Literature Review

Muslim American Heritage Month Celebration U.S. Department of Veterans Affairs, Washington, DC; Denis McDonough; 1/8/25 Dr. Salaam, thank you for your service in the Air Force, and for your service in communities around the country as an Imam and civil rights leader in the years since. Your words, principles, and perspectives are as inspiring as they are important ... [Describing VA Chaplain Omer Yigiter:] He became a VA chaplain at the Northport VA Medical Center, the only Muslim chaplain serving all of VISN-2 and one of only four Muslim VA chaplains across the country. ... We must learn and re-tell stories like those shared today—to ensure the experiences of Muslim American Veterans are acknowledged and honored. Truthful storytelling is also about authentic representation, about ensuring all Veteran voices and perspectives are heard and welcomed. So to our Muslim Veterans and colleagues, your unique perspectives make VA stronger. 

American Academy of Hospice and Palliative Medicine Next Gen Scholars for Equity in Hospice and Palliative Medicine Program receives grant from Adtalem Global Education Foundation PR Newswire, Chicago, IL; by American Academy of Hospice and Palliative Medicine (AAHPM); 12/30/24 The American Academy of Hospice and Palliative Medicine (AAHPM) is grateful to receive support from the Adtalem Global Education Foundation for the Next Gen Scholars for Equity in Hospice and Palliative Medicine. The Foundation supports programs and partners like AAHPM that strengthen the healthcare workforce, expand access to quality education and address healthcare disparities. The Foundation's sole member is Adtalem Global Education, the number one provider of healthcare education in the U.S. In May 2023, led by the Diversity, Equity, and Inclusion (DEI) Committee, AAHPM launched the inaugural Next Gen Scholars for Equity in Hospice and Palliative Medicine Program. This program was initiated as a response to the growing demand for HPM practitioners and the need to increase representation in the field. 

Increasing awareness of hospice services among Latinos on the border YouTube - Borderzine Reporting across fronteras; features Hospice El Paso; 12/25/24 El Paso's Latino Community is seeing a rise in the use of hospice care ... Hospice in Mexico is a place and so a lot of Hispanics--true Mexicans--feel that you're going to take a loved one out of their home when it comes to hospice care. ... Latino families make up a growing portion of hospice users, reflecting national efforts in bilingual outreach and cultural sensitivity programs I had heard. The term "hospice"--I didn't know I didn't know what it meant. I didn't know what it involved but after my dad was enrolled in hospice ... I realized [that it] provided emotional and medical support ... [and] comfort that respects their cultural values. We were very fortunate that the individuals that came in that met with us beforehand and after were bilingual. I noticed that they spoke in English and in Spanish so that they would look between myself, my mom my sister to make sure we were nodding, agreeing, listening, hearing. I think that made a difference. It was very comforting. My dad at one point even said, "They gave me a bath but they didn't get the bed wet." That was our big joke and the fact that he was very comfortable. As more Hispanic families turn to hospice they're finding it offers not just medical care, but a way to honor their loved ones with dignity respect and familiar comforts in their final days.Editor's note: For data on the Hispanic population in the areas you serve, click here for the 

Helping Korean Americans with end-of-life planning is her passion Penn Medicine News; by Daphne Sashin; 12/10/24 Eunice Park-Clinton, DNP, MSN, MBE, is standing before a crowd of Korean American senior citizens, and she wants to talk about the end of life. ... Park-Clinton, a nurse case manager in the Hospital of the University of Pennsylvania’s Emergency Department and an assistant nursing professor at West Chester University, is undeterred. Speaking in Korean, she takes a kind but frank approach as she walks the seniors through life-sustaining treatments they might be offered in their final days and the need to decide what they will—and won’t—want for a dignified end of life.  ... As a Korean American herself, Park-Clinton’s passion for culturally sensitive planning comes from her personal familiarity with the community and its norms. In her work as a nurse, she has personally witnessed older Korean and other Asian immigrants experience health disparities due to their lack of knowledge of the concept.

Stillwater Hospice hosts month LGBTQ+ grief group Northeast Indiana Public Radio, 89.1 WBOI, Fort Wayne, IN; by Ella Abbott; 12/5/24 Stillwater Hospice has a grief support group for those in the LGBTQ+ community, offering a safe, affirming space to open up about the challenges of loss. ... The group was started in 2022, following the opening of the Fort Wayne Pride Center downtown. Stillwater director of communications Bonnie Blackburn-Penhollow said people in the LGBTQ+ community can have additional stressors added onto their grieving. “They may not feel like they can have grief, or express their grief, if their family is not approving," she said. "They need to be able to talk to people who understand what those kind of constrictions on life are like.” The goals of the group are to create coping strategies for navigating grief, build resilience while honoring loved ones and address the unique experiences and challenges faced by LGBTQ+ individuals while grieving.

Ensuring equity in access to palliative care AJMC - The American Journal of Managed Care; by Laura Joszt, MA and Alexandra Gerlach; 11/28/24 Palliative care provides high-quality care that can provide relief from the symptoms of a serious illness, but just as there are issues to accessing cancer treatments, there are barriers to palliative care, as well as racial disparities in access, explained Nadine J. Barrett, PhD, MA, MS, FACCC, senior associate dean for community engagement and equity in research, Wake Forest University School of Medicine and Atrium Health, and current president of the Association of Cancer Care Centers (ACCC). ... There are misconceptions about what palliative care is that may limit the utilization of it, but also existing disparities mean fewer Black and Hispanic individuals access these services compared with their White counterparts.

Understanding deep disadvantage at the end of life: A nationwide analysis of unclaimed deaths Social Science and Medicine; by Jennifer Bridte DrPH, Frank Heiland, PhD, and Deborah Balk PhD; 11/25/24 This is the first systematic examination of unclaimed deaths at the county level and offers a novel way to understand marginalized populations, such as the unhoused and others living in extreme social or economic deprivation. Unclaimed death rates may also provide an objective measure of social support that can be measured over time. ... This is of public health importance because unclaimed death can be seen as a negative health outcome that may be the result of cumulative disadvantage over the life course. ... Highlights:

Disclosure practices in Muslim patients and the impact on end-of-life care: A narrative review American Journal of Hospice and Palliative Care; by Mona Tereen; 11/26/24 ... Non-disclosure practices hold significant weight in end-of-life care for Muslim communities, where cultural and religious beliefs are deeply intertwined with healthcare decision-making. This narrative review explores the complexities of medical decision-making and disclosure practices among terminally ill Muslim patients, examining how these factors shape palliative care delivery. Conclusion: Non-disclosure practices present significant barriers to effective palliative care in Muslim communities. To improve care outcomes, culturally competent communication strategies and family-centered decision-making models are crucial.

Q&A: Prioritizing health equity with Emory Healthcare’s Chief Transformation Office CDW Healthcare - Patient-Centered Care; by Teta Alim; 11/19/24 Most healthcare organizations regularly prioritize goals to improve the patient experience and increase clinician satisfaction, aligning with the Quintuple Aim. Atlanta-based Emory Healthcare created the role of chief transformation officer to focus on these areas, and in July 2023, Dr. Amaka Eneanya became the first to fill the role. ... What would you say were the top three lessons you learned during the first year in your new role? ENEANYA: It's been a great year. For lesson one, as someone coming from a different part of the U.S., ingraining yourself and getting to know the people and the culture of the organization that you’re in, that’s important to determine the change readiness of an organization. ... The second lesson is that change is exciting. There's a lot of trepidation with change, and part of being effective with change management and transformation is really garnering excitement. ... The third lesson that continues to be pervasive in my career is that health equity is poorly understood. ... You have to start with the basic foundation and concepts of health equity before you can make initiatives, otherwise people won't understand what you're doing, and they might have a visceral response to what you're doing because of the misinformation around health equity. 

Prevalence of unrecognized cognitive impairment in federally qualified health centersJAMA Network Open; Ambar Kulshreshtha, MD, PhD; Erik S. Parker, PhD; Nicole R. Fowler, PhD; Diana Summanwar, MD; Zina Ben Miled, PhD; Arthur H. Owora, PhD; James E. Galvin, MD; Malaz A. Boustani, MD, MPH; 10/24This cross-sectional study found that unrecognized cognitive impairment is ubiquitous among older adults from underrepresented, minoritized racial and ethnic groups and those who are socially vulnerable receiving primary care from FQHCs [federally qualified health centers]. To overcome the disparity in early detection of cognitive impairment, timely, equitable, scalable, and sustainable detection approaches need to be developed.

New Health Equity Guide from Center to Advance Palliative Care provides a roadmap to transform care for black patients with serious illness Cision PRWeb; by Center to Advance Palliative Care; 11/13/24 Having medical concerns dismissed, not being believed when reporting pain, and facing multiple barriers to care are just three of the experiences reported to Center to Advance Palliative Care (CAPC) in a focus group of Black patients with serious illness. In fact, when Black people in the United States are living with a serious illness like cancer, heart failure, or dementia, they experience disproportionately high suffering compared to white patients—often due to poor pain management, low-quality communication from their care teams, and high family caregiver burden. To address these inequities, CAPC has released a new, comprehensive guide, Advancing Equity for Black Patients with Serious Illness, to equip palliative care leaders and health equity change agents with practical tools to implement meaningful change. Drawn from research, examples of health equity initiatives from across the country, and the wisdom of health equity leaders, the guide provides a practical roadmap for transforming care for Black patients, and their families and caregivers.

Underrepresentation of Black men in physician assistant and associate trainingJAMA Network Open; Lucy W. Kibe, DrPH, MS, MHS, PA-C; Katrina M. Schrode, PhD; Samuel Paik, MPAS, PA-C; Dominique Frias-Sarmiento, MA; 10/24In this cohort study of PA applicants and matriculants, Black men remained substantially underrepresented despite overall growth of PA training programs. The low representation among matriculants was due in part to the low numbers of applicants but also to substantially lower matriculation success. This persistent underrepresentation highlights systemic barriers and underscores the need for targeted interventions to achieve a more representative health care workforce. To achieve equitable admissions, each PA program should aim to evaluate Black male applicants and matriculate Black men annually.

Funding approved for homeless hospice program SacCountyNews, Sacramento, CA; by Janna Haynes; 10/22/24 The Board approved, at its Oct. 22nd meeting, up to $1,137,788 in funding to complete construction on Joshua House, a facility that provides end-of-life comfort care for homeless individuals with terminal illnesses, after being discharged from an acute care hospital. Joshua’s House specifically provides a location for homeless patients to receive home-like hospice services when they, by definition, do not have a home to receive such care and may otherwise be unsheltered at the time of passing. Joshua’s House provides shelter, food, clothing and certain volunteer comfort services. In addition, YoloCares will provide licensed expert/specialized end-of-life care for individuals and families facing a life-limiting illness. Yolo Cares has provided high-quality hospice care across the six-county region for nearly 50 years. YoloCares also recently became an enhanced Care Management and Community Supports provider through CalAIM.