Literature Review

Handbook of Social Justice in Loss and Grief, in Routledge's Series in Death, Dying and BereavementRoutledge, Series in Death, Dying and Bereavement, edited by Darcy L. Harris and Tashel C. Bordere; pub. 2016, available The Handbook of Social Justice in Loss and Grief is a scholarly work of social criticism, richly grounded in personal experience, evocative case studies, and current multicultural and sociocultural theories and research ...  at the very junctures when people are most vulnerable—at points of serious illness, confrontation with end-of-life decision making, and in the throes of grief and bereavement. Harris and Bordere give the reader an active and engaged take on the field, enticing readers to interrogate their own assumptions and practices while increasing, chapter after chapter, their cultural literacy regarding important groups and contexts.Editor's Note: Are you eager to take a deep dive into Diversity, Equity, and Inclusion (DEI) in our worlds of loss and grief? Immerse yourself in this definitive, thanatological (the study of dying, death, and bereavement) research and its applications for you.

Sanctuary Hospice Volunteers: MLK day of service - Annual cards of caring workshopVolunteerMatch.org; 1/10/24Editor's Note: While this post invites volunteers of Sanctuary Hospice in Independence, OH, it provides a creative service to imagine for your hospice volunteers.Everyone loves to receive cards of encouragement-especially when they are handmade! Do you enjoy using your creative talents and artistic abilities to make someone smile? Join Sanctuary Hospice for a Day of Service on #MLK Day MONDAY January 15, 2024, at our 5th Annual Cardworkshop virtually to help reduce the social isolation of our hospice patients. 

Association Forum announces 2024 Woman of InfluenceForum; 12/11/23Association Forum is pleased to announce Wendy-Jo Toyama, MBA, CAE, FASAE, CEO of the American Academy of Hospice and Palliative Medicine (a client of the Association Management Center), as the 2024 recipient of the Woman of Influence Award.  This honor is awarded to trailblazers in the industry who have a proven track record of innovation, impact and paying it forward through coaching, mentoring and service to others.  Being named the 2024 Woman of Influence reflects Toyama’s ... dedication to the advancement of diversity, equity and inclusion (DEI).

U.S. Department of Health and Human Services: Diversity, Equity, Inclusion, and Accessibility ProgramU.S. Department of Health and Human Services website; ongoing key referenceThe Office of Equal Employment Opportunity, Diversity & Inclusion (EEODI) is within the Assistant Secretary for Administration’s (ASA) office and its mission is to promote, encourage, develop, and maintain a culture of equality, fairness, and objectivity throughout HHS.

Ethnicity and palliative care: we need better data - five key considerationsBMJ Supportive & Palliative Care, by Gemma Clarke, Jamilla Akhtar Hussain, Matthew John Allsop, and Michael I Bennett; 12/23 Complete and valid ethnicity data are essential for monitoring racial and ethnic disparities but consideration needs to be given to collecting data well and using it responsibly. ... Holism is at the core of palliative care, in the approach to a person and their ‘total pain’. Extending this framework to ethnicity data engenders a responsibility across both the collection and usage of data. We outline five key considerations informed by this framework relating to ethnicity data.

Black caregivers' symptom management, cultural, and religious experiences with home hospice careJournal of Pain and Symptom Management, by Taeyoung Park, Danetta H Sloan, Dulce M Cruz-Oliver, Manney Cary Reid, Sara Czaja, Ronald D Adelman, Ritchell Dignam, Veerawat Phongtankuel; 8/23 Objectives: This study seeks to address this knowledge gap by applying qualitative methods to understand Black/African American caregivers' experiences around symptom management, cultural, and religious challenges during home hospice care.

Hospice of the Western Reserve targeting $75,000 grant to address racial disparitiesCleveland.com Community News, by John Benson; 12/14/23Hospice of the Western Reserve applied for and recently received a Three Arches Foundation grant, with the intent to address healthcare inequity. Providing end-of-life care, caregiver support and bereavement services throughout Northern Ohio, the nonprofit was recently awarded $75,000 to expand outreach and address racial disparity in utilization of in-home, pre-hospice palliative care for patients with advanced serious and progressive illness.Quotes Heidi L. Barham, Hospice of the Western Reserve Manager of Diversity, Equity and Inclusion

Black ownership provides a different perspective on hospice careMichigan Chronicle, by Ebony JJ Curry; 10/10/23... In essence, Black-owned hospices stand as beacons of trust, understanding, and respect within the African-American community. They have the power to transform end-of-life care for African Americans, ensuring it is a time of peace, dignity, and compassion, surrounded by providers who understand and honor their cultural context, values, and wishes.

The next best thing to being wise oneself is to live in a circle of those who are. ~C.S. Lewis

What is palliative care?Money, by Bianca Rodriguez Rojas; 1/4/24Palliative care is a healthcare approach that aims to provide comfort and improve the quality of life of people diagnosed with a serious or life-threatening disease such as cancer, heart failure or Parkinson’s.Editor's note: Interesting this appeared in Money magazine...

CDC map shows dramatic increase in illness nationwide: See where it’s worstNexstar Media Wire News / The Hill, by Alix Martichoux; 1/5/24What a difference a week can make. New data released by the Centers for Disease Control and Prevention Friday shows an 18% jump in people testing positive for influenza last week. The number of people going to the doctor with symptoms of respiratory illness — whether it be the flu, COVID, RSV, or none of the above — also continues to trend upward. Now, according to the CDC, 21 states and New York City are experiencing “very high” levels of sickness.

Hospice patient enjoys fishing adventureHickory Daily Record; 12/30/23Carolina Caring’s compassionate hospice and palliative care empowers patients to make the most of each day as they navigate serious illness. One patient, Barbara, has been under hospice care with Carolina Caring and has shared ... with her nurse, Kelly Avery, and social worker, Megan Elmore ... that her fondest memories were of fishing with her family on Lake Hickory. After being diagnosed with chronic obstructive pulmonary disease and chronic heart failure, Barbara’s symptoms were getting increasingly harder to manage. She went from fishing once a week to once a month, to not having fished in over two years. ... Thanks to multiple visits a week from her Carolina Caring care team, Barbara was able to build the confidence to once again cast her line and enjoy the great outdoors. ... Kelly and Megan coordinated with the Carolina Caring Volunteer and Foundation Departments to secure fishing licenses and gather together a spread of Barbara’s favorite foods at Dallas Park & Recreation ponds. For just the second time in the past year, Barbara left the house.