Literature Review



Friend caregivers among older adults

08/01/26 at 03:40 AM

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Quality domains in home-based pediatric hospice and palliative care: Adolescent and young adult perspectives

08/01/26 at 03:35 AM

Quality domains in home-based pediatric hospice and palliative care: Adolescent and young adult perspectivesBMC Palliative Care; by Daniel H Grossoehme, Claire A Crawford, Jhansi Chandra Ellakula, Toluwalase Ajayi, Justin N Baker, Sarah Friebert, Lisa Humphrey, JillAnn Jarrell, Rachel Thienprayoon, Pamela S Hinds; 7/26Previous research with pediatric providers and caregivers concluded that pediatric hospice and palliative care have unique attributes. Not known is how adolescent hospice and palliative care patients understand quality palliative care. Methods: Semi-structured interviews with 10-26 year-olds who received home-based hospice and/or palliative care visits in the prior three years at six diverse sites in the United States. The results address an important gap by including adolescent/young adult patients' voices regarding delivery of home-based hospice and palliative care. Clinical implications include prioritizing and making time to build trusting relationships directly with the AYA, empowering them to participate in their care to the extent appropriate and prepare for transition to adult care when needed, providing support for family members, and training for all providers in generalist spiritual care.

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High flow nasal cannula and high velocity nasal insufflation as a goal-concordant support tool for dyspnoea relief in palliative and end of life care

08/01/26 at 03:30 AM

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Functional outcomes and quality of life for patients with cachexia and solid tumour cancers: Findings of a systematic literature review

08/01/26 at 03:25 AM

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Apathy in dementia with Lewy bodies: Frequency, correlates, and impact on patient and caregiver experiences

08/01/26 at 03:20 AM

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Pruritus, fever, and sweats at the end of life: Nursing assessment and management considerations

08/01/26 at 03:15 AM

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One clinician, every conversation: Palliative care delivery by solo APRN hospitalists in Critical Access Hospitals

08/01/26 at 03:10 AM

One clinician, every conversation: Palliative care delivery by solo APRN hospitalists in Critical Access HospitalsJournal of Hospice & Palliative Nursing; by Melissa Skoff; 7/26Advanced practice registered nurses (APRN) who practice as solo hospitalists in critical access hospitals are often underrecognized in their role in providing palliative and end-of-life care. This article describes the full scope of the solo APRN hospitalist in a critical access hospital setting with close attention to how complex patient demands contribute to the challenges in providing high-quality end-of-life communications. This article examines clinical, educational, and ethical dimensions of this work, and presents a case example that illustrates how these pressures present during a shift. Strategies to strengthen rural palliative care capacity are discussed, including tele-palliative care, remote ethics support, and APRN-centered education. As rural workforce shortages persist and continue to rise, alongside rising patient acuity, naming and addressing these structural gaps is essential in improving quality of care and protecting the well-being of a solo APRN hospitalist.

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[China] PRINCIPLISMQA: A Philosophy-grounded approach to assessing LLM-human clinical medical ethics alignment

08/01/26 at 03:05 AM

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How nurse leaders can cultivate a culture of inquiry to drive evidence-based practice, research, and clinical innovation

08/01/26 at 03:05 AM

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[England] Big thoughts in little jars: Memory days for families where a child has died

08/01/26 at 03:00 AM

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Saturday newsletters

08/01/26 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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I love deadlines...

08/01/26 at 03:00 AM

I love deadlines. I love the whooshing noise they make as they go by.  ~Douglas Adams

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[Canada] Listening to young people on childhood death: a youth-focused participatory approach to children's palliative and end-of-life research and policymaking

08/01/26 at 03:00 AM

[Canada] Listening to young people on childhood death: a youth-focused participatory approach to children's palliative and end-of-life research and policymaking Children & Society; by Sydney Campbell, Nika Rovensky, Ryan Kent, Lauren Delaney, Franco A. Carnevale, Mary Ellen Macdonald; 6/23/26 Conclusion: Our study is one of the first to investigate the perspectives of young people in Canada regarding children's palliative and end-of-life (P-EOL) care, and the first in Canada to employ a participatory approach with young people in research about childhood death and dying. ... To date, the lessons we have learned can help researchers from diverse contexts aiming to carry out similar projects related to children's P-EOL care, based in the belief that the only way to truly shift current practices that overlook young people's voices and engagements as meaningful is through continuous advocacy, development, and application of engagement practices in all matters affecting young people.

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The embedded model for bridging essential delivery of care in assisted living facilities—EMBED-ALF

08/01/26 at 03:00 AM

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Ennoble Care achieves outstanding quality outcomes and lower costs for high-needs Medicare patients

07/31/26 at 03:20 AM

Ennoble Care achieves outstanding quality outcomes and lower costs for high-needs Medicare patientsThe Best Times, Arlington, VA; by PR Newswire; 7/30/26Ennoble Care announced the publication of its 2026 Quality and Outcomes Report. The report highlights reductions in hospitalizations, improved quality of life, and lower costs for a population that is twice as medically complex as the national Medicare average.

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Trella Health releases 2026 Post-Acute Market Intelligence Report -- now fully interactive -- highlighting flattening Medicare Advantage growth and stabilizing FFS volumes

07/31/26 at 03:10 AM

Trella Health releases 2026 Post-Acute Market Intelligence Report -- now fully interactive -- highlighting flattening Medicare Advantage growth and stabilizing FFS volumesPR Newsletter, Atlanta, GA; Press Release; 7/30/26Trella Health today released its Post-Acute Market Intelligence Report: 2026 Edition. ... The report examines the trends reshaping care delivery, referral patterns, and growth opportunities across the post-acute care market. ... The findings point to a post-acute market at a pivotal moment ... fee-for-service hospice admissions grew at their fastest rate in five years, while skilled nursing admissions recorded their first annual increase since 2022. ... [Additionally ...] 

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Executive Personnel Changes - 7/31/26

07/31/26 at 03:00 AM

Executive Personnel Changes - 7/31/26

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VITAS zeroes in on acquisitions amid hospice moratorium

07/31/26 at 03:00 AM

VITAS zeroes in on acquisitions amid hospice moratorium Hospice News; by Holly Vossel; 7/29/26VITAS Healthcare is shifting more of its attention towards acquisitions during a six-month national moratorium on Medicare hospice enrollment. ... VITAS Healthcare is shifting more of its attention towards acquisitions during a six-month national moratorium on Medicare hospice enrollment. “The moratorium does influence our ability to apply for new CONs,” Wherley said during an earnings call on Wednesday. “The moratorium does not prevent us from moving forward with potential acquisitions, as long as the provider has been in service for three years. We’re actively reviewing any of those opportunities with markets that have a barrier to entry as our first interest. But we’re continuing to look at what other opportunities could potentially exist out there.”

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CMS’s decision to end temporary subsidies to Medicare’s stand-alone drug plans could mean larger premium increases for some beneficiaries next year

07/31/26 at 03:00 AM

CMS’s decision to end temporary subsidies to Medicare’s stand-alone drug plans could mean larger premium increases for some beneficiaries next yearKFF; by Juliette Cubanski; 7/29/26 The Centers for Medicare & Medicaid Services (CMS) has just announced plans to end the temporary Part D Premium Stabilization Demonstration after 2026. The goal of the demonstration, which CMS originally stated could last for at least three years when it was established in 2024, was designed to stabilize stand-alone prescription drug plan (PDP) premiums and enrollment amid the rollout of changes to the Part D benefit under the Inflation Reduction Act. The IRA capped out-of-pocket drug spending for Part D enrollees and shifted more costs onto Part D plan sponsors, leading to higher expected costs and premiums, particularly for PDPs. Based on its evaluation of bids for 2027, CMS now states that PDP sponsors have gained “sufficient experience” to support bid development, suggesting that the extra financial support provided to PDP sponsors under the demonstration is no longer needed.

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Unity Golf Classic raises more than $80,000 to support compassionate hospice care, palliative care

07/31/26 at 03:00 AM

Unity Golf Classic raises more than $80,000 to support compassionate hospice care, palliative care The Chamber Manitowoc County, De Pere, WI; Press Release; 7/28/2026Unity's 10th Annual Golf Classic brought together 124 golfers, 26 sponsors, 28 volunteers, and several community partners on Thursday, July 16, at Thornberry Creek at Oneida, raising nearly $80,000 to support Unity's mission of providing compassionate care and grief support throughout Northeast Wisconsin. Celebrating its tenth year, the Unity Golf Classic has become one of the organization's signature fundraising events, helping ensure patients and families receive expert, dignified care regardless of their ability to pay. "The Unity Golf Classic is about much more than a day on the course," said Alisa Gerke, Executive Director of Unity. "It is an opportunity for our community to come together in support of patients and families facing some of life's most difficult moments. We are incredibly grateful to every golfer, sponsor, volunteer, and donor whose generosity makes this event possible."

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Community Hospice introduces Community Horizon Health

07/31/26 at 03:00 AM

Community Hospice introduces Community Horizon HealthThe Daily Independent, Ashland, KY; by Staff Report; 7/28/26 Community Hospice announced a new organizational identity that “reflects the organization’s vision for the future while honoring nearly five decades of compassionate service to the community,” according to a news release. Community Horizon Health brings the organization’s current services together under one unified identity “while creating the flexibility to expand and meet future needs.” “The needs of our community continue to evolve, and we believe it is our responsibility to evolve alongside them,” said CEO Rod Hieneman. “Community Horizon Health is not about changing who we are. It’s about preparing for where we’re going. This new identity allows us to thoughtfully grow while remaining true to the mission and values that have guided us from the very beginning.”

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In New York, who will get to take advantage of medical aid in dying

07/31/26 at 03:00 AM

In New York, who will get to take advantage of medical aid in dyingPrism; by Ben Rappaport; 7/30/26For terminally ill patients, the new law [going into effect in New York on Aug. 5] offers the choice to end suffering. But cost, provider shortages, and medical distrust among communities of color could make the option less accessible. When Kiki Jackson first heard the phrase “medical aid in dying,” she scrunched her face in suspicion. Jackson, a 74-year-old lifelong resident of Harlem, was listening to a group discussion at a local senior center about New York’s new Medical Aid in Dying Act. For her and about a dozen other Black community members in attendance, the idea of terminally ill adults having the right to end their lives evoked troubling experiences with the medical system. ... Research aggregating over 20 years of data from 13 states and Washington, D.C., where similar laws are on the books, reveals that the people who’ve utilized medical aid in dying are overwhelmingly white, college-educated, and able to pay out of pocket.

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Adopting the fourth pillar of acute care surgery: the current state of palliative medicine in trauma care

07/31/26 at 03:00 AM

Adopting the fourth pillar of acute care surgery: the current state of palliative medicine in trauma care Current Trauma Reports; by Alison Haruta and Kathleen O'Connell; 7/30/26Although most older trauma patients survive hospitalization, many deaths occur within six months after discharge, making early goals-of-care (GOC) discussions essential. However, palliative care consultation remains significantly underused, occurring in only 2–4% of severely injured trauma cases. ... Primary palliative care skills are essential for trauma surgeons, though effective integration into the trauma system has been variable. As the need grows, the specialty palliative care work force cannot keep up with demand, highlighting the need for surgeons to learn and perfect their primary palliative care skills, including communication skills and holistic symptom management. Palliative care should function as a core pillar of trauma care, ensuring dignity, reducing non-beneficial treatments, and improving end-of-life experiences for patients and families.

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National Alliance for Care at Home responds to FY 2027 Hospice Final Rule

07/31/26 at 03:00 AM

National Alliance for Care at Home responds to FY 2027 Hospice Final RuleNational Alliance for Care at Home, Alexandria, VA; Press Release; 7/30/26The National Alliance for Care at Home (the Alliance) today responded to the Centers for Medicare & Medicaid Services (CMS) fiscal year (FY) 2027 Hospice Wage Index and Payment Rate Update final rule, which finalizes payment and regulatory changes under the Medicare hospice benefit. CMS finalized a 2.3% payment update to the Medicare hospice benefit, which continues to fall short of the rising labor and supply costs required to deliver high-quality hospice care. As demand for hospice services continues to grow, payment updates must more accurately reflect providers’ costs so that access to these essential services does not decline.  “CMS’s 2.3% payment update does not reflect the true cost of delivering hospice care and adds further strain to providers who are already stretched thin,” said Jennifer Sheets, CEO of the Alliance. “Compounding that pressure is a Service and Spending Variation Index built on a fundamentally flawed methodology that penalizes legitimate providers for non-hospice claims they have no visibility into nor control over, with no process to review or correct the data before it is made public. This is not a sound approach to program integrity. An inadequate payment update combined with an unreliable oversight tool creates a serious and growing burden for legitimate providers working to serve their communities.” 

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Goodbye July--when even the ice cream ...

07/31/26 at 03:00 AM

Goodbye July--when even the ice cream melts faster than you can eat it.

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