Literature Review

WVU nursing faculty aim to enhance rural home care for chronically ill through NIH award WVU Today - West Virginia University, Morgantown, WC; Press Release; 2/26/25 Three West Virginia University nursing faculty know firsthand the difficulties faced by family caregivers and their chronically ill loved ones. With a $2.7 million award from the National Institutes of Health’s National Institute of Nursing Research that is one of the largest ever for the WVU School of Nursing, the faculty researchers aim to support these families while increasing access to care in the rural reaches of the Mountain State by testing an integrated, nurse-led intervention for family home care management of end-stage heart failure and palliative care. ... Through their lived experiences, as well as their previous studies using nursing science to develop and test nurse-led interventions, the three said they hope to improve family caregivers’ and their loved ones’ overall health and well-being, including reducing depression and anxiety, and monitoring and managing end-of-life symptoms.

These Portland-area hospice patients need goods. Do you know how to knit or sew? Portland Tribune, West Linn, OR; by Hannah Seibold; 2/26/25 Dust off those sewing machines or grab a knitting needle because Positive Charge! PDX is inviting Portland-area folks to help those in hospice. The Stitches for Hospice project calls on Portland metro-area crafters — from beginner to expert — to sew or knit adult clothing protectors (bibs) and catheter bag covers for terminally ill neighbors and folks being served by hospice programs. “As a retired hospice social worker, I’ve seen firsthand over many years how fragile dignity can be in the final months and weeks of a person’s life. I wanted to do something that would enhance that dignity and brought the idea to Positive Charge! PDX. With a history of amplifying kindness with ‘crafting for causes’ projects—they ran with it,” said Maggie Alberton, a donor to the program.

National Vietnam War Veterans Day, March 29, 2025U.S. Department of Veterans Affairs; by Crystal Peruski; 2/18/25 The Vietnam War Veterans Recognition Act of 2017 designates March 29 as National Vietnam War Veterans Day. The United States of America Vietnam War Commemoration honors all Veterans who served on active duty in the U.S. Armed Forces at any time from November 1, 1955, to May 15, 1975, regardless of location. To learn more about the Vietnam War Commemoration, visit 50th Anniversary of the Vietnam War Commemoration | Vietnam War Commemoration. Editor's note: Mark your calendars. Engage your volunteers who serve veterans. How might this intersect with your intergenerational employees and volunteers? Note that 2025 marks the 50th anniversary of the end of the war. For support specific to hospice and grief care:

[UK Hospice Fundraiser] Over 5,000 Christmas trees recycled to help local parks Manchester News, United Kingdom; by Manchester City Council; 2/26/25... In partnership with local charity Just Helping, who fundraise for Francis House hospice, the We Love Manchester charity and St Ann’s hospice, we raised £117, 675 for local hospices and charities as well as saved a an estimated 84, 944kg on CO2 emissions.  Editor's note: This recycling Christmas trees fundraiser is a popular community engagement fundraiser for many hospices. The work is done mainly by volunteers. Articles we posted this past season include the following:

Patients without family or health care proxies face overtreatment or limbo in hospitals WHYY - PBS; by Maiken Scott; 2/24/25 A program matches unrepresented patients with volunteers who can make care decisions for them during health care crises. ... [Intensive care physician David] Oxman says unrepresented patients are a small, but growing group. Some have outlived their family members, or are estranged from them. Maybe they’ve moved a lot, sometimes substance use or homelessness plays a role. The situation is especially complicated with patients who have dementia, or who can’t communicate their wishes for other reasons. ... Most states have provisions where medical guardians and medical decision makers can be appointed by a court, but that takes a long time. In the meantime, a search for relatives begins. David Sontag, director of ethics for Beth Israel Lahey Health in Massachusetts, ... created a matching program where health care professionals volunteer to represent patients, not within their own hospital systems because that could cross ethical boundaries, but at other hospitals. “This is an opportunity for us to help some of the most vulnerable members of our communities, those who have nobody to speak for them when they can no longer speak for themselves. And that allows us to respect their autonomy throughout their lives,” he said.

Hospice of the Chesapeake Advanced Cardiac Care Program seeks to reduce hospital visits Southern Maryland News Net; Press Release; 2/20/25Hospice of the Chesapeake, in collaboration with the American Heart Association (AHA) and the National Partnership for Healthcare and Hospice Innovation (NPHI) announces the Advanced Cardiac Care Program to address one of the nation’s largest killers of Americans – heart disease. Each year, more Americans die from heart disease than any other condition, including cancer. Heart disease is also a leading cause of hospitalization: patients with congestive heart failure alone account for more than one million inpatient admissions annually. By offering heart disease patients the right educational resources, we empower them to take control of their health,” Hospice of the Chesapeake Vice President of Medical Affairs & Hospice Medical Director Dr. Sonja Richmond said. “The resources available through the Advanced Cardiac Care Program can help patients and caregivers better manage their condition, reducing the likelihood of hospital visits and improving their quality of life.” ... Carole Fisher, President of NPHI [said,] “Far too many die alone in a hospital or nursing facility, when instead our hospice teams could care for them wherever they reside and they could enjoy a far higher quality of life surrounded by loved ones.”Editor's note: Links to Hospice of the Chesapeake; AHA'sHospice Care" webpage; NPHI's Advanced Cardiac Care.rogram.   

Andy Isaac, beloved Detroit sports fan and internet star, says he's entering hospice care Detroit Free Press; by Jared Ramsey; 2/20/25 One of the more prominent faces in the Detroit sports fan online community announced Tuesday he's leaving social media due to his ongoing battle with cancer. Andy Isaac, known from his X (formerly Twitter) account @WorldofIsaac, said he's chosen to enter hospice care. He's been battling Hodgkin's lymphoma since he was first diagnosed in 2006. Isaac, with more than 89,000 followers, became a beloved figure as he cheered on the Detroit Lions, Tigers, Red Wings, and Pistons with his followers and cracked jokes at other teams' expense, namely the Chicago Bears. ... "I don't know when my first tweet or post was but I can tell you, sadly, this is probably one of my last. Having cancer since 2006 has finally taken its toll on me, it has stripped me of my quality of life. I have decided on hospice care." ... He signed off by saying, "Be kind to each other. I love you all. Truly, I do." 

Heritage Hospice’s “Scatter Hearts” project honors veterans and patients The Advocate-Messenger, Danville, KY; by Josely Labarrere; 2/19/25 Heritage Hospice volunteers are spreading love and appreciation this Valentine’s season with the “Scatter Hearts” project, a heartfelt initiative designed to bring joy to hospice patients, particularly veterans. ... “The volunteers thought it would be a good time to honor our veterans, acknowledge the sacrifices they have made for us, and bring a smile to our hospice patients,” said Wendy Hellard, Director of Volunteer Services at Heritage Hospice. ... The wooden hearts, designed to be displayed on doors, were individually painted by Heritage Hospice volunteers and community members in bright and cheerful colors. Special hearts featuring patriotic red, white, and blue designs were created for veteran patients."

Juniper House on National Historic Register K103, Portland, OR; 2/18/25 The Juniper House is among Oregon's latest entries in the National Register of Historic Places ... for its statewide significance as Oregon's first end-of-life care home dedicated exclusively to residents with HIV/AIDS [May 1987] and for its substantial impact on statewide healthcare and LGBTQ+ history. ... In addition to caring for residents, the work of Juniper House included advocacy and educational efforts that were crucial in shaping public opinion and responses to HIV/AIDS.

Harbor Foundation expands mission with support for Southeast Texas students The Examiner, Beaumont, TX; by Barbara Davis; 2/18/25 Hope from heartache: For nearly two decades, the Harbor Foundation has been operating as a nonprofit dedicated to enhancing the quality of life for individuals in hospice care, as well as the patients’ families. ... In 2024, the foundation’s efforts grew to include educational support, awarding $20,000 in scholarships to area seniors. As a result of donations and fundraising success, the Harbor Foundation reported that it will award 25 $1,000 scholarships to Southeast Texas seniors this year. This one-time $1,000 award is granted to graduating high school seniors who have lost a parent. Recognizing the financial challenges that accompany such a loss, the foundation aims to alleviate some of the burdens associated with pursuing higher education. ...Editor's note: These significant "one-time" awards for high school seniors who have lost a parent can provide life-changing opportunities of support at a most critical time for these teens. Consider how your hospice--or another nonprofit--might replicate this innovative, meaningful program.

Still Waters Hospice hosts "Sweet Treats Celebration" for Valentine’s Day ABC KLAX 31, Alexandria, LA; by Sarah Drell; 2/17/25Still Waters Hospice in Alexandria, Louisiana, hosted a "Sweet Treats Celebration" on Valentine’s Day, bringing joy to patients and their families. ... Sarah Zito, Owner, Nurse Practitioner, and Administrator of Still Waters explained why they hosted this lovely event. “We wanted to put this on today because not everyone's Valentine's Day looks the same. And we have a lot of people in our community that are celebrating their first Valentine's Day without their loved ones. And we have a roomful of people and that situation. And so we wanted to take this opportunity and show them that they are still love and we value them and we grieve with them.” ... The "Sweet Treats Celebration" was more than just an event; it served as a testament to the hospice’s dedication to holistic care. 

 St. Francis Hospice hosts Sweetheart Lunch for those grieving lost partners Fox 23 News, Tulsa, OK; 2/14/25 St. Francis Hospice in partnership with Moore Fitzgerald Funeral Service hosted their Sweetheart Lunch to help those grieving a lost partner or spouse on Valentine's Day. "We're having a Valentine's Day party—we call it Sweetheart Lunch—for people that have lost a loved one during the past year, most often a spouse," explained Joseph Moore, the owner of Moore Fitzgerald Funeral Service. "Valentine's Day is such a difficult time for people that have recently lost a spouse. There are so many memories associated with Valentine's Day and so forth. We just want to provide a place where they'll feel loved and not alone today." Charlie Dodd, a bereavement coordinator with St. Francis Hospice, said events like this give people a sense of community during a difficult time.

Death Matters: The gift of presence: Tips for visiting someone who is dying Squim Gazette, Squim, WA; by Jeanette Stehr-Green, Volunteer Hospice of Clallam County; 2/12/25 We sometimes avoid visiting friends or family members who are terminally ill. We make lots of excuses. We don’t know what to say. We don’t know how to act. We don’t want to be a bother. The hard truth is that dying, the final stage of life, can be a lonely experience without the presence of family and friends. A visit during this time can bring comfort to the dying person and their family. It can also provide an opportunity to share feelings, reminisce, and say goodbye. Visiting a dying person seems difficult because most of us lack experience. It only takes a little courage and a few ideas to create a meaningful moment. ... Editor's note: These excellent guidelines empower hospice patients' families and friends--and protect patients' vulnerable energies and emotions--in multiple settings across the trajectory of dying. How might you adapt these for your own patient/caregiver support and community outreach?