Literature Review

Jimmy Carter delivered a positive message about hospice care Atlanta Journal and Constitution; by Shelia Poole and Ariel Hart; 1/1/25Hospice advocates said the end-of-life journey of former President Jimmy Carter was a “powerful” message to terminally ill patients and their families about the benefits of hospice care. Carter, the nation’s 39th president, died Sunday at his home in Plains after being in home hospice care for 22 months. “It’s pretty remarkable that he got to celebrate his 100th birthday, he got to vote and, as I understand, it was important to him that he was able to do these things with the support of hospice,” said Dr. Vicki Jackson, president of the board of the American Academy of Hospice and Palliative Medicine. “It was powerful.”A day after Carter’s death was announced, Jackson said it was helpful to have someone as notable as a former president to be open about his hospice care during the later stages of his life. During his almost two years of home hospice care, Carter helped raise awareness about the service, which focuses on comfort of the patient and support for both the patient and the family.Notable mentions: Dr. Vicki Jackson, president of the board of the American Academy of Hospice and Palliative Medicine; Jacqueline Lopez-Devine, Gentiva’s chief clinical officer; Megan Friedman, Gentiva spokesperson; Rev. Tony Lowden, Carter’s personal pastor; Amy Tucci, president of the Hospice Foundation of America; Dr. Tammie E. Quest, director for Emory University’s Palliative Care Center and a professor at Emory University’s School of Medicine; Dr. Folashade Omole, the chair of the Department of Family Medicine at the Morehouse School of Medicine; Ben Marcantonio, the National Alliance for Care at Home.

The HAP Foundation partners with Communities in Schools of ChicagoHAP Foundation press release; 12/16/24The HAP Foundation has partnered with Communities in Schools of Chicago to fulfill the need for grief workshops for students in Chicago Public Schools. Through HAP’s Missing Pieces program, we have provided support for nearly 10 students and families that have experienced a death of a sibling or friend through this partnership. Missing Pieces provides grief navigation support for families who experience the loss of a child. This year, over 350 families have been served.

'We do more than just pray': Chaplains take active role at Milwaukee VA and in community U.S. Government Veterans Administration; by David Walter; 12/23/24 If you think hospital chaplains just pray at bedsides, think again. At the Milwaukee VA Medical Center, chaplains are much more than comfort providers. They are fully integrated into the everyday workings of the hospital, serving on committees, participating in numerous events and consulting with other subject matter experts. Their work also goes beyond the walls of the hospital, interfacing with the community to help better reach those Veterans who may not venture into the hospital. And while they continue to meet one-on-one with patients on a daily basis, they also extend their services to hospital staff, providing solace and support for those dealing with the emotional toll that caregiving can sometimes take on health care professionals. “There’s been a really big shift here,” said Chaplain Robert Allen, chief of the Milwaukee VA’s Chaplain Services, adding that for too long chaplains were “put in this corner, thinking that we only just pray.” Editor's note: To strengthen your understanding of chaplaincy roles, standards, training, and certification, examine the national Association of Professional Chaplains.

The Denver Hospice delivers holiday meals to 347 Coloradans; initiative ensured Coloradans facing hardship can celebrate with a holiday meal GlobeNewswire, Denver, CO; by The Denver Hospice; 12/20/24 The Denver Hospice, in collaboration with dedicated staff, provided 76 meals to patients and their families facing hardship during the holiday season. Over 347 people will enjoy a festive dinner as a result of the nonprofit’s healthcare organization’s holiday initiative. “At this time of the year, it can be especially hard for people to admit that they need help,” stated Susan Finke, director of clinical services at The Denver Hospice. “I want to thank everyone who helped deliver dinners today as we are caring for more people than just our patients. Hundreds will now have the opportunity to gather next week and enjoy being with their loved ones.” ... This is an annual event held by The Denver Hospice in support of their hospice and palliative care patients. Working in tandem with social workers, clinical and administrative staff, the nonprofit identifies and supports vulnerable patients across the Denver metropolitan area. The holiday season can be an especially difficult time of year for those facing life-limiting illnesses. 

An innovative take on transforming hospice spaces with Buildner for better well-being Arch Daily; 12/19/24 Buildner has announced the results of its Hospice - Home for the Terminally Ill competition, the third in a series of architectural idea challenges focused on creating compassionate spaces for individuals facing terminal illnesses. This competition encouraged architects to move beyond traditional medical models, designing environments that prioritize comfort, dignity, and community. Participants were tasked with envisioning a facility for up to 15 visitors and five staff members, incorporating essential spaces such as a library-equipped common area, gathering room, chapel, kitchen, dining area, nurse's station, and therapy room for psychological support. Designs were grounded in theoretical sites within participants' home countries, allowing for the integration of local cultural, social, and environmental contexts. The competition highlighted how innovative, thoughtful design can provide solace and strength during life's most difficult moments. ...

Mom, 26, dies days after choosing to enter hospice following 13 years of living with kidney failure (exclusive) People; by Zoey Lyttle; 12/18/24 Though she left behind a 4-year-old daughter, Sara Long told PEOPLE her feelings about death were "more certain" than they'd ever been when she started end-of-life care. “I think a lot of people spend a lot of time thinking about what it means to have a good life. And don't get me wrong, I did that too,” Sara Long, 26, told PEOPLE over the phone just shy of a week before she died at the hospice facility into which she had just recently moved. ... Long said she’s spent “the last two or three years” deliberating about her idea of a “good death.” She decided that it wasn’t just about how she would experience these last expected few weeks of her life in hospice. What Long really wanted was to be surrounded by her most precious loved ones — including her husband Justin, 32, and their 4-year-old daughter Riley Jean — but she didn't want them to watch her die while intubated and attached to hospital equipment as she was half of her life. “I just feel like if I pushed it any harder, then I was going to get to a place where it was going to be outside of my control,” said the mom of one. “I was going to wind up dying in a hospital alone, afraid, full of tubes, scared. My daughter wouldn't be able to be part of the process, and it would just be really lonely, and that's really not the goal.” Detached from the familiar yet foreign medical equipment, Long told PEOPLE she was freed from fear knowing she would only survive another couple of weeks in hospice. (She died with a week less than anticipated.) Editor's note: This another follow-up post to this profound young woman's story that we post on 

Palliative medicine for the community paramedic Journal of Emergency Medical Services (JEMS) - The Conscience of EMS; by Maurice Paquette; 12/17/24 The role of the paramedic is evolving. ... EMS has become a catch-all, a gateway into a somewhat—if not totally—fractured healthcare system. ... The landscape of healthcare is shifting as well. The pandemic, coupled with the realization of self-care, well-being, and mental health struggles has caused drastic reduction in the number of healthcare workers, and the amount of experience in skills that those healthcare workers carried with them. ... Over the past many years, we’ve seen a push for the idea of the community paramedic, as well as mobile healthcare. The establishment of a community paramedic program, especially in rural areas of the United States, would provide non-emergent care, under expanded scope and under the direction of a physician in the patient’s home.  According to a literature review in the International Journal of Paramedicine, the most common community paramedic program goals are to “aid patients in chronic disease management, reduce emergency department visits, reduce hospital admissions/readmissions, and reduce Healthcare costs.” Editor's note: Pair this with the article we posted yesterday, Characteristics of patients enrolled in hospice presenting to the emergency department.

Glendale woman and Lakewood man found guilty of $3.2 million hospice fraud scheme involving kickbacks for patient referrals United States Attorney's Office - Central District of California, Los Angeles, CA; Press Release; 12/12/24A Glendale woman and a Lakewood man have been found guilty by a jury of paying and receiving hundreds of thousands of dollars in illegal kickbacks for patient referrals that resulted in the submission of approximately $3.2 million in fraudulent claims to Medicare for purported hospice care, the Justice Department announced today. Nita Palma, 75, of Glendale, was found guilty late Wednesday of 12 counts of health care fraud and 16 counts of paying illegal kickbacks for health care referrals. Percy Abrams, 74, of Lakewood, also was found guilty late Wednesday of six counts of receiving illegal kickbacks for health care referrals. ... Consistent with instructions provided by Palma, Abrams falsely represented to prospective patients that they did not need to be dying to be on hospice. After collecting personal identifying information from prospective patients that were not dying, Abrams sent the information to Nita Palma so she could bill Medicare for purported hospice care.Editor's note: Caution. How many hospices have misused information about President Jimmy Carter's long Length of Stay (LOS) to purport similar messaging that "hospice is not about dying"? Too often, articles we would review used "not about dying" language and never mentioned anything about ongoing clinical review for hospice appropriateness, 6-month Face to Face visits, et al. 

Alliance Insurance collecting snacks for hospice homes The Mount Airy News; 12/11/24 Alliance Insurance Services is collecting snacks for Mountain Valley’s in-patient hospice homes located in Dobson and Yadkinville until Monday, Dec. 23. “I know how valuable it is to our community to have a hospice home, and we want these families to have everything they need while staying there with a loved one,” said Christopher Cook, owner of Alliance Insurance Services. “We need to give back to our community, especially during the holiday season, and this is a good way to do that.” “Both hospice homes have special rooms where family members of patients can take a break, or even fix a meal for themselves,” said Melissa Hiatt, executive director of United Fund of Surry. “Stocking their pantry will mean so much to each family.” [List of items needed.]Editor's note: Hospice leaders, you still have time to replicate this, especially in time for New Year's Eve and New Year's Day. Remember to include kosher items for Jewish patients and families, as Hanukkah 2024 starts on December 25 and ends on January 2.

Donations helping Solvay Hospice House ABC News WDIO, Duluth, MN; by WDIO; 12/11/24 One of the donations you may have seen on pin pads at Super One [Food] locations within the last few weeks, was in support of the National Hospice Month Campaign. On Wednesday, December 11, 2024, Miners Incorporated presented a check to the Solvay Hospice House. The check was for a donation of $43,705.91 collected from the various Super One locations across the state. What started as purchasing one dollar paper houses has turned it into a donation drive driven on the pin pads at checkout. And with that small change in the last few years, donations have doubled to support the cause. This donation will help continue their mission to provide compassionate care provided at Solvay Hospice House for patients and their families. Susie Marshall, Digital Media Manager at Minors Incorporated, expressed their gratitude to continue their tradition and the efforts from consumers. 

Fabric artist's new exhibition in Historic Overtown sheds light on 41 years of wrongful incarcerationThe Miami Times; by Morgan C. Mullings; 12/10/24Whether volunteering in hospice, designing the prison magazine or leading the drama team, Gary Tyler lived an eventful life in prison. After 41 years of living in a cell he didn’t deserve to occupy, he found new life as an artist.  “Grief Not Guilty: Reclaiming My Time” features Tyler’s original quilts, photos of his mother and floral wreaths created by Quantavia Love. The exhibit speaks to the resilience of the human spirit, and the importance of recognizing the names and faces of those yet to be freed. It is on display now at the Black Police Precinct and Courthouse Museum in historic Overtown, a space dedicated to Black police officers of the pre-civil rights era and primed for discussions on the U.S. prison system. ...  After an angry anti-busing mob attacked him and other Black students in St. Charles Parish, Louisiana, he was destined to live and die in prison. ... That prison would be one of the most notorious in the U.S. Louisiana State Penitentiary. ... Also known as Angola, Angola Plantation, The Farm, or Alcatraz of the South, Louisiana State Penitentiary is the largest maximum security facility in the country. Tyler refused to do the manual labor required at this prison farm, calling it “slave work.” 

Killing of UnitedHealthcare CEO brings resentment of the health care system to the fore STAT Business, Boston, MA; by Bob Herman and Tara Bell; 12/6/24 The targeted killing of UnitedHealthcare CEO Brian Thompson has become a defining moment in the zeitgeist of American health care. The attack was a tragedy that adds to the country’s grim tally of gun deaths. But instead of eliciting sympathy, it opened the floodgates for an outpouring of rage, captured across social media and online forums, over the health care system — one that charges people the highest prices in the world, erects financial and bureaucratic barriers to getting care, and has plunged millions of people into debt. Social media posts have ranged from mournful to apathetic to joyful, including morbid celebrations of Thompson’s death. That deluge has forced people across the country to grapple with two heavy subjects at once: the callousness of a slaying, and an undercurrent of deep-seated anger at a health care industry that makes a lot of money by exploiting Americans. ... [Click on the title's link to continue reading.]