Literature Review

Compassion for terminally ill boy blooms into 17th year of Trick or Treat in the Heat Alaska's News Source, Anchorage, AL; by Olivia Nordyke; 9/9/24 Parents of a terminally ill child said they never thought their son’s last Halloween celebration would transform into an annual event that spans multiple cities. In 2005, doctors told Joyce Durcanin-Robbins and Sean Robbins that their son Ian’s leukemia meant he wouldn’t likely live to see Oct. 31. The couple created an earlier Halloween celebration in their neighborhood to give their son one last trick or treating experience. This weekend marked the 17th time Trick or Treat in the Heat brought neighborhood kids from all over Anchorage out to celebrate and get candy in full costume. “We kind of realized after the fact is this is a lot more fun than late October.” said Sean, Joyce adding; “We missed a couple of years because of COVID, and for the first few years, it was just sort of a year-to-year kitchen table operation.” ... Kelsey Torres, an event organizer, said they’ve raised about $700,000 in the lifetime of Trick or Treat in the Heat. ... Torres said 100% of the money raised goes to Make-A-Wish Alaska and Washington, Hospice of Anchorage, and Ronald McDonald House Charities. Editor's note: The location--Anchorage, Alaska--is core to this story. What location-specific or culturally-sensitive events do you already provide? What creative ideas might you implement? 

Norfolk woman celebrates 106th birthday after hospice discharge for being too healthy CBS WTKR 3, Norfolk, VA; by Vashti Moore; 9/6/24 A local woman not only celebrated good health on Thursday, but she also celebrated 106 years of life. Dorothy Southall was born in Whaleyville — a small neighborhood in Suffolk on Sept. 5, 1918. That’s two years before women received the right to vote and two months before the end of World War I. ... During the Civil Rights Movement, Dorothy worked as a licensed practical nurse at Bellevue Hospital Center in New York. She served her community as a healthcare worker for 20 years before moving back to Virginia in the late 1980s where she would live on her own and manage her own finances until she was 103. ... In August 2023, while living with her family, Dorothy was discharged from hospice because she deemed too healthy and no longer met the requirements. When admitted into residential care this summer in Norfolk, Dorothy said she “felt like she was home” when she arrived.

Gilchrist and Hospice of Washington County join forces in landmark affiliation agreementGilchrist [MD] press release; 9/9/24Hospice of Washington County and Gilchrist, Maryland’s leading provider of geriatric, palliative, and hospice care, have announced an affiliation agreement. This partnership will unite two of Maryland’s oldest and most experienced nonprofit organizations, together with nearly 70 years of service to their communities.

Hospice of the Valley student volunteers gain insight into dementiaCity Sun Times [AZ]; by Lin Sue Flood; 9/4/24... Hospice of the Valley [has a] College Partners Program, an innovative collaboration with Maricopa Community Colleges, Arizona State University and other schools to provide socialization to people living with dementia and a much-needed break to family caregivers... Hospice of the Valley’s dementia and volunteer departments spearheaded this intergenerational program to help inspire careers in dementia care. Incentives include scholarship opportunities, monthly education and letters of recommendation. To date, 106 students have been trained and paired with 123 patients since College Partners launched in 2021 with a grant from Community Care Corps. Now, the program is funded by Hospice of the Valley and community donations.

Inclusive leadership: Fostering diversity and inclusion Forbes; by Lynda Silsbee and the Forbes Coaches Council; 9/5/24 In today's work world, diversity and inclusion are more than just buzzwords—they are essential components of a successful and innovative organization. Inclusive leadership, which actively seeks to embrace diversity and create an environment where all individuals feel valued and empowered, is critical to fostering this philosophy. Leaders who prioritize inclusion can harness the full potential of their teams, driving creativity, engagement and productivity. ... A study by Bersin by Deloitte shows that inclusive and diverse companies have "2.3 times higher cash flow per employee" and smaller businesses enjoyed 13 times higher cash flow. In addition, these companies had greater readiness for change and innovation. Inclusive leadership goes beyond the representation of different demographics within an organization. It involves creating a culture where diverse perspectives are actively sought out, respected and integrated into decision-making processes. Such leadership fosters a sense of belonging, where everyone feels valued for their unique contributions.

Bay Bluffs opens hospice wing as end-of-life care models change Interlochen Public Radio; by Michael Livingston; 9/4/24 Three new beds for hospice care opened in Harbor Springs today marking the end of a year-long pivot for an end-of-life care organization in the region. Last year, McLaren Health System closed hospice facilities in Petoskey and Cheboygan. Combined, the facilities provided more than a dozen beds for hospice in the region. At the time, McLaren called the decision to close "difficult" but necessary due to staffing constraints and said it would move to prioritizing outpatient hospice care - when a nurse visits patients in the home rather than a facility. But a group of advocates in Petoskey said residential hospice is needed in the region - especially for people with serious terminal illnesses. David McBride leads the newly renamed group, Friends of Hospice of Little Traverse Bay. It used to be called the Friends of Hiland Cottage for the facility in Petoskey. ... That’s what led to a partnership with skilled nursing facility Bay Bluffs in Harbor Springs. It’s the Emmet County Medical Care Facility and owned by the county health department. Bay Bluffs is not a licensed hospice provider but it is able to outsource hospice from other companies while providing rooms for families to gather with their loved ones and trained nursing. This newer model of end-of-life care is a growing trend and has been tried in other places such as Arbor Hospice in Ann Arbor which closed its residential facility in 2022.

“What I wish I knew about hospice”: A Cleveland Clinic palliative care physician’s insights The Healthy; by Dr. Patricia Varacall, DO; 9/3/24 End-of-life care is deeply personal and incredibly complex. An expert MD shares essential insights on hospice: "At its core, is about human connection." … Laura Hoeksema, MD, MPH, FAAHPM, medical director of Cleveland Clinic Hospice and staff physician in the department of palliative and supportive care, explains the importance of hospice: “Death is a part of life just as much as birth is. When time becomes limited, patients need to be able to spend time in a way that’s meaningful to them.” ... Dr. Hoeksema emphasizes that choosing hospice care is exactly that—a choice. The team offers additional support, guiding patients and their families through the last months of life. ... “When a patient has a serious illness, it’s common for their illness to become the primary focus,” reflects Dr. Hoeksema. The constant anticipation of how the disease might progress can create overwhelming anxiety. With hospice, the illness recedes into the background, allowing the emphasis to be on caring for the person as a whole. ... “The most profound healing I’ve witnessed as a physician has been in patients receiving hospice care,” Dr. Hoeksema adds. She recalls seeing families reconcile after years of tension and others coming together after long periods of distance. The joy on a patient’s face when surrounded by loved ones, laughing and reminiscing, is what it’s all about. “Hospice care, at its core, is about human connection.”

Estela’s blog: A mother’s scent KTSM.com, El Paso, TX; by Esther Casas; 9/3/24 My mom passed away on September 28, 2002. This year will mark 22 years since we had our last conversations. I remember that day like it was yesterday. ... I remember her eyes, but I barely remember her voice. We had captured many memorable moments in pictures but never recorded her voice or asked her questions that would never be answered. If you have elderly parents, I suggest you have a real and frank conversation and record it. As I spent several hours doing some fall cleaning, I found myself immersed in memories. ... Each item I discarded felt like a small step towards closure. ... I found a zip-lock bag with the house dress my mom was wearing the morning she died. ... A hospice nurse had written her name: Esther Casas. I carefully opened the plastic and took a deep breath. Most of her scent is now gone. I quickly closed the bag to preserve what little scent is left and put it back in the drawer. ... I felt melancholy, but I used it as an opportunity to remember the three weeks she was in hospice care and the incredible team of family, friends, and hospice nurses who helped her transition home.Editor's note: Have you experienced the hospice care and death of a family member? Whom would you like to thank? Now is a great time. Let them know how that experience of good care plays into the daily care you provide now.

OhioHealth and Compassus finalize partnership for home health and hospice PR Newswire, Columbus, OH and Brentwood, TN; by Compassus / OhioHealth; 9/4/24 Compassus, a leading national provider of integrated home-based care services, and OhioHealth, a nationally recognized, not-for-profit, charitable healthcare outreach of the United Methodist Church, are pleased to announce the finalization of their partnership for home health and hospice services to be called OhioHealth at Home in partnership with Compassus. Under this partnership, Compassus has acquired ownership interest in three hospice locations and four home health locations that were formerly led by OhioHealth. Compassus will manage the operations of these agencies, leveraging its extensive experience in home-based care, while OhioHealth will continue to play a key role in delivering high-quality care in Ohio. OhioHealth's Athens hospice services and the Kobacker House in Columbus, Ohio, are excluded from the partnership. Editor's note: 

Hospice executives: Value-based care, regulation will shape hospices’ futureHospice News; by Holly Vossel; 9/3/24Disruptive reimbursement and regulatory challenges are top of mind for today’s hospice c-suite executives, who recently sat down with Hospice News to discuss what they see as the largest hurdles to sustainable end-of-life care delivery. Reimbursement pressures and changes among the most significant concerns for today’s hospices, according to Kristen Yntema, president and CEO of AuthoraCare Collective. The North Carolina-based nonprofit provides hospice and palliative care, among other services.

The art Of asking: How effective questioning transforms leadershipForbes; by Keli Frazier-Cox; 8/29/24As a leader, it can be tempting to fall into the trap of thinking you have all the answers. After all, successful problem-solving and making quick decisions were a big part of getting to where you are in the first place—right? But that’s not the whole story. Seeking input from people around you is important no matter what your position. This is especially true as we rise in seniority and the problems we face become more complex. Asking questions is a crucial but often overlooked leadership skill that moves us into a space of co-creation—finding the best solution, not just your solution. Engaging your teams, peers and other colleagues builds trust, loyalty and enthusiasm, helping guide everyone toward mutual success.

Hospice leaders: Culture the key to sustaining the workforceHospice News; by Jim Parker; 8/30/24In a time of workforce shortages, hospices are seeking the “secret sauce” that will help keep employees on board and bring new people into their fold. To find the right mix, hospice providers that have achieved national recognition for employer best practices point to a particular secret ingredient — a supportive culture with open lines of communication, a career path with room to grow and competitive compensation. For the California-based YoloCares, culture is critical, according to the nonprofit’s CEO Craig Dresang.Notable mentions: YoloCares, Vitas, Jennifer Blades of Haven Hospice.

Indoor hospice concert attracts nearly 2,000 people at fieldhouse The Republic, Columbus, IN; by Brian Blair; 9/1/24 The Indianapolis-based Woomblies Rock Orchestra led off with The Who’s classic “Love Reign O’er Me” before an audience estimated at nearly 2,000 people at Circle K Fieldhouse at NexusPark at 2224 25th St. in Columbus. ... Stephanie Cain, Our Hospice of South Central Indiana president, looked at the latest crowd halfway through the night of three pop-rock acts and smiled. “I feel like my heart is totally overflowing,” she said. Others felt the same vibe. Attendee Sheila Coy knows hospice’s work, currently with nearly 300 patients with life-limiting illnesses, firsthand.