Literature Review

Dementia severity associated with unmet caregiving needs during skilled home health careJournal of Applied Gerontology; Julia G. Burgdorf, Jennifer L. Wolff, Yolanda Barrón, Halima Amjad; 5/25One-third of home health care (HHC) patients have dementia. We examined 426,608 older (65+) HHC patients with dementia in 2018. Unmet caregiving needs were determined from HHC clinician reports indicating that (1) no caregiver was present (lack of availability) or (2) the caregiver needed training (lack of capacity). Most (83%) HHC patients with dementia experienced an unmet need for caregiving. Medicaid enrollment and depression were associated with lack of caregiver availability; greater clinical severity and being post-acute were associated with lack of caregiver capacity. Patients with high (compared to low) cognitive symptom severity had higher odds of unmet needs due to lack of caregiver capacity ... Findings illustrate the gap between dementia caregiving needs and capacity, highlighting the importance of supportive resources such as training.

His sick wife asked him to kill her. Now that she's gone, he says the loneliness is worse. USA Today; by Madeline Mitchell; 6/11/25 Ever since his wife died in December, David Cook feels like a stranger in his own home. ... The loneliness “is a problem,” Cook said, and sometimes he slips into dark, depressive episodes he can only shake with sleep. He avoids the living room, with the framed photos of the two of them smiling together, the new plush carpet, the television where they'd watch tennis and golf and the ghost of the recliner she used to sit in. Patricia Cook died there, so for now − maybe forever − it's off limits. ... When she went into hospice in their living room, adamant that she’d die in her own home, the pain was excruciating. “She actually, several times, asked me to kill her," Cook said. "And I didn’t even have to think about it, I just said, ‘I’m sorry.’ I said, 'I just can’t do that.’” “Do you know how hard that is?” Cook said. “When someone asks you to kill them?” ... Editor's note: Spoiler alert. David Cook did not kill his wife. Still, he asks, "What more could I have done?" Read this story to develop your understanding of the profound depths of loss for spouses/partners, especially when they have served as caregiver through challenging needs.

From hospital to home: Mastering transitions of care and preventing re-hospitalizations Mayo Clinic; by Mayo Clinic Press Editors; 6/3/25 Physically moving from one healthcare setting to another — whether it be from the hospital to rehab, or rehab to nursing home — can be a complicated process, both logistically and emotionally. And in the midst of all of that hubbub, it can sometimes be hard for the person in the center of it all to feel like they’re properly being heard. On this episode of Aging Forward, Dr. Maria De la Garza talks about the commonality of communication errors between health providers during care transitions, the importance of caregivers and loved ones in the process, a how to center the patient and their wishes in their care.

Summerlin Hospice and Palliative Care transforms hospice care in Las Vegas with comprehensive in-home services East Coastsentinel; Press Release; 6/8/25 The healthcare industry is experiencing significant advancements as Summerlin Hospice and Palliative Care announces the expansion of comprehensive services that redefine compassionate end-of-life care throughout Nevada. ... The in-home care model provides comprehensive medical oversight, including pain management, regular health assessments, and specialized medical testing, all administered by trained healthcare professionals. This approach to hospice allows families to remain together while receiving the highest quality medical attention and emotional support throughout the care process.

Home health provider Intrepid USA files for bankruptcy Home Health Care News; by Joyce Famakinwa; 6/3/25Home health and hospice provider Intrepid USA has recently filed for bankruptcy. The company filed a petition for Chapter 7 bankruptcy in the Southern District Court of Texas in late May, according to court documents. Filing for Chapter 7 bankruptcy results in a straight liquidation, according to Adam Stein-Sapir, a bankruptcy expert at Pioneer Funding Group LLC. ... In 2024, New Day Healthcare acquired Intrepid USA’s hospice operations in Missouri and Texas. Prior to these sales, Dallas-based Intrepid USA operated more than 60 home health and hospice locations across 17 states.

Why CMS’ GUIDE Model could move home care from side act to main stage Home Health Care News; by Joyce Famakinwa; 5/29/25 The Guiding an Improved Dementia Experience (GUIDE) Model might be one of the biggest steps in the right direction for recent Medicare policy. The eight-year voluntary nationwide program was launched last year by the Centers for Medicare & Medicaid Services (CMS), with the goal of supporting individuals living with dementia, as well as their unpaid caregivers. The program’s focus is more important than ever, with an estimated 6.7 million people living with dementia. This amount is expected to skyrocket to 14 million cases by 2060, according to data made available by CMS.

A ‘cloak of comfort’: an integrated approach to palliative care for cancer patients Sinai Health; 5/26/25 At Mount Sinai Hospital, palliative care is fully integrated into cancer care, providing comprehensive, person-centered support for those with advanced illness. Palliative care, derived from the Latin pallium meaning “cloak,” offers comfort and support to individuals with serious illnesses. Often misunderstood as solely end-of-life care, it actually provides relief at any stage of a life-threatening illness and can be provided in tandem with cancer treatment. This holistic approach addresses physical, emotional, and spiritual needs, aiming to improve quality of life for both patients and their families. In fact, early integration of palliative care can enhance symptom management, extend life and offer greater support to caregivers. Patients can receive care at Mount Sinai Hospital’s Cancer Care Clinic, at home through the Temmy Latner Centre’s home palliative care program, and in the palliative care unit at Hennick Bridgepoint Hospital.  

Home care workers could be a secret to savings, value-based care Modern Healthcare; by Diane Eastabrook; 5/20/25 ... About 3.9 million workers provide personal care services, such as bathing, toileting, grooming and meal preparation to patients in their homes, according to the Labor Department. While those workers don’t typically provide medical services, they often spend more time with patients than healthcare providers and can offer valuable insight into patients' conditions, said Kristen Wheeler, executive director of home care for the National Alliance for Care at Home. “They will be the first to recognize when something has changed. These caregivers can report back and are a critical part of the healthcare team," Wheeler said. ... That can lead to faster — and less costly — care. The Labor Department estimates the U.S. will need another 800,000 home care workers over the next decade as the population ages. 

BrightSpring Health Services (NASDAQ:BTSG) Q1 earnings: Leading the senior health, home health & hospice pack StockStory; by Jabin Bastian; 5/22/25 The end of an earnings season can be a great time to discover new stocks and assess how companies are handling the current business environment. Let’s take a look at how BrightSpring Health Services (NASDAQ:BTSG) and the rest of the senior health, home health & hospice stocks fared in Q1. ... The 7 senior health, home health & hospice stocks we track reported a strong Q1. As a group, revenues beat analysts’ consensus estimates by 2.3%. ... 

Exploring the impact of acquisition on quality of care among US home health agenciesHealth Services Management Research; by Debra Winberg, Jillian Torres; 5/25Throughout the United States and Europe, the home health care industry is rapidly consolidating, with merger and acquisition (M&A) activity on the rise. The consolidation of the industry raises questions about the impact that diminished competition may have on the quality of care being delivered. This study examines the impact of home health agency acquisition on quality of care among a sample of 10,184 home health agencies across the United States. Utilizing publicly available data from the Outcome and Assessment Information Set (OASIS) and the Home Health Consumer Assessment of Healthcare Providers and Systems (HHCAHPS) from 2018 to 2022, this study investigates changes in clinical outcomes, organizational process measures, and patient experience. The findings suggest there is a modest 1.07 percentage point improvement in process measures post-acquisition, but no significant changes in outcome or patient experience measures among the 169 agencies that were acquired during the study period. These findings suggest that, while integration has the potential to modestly improve home health process efficiency, there is very little benefit to patients.

Alliance, Aetna & MissionCare collective unite to strengthen direct care workforce HomeCare, Alexandria, VA and Washington, DC; Press Release; 5/19/25 The National Alliance for Care at Home (The Alliance), Aetna Medicaid, a CVS Health company, and MissionCare Collective have begun a collaborative effort to increase access to home health care for older adults and those with disabilities, and increase supports for direct care workers in Illinois, Louisiana and North Carolina. Initially launching in Illinois, Louisiana and North Carolina, the pilot program is funded by Aetna and brings together two national providers committed to transforming care delivery at home. The Alliance represents providers across homecare, home health, hospice and palliative services, serving as an advocate for care delivered where people live. MissionCare Collective, a workforce innovation provider, offers a suite of solutions designed to build, retain and support the care workforce at scale.

Home health use remains high among beneficiaries with dementia, study findsMcKnight's Home Care; by Adam Healy; 5/19/25Medicare beneficiaries who have dementia increasingly are using home healthcare, according to a new study published Friday in JAMA Network Open... Home health utilization increased by roughly 17% among beneficiaries with dementia between 2010 and 2019 and decreased slightly between 2020 and 2022, the study found. Beneficiaries with dementia were also more likely to initiate home healthcare from community-dwelling settings, rather than from post-acute care settings.