Literature Review

Medicare moments: The scarcity of Medicare caregiver benefits Allied News; by Joel Mekler; 9/14/26 ... AARP and the National Alliance for Caregiving released the 2025 Caregiving in the U.S. report, their newest update since 2020. This comprehensive document offers an in-depth look at the evolving landscape of family caregiving for adults, highlighting key trends, challenges, and potential reforms. A key discovery is the swift growth in family caregiving. Almost 25% of adults — 63 million Americans — spent the last year caring for an adult (59 million) or a child (4 million) with complex medical needs or disabilities, marking a 45% increase since 2015. This trend underscores the essential role of family caregivers and exposes systemic shortcomings that place significant burdens on them, highlighting the pressing need for reforms.

Former VA nurse charged with intentionally abusing hospice patient News 8 Now, La Crosse/Toma, WI; by Sam Shilts; 9/10/26 A former registered nurse at the Tomah Veterans Affairs Medical Center faces a felony charge after prosecutors say she intentionally removed oxygen from a dying hospice patient, causing him great bodily harm. Beth Marie Holtz, 53, of New Berlin, was charged Wednesday in Monroe County court with intentionally abusing a patient causing great bodily harm. An arrest warrant was issued the same day. According to the criminal complaint, the incident occurred Aug. 17, 2025, involving a 75-year-old patient who had been admitted to hospice with pulmonary fibrosis and had a medical order for continuous oxygen supply.

LifeCare Home Health & Hospice Family launches new website to make finding home-based care easier The Best Times, Irving, TX; by LifeCare Home Health Family; 9/14/26 LifeCare Home Health & Hospice Family has launched a new corporate website designed to make it easier for patients, families, referral partners and healthcare professionals to understand LifeCare's growing family of companies and connect with home health, hospice and in-home care services in their communities. Introduced earlier this year, the new website at lchhfamily.com serves as a centralized digital resource for LifeCare's network of locally operated healthcare organizations.

Retired educator gives back to grieving children at Camp Braveheart WJAR-10, NBC, Cranston, RI; by Patrice Wood; 9/9/26 Young hearts come together at Camp Braveheart in Rhode Island and Massachusetts. And the first person to greet them when they get off the bus is Harry Potter. Potter is a retired Rhode Island school educator with a famous name and a heart of gold. They come Camp Braveheart to begin to heal after the death of a loved one. Braveheart is now in its 20th year and much of that time, Potter has been a trusted counselor. "The little kids think I'm magical. You see them running around the camp saying, 'Harry Potter, Harry Potter,'" Potter said. That connection eventually opens the door for a more serious conversation.

Hospice Alliance marks 45 years of care Sept. 25 Racine County Eye, Pleasant Prairie, WI; 9/14/26 Hospice Alliance is celebrating 45 years of serving families in southeastern Wisconsin, marking an anniversary that dates to Sept. 25, 1981, when community members founded the organization to expand access to end-of-life care and family support. ... The organization’s services include care provided in private homes, assisted living and skilled nursing facilities, as well as at its Hospice Alliance Hospice House in Pleasant Prairie, according to the announcement. The nonprofit said it remains guided by a mission of “Adding Life to Days” and provides care regardless of a patient’s ability to pay.

Aviva Senior Living partners with Empath Tidewell Hospice to support Tikvah, Sarasota’s first Jewish hospice program NEWSnet, Sarasota, FL; by EIN Presswire; 9/15/26 Aviva Senior Living is proud to partner with Empath Tidewell Hospice, Sarasota’s leading provider of end-of-life care, to launch a new Jewish hospice program called Tikvah. Led by Sepi Ackerman, Director of Jewish Community Development at Tidewell Hospice, Tikvah is the first program of its kind in Sarasota. It offers specialized services to honor the wishes of Jewish patients and help keep them comfortable during their final days. ... The program provides many services, such as service boxes that bring religious traditions like Shabbat to a patient’s bedside, on-call clergy through a coalition of local rabbis, Jewish vigils, Jewish music, and more. Patients and families can join Tikvah for free as part of their existing Tidewell care.

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

Missed opportunities for goals-of-care conversations in a patient with end-stage juvenile Huntington’s disease: A case reportAmerican Journal of Hospice & Palliative Medicine; by Ignacio Borque, Nuria Perez ´ de Lucas, Alicia Gonzalez, Eduardo Bruera; 8/26Juvenile Huntington’s disease (JHD) is a rare, severe neurodegenerative disorder with early onset, high symptom burden, and a predictable trajectory toward advanced disability and premature death. Despite this, goals-of-care (GOC) conversations and advance care planning are often delayed, leading to reactive, crisis-driven decisions and increased emotional burden for families and clinicians. We present a 30-year-old woman with genetically confirmed JHD, diagnosed at age 14, who declined progressively over more than 15 years. Despite longstanding neurological follow-up and repeated hospital admissions, palliative care referral occurred only 20 days before death. Late palliative care integration limited anticipatory planning and shifted complex decisions into a stage with little room for deliberation, when cognitive and clinical deterioration constrained meaningful participation.

Top ten tips palliative care clinicians should know when caring for seriously ill patients with stimulant use disordersJournal of Palliative Medicine; by Rebekka DePew, Nicole Dussault, Kyle Quirk, Erin Vipler, Josh Borris, Sandra DiScala, Teddy Scheel, Katrina Nickels, Gregg Robbins-Welty, Janet Ho; 8/26Stimulant use disorder (StUD) is common in the hospice and palliative care (PC) setting, though guidance for clinicians remains limited. Stigma around stimulant use is widespread and can lead to impaired clinician/patient communication, poor symptom control, and lower quality of care. PC clinicians should be able to diagnose StUD, understand the potential pharmacologic and nonpharmacologic management options, engage with patients in a trauma-informed way, and refer to addiction medicine colleagues when appropriate. When utilizing opioids for pain management, PC clinicians should be aware of the impact of stimulant use on opioid risk and toxicity. In this article, a multidisciplinary group of PC, hospice, addiction medicine, psychiatry, ethics, and pharmacy clinicians presents ten practical tips for caring for seriously ill patients with current or prior StUD.

Integrating care across the life course supports goal-aligned end-of-life careNature - Communications Medicine; by M. Courtney Hughes; 7/26As global populations age and lifespan increases, health systems too often conceptualize “healthy aging” and “end-of-life care” as distinct phases. Yet emerging evidence from geroscience, palliative care, and health systems science suggests that aging and dying lie on a continuum of adaptation and care.

Saturday newsletters focus on headlines and research - enjoy!