Literature Review
Caregiver-reported barriers and facilitators to hospice enrollment for persons with dementia: A systematic review of qualitative evidence
08/16/25 at 03:00 AMCaregiver-reported barriers and facilitators to hospice enrollment for persons with dementia: A systematic review of qualitative evidencePalliative Medicine; by Oonjee Oh, Connie M Ulrich, Lauren Massimo, George Demiris; 7/25Despite the increasing prevalence of dementia, persons with dementia often receive suboptimal care near the end of life. Dementia caregivers experience intrapersonal, interpersonal, emotional, logistical, and physical challenges in ensuring quality end-of-life support for their loved one (e.g. limited understanding of end-stage dementia, gatekeeping providers, and family conflicts). The unique needs of caregivers caring for a seriously ill family member with dementia are not being fully addressed by the current available services and policies.
350 health groups urge Congress to extend Medicare telehealth
08/16/25 at 03:00 AM350 health groups urge Congress to extend Medicare telehealth MedCityNews; by Marissa Plescia; 8/14/25 A group of 350 organizations, including the American Academy of Hospice and Palliative Medicine, are urging Congress to make Medicare telehealth flexibilities introduced during the COVID-19 pandemic permanent, or at least extend them for two years. In a letter to congressional leaders, the organizations emphasize the importance of telehealth for Medicare beneficiaries, particularly those with chronic conditions or in rural areas, and highlight the potential impact on health care access and infrastructure. Guest Editor’s Note, Judi Lund Person: Unless there is Congressional action after the August recess to extend the hospice face-to-face requirement through telehealth, that option will conclude on September 30, 2025.
New round of grants announced to support grieving youth
08/16/25 at 03:00 AMNew round of grants announced to support grieving youth New York Life; by Newsroom; 8/14/25 The New York Life Foundation, in collaboration with the National Alliance for Children’s Grief (NACG), proudly announces the recipients of the 2025 Grief Reach Community Education Event grants. The grants in this latest cycle are funding local education events that equip professionals — such as teachers, counselors, and social workers — with the skills and knowledge they need to better support bereaved children in their communities. ...
Saturday newsletters
08/16/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
CU School of Medicine receives $64 million NIH award to establish palliative care research consortium
08/15/25 at 03:05 AMCU School of Medicine receives $64 million NIH award to establish palliative care research consortiumUniversity of Colorado School of Medicine press release; by Kara Mason; 8/7/25The five-year award supports CU School of Medicine faculty at the forefront of research dedicated to improving quality of life for people living with serious illnesses. The University of Colorado School of Medicine has been selected as the prime award institution for a $64 million award from the National Institutes of Health (NIH) to establish a consortium focused on palliative care research. “While palliative care as a field has advanced significantly in the last few decades, there are still a lot of unmet needs. This consortium will serve as a springboard for filling gaps and offering resources to researchers who will ultimately improve the field,” says Jean Kutner, MD, MSPH, distinguished professor of medicine and chief academic officer of UCHealth, who will serve as a principal investigator of the Advancing the Science of Palliative Care Research Across the Lifespan (ASCENT) Consortium... The consortium includes principal investigators from the CU School of Medicine and four other academic centers across the country — New York University Rory Meyers College of Nursing, Duke University School of Medicine, Icahn School of Medicine at Mt. Sinai, and the Children’s Hospital of Philadelphia and Perelman School of Medicine at the University of Pennsylvania — and 40 key personnel from more than 20 institutions, representing the interdisciplinary approach that is integral to palliative care... The ASCENT Consortium’s creation comes at a critical juncture for palliative care research, as two vital programs — the National Institute of Nursing Research-funded Palliative Care Research Cooperative, which Kutner led at the CU School of Medicine for 13 years, and the National Palliative Care Research Center — have been expected to sunset in 2025... “We've gone from publishing observational and cross-sectional work to where we are today with demonstrating effective and innovative interventions,” Kutner says.
Reimagining support for family caregivers and their loved ones
08/15/25 at 03:00 AMReimagining support for family caregivers and their loved ones Duke University School of Medicine; by Bernadette Gillis; 8/11/25 ... Duke population health researchers are gathering evidence to show what type of care leads to the best physical and mental health for the care recipients, and how to best support the caregivers themselves. ...
Late attorney leaves lasting legacy to St. Luke’s hospice
08/15/25 at 03:00 AMLate attorney leaves lasting legacy to St. Luke’s hospice Times News - tnonline.com; Press Release; 8/9/25 A recent gift to support hospice programs at St. Luke's deepens the impact of Justin K. McCarthy, Esq. ... Among his greatest accomplishmnets is his support of programs offered through St. Luke's University Health Network [in Pennsylvania and New Jersey]. ... For many years, McCarthy, who died in August 2023 at the age of 95, served on the board of trustees for the Network's Visiting Nurses Association and was an early supporter of the hospice program that evolved into an integral component of VNA services. In addition to sharing his time, talent and energy, he was also an extremely generous donor who contributed more than $2 million in support of St. Luke's.
Pennant Group expands through Amedisys acquisition
08/15/25 at 03:00 AMPennant Group expands through Amedisys acquisition Pulivarthi Group; 8/12/25In a significant shift within the healthcare landscape, the Pennant Group has announced its intention to acquire home health and hospice agencies presently owned by Amedisys and UnitedHealth. This move marks an essential strategic expansion into the Southeast U.S., a region already experiencing increasing demand for quality home health services. ... This post provides an in-depth analysis of the home health acquisition landscape while addressing key challenges such as reimbursement issues, staff retention, and access to care for vulnerable patients.
Today's Encouragement: I choose a lazy person to do a hard job, because ...
08/15/25 at 03:00 AMI choose a lazy person to do a hard job, because a lazy person will find an easy way to do it. ~ Bill Gates
Hospice patients using virtual reality to fulfill final wishes
08/15/25 at 03:00 AMHospice patients using virtual reality to fulfill final wishes WRDW-12 / WAGT-26 On Your Side News, Augusta, GA; by Staff; 8/7/25Patients at Crescent Hospice in Augusta are using virtual reality headsets to fulfill their last wishes. The headsets allow patients to experience new things before the end of their lives. The hospice aid and community liaison used one of the headsets and spoke about how one of the patients got to experience mardi gras through VR before he died.
Fear of death may undermine hospice care preparedness for future nurses
08/15/25 at 03:00 AMFear of death may undermine hospice care preparedness for future nurses McKnights Long-Term Care News; by Donna Shryer; 8/6/25 A new study from Central South University in China examined the relationship between nursing interns’ attitudes toward death and their attitudes toward hospice care. ... The researchers found that most nursing interns held a “neutral acceptance” view of death, defined in the study as the belief that death is a natural part of life. This attitude was significantly associated with more positive views toward hospice care. ... The study also reported that interns who held stronger fear-based or avoidance-based death attitudes scored lower on all six hospice care subscales, including communication and family support.
Few released under NC law that allows seriously ill incarcerated people to spend their final days at home
08/15/25 at 03:00 AMFew released under NC law that allows seriously ill incarcerated people to spend their final days at homeNC Health News; by Rachel Crumpler; 8/14/25Advocates hoped 2023 eligibility changes would increase medical releases. So far, that hasn’t happened. North Carolina expanded its prison medical release eligibility in 2023 to allow more sick and aging incarcerated people to be released, but the number of approvals is still low. Since 2019, the Parole Commission has granted medical release to 67 people.Thank you Mark Cohen, Guest Editor, for calling this interesting article to our attention!
UnitedHealth Group’s acquisition of Amedisys closes
08/15/25 at 03:00 AMUnitedHealth Group’s acquisition of Amedisys closesHospice News; by Jim Parker; 8/14/25On the heels of an agreement with the U.S. Department of Justice, UnitedHealth Group has closed its acquisition of the home health and hospice provider Amedisys. Amedisys announced the news in a U.S. Securities and Exchange Commission (SEC) filing on Thursday. The UnitedHealth Group subsidiary Optum, in June 2023 inked its agreement to acquire Amedisys in an all-cash transaction of $101 per share, or about $3.3 billion. Amedisys on Thursday also stopped trading on the Nasdaq.
She wanted her dad to give her away at her wedding. A Niagara hospice made it happen
08/15/25 at 03:00 AMShe wanted her dad to give her away at her wedding. A Niagara hospice made it happen NiagaraThisWeek.com - Grimsby Lincoln News; by Mark Newman; 8/10/25 Ron Oliver got to see his daughter get married. When the 67-year-old Grimsby resident moved into McNally House Hospice for end-of-life care on Wednesday, his daughter Alissa mentioned to hospice staff she wanted her father to see her get married and to give her away as part of the matrimonial ceremony before he dies. McNally House staff went to work, and 48 hours later Alissa was walking along an outdoor patio at the hospice with her father behind her in a wheelchair holding her hand.
Over half of older employees plan to work 'indefinitely' and never retire
08/15/25 at 02:00 AMOver half of older employees plan to work 'indefinitely' and never retire Money Magazine; by Amd Hardy; 8/11/25 Many retirement-age Americans are planning to continue working — forever. Some 51% of employed Americans 65 or older say they expect to work “indefinitely,” according to a recent report from Asset Preservation, a financial advisory firm. Meanwhile, about 6 in 10 respondents say they plan to work “at least five more years” before retiring, putting the earliest age they would consider retiring at 70. ... Why older Americans are working so late in life seems to be a fairly even split between necessity and choice. About one half works to cover basic living expenses, like food, health care and housing, while the other half chooses to work to stay mentally and physically active. Guest Editor’s Note, Mark Cohen: As many hospices are still trying to rebuild the ranks of their volunteers to pre-pandemic levels, this report indicates the challenges may continue to grow. It’s worth noting that half of the Boomers who say they will continue working past normal retirement age would do so out of choice and not economic necessity. That opens the door to demonstrating the value and rewards of volunteer service. And for those volunteer managers younger than Boomers, it’s important to keep in mind that, more than any other generation, Boomers define themselves and measure their success in life in large part by their work.
$50,000 grant from Hospice Cleveland County Foundation helps EVERYONE EATS Emergency Food Fund Drive Cleveland County, NC
08/15/25 at 01:30 AMHealthy Together Cleveland receives foundation grant [from Hospice of Cleveland County] The Home Page for Cleveland County, North Carolina; Press Release; 8/14/25 The Board of Directors for Hospice Cleveland County Foundation recently awarded a $50,000 grant to support the Everyone Eats Emergency Food Fund Drive, spearheaded by Healthy Together Cleveland (HTC) to combat food insecurity in Cleveland County. "As we continue to face unprecedented challenges, community support is vital. Everyone Eats is a testament to what we can achieve when we come together with a shared purpose. We are delighted to provide this grant to launch the campaign and hope it will inspire others to participate," said Katie Borders, President, Hospice Cleveland County Foundation. Last month, HTC announced that 1 in 6 people in the county are experiencing food insecurity. ... The mission of the Foundation is to strive to maintain the success of the hospice tradition in Cleveland County by supporting efforts to help people lead healthy, productive lives and experience peaceful, dignified deaths. We seek to ensure that all people - especially those with the fewest resources - have access to the opportunities they need to succeed in school and in life.Editor's Note: May we all learn and live from Hospice Cleveland County Foundation's mission and action. Thank you.
Taking the magnetic approach to leadership: Stop chasing and start attracting through alignment and authentic presence.
08/14/25 at 03:00 AMTaking the magnetic approach to leadership: Stop chasing and start attracting through alignment and authentic presence. Psychology Today; by Jessica Schrader; 8/3/25 Key points:
Have a question about death? A new project may have answers.
08/14/25 at 03:00 AMHave a question about death? A new project may have answers. The New York Times; by John Otis; 8/5/25 A new Times series examines the topic of death and dying in 2025. Ms. Pisapia, an editor on The Times’s Projects and Initiatives team, pitched a series to her team titled “Death in the Modern Age.” It would focus on end-of-life issues and serve as a resource for readers who might be grappling with their own mortality or coping with the loss of someone close to them. ... The cornerstone of the project is an F.A.Q. titled “Let’s Talk About Death,” compiled from several hundred submissions from Times readers who either asked questions related to death and dying or shared personal experiences.
Medicaid payments and racial and ethnic disparities in Alzheimer disease special care units
08/14/25 at 03:00 AMMedicaid payments and racial and ethnic disparities in Alzheimer disease special care unitsThe Journal of the American Medical Association - JAMA Network Open; by Huiwen Xu, PhD, Shuang Li, PhD, John R. Bowblis, PhD, Monique R. Pappadis, PhD, Yong-Fang Kuo, PhD; James S. Goodwin, MD; 8/4/25 In this cohort study of 13, 229 nursing homes, those with higher proportions of Black or Hispanic residents were less likely to have Alzheimer disease special care units. The disparities among nursing homes serving high proportions of Black residents, however, narrowed and even disappeared in states with higher Medicaid payment-to-cost ratios. ... This study suggests that more generous Medicaid payments may be associated with improved availability of specialized dementia care in nursing homes that serve primarily marginalized Black residents.
Governor creates new LTC oversight board, pledges to fill surveyor openings by year’s end
08/14/25 at 03:00 AMGovernor creates new LTC oversight board, pledges to fill surveyor openings by year’s end McKnights Long-Term Care News; by Jessica R. Towhey; 8/12/25 A new politically appointed Nursing Home Oversight and Accountability Advisory Board is being proposed as a way to strengthen facility oversight in a state that has a 42% vacancy rate among its public inspectors. Gov. Glenn Youngkin (R) called for the board, which will consist of members appointed by the state Secretary of Health, in an executive order issued Monday. Both LeadingAge Virginia and the Virginia Health Care Association / Virginia Center for Assisted Living applauded the overall goals of the executive order but cautioned that resources to implement the directives are needed. Guest Editor's Note, Judi Lund Person: The Virginia governor, Glenn Youngkin, has taken steps to address surveyor vacancies and strengthen oversight for nursing homes in the state, calling on partnerships with other states for training. Advocates cited the state, as in many other states, is hampered by flatline funding from federal partners and the lack of clinical staff willing to fill surveyor roles.
Family Hospice, Alzheimer’s Association partner on ‘Check In’ program for dementia patients
08/14/25 at 03:00 AMFamily Hospice, Alzheimer’s Association partner on ‘Check In’ program for dementia patients Hospice News; by Jim Parker; 8/11/25Family Hospice is working with the Alzheimer’s Association, Georgia Chapter, to improve safety for dementia patients through a new collaborative campaign. The #ICheckedIn campaign calls on community members to check on seniors in their community, particularly those who suffer from dementia or memory loss, through phone calls, visits or other modes of communication. Editor's Note: This article by Hospice News was reposted by the American Academy of Hospice and Palliative Medicine (AAHPM) under the title, "Hospice encourages public to check on older neighbors."
Rethinking palliative care for people affected by homelessness
08/14/25 at 03:00 AM[United Kingdom] Rethinking palliative care for people affected by homelessness Nursing in Practice; by Karita Razzell; 8/5/25 Well-timed palliative intervention can be a game-changer for people affected by homelessness facing advanced ill health, says Karita Razzell, palliative care manager at the charity St Mungo’s. ... There are various reasons behind the stark health disparities faced by people experiencing homelessness. ... Many individuals are living with serious mental health conditions, substance use issues, undiagnosed neurodiversity, and chronic physical illnesses – all of which can make clinical environments like hospitals particularly challenging for them. ... There are also digital hurdles: appointment systems and prescription services are increasingly online, yet many people without stable housing lack access to mobile phones or the internet. ... As a result, treatable conditions in people affected by homelessness often go undiagnosed until they reach an advanced stage.Editor's Note: People experiencing homelessness in the U.S. face similar challenges. Organizations such as The Hildegard House in Louisville, KY, and others in the national Omega Home Network of “comfort care homes” quietly provide palliative and hospice care for them. Click here to see a national map of these homes.
Hospice claim denial remanded to ALJ in absence of explanation, (Aug 4, 2025)
08/14/25 at 03:00 AMHospice claim denial remanded to ALJ in absence of explanation, (Aug 4, 2025) VItalLaw; by Leah S. Poniatowski, JD; 8/4/25 ... A hospice provider that was denied Medicare reimbursement for two patients was granted remand to the administrative law judge (ALJ) because the ALJ’s decision was without any reasoned discussion, which impaired review and suggested that the ALJ had used her lay assessment of the medical record, the federal district court in Delaware ruled (Seasons Hospice & Palliative Care of Delaware, LLC v. Kennedy, No. 24-175-GBW-LDH (D. Del. July 31, 2025)).