Literature Review

How thanatology is driving hospice care innovation Hospice News; by Holly Vossel; 6/13/25 Thanatologists examining dying and grief practices have uncovered significant trends shaping hospice and bereavement care models in recent years. Thanatology is derived from the Greek word for death, “thanatos.” It is commonly described as the study or description of death, dying and loss and the psychological, social, cultural, biological and spiritual aspects of these processes. Editor's Note: Unfortunately, this article failed to identify the first and leading thanatology organization for end-of-life care professionals, ADEC, the Association for Death Education and Counseling: the thanatology association, at www.adec.org, celebrating its 50th anniversary in 2026. Though this article says "several studies have examined ...," ADEC's 50 years of leaders and members have included countless groundbreaking, prolific researchers, authors, academicians, and clinicians throughout our hospice field: William Worden (a founding member), Robert Neimeyer, Ken Doka, and so many more. When you see the "FT" or "CT" credential, you can know that this person has earned the professional credential "Fellow in Thanatology" or "Certified in Thanatology."

Colorado exemplifies how to build opon paid leave progress to meet families’ evolving needs A Better Balance; 6/3/25 Colorado continues to pave the way for strong work-family protections by modeling how these policies can be expanded to meet families' needs. This spring, Colorado expanded the state’s paid family and medical leave program (the FAMLI Act, which our Colorado Office helped write and pass) to include an additional 12 weeks of paid leave for parents with a baby in the neonatal intensive care unit. Governor Polis signed the bill into law on Friday, May 30th, and Colorado workers with a child in the NICU will be able to take additional leave under the expansion beginning on or after January 1, 2026. ... For parents with children in the NICU, additional time off work to remain present can be a lifeline during a stressful time.Editor's note: As we know, the fragile and uncertain health of an infant in a neonatal intensive care unit can, heartbreakingly, lead to death. This—one of the most devastating forms of loss—often leaves parents to grieve in silence, their sorrow compounded by the experience of disenfranchised grief. While family and friends care deeply, they frequently falter in their efforts to provide meaningful support. Though it has been more than two decades since I served on the Pediatric Team at Hospice & Palliative Care of Louisville—only four years in total—my memories remain vivid. The emotions expressed by mothers and fathers, grandparents and siblings still rise easily to the surface, reminding me how enduring and raw such losses can be. Bravo ti Colorado's FAMLI Act. May more states follow their lead.

"Taps" Bugle Call: USMC Drum & Bugle Corps [YouTube]YouTube, filmed at the National Mall, Washington DC, retrieved from the internet 5/22/25Editor's note: We invite you to start this Memorial Day with this reflective playing of "Taps," with backdrops of the Washington Memorial, the Vietnam Veterans Memorial, the Korean War Veterans Memorial, and more. Ongoing, we share with you these resources below for the veterans and their families whom you serve.

TCN Video/Podcast: A Whole New Mind with Daniel H. PinkTeleios Collaborative Network (TCN); by Chris Comeaux with Daniel H. Pink; 5/14/25What makes us uniquely human in an age of artificial intelligence? Daniel H. Pink, the bestselling author of A Whole New Mind, offers a compelling framework for thriving in a world where machines increasingly perform tasks once thought exclusively human. In this episode,  Pink, the world-renowned author of seven bestselling nonfiction books, discusses his interdisciplinary approach to understanding human motivation and the evolving work landscape in the AI age. Pink emphasizes the importance of empathy, creativity, and the need for individuals to augment machine intelligence rather than compete with it.  He also explores the role of technology in healthcare, particularly in Hospice Care, and the significance of human connection and listening in providing care.

'I've already had my miracle': 26-year-old Savannah mom enters hospice care with only weeks to live ABC WJCL 22 News, Savannah, GA; by Savannah Younger; 12/4/24, posted in our newsletter on As the holiday season begins, Sara Long, a 26-year-old Savannah woman, is entering hospice care after a prolonged battle with kidney failure. Now the wife and mother is preparing to say her final goodbyes to family and friends. "I wanted to make sure that everything's kind of ready to go for when family visits and all that kind of stuff," Long said. "So, I just want to make things as easy as possible for everybody." Long has been told she has two to three weeks left to live and is now preparing her family for her passing. ... Their daughter, Riley, 4, is too young to understand what is happening, but Long is creating a hope chest so Riley can always remember her. "There are probably dozens, if not hundreds, of letters at this point, to open at different various points in her life. So, like her first day of school all through, or a graduate degree, potentially," Long said. "I feel like I've already had my miracle," Sara said. "I feel like Riley is my miracle. ..."Editor's note: Sara Long died sooner than expected, just 8 days later on December 12, 2024. Click here for the moving message from her husband, describing her death, paired with the video from December 4th. Click here for an additional "exclusive" interview from People magazine with Sara, describing her decision to enter hospice care.

Community gathers for special BHS graduation ceremony at CT Hospice Zip06 - Shore Publishing, New London, CT; by Jenn McCulloch; 5/2/25In a powerful display of love and unity, members of the Branford community recently rallied together to create a heartfelt, early graduation ceremony for Branford High School (BHS) senior, Michael Radziunas, whose mother, Kathleen, courageously battled glioblastoma for more than a year. As her health began to decline, friends and family quietly voiced the same hope: that she would be able to witness her son’s graduation. ... In a phone call filled with emotion and urgency, two close friends discussed taking photos of him in his cap and gown to share with his mother, but the simple idea soon grew into something much more meaningful — an early graduation ceremony. Upon reaching out to BHS administration, Principal Lee Panagoulias immediately offered to present Radziunas with his diploma in a private ceremony, setting a plan in motion. The graduation took place just two days later on April 24 on the picturesque grounds of Connecticut Hospice. With Radziunas donning his graduation cap and gown, as well as honors cords; family, friends, hospice personnel, and BHS staff gathered to watch Panagoulias present him with his diploma.

This weekend: Passover and Easter with hospice patients and familiesHospice & Palliative Care Today; by Joy Berger, DMA, FT, BCC, MT-BC, editor in chief; 4/17/25 This weekend brings a confluence of the Jewish Passover and Christian Easter holy days. Whatever your faith system, understanding at least a bit about the diverse faith systems of those you serve matters. We provide these hospice-specific resources as references:

20 leadership behaviors that undermine trust—and how to restore it Forbes; by Expert Panel for Forbes Coaches Council; 3/27/25 Trust is the cornerstone of effective leadership, yet even the most well-intentioned executives can inadvertently weaken it. ... Here, members of Forbes Coaches Council share 20 common ways leaders unintentionally compromise trust with teams, along with strategies to restore it.

End-of-life conversations: ‘When they open the door, you have to go in’ Oncology Nursing News; by Pattie Jakel, MN, RN, AOCN; 3/13/25Oncology nurses have a unique relationship with patients that allows for difficult but essential end-of-life conversations, says expert Patricia Jakel, MN, RN, AOCN. Jakel, one of the editors in chief of Oncology Nursing News, emphasized that following up with patients and ascertaining what answers and support they need comes with the close bonds that oncology nurses form with patients with cancer. ... [Jakel describes:] We play a really important role. And sometimes patients ask us difficult questions, and we have to be prepared for it. I remember a lovely young patient I had, she had 2 little girls, and she was very sick. And things weren’t going well for her in the hospital, and she just—she looked up at me and she said, "Am I dying today?" And I thought, "She’s opening the door. She needs to have this conversation.” And I said, “It’s not going to be today, but I think it’s going to be soon.” And she kind of chuckled, because her sister was at the bedside, and she said to her sister, “I need my makeup done. I want my makeup on today, if today’s not the day.” And that took us to a whole conversation about what dying would look like for her.Editor's note: Read and share this significant, sensitive video/article from its source, Oncology Nursing News. What communication education and support do you provide for your nurses? Explore this similar article from Oncology Nursing News, "APPs, Oncologists Work Together for End-of-Life Discussions," 11/2/24.

The staging of 'The Story of My Life' at Asbury Memorial filled with serendipitous moments Savannah Morning News, Savannah, GA; by Amy Paige Condon; 3/6/25 ... [Ray] Ellis, a retired music and drama teacher who works now as a caregiver, and fellow church member Dottie Kluttz, a retired hospice nurse, were hanging decorations in Asbury Memorial’s Social Hall. Ellis shared how his dream of producing “The Story of My Life” was back on his mind … A former hospice nurse, Kluttz founded Savannah Hospice’s Story Keeping program in 2001 as a way for people near the end of their lives to share the story of their lives. …  [Click on the title’s link to read the serendipitous, synergistic encounters that unfolded, resulting in shows March 28, 29, 30.] [Upon underwriting for production costs,] Ellis proposed that ticket sales for the musical could serve as a fundraiser for Savannah Hospice’s Story Keeping program and the Michael J. Fox Foundation for Parkinson’s Research—a nonprofit near and dear to Ellis, who was diagnosed about three years ago with the progressive brain disease that causes tremors, stiffness and balance problems. … Stage and film actor Mark Rand, who was diagnosed with Parkinson’s around the same time as Ellis, agreed to portray Thomas to Ellis’s Alvin—even after Rand thought he would never perform again. …

Charges dismissed against chef accused of trying to kill his Monterey county mother KSBW Action News-8, Monterey, CA; by Felix Cortez; 2/28/25 A popular San Francisco area chef who was arrested along with his sister and charged with trying to kill their mother more than two years ago has had attempted murder charges dismissed against him. “In over 30 years of practice, this was one of the saddest cases I have ever seen and one of the most incompetent investigations by the Monterey County Sheriff’s Department that I have ever seen,” said Juliet Peck, the attorney for James Stolich. ... The mother was terminally ill and lived on a ranch off Highway 68 outside Salinas. “James’ mother’s only wish was to die at home without pain, surrounded by her daughter, son, and pets,” Peck said. But that never happened; Tinker died about a week later in a hospice facility, never to see her children again, because an emergency protective order obtained by the sheriff’s office prevented the children from visiting their dying mother. ... According to court documents, the daughter, Whitney, was the “agent designated to make all health care decisions for her mother,” which included administering medication to help alleviate her mother’s pain. ...The original criminal complaint alleging attempted murder charges said Whitney or a co-conspirator “crushed up pills with a mallet.” A close friend of Tinker was willing to testify that Whitney had no intent to kill her mother but was simply following her mother’s “directive to provide effective and sufficient palliative care even if it hastened her death.”Editor's note: This case raises numerous issues, including but not limited to community education (including law enforcement), Advance Directives, patient and caregiver education and support, MAiD (Medical Aid in Dying) or the End Of Life Option Act (EOLOA) in California, ethics, and the dying process (note that "the mother died about a week later in a hospice facility). 

Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study BMC Palliative Care - Part of Springer Nature, Open Acces; by Annica Lagerin, Christina Melin-Johansson, Bodil Holmberg, Tove Godskesen, Elin Hjorth, Lena Junehag, Carina Lundh Hagelin, Anneli Ozanne, Johan Sundelöf & Camilla Udo; 2/19/25... This study aimed to gain an in-depth understanding of healthcare professionals’ (HCPs) experiences of existential conversations with patients with PC needs and their next-of-kin by generating a theoretical model. ... To emphasize the importance of ethical competence for quality patient care, particularly in PC, a combination of care ethics, clinical proficiency, relational skills and effective communication is essential. ... The potential obstacles we identified that require attention include the need for managers ... to support HCPs by allowing time for reflection, developing new routines, and providing education focused on existential conversations in PC. However, the main contribution of this study is the description of the interdisciplinary strategies HCPs used to establish meaningful, existential conversations by maintaining presence, as this paved the way for trusting conversations with patients and next-of-kin. Editor's note: Pair this with today's article "Why being trustworthy is a leadership hack that drives success."

Aging for Amateurs: Valentine's Day brings out the poetry of aging in love The Post and Courier, Charleston, SC ; by Bert Keller; 2/10/2 The week of Valentine’s Day breathes love. Many elders have lived through love’s changing seasons consciously, experiencing what an alive, evolving, hazardous and soul-satisfying thing love is. ... In every long love, the emotional part undergoes a change as the stages of life are lived through. Marriage begins like a bonfire that melts and merges us: our togetherness wants no separation. Then it eases into a practical fire for cooking meals and washing dishes — those years of getting up with the baby, balancing the books, taking out the garbage. ... And then in old age ... love is less a feeling alongside other feelings, and more a shared sense of being with the other. My wife calls it “with-ness.” ... What was transactional in an earlier stage has become grace. After retirement I volunteered to do chaplaincy with a local hospice. I recall a moment sitting at the bedside of a 93-year-old man whose memory was erased by Alzheimer’s disease. He was now dying ... His wife, who also had Alzheimer’s and was no longer capable of much conversation, sat in a wheelchair by his bed and held his hand. She kept repeating to me, tears flowing, “We’ve been married for 73 years, you know.” It was a kind of mantra. How could I know what it’s like to be at the deathbed of a partner with whom you’ve intimately shared 73 years of life? All the stories, all the peaks and valleys, of such a lifetime? ... Editor's note: May we listen and learn.