Literature Review

Nursing home is pressuring my mother-in-law to enter hospiceAging Care - Caregiver Forum - End of Life - Questions; question posed by "concerned8"; 6/12/25 I am her Health Care Surrogate but as they won't declare her incompetent it has not come into effect. I believe the home's intent is to prevent me from making the decision regarding hospice and instead to pressure her to enter it in various ways. ... I am not anti-hospice and expect her to enter it in the near future, but want that to be my decision, not the home's (even if it's portrayed as hers).  ... [An answer from another reader" Our family has only had bad experiences with three different hospice companies. Contrary to what most people believe, many patients are placed on hospice for free equipment and free services. I was told this by more than one hospice worker.Editor's Note: This post raises numerous troubling perceptions, with descriptions of poor hospice experiences. 

[Canada] The discourse of medical assistance in dying and its relationship with hospice palliative care in Canada: An integrative literature reviewJournal of Advanced Nursing; Jennifer D Dorman, D Shelley Raffin Bouchal, Eric Wasylenko, Shane Sinclair; 5/25Three themes identified from the data were the relationship between MAiD [medical assistance in dying] and HPC [hospice pallaitive care], suffering in the context of MAiD, and moral distress and moral uncertainty in providing or not providing MAiD. The discourse around the relationship between MAiD and HPC is complex and contextual. Personal and professional understandings of end-of-life care differ and influence perspectives on how and whether MAiD and hospice palliative care can be reconciled. Findings consider how the concepts of end of life, MAiD, HPC, suffering, and moral distress influence and are influenced by the discourse of dying. 

Quality of life while dying: Cutting edge hospice center opening in Colorado Springs NBC KOAA-5, Colorado Springs, CO; by Bill Folsom; 6/10/25 A major improvement to hospice care is coming to Colorado Springs. “This facility really does meet a need that is not met any other way,” said Pikes Peak Hospice and Palliative Care, President Dawn Darvalics. Over the next couple of weeks the non-profit Pikes Peak Hospice is opening the only dedicated hospice inpatient care center in Colorado Springs. ... “Early in 2017 my wife Sarah was diagnosed with multiple myeloma, ...” said Pikes Peak Hospice Foundation, Board of Trustees Chair, Michael Healy. ... He says his family would have benefited from this new cutting-edge facility. It goes beyond medicine. It includes things like gardens, homey gathering spaces, an area dedicated to veteran support, a chapel, a place for kids, and a family style kitchen. ... Plaques around the building show the many donors helping raise the $8.5 million goal the Pikes Peak Hospice Foundation is still working to complete.

Longtime Fargo-based hospice service has new name Fargo Forum, Fargo, ND; Press Release; 6/9/25 Hospice of the Red River Valley, which has had a presence in the region for decades, is now called HIA Hospice. Editor's note: The rest of this article is behind a paywall. Click here for more from HIA Health's website.

Sacramento hospice for terminally ill homeless people to open after decade-long effort Sacramento Business Journal; by Chris Campbell; 6/9/25 A new hospice facility in Sacramento will open its doors to terminally ill homeless people on June 18. Joshua's House Hospice ... will provide end-of-life care for up to 15 residents. The project, a decade in the making, was funded by more than $3.5 million in contributions from individual donors, local foundations, the city of Sacramento and Sacramento County. "This project began with simple but profound conversations I had with people living on the streets," said Marlene Von Fredericks-Fitzwater, founder and CEO of Joshua's House. "They weren't afraid of dying, they were afraid of dying alone." The facility consists of six residential units, each approximately 670 square feet ...

SCI Waymart meets needs of aging incarcerated population by training inmates in hospice care PBS WVIA News, NPR, Pittston, PA; by Lydia McFarlane; 6/8/25 Nurses and their inmate aides care for hospice patients. Some are bedridden, needing help with eating, changing and using the bathroom. The patients have recently signed do-not-resuscitate (DNR) forms. Some have just a few more months to live. The medium security prison's hospice unit looks like a nursing home. SCI Waymart is one of two prisons, along w ith SCI Laurel Highlands, in the Commonwealth that has a personal care unit. Waymart receives medical transfers from institutions across the state, making its population older than most of Pennsylvania’s state prisons. The average age of a Waymart inmate is 45.5, according to SCI Waymart’s superintendent, Mark Wahl. About 36% of inmates are over the age of 50, and 10% are over 65 out of a total of 1,122 as of April of this year, he said. Wahl said SCI Waymart averages one death per month.

Understanding hospice care: Eligibility, cost and purpose Emmanuel Hospice; 6/5/25 How do you want to live? It may be surprising to learn that’s the first question Emmanuel Hospice asks every new patient. Isn’t hospice about dying? While hospice is often associated with death, Melissa Wedberg will tell you it’s more about living, especially at Emmanuel Hospice, where she serves as vice president of community relations. With more than a decade in the hospice industry, Wedberg has spent years dispelling this and many other myths. Despite having roots in the U.S. dating back to the 70s, there remains a lot of mystery about hospice. Common questions Wedberg hears include: What is hospice and who’s eligible? How does hospice work? How is hospice paid for? Editor's note: This simple question jumps to the core of person-centered care, "How do you want to live?"

Sister Grace spent her life helping the homeless. Now in hospice, she reflects on legacy and lessons WXXI News NPR, Rochester, NY; by Gino Fanelli; 6/6/25Sister Grace Miller smiles as she props herself up in her hospice bed and gently teases her strands of chestnut brown hair. “How does my hair look?” she asks. It’s the type of remark one would expect from Miller. Sister Grace is many things: a radical compassionate, a devout follower of the Catholic faith, a civil disruptor, and a wielder of a sharp, slightly sardonic wit. ... The 89-year-old champion for the homeless and destitute is dying, in hospice care at a congregation home on Carter Street. But her spirit is alive and well. “I would fight with them over whatever, whatever the people needed,” Miller said, referring to the county and city administrations she often tangled with over the years. “I would fight for the people. ... She said it was, ultimately, an undying, uncompromising commitment to the work she does as a fierce and fearless advocate for the poor.

New inmate comfort care program launched for terminally ill patients ABC WTXL 27, Tallahassee, FL; by Tier Wootson; 6/6/25 The Leon County Sheriff's Office and Big Bend Hospice are teaming up for a new Inmate Comfort Care Program for Terminally Ill Patients. In the press release, LCSO says that due to this new partnership, there will now be an inpatient hospice room within the Leon County Detention Facility. They say this has been developed over the last year with collaboration between LCSO leadership, healthcare leaders from YesCare, and representatives from Big Bend Hospice. ... The program is for inmates who have less than one week to live. While in hospice care, family members will be able to visit loved ones in a "peaceful and private environment."

Where adults with heart failure die: Insights from the CDC-WONDER databaseCirculation: Heart Failure; Farman Ali, Shaaf Ahmad, Aman Ullah, Ali Salman, Adarsh Raja, Faizan Ahmed, Prinka Perswani, Ahsan Alam, Jishanth Mattumpuram, Muhammad Talha Maniya, Hamza Janjua, Tyler J Bonkowski, Aravinda Nanjundappa; 5/25This study underscores the shifting trends in the locations of death among patients with HF [heart failure], with a ≈2-fold increase in HF-related deaths occurring at home over the past 2 decades. Hospice/nursing home deaths increased from 30.95% ... in 1999 to 34.71% ... in 2017, but declined to 29.54% ... by 2023. Young adults (20-34 years) had the highest proportion of inpatient deaths. Sex, ethnicity, and urbanization were significant predictors of death location, with men, White individuals, and those in large metropolitan areas more likely to die in medical facilities. 

Hawai'i Pacific University alumni join forces to build a pioneering palliative care team for student excellence Special to The 'Ohana - HPU's Daily News, Honolulu, HI; 6/3/25 A group of HPU alumni from the nursing, social work, public health and business administration programs ... will be working towards steering a newly established palliative care team at HPU to assist nursing students, social workers and public health students to play an important role in understanding palliative care, hospice and communication with family and survivors. The team will play a role in setting up clinical placements in the community at St. Francis Palliative Care Units and Hospice, to give our nursing students invaluable hands-on experience in providing compassionate care for patients with serious and life-limiting illnesses. HPU Assistant Professor Joy Bliss, Ph.D., will also be designing simulations for “effective listening and communication skills,” to enhance student’s performance and skills in grief and this specialty of nursing. ... This initiative is not only an opportunity to strengthen the clinical training of nursing students, but also an essential step forward in improving the availability and quality of palliative care in Hawaiʻi. 

40 years after Karen Ann Quinlan’s death, NJ right-to-die case still stirs strong emotions New Jersy Herald; by William Westhoven; 6/4/25 ... Today, Americans are free to declare those rights [about dying] in the form of advance directives such as a living will. For that, we have one New Jersey family to thank: the parents and siblings of Karen Ann Quinlan, whose faith carried them through the arduous process of turning their tragedy into a legal victory that changed the way Americans approach the end of life. They were aided by a collection of attorneys and judges on both sides of the life-or-death case who chose to work "as adversaries but not enemies." Karen, then 21, fell into an irreversible coma after attending a party in Sussex County on April 15, 1975. She died 40 years ago, on June 11, 1985, in a Morris County nursing home.Editor's note: I remember this. Do you? In the midst of today's MAiD legislation, lobbying, and often highly inflammatory stances, I'm struck by this article's description, "They were aided by a collection of attorneys and judges on both sides of the life-or-death case who chose to work "as adversaries but not enemies." Yes, strong emotions and beliefs still drive both sides. Yes, we still choose how to work together. 

Missoula community celebrates opening of Hope Hospice Center NBC-KULR, NonStop Local Billings, MT / Missoula, MT; by Taylor Richardson; 6/3/25 The Hope Hospice Center celebrated its opening with a ceremony in Missoula, marking a significant milestone for elder care in Western Montana. The new facility will provide critical end-of-life care for people across the region. The state-of-the-art center spans 15,200 square feet and offers 24-hour end-of-life services. It includes 12 private patient rooms, spaces for family visits, and areas for religious and cultural practices. Amanda Yeoman Melro, Executive Director of Partners Hope Foundation, expressed her excitement about the center. "I think it has exceeded our wildest dreams of what a hospice center could possibly be," she said. The facility was made possible through community fundraising efforts led by the Partners Hope Foundation, which raised more than $15 million.