilities. The Healthcare Infection Control Practices Advisory Committee (HICPAC) established national standards for hand hygiene, mask-wearing, and isolating patients with infectious diseases that most US hospitals adhere to.Infection Control Today® (ICT®) spoke with Connie Steed, MSN, RN, CIC, FAPIC, an infection prevention consultant and former president of the Association for Professionals in Infection Control and Epidemiology (APIC), about HICPAC's disbanding and its implications for national standards in infection control.

Assembly passes bill to allow medically assisted death for terminally ill New Yorkers NNY360, Watertown Daily Times and Northern New York Newspapers, Watertown, NY; by Alex Gault; 4/2925 The New York state legislature is poised to pass a bill that would allow terminally ill people to seek a medication to end their lives, a process called medical aid in dying. On Tuesday, the Assembly voted for the first time to advance a bill, carried by Assemblywoman Amy Paulin, D-Westchester, that would allow a terminally ill patient to ask for a prescription for a lethal medication, to be taken at home on their own terms. 

Legacy even in defeat? Nursing home experts anxious about next moves on staffing efforts McKnights Long-Term Care News; by Kimberly Marselas; 4/21/25 Two weeks after a judge struck down federal staffing standards for all US nursing homes, questions about the rule’s future continue to swirl within the industry. Will the government appeal the District Court’s ruling in Texas and continue to fight for regulations that would force nursing homes to create more than 100,000 new jobs in coming years? How will a judge hearing a similar challenge in Iowa interpret similar arguments, and what happens if the rulings conflict with one another? ... Regardless of whether the rule goes away, industry insiders have one clear expectation: Its legacy will continue to chafe nursing home leaders, who will still face intense pressure to recruit quality staff and improve patient care.