Literature Review

Home-based care companies improve outcomes by training family caregivers Home Health Care News; by Joyce Famakinwa; 10/25/25 Home-based care companies are increasingly recognizing the importance of training family caregivers to improve patient outcomes. By engaging family caregivers through education and mobilization, these companies can keep patients out of hospitals longer and maintain them in their homes, contributing to their overall happiness and health. 

The effect of the Care Ecosystem Collaborative Care Model on end-of-life outcomes for people with dementia and their caregiversAmerican Journal of Hospice & Palliative Care; by Lauren J Hunt, Krista L Harrison, Rachel Kiekhofer, Jennifer Merrilees, Alissa B Sideman, Sarah Dulaney, I Elaine Allen, Kirby Lee, Winston Chiong, Sarah M Hooper, Stephen J Bonasera, Tamara L Braley, Bruce L Miller, Katherine L Possin; 8/25Collaborative care models that feature care navigation have been found to have a range of benefit for people with dementia (PWD) and their caregivers, but their effect on end-of-life (EOL) outcomes has not been robustly evaluated. Our primary objective was to evaluate the effect of the Care Ecosystem-a telephone-based collaborative care model for dementia with care navigation-on EOL outcomes for PWD and their caregivers. Compared to Usual Care, Care Ecosystem caregivers had higher ratings of caregiver self-efficacy prior to PWD death ... but caregiver's satisfaction with EOL care did not differ between groups ... Qualitative analysis revealed Care Ecosystem provided helpful emotional and practical support, but participants wanted more anticipatory guidance, more information about hospice care and earlier referral, and better coordination with the healthcare team.

Living with dementia: To improve lives, we need to change how we think and talk about this experience in aging societies EurekAlert! - AAAS (American Association for the Advancement of Science); peer reviewed publication by The Hastings Center; 9/24/25 To experience or even contemplate dementia raises some of the most profound questions: What does it mean to be a person? How does someone find meaning in life while facing progressive neurological deterioration? ... To improve the lives of our fellow citizens who are living with dementia or providing dementia care, all of us need to pay attention to how we imagine and talk about these interwoven and increasingly common experiences, concludes Living with Dementia: Learning from Cultural Narratives in Aging Societies, a special report published by The Hastings Center for Bioethics. This report responds to calls from health care and social service practitioners for new ways to depict and talk about dementia, a collective term for Alzheimer disease and related dementias. Editor's Note: Click here for free access to multiple articles in this crucial report, such as

Why palliative care is more than just end-of-life support MedPageToday's KevinMD.com; by Dr. Vishal Parackal; 9/1/25 ... Palliative care as a system requires strong interpersonal and cross-specialty communication for smooth functioning, as patients may require expert opinions from different fields to optimize their treatment plan. Patient education for systemic follow-ups and establishing a baseline of knowledge regarding their diagnosis and potential danger signs helps create a better environment for holistic care. While we focus on the physical aspects of care and diagnosis, we often fail to realize the psychological and mental impact that such conditions can have on the patient and their family. ... The opportunity to make a meaningful difference in patients’ lives by easing their suffering and enhancing their quality of life is profoundly fulfilling. ... Editor's Note: Excellent descriptions of palliative care.

Make training more effective with microlearning and AI Training Industry; by David Resendes; 8/20/25 When people think of microlearning, it’s often viewed as a tool for reinforcement of longer form training, something used after the main event to help employees retain what they’ve learned. And while microlearning is incredibly effective in that role, it’s time to expand that view. ... More organizations are using microlearning as the primary delivery mechanism for critical learning content. When designed intentionally, it’s one of the most engaging, effective ways to introduce concepts, drive early understanding and encourage immediate application.

Simulation, flipped classroom, and reflective dialogue in socioemotional training in end-of-life care: Perspectives of nursing students Journal of Hospice & Palliative Nursing (HPNA); by María Lanza, Rebeca Abajas, Mar Aparicio Aparicio, Ángeles Melero, Carmen Ortego; 8/1/25The implementation of active methodologies in end-of-life education can play a crucial role in stimulating participatory learning and facilitating the acquisition of socioemotional competencies. ... From the students’ perspective, simulation, reflective dialogue, and flipped classroom enhance the conceptual learning process and facilitate students’ socioemotional preparation to face this complex and challenging professional situation. Editor's Note: Today’s tech-savvy nursing students show that simulation, reflective dialogue, and flipped classrooms build the person-centered qualities hospice and palliative care need. Use these methods—inside and outside the classroom—to improve patient/family care, teamwork, and self-care. For more information: 

Implementation of the Pressure Injury Prevention Care Bundle at a home based hospice program: A quality improvement project The Texas Medical Center (TMC) Library Health Sciences Resource Center; by Adaeze U. Amechi-fannin; 8/11/25 Pressure injuries remain a common and serious problem in hospice care, especially among patients who are immobile or confined to bed. Although effective prevention methods are known, inconsistent use of these methods, limited caregiver training, and poor documentation have continued to prevent success in many hospice settings. These wounds cause pain, increase infection risk, and reduce quality of life, making prevention especially important in end-of-life care. ... This project demonstrates that combining structured training, evidence-based care steps, and attention to individual patient needs can successfully reduce pressure injuries in home hospice environments.

Carter, Bera introduce bill to strengthen palliative and hospice care workforce United States Representative Buddy Carter, Washington, DC; Press Release; 7/17/25Reps. Earl L. “Buddy” Carter (R-GA) and Ami Bera, M.D. (D-CA) today introduced the Palliative Care and Hospice Education and Training Act (PCHETA), bipartisan legislation to invest in training, education, and research for the palliative care and hospice workforce, allowing more practitioners to enter these in-demand fields. ... "As a pharmacist, I understand the toll burnout takes on the health care industry, and I am committed to bolstering the workforce so nurses, doctors, and all health care workers can continue to pursue their passion for helping others,” said Rep. Carter. "As a doctor, I know how important it is to provide patients with comfort, clarity, and support when they’re facing serious illness,” said Rep. Bera. “The Palliative Care and Hospice Education and Training Act is a smart, bipartisan step to ensure more health care professionals are trained to deliver this kind of care."Editor's Note: Bravo to this pharmacist and physician bipartisan team for introducing this bill. Go to the article and scroll down to this press release's long list of "Supporting Organizations."

Nursing home is pressuring my mother-in-law to enter hospiceAging Care - Caregiver Forum - End of Life - Questions; question posed by "concerned8"; 6/12/25 I am her Health Care Surrogate but as they won't declare her incompetent it has not come into effect. I believe the home's intent is to prevent me from making the decision regarding hospice and instead to pressure her to enter it in various ways. ... I am not anti-hospice and expect her to enter it in the near future, but want that to be my decision, not the home's (even if it's portrayed as hers).  ... [An answer from another reader" Our family has only had bad experiences with three different hospice companies. Contrary to what most people believe, many patients are placed on hospice for free equipment and free services. I was told this by more than one hospice worker.Editor's Note: This post raises numerous troubling perceptions, with descriptions of poor hospice experiences. 

Four Seasons offers virtual dementia training Four Seasons, Flat Rock, NC; Press Release; 6/10/25 Four Seasons is excited to now offer Virtual Dementia Training to the community! The Virtual Dementia Tour (VDT) is a patented, ground-breaking, and evidence-based method of building a greater understanding of dementia. This training will be provided free for community groups or faith-based communities. There is a cost for external healthcare staff training. Learn more or schedule a training by contacting Mary Jo Powers (Four Seasons Director of Home Care) or Jenny Martin (Four Seasons Home Care Recruitment & Training Coordinator) at 828.696.0946 or HomeCareVM@FourSeasonsCFL.org. ... “Virtual Dementia Training helps caregivers better understand what their patients’ and loved ones’ lives are like. The training helps foster empathy and patience to ensure the best care and quality of life for those living with dementia. We are honored to bring this impactful training to our communities,” says Dr. Ruth Thomson, DO, MBA, HMDC, FAAHPM, FACOI, Four Seasons Chief Medical Officer.

Terminally ill woman, 35, cancels plans - best friend’s reaction backed Miami Herald, Miami, FL; by Lydia Patrick, Newsweek Life; 6/5/25 A woman has sparked an outpouring of support online after admitting she felt relieved when her terminally ill best friend canceled their remaining plans. The anonymous Reddit user, ... shared her emotional experience ... where her confession received over 8,000 upvotes and hundreds of comments. She explained that her best friend, Sarah, 35, had been diagnosed with an aggressive form of pancreatic cancer and her condition rapidly worsened. ... In an effort to make the most of her time, Sarah created an ambitious bucket list, which included a trip to the coast, a party, and a final hike to her favorite mountain. However, after halting treatment, she transitioned into hospice care and most of the planned activities were either canceled or significantly scaled back. ... [Serving as primary caregiver, she wrote,] "And I'm relieved. I'm utterly, profoundly ashamed to admit it, but I'm exhausted. Mentally, emotionally, financially. ..." ... Dr. Terri Daniel, a grief counselor and hospice chaplain at Forest Park Hospice, told Newsweek the Redditor's experience is not uncommon and far from selfish.

Experts discuss what hospice and palliative care are and how they can help ideastream public media; by Leigh Barr; 5/21/25Contemplating a life-limiting or life-changing illness or even death can be difficult topics for Americans.  Last year, USA Today conducted a survey which found about 30% of Americans surveyed found it difficult to talk about or even contemplate their own mortality. When it comes to managing serious illness or the final phase of life, surveys show that a majority of Americans say they have at least heard of hospice or palliative care but most admit they may not know a lot about either topic. We're going to talk about both to begin Wednesdays “Sound of Ideas” and try to dispel some of the myths that may surround hospice and palliative care. 

What caregivers should know about end-of-life rallies  AARP; by Jamie Ducharme; 5/19/25People with advanced illnesses sometimes experience unpredictable bursts of energy or clarity. Here’s how caregivers should handle these episodes. Roughly a decade after her mother was diagnosed with Alzheimer’s disease, Liz Donnarumma got her back — but only for an instant. It happened one evening in 2021, more than a year after Donnarumma first realized her mother, Theresa, didn’t recognize her. Theresa took Donnarumma’s face in her hands, called her by her nickname and thanked her. “When she put her hands on my face and I looked into her eyes, she was totally there. It was my mother,” Donnarumma says. “It was like a second, just one second, and it was gone.” Donnarumma’s mother had an episode of “paradoxical lucidity” — that is, an unexpected burst of mental clarity, despite her advanced condition. While these moments are as unexplained as they are unexpected, experts say they are more common than many people realize. ...