Literature Review

[New Zealand] 'Cuddle beds' for terminally-ill hospice patients BBC News, New Zealand; by Jack Silver; 9/5/25 A hospice in Guernsey has installed seven "cuddle beds" for patients with life-limiting or terminal illnesses. The beds, which cost £17,000 each, widen to allow patients to lie next to and embrace their love ones or pets. Les Bourgs Hospice, in St Andrews, said the beds brought "comfort, dignity, and human connection" to patients and their families. Rob Jones, from Les Bourgs, said the beds would help with the hospice's mission to "support people at one of the most difficult times of their life."

Benefits and burdens of research participation: A mixed methods systematic review in palliative and end-of-life careJournal of Hospice and Palliative Nursing; by Cara L Wallace, Stephanie P Wladkowski, Ruaa Al-Juboori, Anna Wingo, Kathryn W Coccia, Rebecca Hyde, Verna Hendricks-Ferguson; 8/25Research participation of hospice and palliative care patients and family caregivers is essential to develop and test best practices. Yet, healthcare professionals are often hesitant to ask patients and caregivers to participate in research, fearing it is too intrusive or unethical during a sensitive time. This review focused on the motivating factors, benefits, and burdens of research participation for patients with serious illness and their family caregivers. For clinicians and researchers, connecting patients and caregivers to palliative and end-of-life research may be both beneficial as a contribution to scientific literature and as an additional source of ongoing support.

The hidden crisis in serious illness care and how we fix itMedCityNews; by Dr. Mihir Kamdar; 9/7/25 Every year, millions of Americans with serious illnesses find themselves caught in a dangerous limbo: not sick enough to qualify for hospice, but far too ill to be served by our traditional healthcare system. The result is care that’s expensive, fragmented, and often traumatic. These patients are shuffled between a revolving door of emergency rooms and ICUs, enduring a cascade of aggressive interventions that don’t match their goals or improve their quality of life. This approach not only undermines quality, it drives healthcare spending through the roof, particularly in the last year of life. This is the hidden crisis in serious illness care. And it’s getting worse. At the root of the problem is what many in the field call the “hospice cliff.” ...

Sexuality and intimacy in the context of palliative and end-of-life care: A scoping reviewInternational Journal of Palliative Nursing; by Michelle Traverse, Susan D Mueller, Susan DeSanto-Madeya, Melissa A Sutherland; 8/25This scoping review identifies what is known about patient/partner sexuality and intimacy needs during end-of-life care and how healthcare professionals' (HCPs) approach these needs. A total of 18 articles were included in the review. Four themes were identified: 1) negative impact of serious illness on sexuality and intimacy, 2) barriers and facilitators to addressing sexuality, 3) tension between expansive and genital-focused approaches to sexuality and intimacy, and 4) a disconnect between patient/partner needs and HCP preparation. HCPs require clear and comprehensive training to improve their ability to address sexuality and intimacy during end-of-life care. Taking an expansive view of sexuality and intimacy during this time may facilitate HCP interventions.

What do physicians want at the end? An international qualitative study on physicians’ personal end-of-life preferences and what influences them Palliative Care and Social Practice; by Sarah Mroz, Frederick Daenen, Sigrid Dierickx, Freddy Mortier, Ludovica De Panfilis, Luca Ghirotto, Toby Campbell, Kenneth Chambaere, and Luc Deliens; 7/4/25 Research Results: ... Most physicians prefer to avoid aggressive and life-prolonging treatment, physical and mental suffering, and being a burden. They prioritize being in a peaceful environment and communication with loved ones. Various factors influence preferences including cultural, social, and religious beliefs, and legislative environment, but most significant are the deaths of loved ones and clinical practice. Death and dying become normalized the more they are reflected upon and discussed, and this process can also provide personal growth which helps physicians provide better care to patients and families.

Trends in hospice and palliative care consults initiated in the emergency department: An eight-year utilization analysisThe American Journal of Emergency Medicine; by Satheesh Gunaga, Abe Al-Hage, Alyssa Buchheister, Harish Neelam, Jessica Corcoran, Michael Welchans, Kirby Swan, Mahmoud Awada, Joseph Miller, Fabrice Mowbray; 8/25Emergency departments (EDs) play a central role in end-of-life care, yet the early integration of hospice and palliative care (HPC) is often underutilized. A total of 8,055 HPC consults were ordered for 6,370 unique patients. The average age was 78.1 years, with 56.4 % female and 75.0 % White. Of the cohort, 91.7 % were admitted, 5.3 % discharged home, and 53.2 % died in-hospital. HPC consults increased from 369 in 2016 to 1,355 in 2023 (367 % increase ... ). The ratio of hospice to palliative care consults reversed from 1.5:1 in 2016 to 1:1.9 in 2023.

Would you go to a local Death Cafe? It's a chance to eat cake and talk end-of-life issues Times Telegram, Utica, NY; by Amy Neff Roth; 8/12/25 Key Points:

Unity receives $30,000 grant from Otto Bremer Trust to expand palliative, hospice, and grief support for pediatric patients and their families The Chamber - Manitowoc County, Manitowoc, WI; Press Release; 8/6/25 Unity is proud to announce the award of a $30,000 grant from the Otto Bremer Trust to support and expand specialized pediatric palliative and hospice care services for children and their families in Northeast Wisconsin. This vital funding will also enhance grief support programs tailored to children and teens impacted by a death. “This generous investment from the Otto Bremer Trust enables us to provide compassionate, family-centered care during the most difficult of life circumstances,” says Alisa Gerke, Executive Director of Unity. “No child should face a serious illness alone, and no family should be left without support during grief. Thanks to this grant, Unity can serve more families with the expertise, tenderness, and commitment they deserve.”

Do’s and don’ts when a loved one is dying Psychology Today; by Jessica Schrader; 8/4/25 In the not-so-distant 19th and early 20th centuries, death took place at home. Funeral parlors didn’t exist; the actual parlor in a home (usually the fanciest room) was used to lay out a dead loved one, conduct wakes, and so forth. Children grew up around death and were more comfortable with it than adults today. Currently, many adults have never even seen a dead or dying person.  That can make people so uncomfortable they avoid seeing their dying loved one or reaching out altogether. That may lead to regrets long after the loved one is gone. Healthy ways to avoid fears and regret are to gently confront your concerns, learn a few simple tactics, and offer presence and support instead. Here’s how: 

Systemic strategies to prevent nonbeneficial treatments near the end of lifeJAMA Network Open; by Sofia Weiss Goitiandia, Amy Z. Sun, Amy Rosenwohl-Mack, Catthi Ly, Katherine E. Sleeman, Daniel Dohan, Elizabeth Dzeng; 7/25There exists a default toward high-intensity treatments near the end of life in the United States, including for people living with advanced dementia (PLWD). Clinical momentum, a cascade of increasingly intensive treatments facilitated by systemic factors, contributes to this default. The intensity of treatments provided to PLWD near the end of life is lower in Great Britain. Using Great Britain as a counterexample to the United States, this study examines factors that may contribute to lower-intensity treatment patterns.

Community turned-out for 7th annual Hoedown for Hospice in Dickinson The Dickinson Press, Dickinson, ND; by Press Staff; 7/11/25 The spirit of community and compassion was on full display June 19 as families, friends and neighbors gathered at Veterans Memorial Park for the 7th Annual Hoedown for Hospice. This beloved fundraising event benefits the Dickinson hospice program offered through CHI Health at Home.A crowd of all ages turned out, making the event a resounding success. Attendees enjoyed a lunchtime filled with activities and entertainment. Children laughed and played in colorful bouncy houses, met furry new friends at the petting zoo, and everyone enjoyed delicious food and ice cream.

Elderly people look at their younger reflections in this beautiful photo series by Tom Hussey Digital Synopsis; photos by Tom Hussey; retrieved from the internet 7/10/25 'Reflections of the Past' is an award-winning photo series by commercial advertising photographer Tom Hussey. The photographs show an elderly person looking pensively at the reflection of his/her younger self in the mirror. Hussey was inspired by a World War II veteran who said "I can't believe I'm going to be 80. I feel like I just came back from the war. I look in the mirror and see this old guy." It's beautiful, touching ... Editor's Note: Click here to view this touching series. The phrases "every photo tells a story" and "a picture is worth a thousand words" come to life. This award-winning campaign was used in a marketing campaign by Novartis for a treatment of Alzheimer's disease. [Our newsletter has no disclosures to report.] These photos are under strict copyright laws with strict enforcement. They can be shared easily via social media links at the top of its webpage. 

5 ways to have a ‘good death’ — including one of the biggest mistakes people make New York Post; by Reda Wigle; 7/3/25 No one gets out of life alive — but one expert says we can take steps to make sure we leave the earthly plane riding the high of a “good death.” “While 80% of people want to die at home surrounded by loved ones, only 30% actually do,” End Well founder Dr. Shoshana Ungerleider told The Post. “This massive gap reflects our system’s inability to honor what patients actually value.” As our cultural relationship to mortality has changed, Ungerleider notes that we have become disconnected from the process of death and, in turn, fail to plan appropriately for it. But if you’re not sure where to start, she has a helpful checklist of everything you should be doing to avoid a “bad death.”