Literature Review

The Uniform Determination of Death Act is not changing. Will physicians continue to misdiagnose brain death?The American Journal of  Bioethics; Michael Nair-Collins; 7/24Efforts to revise the Uniform Determination of Death Act [UDDA] in order to align law with medical practice have failed. It has long been common practice to declare some patients dead by neurologic criteria even though they do not meet the legal standard for death. Thus, legally living people will continue to be declared dead, not because of a mistake, but because of a choice. The decision to continue misdiagnosing death according to the law will create routine violations of civil rights, will continue to violate the DDR [dead donor rule] that allegedly is such an important red line for organ transplantation, and will contribute to a well-deserved mistrust in the determination of death.

Psychiatric manifestations of neurological diseases: a narrative reviewCureus Journal of Medical Science; Anthony J. Maristany, Brianna C. Sa, Cameron Murray, Ashwin B. Subramaniam, Sean E. Oldak; 7/24Neurological diseases like Alzheimer's, FTD [frontotemporal dementia], Parkinson's, MS [multiple sclerosis], stroke, epilepsy, Huntington's, ALS [amyotrophic lateral sclerosis], TBI [traumatic brain injury], andMSA [multiple system atrophy] are not only characterized by neurological symptoms but also by various psychiatric manifestations, complicating diagnosis and treatment. For instance, Alzheimer's induces cognitive decline and emotionaldistress, Parkinson's leads to motor impairments and mood disorders, and MS intertwines physicalsymptoms with emotional disturbances. Understanding these complex relationships is crucial forcomprehensive care. Collaboration, innovation, and ethical commitment are essential for improvingoutcomes.

The home-based experiences of palliative and hospice care for children and caregivers (EXPERIENCE) Measure: evaluation of psychometric propertiesJournal of Pain and Symptom Management; by Jackelyn Y Boyden, Mary Ersek, Kimberley A Widger, Judy A Shea, Chris Feudtner; 6/24Home-based pediatric palliative and hospice care (PPHC) supports the hundreds of thousands of children with serious illness and complex care needs and their families in the home setting. The EXPERIENCE Measure is a tool with evidence for reliable and valid scores to evaluate family-reported home-based PPHC experiences at the time care is being received.

Medicare-Covered Services Near the End of Life in Medicare Advantage vs Traditional MedicareJAMA Health Forum; by Lauren Hersch Nicholas, Stacy M Fischer, Alicia I Arbaje, Marcelo Coca Perraillon, Christine D Jones, Daniel Polsky; 7/24Financial incentives in Medicare Advantage (MA), the managed care alternative to traditional Medicare (TM), were designed to reduce overutilization. For patients near the end of life (EOL), MA incentives may reduce potentially burdensome care and encourage hospice but could also restrict access to costly but necessary services. MA enrollment was associated with lower rates of potentially burdensome and facility-based care near the EOL. Greater use of home-based care may improve quality of care but may also leave patients without adequate assistance after hospitalization.

Saturday newsletters focus on headlines and research - enjoy!

Omega - Journal of Death and Dying - June 2024 Sage Journals - Omega - Journal of Death and Dying; June 2024 issue Omega - Journal of Death and Dying, a peer-reviewed journal that says it brings insight into terminal illness, the process of dying, bereavement, mourning, funeral customs and suicide, published research articles on the following topics in its June 2024 edition (Vol. 89, Issue 2). [A few sample topics include the following:]

Hospice House of Williamsburg halts admissions for 3 months during renovations WHRO; by Nick McNamara; 7/18/24 Hospice House of Williamsburg is pausing admissions while the facility enters the final phase of renovations. Hospice House has provided end-of-life care and support for upwards of 150 guests annually since its facility opened in 2002. More than 3,000 people have stepped through its Powhatan Parkway doors in that time. And it did it all free of charge, according to Executive Director Brandon Randall. ... To meet that mission, the nonprofit relies on community donations to the tune of $1 million per year. Donations are also what made Hospice House’s renovations possible. ... The final phase of renovations starts in July and is expected to be complete in 12 weeks. During that time, staff will continue offering bereavement support services.

Southern California doctor defrauded over $3.2 million from MedicareKTLA; by Vivian Chow; 7/24/24A Southern California doctor was convicted of defrauding Medicare out of millions of dollars through a multi-year scheme. Victor Contreras, 68, of Santa Paula, worked for two Pasadena hospices, according to the U.S. Attorney’s Office. From July 2016 to February 2019, Contreras and an accomplice, Juanita Antenor, 61, worked to defraud Medicare by submitting nearly $4 million in fraudulent claims for hospice services, officials said. The hospice companies — Arcadia Hospice Provider Inc. and Saint Mariam Hospice Inc. — were controlled by Antenor.

‘Green burials’ grow in popularity as alternatives to traditional funerals Planet Detroit; by Erica Hobbs; 7/24/24|... [Modern] funeral practices are wreaking havoc on the environment. Bodies are embalmed with toxic chemicals and buried in caskets placed in non-biodegradable vaults that take up increasingly limited space in cemeteries. According to a Cornell University study, an estimated 4.3 million gallons of embalming fluid, 20 million feet of hardwood, 1.6 million tons of concrete and 64,500 tons of steel are used in American burials yearly. Even cremation — often thought of as a green alternative to burial — requires up to 500 gallons of fuel and releases up to 250 pounds of carbon dioxide emissions, according to a recent study from the Green Burial Council (GBC). However, for those looking to reduce their carbon footprints even in death, green options, though still relatively rare, are available in Michigan. ... [Click on the title's link to continue reading these descriptions of "green burials."]

Each of us has a fire in our hearts for something. It's our goal in life to find it and keep it lit. ~ Mary Lou Retton, American gymnast and five-time Olympic medalist

Hospice driving 'die-alogue' series sparks end-of-life conversations OrilliaMatters; by Giesele Winton Sarvis; 7/21/24 Comedian Jerry Seinfeld was the inspiration for Driving Die-alogues created by Hospice Huronia [Ontario, Canada]. Debbie Kesheshian, executive director of Hospice Huronia, and Tammy Vater, the supportive care coordinator, were trying to think of a way to normalize conversation around the often taboo subject of death and dying. They decided to follow Seinfeld's model with his show Comedians in Cars Getting Coffee, where Seinfeld picks up a fellow comedian and they have a chat while going for coffee. "Tammy and I thought let’s go for a drive and have a conversation that is just normal and human. Her and I ask a question and we go back and forward with open dialogue," says Kesheshian. A year later, the duo have created approximately 30 short videos posted on YouTube and the Hospice website and they plan on creating more.

AMA Advocacy issue briefsAmerican Medical Association; 7/24/24 Issue briefs summarize key health policy issues by providing concise and easily digestible content targeting both relevant stakeholders and those who may know little about the topic. Contents: Medicare & Medicaid; Telehealth; Scope of practice; Prior authorization; Reducing physician burnout; Practice management; Overdose and mental health/substance use disorder parity; Access to affordable, high-value care; Health care costs & price transparency; Drug costs & pricing; Hospitals & health systems; State medical liability reform; LGBTQ+ health; The business of medicine; Public health improvement; Essential Tools & Resources.