Literature Review

Doctor with terminal cancer shares the three things everyone should consider doing to prepare for deathYour Tango, by Alexandra Blogier; 3/12/24Kim is a resident doctor who was diagnosed with metastatic sarcoma when she was 28 years old. She invites people to see what her life is like, as both a medical resident and a cancer patient, focusing on the practice of gratitude and being present. ... Kim revealed the three most important things she’s done as a cancer patient to get the administrative side of her affairs in order, which she recommends everyone do, even if they're not sick.

Opportunity uncovered: How COVID-19 accelerated healthcare transformation Managed Healthcare Executive; by Patrick Horine, MHA; 3/6/24The COVID-19 pandemic left an indelible mark on the healthcare landscape, spotlighting critical areas for improvement while accelerating transformations that were already underway. From addressing disparities in equity and access to adopting digital health strategies, the pandemic has forced healthcare to move swiftly to meet urgent needs. First, let us look at some of the issues we had been facing and how these were changed by the unprecedented challenges of the pandemic. ...

At Frieze LA, Gary Tyler finds resilience after prison—in each stitch of his poignant quilts ARTnews, by Steven Vargas; 2/29/24 Los Angeles–based artist Gary Tyler has been making quilts for close to 15 years but has yet to exhibit them in his hometown. This week, he will debut several of his intricate and emotionally packed pieces at Frieze Los Angeles, after having been named the winner of the fair’s Impact Prize. His quilts document the 42 years he spent in prison following a wrongful conviction of murder at age 17. His journey to receiving the prize may be unconventional, but for him, it is a reminder of the resilience of an artist.Publisher's note: This article features another quilter from the Angola Prison Hospice Project.

Death can be isolating and dehumanizing. But what if it didn’t have to be?City Life, by Ben Seal; 2/17/24... In the three years since Elaine’s passing, I’ve longed for a world where more people could be given the chance to die as she did — with the fullness of life surrounding her, and with complete support, emphasizing the emotional and spiritual, not just the medical. In Philadelphia and beyond, a growing community of death-care workers — doulas, nurses, grief counselors, social workers, even funeral directors — is trying to build that world. They are reclaiming death and dying from the institutional model that has become the norm over the past century. Editor's Note: Has hospice now become so institutionalized and medical/regulatory focused that we have lost sight of "emphasizing the emotional and spiritual, not just the medical"? I ask the question, but do not draw judgment, as answers must be contextualized. 

MIDEO Systems Inc. secures contract with city of Austin for innovative end-of-life care solution BBN, by Waqas Arain; 2/13/24MIDEO Systems Inc., a groundbreaking platform offering video-based advance care planning services, has secured a contract with the City of Austin. The partnership aims to streamline and digitize the process of documenting patients' medical preferences, making it more accessible and understandable for medical professionals.

Silverado Hospice - Hospice Stories

Cambia Health Foundation announces 10th cohort of the Sojourns Scholar Leadership ProgramCambia health foundation; 1/18/24Each Sojourns Scholar receives $180,000 in funding ($90,000 per year over a two-year grant) to carry out an innovative and impactful project in the field of palliative care and execute a leadership development plan designed to support the individual's growth as a national leader in the field. ... Each grantee is a member of an interdisciplinary palliative care team or is otherwise working to advance the field.Click on the link above for descriptions, and then on "Meet Our Cohorts"

Man with cancer once wanted assisted suicide, but was glad he chose natural death insteadLive Action, by Cassy Fiano-Chesser; 1/15/24“In our last moments, when he was awake, I sat on his bed and sang to him — Joni Mitchell’s Both Sides Now. He had watched her sing it at the Isle of Wight pop festival and it was a magical memory he had relived with us.

Finding a voice for the terminally illHealth Affairs, by Richey Piiparinen, 1/9/24A patient with terminal illness reflects on the reluctance in health care to discuss death. Access to the full-text article requires either an online subscription or purchase of 24-hour access to this article.

I Promised My Sister I Would Write About How She Chose to DieBy Steven Petrow, Guest ColumnistNew York TimesDecember 28, 2023On the day before my sister Julie died, I lay down on her bed and held her gingerly in my arms, afraid that any pressure would hurt her. She had lost so much weight that she looked like a stick figure I might have drawn when we were kids. 

The Hospice Action Network Presents 2023 Angel Awards HonoreesNews ReleaseDecember 19, 2023Alexandria, VA—The Hospice Action Network (HAN), the advocacy affiliate group of the National Hospice and Palliative Care Organization (NHPCO), is pleased to announce its 2023 Hospice Action Network Angel Award Honorees. ... New this year is the addition of the first-ever “Courageous Conversations Award” to be presented, when merited, to a standout individual who has inspired and educated the public on the value of hospice. At 99, former President Jimmy Carter is the longest living U.S. President and the first known President to utilize the Medicare Hospice Benefit. This year’s HAN award recipients are as follows:

Dying without needless pain is a human right—just not in VirginiaBy Ryan GarnowskiRichmond Times-DispatchDecember 19, 2023As I sat beside my mother in hospice for 11 somber days, I couldn’t help but wonder if this supposed pinnacle of “comfort care” was truly the humane end many insisted it to be. ...There’s plenty of speculation one could make as to why MAID isn’t more widespread. ... Regardless of the reason, the fact remains: States without MAID policies are condemning the terminally ill to unnecessary anguish. ... Still, it’s precisely because our medical community can’t predict the time, manner or conditions of one’s death that MAID should be a no-brainer. Nearly all end-of-life reform advocacy groups make clear that a self-managed death isn’t the same as suicide or euthanasia, and is instead a peaceful, humane and seemingly preferable alternative to the horrible conditions some in their final days endure.

How one woman is honoring her late husband’s memory with a grief program at SargentoSheboygan (WI) PressDecember 17, 2023Plymouth, WI—Shirley Krause and her husband Randy Susen were inseparable for 30 years. ... Susen passed away July 4, 2020, at age 64, nearly a year after going to the ICU for the brain injury. ... Krause, a supply chain technology principal at Sargento, launched a life planning series in July focused on a grief and end-of-life planning for employees, one of several efforts she’s pursuing to honor her husband’s memory, along with hosting a widows’ support group, advocating for nursing home residents’ rights and supporting other families with traumatic brain injury survivors.