Literature Review

End-of-life and palliative care for lesbian, gay, bisexual, transgender, queer or questioning, or another diverse gender identity older adultsClinics in Geriatric Medicine; by Evie Kalmar MD, MS, Jeffrey Mariano MD; 5/24Lesbian, gay, bisexual, transgender, queer or questioning, or another diverse gender identity (LGBTQ+) people are more likely to have alternative family structures. It is important to engage in advance care planning to understand their values, clarify surrogate decision makers, and contribute to goal-concordant care at the end of life. Clinicians can follow recommendations in this article to ensure they are providing LGBTQ-inclusive palliative and hospice care.

A life spent making mistakes is not only more honorable, but more useful than a life spent doing nothing. ~George Bernard Shaw

Making end-of-life health disparities in the U.S. visible through family bereavement narrativesPEC Innovation; by Cassidy Taladay-Carter; 4/24End-of-life experiences can have important implications for the meaning-making and communication of bereaved family members, particularly due to (in)access to formal healthcare services (i.e., palliative care and hospice). Grounded in Communicated Narrative Sense-Making theory, this study extends knowledge about how the stories told about end-of-life by bereaved family members affect and reflect their sense-making, well-being and importantly, potential disparities in end-of-life care. ... Four themes illustrated the continuum of communication that families engaged in when making sense of end-of-life experiences, including reflections on silence, tempered frustrations, comfort with care, and support from beyond.

Measuring decision aid effectiveness for end-of-life care: A systematic reviewPEC Innovation; M. Courtney Hughes, Erin Vernon, Chinenye Egwuonwu, Oluwatoyosi Afolabi; 4/24A total of 715 articles were initially identified, with 43 meeting the inclusion criteria. Outcome measures identified included decisional conflict, less aggressive care desired, knowledge improvements, communication improvements, tool satisfaction, patient anxiety and well-being, and less aggressive care action completed. The majority of studies reported positive outcomes especially when the decision aid development included International Patient Decision Aid Standards.

45 top healthcare workplaces for mental well-being: Newsweek Becker's Hospital Review, by Alexis Kayer, 4/22/24Newsweek has named 45 hospitals and health systems among its 750 greatest employers for mental well-being. The publication partnered with data researchers Plant-A to rank the top U.S. workplaces "making a positive difference in the mental wellness of their workers," according to a five-stage evaluation. ... Here are the 45 hospitals and health systems included on the list, excluding organizations that exclusively provide long-term, hospice, rehabilitative and medical care, or staffing and management services: [Click on the title's link for the list.]Editor's Note: Is your organization on the list? Or perhaps a colleague's organization? Forward this to them with your congratulations! Invite them to join our newsletter for free at www.HospicePalliativeCareToday.com/registration.

New hospice home set to open in Burton, offering home-like care for end-of-life patients mlive.com; by Fuad Shalhout; 4/25/24A new hospice home is expected to open in Burton [MI] this summer. ... By creating a guest home in Burton, individuals will receive hospice care in a home-like setting to live out their final days instead of a hospital. ... “We’ve been renovating it for the last six months just making it safe for people,” said Diane Welker, one of the group’s founders and a retired palliative care nurse practitioner at Hurley Medical Center. The foundation received a $4,300 grant from Home Depot to pay for the flooring, and the Community Foundation of Greater Flint provided a $45,000 grant to help with renovations.

When the story of these times gets written, we want it to say that we did all we could, and it was more than anyone could have imagined. - Bono

Missoula's first end-of-life center taking shape amid fundraising MissoulaCurrent., by Martin Kidston; 4/24/24 ... Missoula's first dedicated hospice center broke ground last June and is well on its way to opening early next year. The 15,000 square-foot facility has been planned down to the finest detail, from the play of lighting and sound in each room to a reflection center, with end-of-life literature and bereavement support for families. “Missoula has one of the fastest aging and oldest populations in the country. Not only that, we have a vast expanse of area to cover,” said Amanda Melro [Executive Director, Partners of Hope Foundation] . “People live in rural areas and they also live alone. Having a place like this where a family knows they'll be well-taken care of is a huge asset for them. We expect there will be a large demand for the beds.”

Eagle Telemedicine announces solution to counter lack of palliative careCision, PRNewswire-PRWeb; by Eagle Telemedicine; 4/25/24 Eagle Telemedicine adds new specialty to increase access to life-saving palliative care in underserved communities. ... Only 71% of U.S. hospitals provide palliative care and metropolitan hospitals are 15% more likely to offer palliative care than rural hospitals (National Institute of Health). Through Eagle's Tele-Palliative Care, hospitals everywhere can offer this next level of care, any day of the year.

NAHC expresses disappointment regarding Medicaid Access Rule HomeCare; 4/23/24 The National Association for Home Care & Hospice (NAHC) released a statement noting that it was, 'extremely disappointed that the Centers for Medicare and Medicaid Services (CMS) elected to finalize the “payment adequacy” provision in the Medicaid Access Final Rule (CMS 2442-F).' "This is a misguided policy that will result in agency closures, force providers to exit the Medicaid program, and will ultimately make access issues worse around the country," a statement from the organization read. "As NAHC and our partners across the homecare industry have demonstrated, such a provision is not only unworkable due to the varied nature of Medicaid programs across the country, CMS also lacks statutory authority to impose this mandate."

VNA completes land purchase near hospital VeroNews.com; by Lisa Zahner; 4/25/24The Visiting Nurse Association of the Treasure Coast finally owns the land under its Hospice House building after closing last week on the purchase for $3.8 million of a prime chunk of real estate just east of Cleveland Clinic Indian River Hospital. For decades, VNA had leased the 14.56-acre parcel on 37th Street from the Hospital District. The 12,000-square-foot 12-bed Hospice House, plus 4.2 acres of tropical meditation gardens, and a memorial are situated at the rear or south end of the parcel, while more than half of the land with 37th Street frontage remains vacant.

Hospice groups, AOs speak out on proposed Accreditor Oversight Rule Hospice News; by Jim Parker; 4/22/24Some accreditation organizations (AOs) have balked at the U.S. Centers for Medicare and Medicaid Services’ (CMS) proposed rule designed to strengthen oversight of those institutions. ... Three such organizations currently have deeming authority for hospices, The Joint Commission, the Accreditation Commission for Health Care (ACHC) and Community Health Accreditation Partner (CHAP). These accreditors have joined a host of other stakeholders in making public comments on the proposed rule, with some requesting clarifications and others outright denying that CMS has the authority to establish such requirements.