Literature Review



As PACE grows, here’s what providers need to know about getting involved in the model

02/12/24 at 02:45 AM

As PACE grows, here’s what providers need to know about getting involved in the model Home Health Care News, by Patrick Filbin; 2/6/24 During the pandemic, some senior care models succeeded, and some didn’t. The Program of All-Inclusive Care for the Elderly (PACE) was one that did. In 2023, PACE enrollment exceeded 70,000 participants and has seen an over 40% growth in enrollment since 2019. ... But, in order for providers to become PACE partners or participants, they have to be as prepared as possible prior to the enrollment process.

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Hospice Nurse Shares The unexplained experience with a patient that changed her view on death and dying

02/11/24 at 03:40 AM

Hospice Nurse Shares The unexplained experience with a patient that changed her view on death and dyingYour Tango, by Nia Tipton; 1/29/24Death is the most mysterious part of the cycle of life for many individuals. What happens when we die? Is it peaceful? Is it scary? The unknown of what becomes of our souls once our physical presence leaves this Earth can be a daunting thought, but a hospice nurse named Julie offered some insight that she was a firsthand witness to after an elderly patient she'd been looking after passed away.

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Evaluation of the Medicare Care Choices Model: Annual / Final report

02/11/24 at 03:35 AM

Evaluation of the Medicare Care Choices Model: Annual / Final reportCMMI Evaluation Digest, 1/25/24The six-year Medicare Care Choices Model (MCCM) tested whether offering eligible fee-for-service Medicare beneficiaries the option to receive supportive and palliative care services through hospice providers without forgoing payment for the treatment of their terminal conditions (which is required to enroll in the Medicare hospice benefit) improved beneficiaries’ quality of life and care, increased their satisfaction, and reduced Medicare expenditures.

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A guide to paying for hospice care at home

02/11/24 at 03:30 AM

A guide to paying for hospice care at homeMediaFeed.org, by Claire Samuels; 1/23/24 According to the Centers for Medicare & Medicaid Services, which sets benchmarks for hospice care costs based on the payments they make to providers, here’s what two types of in-home hospice care will cost in 2024’s fiscal year ... [Additional descriptions include insurance, Medicare, Medicaid, VA health care, private health insurance.]

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A study of how Americans die may improve their end of life

02/11/24 at 03:25 AM

A study of how Americans die may improve their end of lifeMedical Xpress, by Rutgers University; 1/24/24A Rutgers Health analysis of millions of Medicare records has laid the groundwork for improving end-of-life care by demonstrating that nearly all older Americans follow one of nine trajectories in their last three years of life.

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Advance care planning reaches underserved across U.S. recruitment continues for National Institutes of Health (NIH) Research

02/11/24 at 03:20 AM

Advance care planning reaches underserved across U.S. recruitment continues for National Institutes of Health (NIH) ResearchHospice Foundation of America; 1/18/24Community outreach leaders and liaisons are urged to apply to serve as hosts for the Project Talk Trial, a national, 5-year research project funded by National Institutes of Health that seeks to evaluate the effectiveness of advance care planning conversations and whether those discussions result in advance care planning actions. ... The project is specifically focused on underserved communities of people who historically have the poorest access to healthcare services and the lowest engagement in advance care planning, which include racial and ethnic minorities, low-income individuals, and rural populations.

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Why hospice utilization rates have fallen

02/11/24 at 03:15 AM

Why hospice utilization rates have fallenHospice News, by Jim Parker; 1/25/24National hospice utilization rates have fallen since 2020, though the total number of patients served remains consistent. ... Mathematically, the percentage declined in part because of continually changing demographics.Publisher's note: This article quotes a decline in Medicare hospice utilization rates through 2021, which is true. However, we are seeing a rebound / increase in 2022 and 2023 information.

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Hospice providers must be better regulated

02/11/24 at 03:10 AM

Hospice providers must be better regulatedScientific American, 2/1/24 (updated from last week's publication)Too many hospice providers in the U.S. are run by private equity and for-profit corporations. A lack of regulation allows them to provide abysmal end-of-life care.

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Hospice Benefit Policy Manual updates related to the addition of Marriage and Family Therapists or Mental Health Counselors to the Hospice Interdisciplinary Team

02/11/24 at 03:05 AM

Hospice Benefit Policy Manual updates related to the addition of Marriage and Family Therapists or Mental Health Counselors to the Hospice Interdisciplinary TeamCMS; 1/22/24Change Request 13437 (PDF) purpose is to manualize changes to the hospice interdisciplinary group (IDG) to include Marriage and Family Therapists (MFTs) or Mental Health Counselors (MHCs). Publisher's note: Also see CMS Hospice Open Door Forum (November 29, 2023) Q&A.

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Sunday Newsletters

02/11/24 at 03:00 AM

Sunday NewslettersTop read stories of the last week (in order) is the focus of Sunday newsletters - enjoy!

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Today's Encouragement - from Lamar Jackson

02/11/24 at 03:00 AM

For my teammates, this is an award for all of us. - Lamar Jackson

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Attending to the moral meaning of pain

02/10/24 at 03:45 AM

Attending to the moral meaning of painPain Management Nursing, by Esther I Bernhofer; 2/24In addition to a physical and emotional experience, pain is also a morally infused experience with deep, often subconscious, meaning for many sufferers. Whether justified or not, for many people, pain may represent loss, judgement, unworthiness, abandonment, punishment, and even existential suffering and thoughts of death... Yet the moral meaning of pain is rarely discussed and is often overlooked when establishing a relationship with and a treatment plan for a person with pain.

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Are hospice Google ratings correlated with patient experience scores? Evidence from a national hospice study

02/10/24 at 03:45 AM

Are hospice Google ratings correlated with patient experience scores? Evidence from a national hospice studyAmerican Journal of Hopsice and Palliative Care, by Ganisher Davlyatov, Mengying He, Gregory Orewa, Haiyan Qu, Robert Weech-Maldonado; 2/22Choosing hospice care for your loved ones is often challenging. Online ratings such as Google rating has become a go-to source for most consumers. Hospice Google ratings were highly correlated with patients' and families' experience scores as measured by the CAHPS survey.

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Primary author characteristics associated with publication in the Journal of Pain and Symptom Management

02/10/24 at 03:40 AM

Primary author characteristics associated with publication in the Journal of Pain and Symptom ManagementJournal of Pain and Symptom Management, by Maurice C Scott, Katherine T Morrison, Riley Gillette, Ben Harnke, Jean S Kutner, Kathryn L Colborn; 2/24Scientific journals are the primary source for dissemination of research findings, and this process relies on rigorous editorial and peer-review. As part of continuing efforts by the Journal of Pain and Symptom Management (JPSM) to advance equity, diversity, and inclusion, JPSM's leadership requested an external evaluation of their publication decisions.Publisher's note: Please also see the accompaning "Evaluating equity in the Journal of Pain & Symptom Management's editorial processes" by David J Casarett, Vyjeyanthi Periyakoil, David Hui, Solomon Liao. I applaud JPSM for both undertaking this external review and reporting outcomes.

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Participant safety in multisite, randomized, double-blind, placebo-controlled clinical trials in hospice/palliative care: Data from the contracted studies of the Australian National Palliative Care Clinical Studies Collaborative

02/10/24 at 03:35 AM

Participant safety in multisite, randomized, double-blind, placebo-controlled clinical trials in hospice/palliative care: Data from the contracted studies of the Australian National Palliative Care Clinical Studies CollaborativeJournal of Palliative Medicine, by David C. Currow, Belinda Fazekas, Linda Brown, Slavica Kochovska, Katherine Clark, Meera R. Agar; 1/24Controversies surround conduct of phase III clinical trials in palliative care... These studies are safe for participants and generate knowledge to support informed patient decision making.

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Advancing the science of palliative care: Contributions of the Palliative Care Research Cooperative Group

02/10/24 at 03:30 AM

Advancing the science of palliative care: Contributions of the Palliative Care Research Cooperative GroupJournal of Palliative Medicine, by Jean S Kutner, Kathryn I Pollak, Karen A Kehl, Christine S Ritchie; 2/24The Palliative Care Research Cooperative Group (PCRC) formed to lead, catalyze, and empower a community of scientists to build an evidence base to ensure high-quality care and optimal well-being for persons with serious illness and their caregivers. The PCRC grew to 630 members representing 220 distinct sites... The PCRC filled an important void in serious illness science and set the stage for the next era of advancing serious illness research.

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A comparison of hospice care utilization between rural and urban children in Appalachia: A geographic information systems analysis

02/10/24 at 03:25 AM

A comparison of hospice care utilization between rural and urban children in Appalachia: A geographic information systems analysisAmerican Journal of Hospice and Palliative Care, by Radion Svynarenko, Guoping Huang, Jessica Keim-Malpass, Melanie J Cozad, Kerri A Qualls, Whitney Stone Sharp, Deb A Kirkland, Lisa C Lindley; 3/24Long driving times from hospice providers to patients lead to poor quality of care, which may exacerbate in rural and highly isolated areas of Appalachia. This study aimed to investigate geographic patterns of pediatric hospice care across Appalachia... State-level policies should be developed to reduce driving times from hospice providers.

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Parent priorities in end-of-life care for children with cancer

02/10/24 at 03:20 AM

Parent priorities in end-of-life care for children with cancerJAMA Network, by Prasanna Ananth, MD, MPH; Meghan Lindsay, MPH; Sophia Mun, MPH; Sarah McCollum, MPH; Veronika Shabanova, PhD; Sophia de Oliveira; Sarah Pitafi, BA; Rebecca Kirch, JD; Xiaomei Ma, PhD; Cary P. Gross, MD; Jackelyn Y. Boyden, PhD, MPH, RN; Chris Feudtner, MD, PhD, MPH; Joanne Wolfe, MD, MPH; 5/15/23Question What do parents who lost a child to cancer prioritize in measuring end-of-life care quality? Findings In this survey study of 61 bereaved parents, respondents prioritized end-of-life quality measures focused on symptom management and goal-concordant care, characterizing quality measures assessing their own psychosocial support and their child’s hospital resource use as substantially less important.

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Hospice capacity to provide General Inpatient Care: Emergency Department utilization and live discharge among cancer patients

02/10/24 at 03:15 AM

Hospice capacity to provide General Inpatient Care: Emergency Department utilization and live discharge among cancer patientsAmerican Journal of Hospice and Palliative Care, by Kyusuk Chung, M Courtney Hughes, Sara Rahmanian Koushkaki, Mia Richelle Risberg, Michelle Alcantara, Jennifer M Amico; 1/24Our results suggest that hospices capable of providing GIP care have lower live discharge rates than their counterparts. However, the fact that GIP care tends to be provided too close to death limits its effectiveness in preventing avoidable emergency department use.

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Live discharge of hospice patients with Alzheimer’s Disease and Related Dementias: A systematic review

02/10/24 at 03:10 AM

Live discharge of hospice patients with Alzheimer’s Disease and Related Dementias: A systematic reviewAmerican Journal of Hospice and Palliative Medicine, by Stephanie P Wladkowski, PhD, LMSW, APHSW-C; Cara L Wallace, PhD, LMSW, APHSW-C; Kathryn Coccia, MM, MT-BC; Rebecca C Hyde, MLIS; Leslie Hinyard, PhD, MSW; Karla T Washington, PhD, LCSW; 2/24This systematic review summarizes the growing body of evidence on live discharge among hospice patients with Alzheimer's Disease and related dementias (ADRD), a clinical subpopulation that disproportionately experiences this often burdensome care transition.

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Hospice care experiences among Medicare decedents with and without COVID-19, 2020–2021

02/10/24 at 03:05 AM

Hospice care experiences among Medicare decedents with and without COVID-19, 2020–2021Journal of Pain and Symptom Management, by Ann Haas MS, MPH; Rebecca Anhang Price PhD; Marc N. Elliott PhD; Joan M. Teno MD, MS; Maria DeYoreo PhD; 2/24COVID-19, the third leading cause of death in the U.S. in 2020–2021, affected hospice care for all patients and their caregivers in many ways; patients with COVID-19 faced additional restrictions on visitations as well as direct effects of the disease. Using CAHPS Hospice Survey data from 3274 hospices nationally, we found that caregivers of Medicare decedents without COVID-19 diagnoses in 2020–2021 reported slightly worse hospice care experiences than caregivers prior to the pandemic. However, experiences for decedents with COVID-19 early in the pandemic (Quarters 2–4 of 2020) were 3.2 to 4.3 points lower than for decedents without COVID-19; these are medium-to-large differences, and larger than observed among any of the 20 most common primary diagnosis groups for the 2 overall assessments of care.

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Saturday Newsletters

02/10/24 at 03:00 AM

Saturday NewslettersResearch literature is the focus of Saturday newsletters - enjoy!

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Hospice & Palliative Care Handbook, Fourth Edition: Quality, Compliance, and Reimbursement; 4th Edition

02/10/24 at 03:00 AM

Hospice & Palliative Care Handbook, Fourth Edition: Quality, Compliance, and Reimbursement; 4th EditionAmerican Medical Association, by Tina M. Marrelli, with Jennifer Kennedy; 2023[This book] offers updated coverage of all aspects of hospice and palliative care for the entire healthcare team who provide important care while meeting difficult multilevel regulations. This edition includes examples and strategies covering key topics related to standards, guidelines, goals, and effective care planning.

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Today's Encouragement - from Terry Crews

02/10/24 at 03:00 AM

Be fearless in the pursuit of what sets your soul on fire. - Terry Crews

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Medicare threatens to pull funding from HCA’s embattled Mission Hospital

02/09/24 at 04:00 AM

Medicare threatens to pull funding from HCA’s embattled Mission HospitalSTAT, by Tara Bannow; 2/6/24Five years after investor-owned HCA Healthcare took over an esteemed nonprofit hospital in North Carolina, Medicare is threatening to cut off payment for any services it provides seniors. The rare and dramatic move follows a Medicare revelation that patient safety is in “immediate jeopardy” at Mission Hospital in Asheville. That designation is the most severe the agency can hand out. HCA has just a few weeks to fix the problems or lose its Medicare funding.

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