Literature Review

All posts tagged with “General News | Changing the Culture of Dying.”



Revolutionizing health in South Florida: The benefits of IV therapy and inclusive hospice care

06/11/25 at 03:00 AM

Revolutionizing health in South Florida: The benefits of IV therapy and inclusive hospice care South Florida Reporter; by southfloridareporter.com; 6/8/25 ... South Florida is known for its multicultural population, making the expansion of hospice care to diverse groups particularly significant. Traditionally, certain cultural or community groups may have had hesitations or lacked access to hospice care due to language barriers, cultural misunderstandings, or lack of awareness. Increasingly, hospice organizations are focusing on outreach and education within these communities, breaking down barriers and encouraging patients and families to consider hospice as a valuable option for quality end-of-life care. 

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92-year-old veteran takes to the skies on flight down memory lane

06/10/25 at 03:00 AM

92-year-old veteran takes to the skies on flight down memory lane TCPalm, part of the USA TODAY Network; by Mary Ann Ketcham, Treasure Coast Hospice; 6/8/25 At 92 years old, Korean War Air Force veteran and Treasure Coast Hospice patient Joseph Vespo recently took to the skies in a Cessna 172 airplane for a flight down memory lane. An ear-to-ear smile lit up his face as the aircraft taxied down the runway and took off from the Treasure Coast International Airport in Fort Pierce. During his time in the Air Force, Vespo monitored aircraft systems from the cockpit. ... For 40 years, he owned and flew Bonanza planes but had been unable to fly in recent years. ... "This fantastic opportunity to fly again came about because we get to know our patients and their families," said Treasure Coast Hospice Community Outreach Representative Jenny Fee. ... The Treasure Coast Hospice Veteran Care Fund and local pilot Jim Howard of Clearflight Aviation helped make his dream a reality.

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A special tribute given to a special nurse

06/10/25 at 02:30 AM

A special tribute given to a special nurse Scottsdale Progress, Scottsdale, AZ; by Lin Sue Flood; 6/7/25 One of the original founders of Hospice of the Valley back in 1977 recently received an extraordinary visit from the Arizona Nurse Honor Guard, an organization that honors fellow nurses who have dedicated their lives to the profession. “I am just flattered and overwhelmed,” said Mary Audrey Mellor, who turns 92 in July. “Hospice of the Valley has always had my heart because it’s so compassionate and caring and loving.” Friends and family gathered together at her home at Vi at Silverstone in Scottsdale as she received a Florence Nightingale coin symbolizing comfort, gentleness, courage and an unwavering devotion to duty. Nurse Honor Guard volunteer Cindy Loucel then presented her with a second gift. “We have a quilt to cover you with our love and gratitude and to recognize all those patients you covered in kindness,” she said. “May it bring you comfort, as you gave so many others comfort.”

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Terminally ill woman, 35, cancels plans - best friend’s reaction backed

06/09/25 at 03:00 AM

Terminally ill woman, 35, cancels plans - best friend’s reaction backed Miami Herald, Miami, FL; by Lydia Patrick, Newsweek Life; 6/5/25 A woman has sparked an outpouring of support online after admitting she felt relieved when her terminally ill best friend canceled their remaining plans. The anonymous Reddit user, ... shared her emotional experience ... where her confession received over 8,000 upvotes and hundreds of comments. She explained that her best friend, Sarah, 35, had been diagnosed with an aggressive form of pancreatic cancer and her condition rapidly worsened. ... In an effort to make the most of her time, Sarah created an ambitious bucket list, which included a trip to the coast, a party, and a final hike to her favorite mountain. However, after halting treatment, she transitioned into hospice care and most of the planned activities were either canceled or significantly scaled back. ... [Serving as primary caregiver, she wrote,] "And I'm relieved. I'm utterly, profoundly ashamed to admit it, but I'm exhausted. Mentally, emotionally, financially. ..." ... Dr. Terri Daniel, a grief counselor and hospice chaplain at Forest Park Hospice, told Newsweek the Redditor's experience is not uncommon and far from selfish.

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Local bat mitzvah project becomes ‘bear’ mitzvah

06/09/25 at 03:00 AM

Local bat mitzvah project becomes ‘bear’ mitzvah Columbus Jewish News, Columbus, OH; by Bill Motchan; 6/4/25 Most 13-year-olds preparing for their b’nai mitzvah mark the occasion by completing a community service initiative. Emily Cammeyer had her bat mitzvah in 2012, but her mitzvah project lives on. In fact, it recently turned 13. The program is known as Love & Hugs and is part of the admission process at Wexner Heritage Village’s Zusman Hospice. A new hospice patient receives a stuffed bear to be there as a comfort tool. Eventually, the bear is reunited with the family of the patient. For her mitzvah project, Cammeyer raised enough money to donate 100 bears to Zusman Hospice. Since then, the program has placed more than 4,000 bears. ... “Our social workers help match the bear to the patient,” Sears told the CJN. ... Personalizing the bears was part of an evolution of the program, but it has made it special for hospice patients, Cammeyer said.

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Confronting global inequities in palliative care

06/04/25 at 03:00 AM

Confronting global inequities in palliative care BMJ Global Health; by Anna Peeler, Oladayo Ayobami Afolabi, Katherine E Sleeman, Maha El Akoum, Nahla Gafer, Asmus Hammerich, Richard Harding; 5/15/25

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Hospices facing a US caregiving ‘crisis’

06/04/25 at 03:00 AM

Hospices facing a US caregiving ‘crisis’ Hospice News; by Holly Vossel; 6/2/25 Family caregivers in the United States are being challenged by a swelling aging population inneed of greater support and stronger policy infrastructures. Much room for improvement exists at both state and federal levels when it comes to recognizing the important roles that family caregivers play, according to Steven Lee, co-founder and CEO of ianacare, a Boston-based patient and caregiver resource company. More innovative care models and disease-specific reimbursement options have widened pathways for hospice providers to improve family caregiver support, Lee said in a recent Hospice News Elevate podcast. But these fall short of addressing the diverse scope of practical, emotional and financial needs, he stated. Editor's note: This article has an excellent map of US states with caregiver categories for "Well-Supported," "Safe for Now," "High Risk," and "Critical" (courtesy of Otsuka America Pharmaceutical). Additionally, our sponsor Hospice Analytics provides the National Hospice Locator, for caregivers/families to find hospices that serve in each US county, and sorted by their quality scores. And, our sponsor Composing Life equips hospice organizations with caregiver/family video libraries that span the continuum of serious illness, hospice, and grief care. 

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Nonprofit participates in ALS Ice Bucket Challenge

06/03/25 at 03:00 AM

Nonprofit participates in ALS Ice Bucket Challenge Coeur d'Alene / Post Falls Press, Coeur d'Alene, ID; 5/31/25 Hospice of North Idaho took the plunge this week after being nominated by Kootenai Health to participate in the ALS Ice Bucket Challenge, a viral campaign aimed at raising awareness and funds to fight amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease. In a video on social media, Hospice of North Idaho’s Leadership Team and staff sat front and center Wednesday as team members gathered, cheered and doused them with buckets of ice-cold water all in the name of a great cause, Hospice of North Idaho shared in a Friday news release. ... “Hospice of North Idaho is proud to take part in this movement and show our support for those affected by ALS,” Megan Ryan, communications specialist at Hospice of North Idaho.

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Hard conversations, celebrations accompany AANHPI Heritage Month

06/02/25 at 02:15 AM

Hard conversations, celebrations accompany AANHPI Heritage Month Public News Service; by Roz Brown and Suzanne Potter; 5/30/25 Asian Americans, Native Hawaiian and Pacific Islanders are a rapidly growing population in California and across the nation - but as they age, research indicates they're less likely to use hospice care or be familiar with end-of-life options. Nationwide, the group makes up about 6% of the population - and 15% in California - but like many minorities, they face greater health-care disparities. Ben de Guzman, director of the Office on Asian and Pacific Islander Affairs in the Washington, D.C., mayor's office and the son of Filipino immigrants, said cultural beliefs can hinder conversations about death and dying, and language also is a barrier.

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A student film explores an end-of-life story: How Jingyi Li created the documentary that swept the Redstone Film Festival

05/30/25 at 03:00 AM

A student film explores an end-of-life story: How Jingyi Li created the documentary that swept the Redstone Film Festival Boston University, College of Communication, Boston, MA; by Mike De Socio; 5/27/25 When Jingyi Li set out to create a documentary about healthcare for elders, she struggled to find a family willing to sit in front of her camera. Li (’25) was inspired by the power of filmmaking to create social impacts, and wanted to explore hospice care in Chinese culture. The interest stemmed from Li’s experience interning at a local hospice care center in Yunnan Province, China, where she witnessed the complexities and cultural sensitivities involved in providing care for terminally ill patients within Chinese families. With the help of a hospice and palliative care service in Boston, Li started reaching out to Chinese families about filming the end-of-life process, but many rejected her request. ... She eventually found a “brave family” whose roots in the US date back to the mid-20th century. Li says the family’s “mix of Chinese and Western culture” made them more amenable to being filmed.  ... The resulting short documentary, named Pópo for the elder at its center, went on to win a bevy of awards at this year’s Redstone Film Festival, including best film and best documentary. 

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Finding Solutions: Local group makes flowers for everyone

05/23/25 at 03:00 AM

Finding Solutions: Local group makes flowers for everyone WRDW-12 & WAGT-26, Augusta, GA; by Zayna Haliburton; 5/21/25 Flowers are something that can put a smile on someone’s face, whether you’re receiving or giving them. For one local group, they’re making bouquets to bring to nursing homes, shelters and hospitals. They’re now finding solutions in asking the community to consider donating their leftover flowers from weddings and events in order to brighten someone else’s day. “These are going to go to hospice patients that a part of Enhabit Augusta, ..." said Patricia Proctor, co-owner of El Rey and founder of non-profit Corazón Bonito ... which translates to "beautiful heart" in English. 

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You might live to be 100. Are you ready?

05/21/25 at 03:00 AM

You might live to be 100. Are you ready? The Guardian; by Andrew J. Scott; 5/15/25 Ethel Caterham, at the age of 115 years, is said to be the oldest person alive. She offers the sage life advice to “say yes to every opportunity because you never know what it will lead to. Have a positive mental attitude and have everything in moderation.” When she was born in 1909, the average life expectancy of a British female was 52 years – becoming a centenarian was a remote prospect. ... Today, according to the United Nations, centenarians are the fastest growing age group. By 1950, there were an estimated 14,000 whilst today there are nearly 750,000, projected to reach nearly 4 million by 2054. ...  Today, there is too large a gap between average lifespan and healthspan. The number of years we are likely to live has increased more than the number of years we are likely to remain healthy. Reducing this gap is critical for seizing the advantages of longer lives.

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[Australia] Overtreatment of older people near end of life: A qualitative scoping review of modalities, drivers, and solutions

05/17/25 at 03:00 AM

[Australia] Overtreatment of older people near end of life: A qualitative scoping review of modalities, drivers, and solutionsOmega-Journal of Death and Dying; Samantha Fien, Emily Plunkett, Daniel Wadsworth, Magnolia Cardona; 4/24This study aimed to understand the drivers better to help minimise further risks of overtreatment for older people near the end of life (dysthanasia). Determinants included healthcare system factors, patient-centered care, family and caregiver, and clinician perspectives. This review confirms that despite almost two decades of recognition of the potential harms of overtreatment near the end of life, society, patients, and health systems have a role to play in reducing and addressing the determinants. We offer a range of solutions for clinicians, health service managers, and members of the public to consider.

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Finding her strength in silence: CSU Pueblo student graduates twice, carrying her mother’s dream

05/16/25 at 03:00 AM

Finding her strength in silence: CSU Pueblo student graduates twice, carring her mother's dream Colorado State University Pueblo, Pueblo, CO; by Soni Brinsko; 5/14/25 The porch was still new when the professors arrived that late November evening. Hand-laid tiles, each one carefully placed by a father during what should have been vacation time. He’d built it for his wife so she could sit outside, feel the Colorado breeze one more time. That night, the porch became something else entirely. It became a stage for a graduation ceremony that wasn’t supposed to happen until May. Alondra Solis Ayala is about to walk across the commencement stage at Colorado State University Pueblo this week. It will be her second graduation. The first one happened in her family’s living room, with her dying mother watching from a chair, too weak to stand but strong enough to declare “esa es mi hija”—that’s my daughter—as faculty members in full regalia handed over a diploma cover and stole in what became an impromptu, deeply personal ceremony.

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Newly Available: Improving Dying

05/12/25 at 03:00 AM

Newly Available: Improving Dying Hospice Foundation of America, Washington, DC; Press Release, contact Lisa Veglahn; 5/7/25 Virtual reality, physical therapy, music therapy, pet care, and even a haircut are therapeutic, innovative, and practical ways to improve the quality of life for people with terminal illness and are profiled in a new book and continuing education course recently released by Hospice Foundation of America (HFA). “End-of-life care providers are doing amazing work that rarely gets the attention it deserves,” said Amy Tucci, HFA’s president and CEO. “With Improving Dying, HFA’s goal is to recognize their efforts and provide models that can be replicated to enhance care for dying and the bereaved.”

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It's time to talk about LGBTQ+ elder care

05/12/25 at 02:15 AM

It's time to talk about LGBTQ+ elder care Psychology Today - Caregiving; by Stephanie Sarazin, M.P.P.; 5/6/25 A once-hidden story is helping us think about queer kinship and caregiving. Key points:

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Dying ‘Beautifully’ in the Rio Grande Valley: Rivera-Burciaga embeds end-of-life nursing into UTRGV curriculum: National Nurses Week is May 6-12

05/12/25 at 02:00 AM

Dying ‘Beautifully’ in the Rio Grande Valley: Rivera-Burciaga embeds end-of-life nursing into UTRGV curriculum: National Nurses Week is May 6-12 UTRGV, The University of Texas Rio Grande Valley - The Newsroom, Rio Grande Valley, TX; by Karen Villarreal; 5/9/25 Death, for the most part, makes people uncomfortable. But not UTRGV’s Dr. Andrya Rivera-Burciaga.  After a personal loss early in her nursing career drove her to seek advanced certification in hospice and palliative care, she has made it her life’s work to normalize conversations about death and dying.   ... While Rivera-Burciaga’s efforts successfully have woven palliative care into the UTRGV nursing curriculum, her Ph.D. research on the unique cultural perspective of death and dying among Mexican Americans aims to further tailor the care that nurses provide to end-of-life patients in South Texas.  ... Through clinical interviews, Rivera-Burciaga found that many individuals of the Mexican American culture are afraid to die – despite engaging in Día de los Muertos, a celebration of death every November. “We've built a compassionate community for the dying, yet we don't say it by name. Many Mexican Americans in the United States believe that to talk about death invites it. Or, that we don't have time to be depressed, or that even in mourning men don't cry,” she said.

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'I've already had my miracle': 26-year-old Savannah mom enters hospice care with only weeks to live

05/09/25 at 02:10 AM

'I've already had my miracle': 26-year-old Savannah mom enters hospice care with only weeks to live ABC WJCL 22 News, Savannah, GA; by Savannah Younger; 12/4/24, posted in our newsletter on As the holiday season begins, Sara Long, a 26-year-old Savannah woman, is entering hospice care after a prolonged battle with kidney failure. Now the wife and mother is preparing to say her final goodbyes to family and friends. "I wanted to make sure that everything's kind of ready to go for when family visits and all that kind of stuff," Long said. "So, I just want to make things as easy as possible for everybody." Long has been told she has two to three weeks left to live and is now preparing her family for her passing. ... Their daughter, Riley, 4, is too young to understand what is happening, but Long is creating a hope chest so Riley can always remember her. "There are probably dozens, if not hundreds, of letters at this point, to open at different various points in her life. So, like her first day of school all through, or a graduate degree, potentially," Long said. "I feel like I've already had my miracle," Sara said. "I feel like Riley is my miracle. ..."Editor's note: Sara Long died sooner than expected, just 8 days later on December 12, 2024. Click here for the moving message from her husband, describing her death, paired with the video from December 4th. Click here for an additional "exclusive" interview from People magazine with Sara, describing her decision to enter hospice care.

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Think you know what nursing research looks like? Think again

05/02/25 at 03:00 AM

Think you know what nursing research looks like? Think again Boise State News, Boise, ID; 4/30/25 “Research” doesn’t just mean generating new discoveries through experimentation. Boise State supports Boyer’s model of scholarship, which expands the definition of research and creative activity to include applying and integrating knowledge into other settings, as well as teaching it. ... [An] interdisciplinary team is working to improve hospice and palliative care for refugees. ... Clinicians and refugees often do not share common cultures, languages or communication norms, so [Kate] Doyon has been building a community advisory board to create a communication guide. They’re working with stakeholders–including refugees and providers–to develop prompts that will enhance the care refugees receive, starting on the level of communication. Ornelas said the refugees they interviewed “gave us a lot of insight on different cultures and how we can go about and make prompts.” The prompts are short phrases to remind the healthcare team of best ways to interact with refugees and productively approach conversations.

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How cultural shifts surrounding death reflect our evolving health priorities

04/29/25 at 02:00 AM

How cultural shifts surrounding death reflect our evolving health priorities WorldHealth.net; 4/28/25 The culture of thinking about death is evolving in profound and lasting ways. ... Modern society is seeing an unprecedented change in the way we approach mortality since health consciousness, sustainability, and personal well-being now dictate end-of-life discussions. These cultural shifts and changing attitudes about death are indicative of our overall health interests, demonstrating how much our ways of living have crossed with our ways of dying.

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By the Bay forges educational partnerships to grow hospice, home-based care workforce

04/25/25 at 03:00 AM

By the Bay forges educational partnerships to grow hospice, home-based care workforce Hospice News; by Holly Vossel; 4/23/25 By the Bay Health has launched a new career program that aims to build up the next generation of home-based health care professionals amid widespread workforce shortages. The California-based health system unveiled its educational initiative, Pathways to Care Careers, in December 2024 as part of its 50th anniversary commemoration. The program is a collaboration with local schools and community organizations. By the Bay Health recently began a $1 million fundraising campaign to support the expansion of the career initiative. A main goal is to reach an increasingly diverse range of health care workers further upstream in their educational journeys, said Robertina Szolarova, chief administrative officer at By the Bay Health and program lead for its Pathways to Care Careers initiative.

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Prevention of acute hospital transfers for long-term care residents at the end of life

04/24/25 at 02:00 AM

Prevention of acute hospital transfers for long-term care residents at the end of life American Journal of Hospice and Palliative Medicine (AJHPM); by Kirsten Lanpher, DMS, MSPA, PA-C and Kirsten Brondstater, DMS, MSPAS, PA-C; 3/24/25 Findings: Long-term care residents are a vulnerable population with advanced comorbidities who often require high acuity care and are subject to preventable transfers to the hospital at the EOL. These disruptions in EOL care cause harm and complications, negatively impacting quality of care. The consequences of these events can be mitigated with early advance care planning to include documentation of EOL care goals, onsite medical clinicians to make critical decisions and provide care within LTC facilities, and adequate staffing with proper palliative and hospice care training. Conclusion: Immediate action is needed to advocate for this high risk population and implement interventions to prevent hospital transfers at the EOL, therefore improving quality of care and positively influencing LTC residents’ EOL experience.

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The intersection of dignity and healing with Dr. Harvey Max Chochinov

04/23/25 at 02:45 AM

The intersection of dignity and healing with Dr. Harvey Max Chochinov Practice of the Practice; podcast by Jo Sanok with Dr. Harvey Max Chochinov; 4/22/25 How can we ensure dignity in end-of-life care? What does every therapist need to know about actively incorporating dignity into therapeutic care for their clients? What is the procedure for a practical application of dignity in therapy and healthcare? In this podcast episode, Joe Sanok discusses the intersection of dignity and healing with Dr. Harvey Max Chochinov. 

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“It’s an homage”: Noah Wyle quietly sneaked in a tribute in one of the best episodes of ‘The Pitt’

04/23/25 at 02:00 AM

“It’s an homage”: Noah Wyle quietly sneaked in a tribute in one of the best episodes of ‘The Pitt’ FandomWire; by Arian Cruz; 4/18/25 In the fourth episode of The Pitt titled 10:00 A.M., Noah Wyle’s Dr. Michael ‘Robby’ Robinavitch monitored Mr. Spencer during his final hours while dealing with his own thoughts about the death of his beloved mentor, Dr. Adamson. He remembers the advice he received from him and shared it with the children of the dying patient as they waited for their father to pass. The phrases ‘I love you,’ ‘Thank you,’ ‘I forgive you,’ and ‘Please forgive me’ are words that need to be heard when someone is at the end of their life. Wyle revealed that he took these lessons from palliative care physician and author Ira Byock when he was writing the screenplay. Wyle said these short phrases are profound and hold deep meanings beyond their simplicity. He made sure to weave them in on the show while taking inspiration from his own mother for the emotional scenes. He shared via USA Today: "A very similar event had played out with my mother and her brother when saying goodbye to my grandfather. After she shared this with me, I just said ‘Thank you,’ went right back to my typewriter and wrote the scene. It’s an homage to my mother, my uncle and my grandfather.Editor's and Publisher's note: And we thank you, Dr. Ira Byock, for your profound, immeasurable influence for so many of us--professionally with those we serve, and personally with our own families and friends.

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This weekend: Passover and Easter with hospice patients and families

04/18/25 at 03:00 AM

This weekend: Passover and Easter with hospice patients and familiesHospice & Palliative Care Today; by Joy Berger, DMA, FT, BCC, MT-BC, editor in chief; 4/17/25 This weekend brings a confluence of the Jewish Passover and Christian Easter holy days. Whatever your faith system, understanding at least a bit about the diverse faith systems of those you serve matters. We provide these hospice-specific resources as references:

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