Literature Review

April 21-27, 2024 National Volunteer Week: NHPCO's outreach suggestions & recognition ideasNHPCO website, for April 21-27, 2024The U.S. hospice movement was founded by dedicated volunteers and volunteer commitment continues to be a core part of the Medicare Hospice Benefit today. This National Volunteer Week, April 21 – 27, 2024, we’re shining a light on the dedicated, compassionate volunteers who brighten the lives of the patients and families we collectively serve.Editor's Note: Download and use NHPCO's pdf for numerous In-Person Recognition Ideas and Virtual Recognition Ideas.

[Utilization] Hospice care for those with dementia falls far short of meeting people’s needs at the end of life The Conversation, Maria J Silveira, University of Michigan; 4/1/24... Strikingly, only 12% of Americans with dementia ever enroll in hospice. Among those who do, one-third are near death. This is in stark contrast to the cancer population: Patients over 60 with cancer enroll in hospice 70% of the time. In my experience caring for dementia patients, the underuse of hospice by dementia patients has more to do with how hospice is structured and paid for in the U.S. than it does patient preference or differences between cancer and dementia.

Mortality, hospice use rates differ in assisted living communities depending on whether memory care is offeredMcKnights Senior Living, by Kimberly Bonvissuto; 4/4/24Assisted living communities that provide memory care services may attract residents closer to the end of life or promote hospice use at the end of life compared with assisted living communities without such services, according to the findings of a new study. ... Researchers from the Brown University School of Public Health, the University of Melbourne and the Johns Hopkins University School of Nursing examined whether end-of-life outcomes — mortality and hospice use — differed between assisted living facilities with and without memory care services among 15,152 residents who moved into larger communities between 2016 and 2018.Editor's Note: Click here for the source article, "Do end-of-life outcomes differ by assisted living memory-care designation?"

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

Neuropsychiatric effects associated with opioid-based management for palliative care patientsCurrent Pain and Headache Reports, by Alan D Kaye, Kylie Dufrene, Jada Cooley, Madeline Walker, Shivam Shah, Alex Hollander, Sahar Shekoohi, Christopher L Robinson; 4/24The abundance of opioids administered in the palliative care setting that was once considered a standard of care is at present necessitating that providers evaluate patients for unintentional and deleterious symptomology related to aberrant opioid use and addiction. ... By having an increased understanding and awareness of potential opioid neuropsychiatric effects, patient quality of life can be improved, healthcare system costs can be decreased, and patient outcomes can be met and exceeded.

Too soon or too late: Rethinking the significance of six months when dementia is a primary diagnosisThe Hastings Center Report, by Cindy L. Cain, Timothy E. Quill; 1/24In the case of people living with advanced dementia, six months is both too early in the trajectory to facilitate conversations and too late in the trajectory to ensure decision-making capacity. This essay encourages scholars and policy-makers to consider how cultural narratives may limit what they think is possible in care for people living with dementia.

Wide variation in differences in resource use seen across conditions between Medicare Advantage, Traditional MedicareHealth Affairs, by Jeah Jung, Caroline S. Carlin, Roger Feldman, Ge Song; 9/23Medicare Advantage (MA) is a rapidly growing source of coverage for Medicare beneficiaries. Examining how MA performs compared with traditional Medicare is an important policy issue. We analyzed national MA encounter data and found that the adjusted differences in resource use between MA and traditional Medicare varied widely across medical conditions in 2019.

When dying does not go well: a qualitative studyBMC Palliative Care, by Christof Breitsameter; 3/24Several studies deal with the question of what constitutes a "satisfactory death". A smaller number of studies deal with unsatisfactory dying processes. And only a few shed light on unsatisfactory deaths that take place in hospices and palliative care units, which see themselves as places conducive to a "good" death. What also remains largely undiscussed are the ethical aspects that accompany the observation of an unsatisfactory course of death.

It’s the truth I’m after, and the truth never harmed anyone. What harms us is to persist in self-deceit and ignorance. ~Marcus Aurelius

World's Strongest Firefighter from Toledo lifts spirits of woman at hospice care facility CBS TV WTOL 11; 4/3/24 Marcus Waugh from TFRD went bak to a nursing home to visit a woman after she recognized him as the "World's Strongest Firefighter" during a lift assist last month.

To me, teamwork is a lot like being part of a family. It comes with obligations, entanglements, headaches, and quarrels. But the rewards are worth the cost. - Pat Summit

CMS provides first look at shorter, Risk-Based Survey process McKnights Long-Term Care News, by Kimberly Marselas; 4/4/24 The Centers for Medicare & Medicaid Services on Wednesday revealed initial information about a potential “Risk-Based Survey” option that could be available to some of the nation’s best performing nursing homes. ... CMS said in an update to its nursing home provider enrollment page Wednesday that it is working with states to test this process over the next several months. ... CMS said the proposed risk-based survey, or RBS, approach would allow “consistently higher-quality facilities” to receive a more focused survey, while still ensuring compliance with health and safety standards. 

Central Dauphin football building connections with residents at Grane Hospice ABC TV 27 WHTM, Harrisburg, PA; by Amber Charnoff; 4/2/24 Volunteering is a cornerstone of the Central Dauphin football team and over the past 15 years the team has donated their time to Grane Hospice. ... Central Dauphin seniors Kannyon Miller and Elijah McDonald have enjoyed interacting with the residents at Grane. ... Coach McNamee enjoys stepping back and watching these relationships develop. ... “It’s so much fun watching them in action and seeing that room with the interactions between the players and the residents,” McNamee said. “There’s no doubt it’s a win-win. The residents are really enjoying it and our players are really enjoying it.”