Literature Review
All posts tagged with “Research News | Journal Article.”
Hospice use by cause of death: A cohort study using Utah population database
05/01/25 at 03:00 AMHospice use by cause of death: A cohort study using Utah population database American Journal of Hospice and Palliative Medicine - Sage Journals; by Rebecca L. Utz, PhD, Michael Hollingshaus, PhD, Attrayee Bandyopadhyay, MS, Kathie Supiano, PhD, Margaret Clayton, PhD, Katherine A. Ornstein, PhD, Djin Tay, PhD, Eli Iacob, Ken Smith, PhD, and Caroline Stephens, PhD; first published online 4/29/25 Illnesses such as cancer often follow a predictable trajectory of decline, while others, such as Alzheimer’s Disease and Related Dementias (ADRD) and Chronic Obstructive Pulmonary Disease (COPD), follow a more dwindling and protracted decline. ... This study assesses whether hospice use differs by the underlying cause of death and whether current hospice eligibility and practices provide optimal EOL to all causes of death. Major Findings: Non-cancer decedents were more likely to have sub-optimal patterns of hospice care, including minimal use, lasting less than a week, and extended use, lasting more than 6 months. Stroke decedents were the most likely to have minimal-use patterns of hospice, whereas dementia and COPD decedents were most likely to have extended use. Conclusion: New models of hospice-like EOL care that can accommodate both short-term and long-term palliative care needs may help meet the diverse needs of patients and families facing different EOL trajectories associated with common causes of death.Editor's note: Compare this data with your own data of disease-related Length of Stay (LOS), live discharges, disease-related accuity needs, and more. How can we improve disease-related patient care, across the different trajectories of palliative/hospice care?
Experiences of hospice staff beyond the frontlines during COVID-19: A qualitative secondary analysis study
04/30/25 at 03:00 AMExperiences of hospice staff beyond the frontlines during COVID-19: A qualitative secondary analysis study Journal of Palliative Care and Social Practice; by Thanga Harini Sundaramoorthy, John I MacArtney, Abi Eccles; 4/12/25Three main themes were identified: (1) Blurred margins: Participants discussed facing difficulty separating work and home life and taking stresses and thoughts about work home. (2) Isolation, loneliness and social interactions ... (3) Disruption to family and personal commitments: Some staff felt unable to see or support their parents, partners and children during the pandemic subsequently impacting their psychological and emotional well-being. Conclusion: Hospice staff compromised aspects of their personal life and family responsibilities during the pandemic to carry out their role at work. Workplaces and organisations should aim to support hospice staff more broadly to help with managing work-related pressures and balancing personal commitments in future emergency periods.Editor's note: Use this evidence-based research with your Emergency Disaster Preparedness Plans. Click here for the CMS.gov Emergency Preparedness Rule. Click here for Wisconsin's CMS Emergency Preparedness Rule Toolkit: Hospices.
Assisted dying and the slippery slope argument—no empirical evidence
04/30/25 at 03:00 AMAssisted dying and the slippery slope argument—no empirical evidence
Kidney transplant fast track and likelihood of waitlisting and transplant-A nonrandomized clinical trial
04/26/25 at 03:40 AMKidney transplant fast track and likelihood of waitlisting and transplant-A nonrandomized clinical trialJAMA Internal Medicine; Larissa Myaskovsky, PhD; Yuridia Leyva, MS; Chethan Puttarajappa, MD; Arjun Kalaria, MD; Yue-Harn Ng, MD; Miriam Vélez-Bermúdez, PhD; Yiliang Zhu, PhD; Cindy Bryce, PhD; Emilee Croswell, BA; Hannah Wesselman, PhD; Kellee Kendall, MPH; Chung-Chou Chang, PhD; L. Ebony Boulware, MD; Amit Tevar, MD; Mary Amanda Dew, PhD; 3/25Although it is a seemingly intuitive solution to enabling more patients to complete the evaluation process and be added to the waitlist, to our knowledge, few transplant centers use a health care system–facilitated approach like KTFT [Kidney Transplant Fast Track]. In this nonrandomized clinical trial of 1,118 patients with end-stage kidney disease (ESKD) who underwent KTFT and a historical control group of 1,152 patients with ESKD undergoing evaluation for kidney transplant, the KTFT group had a higher likelihood of waitlisting and transplant than the historical control group. Unlike the historical control group, the KTFT group had no significant differences in kidney transplant by race or ethnicity.
[Brazil] Music therapy in modulating pain in palliative care patients: A systematic review and meta-analysis
04/26/25 at 03:00 AM[Brazil] Music therapy in modulating pain in palliative care patients: A systematic review and meta-analysisBritish Journal of Music Therapy; Suellen Fernanda Pinheiro Hammuod, Fernada Gonzalez Santos, Lidiane da Costa Fonseca, Elaine Kakuta, Renata Verão Brito, Karolayne Silva Souza, Eduardo Henrique Loreti; 3/25 Music therapy is an intervention that uses music for therapeutic purposes, helping to preserve mental, physical, and emotional health. Its use in the care of terminally ill patients can assist in managing pain, fatigue, quality of life (QoL), anxiety, and depression. This study aimed to analyze the effects of music therapy on pain in individuals receiving palliative care. Music therapy showed effectiveness in improving pain in patients receiving palliative care ... The effectiveness of music therapy on QoL remains debatable.
Prevention of acute hospital transfers for long-term care residents at the end of life
04/24/25 at 02:00 AMPrevention of acute hospital transfers for long-term care residents at the end of life American Journal of Hospice and Palliative Medicine (AJHPM); by Kirsten Lanpher, DMS, MSPA, PA-C and Kirsten Brondstater, DMS, MSPAS, PA-C; 3/24/25 Findings: Long-term care residents are a vulnerable population with advanced comorbidities who often require high acuity care and are subject to preventable transfers to the hospital at the EOL. These disruptions in EOL care cause harm and complications, negatively impacting quality of care. The consequences of these events can be mitigated with early advance care planning to include documentation of EOL care goals, onsite medical clinicians to make critical decisions and provide care within LTC facilities, and adequate staffing with proper palliative and hospice care training. Conclusion: Immediate action is needed to advocate for this high risk population and implement interventions to prevent hospital transfers at the EOL, therefore improving quality of care and positively influencing LTC residents’ EOL experience.
Do automated reminders decrease no-show visits in an outpatient palliative medicine clinic?
04/23/25 at 03:00 AMDo automated reminders decrease no-show visits in an outpatient palliative medicine clinic? Sage Journals - American Journal of Hospice and Palliative Medicine; by Ruth L. Lagman, MD, MPH, MBA, Renato V. Samala, MD, MHPE, Ahed Makhoul, MD, Kyle Neale, DO, Chirag Patel, MD, Elizabeth Weinstein, MD, Wei Wei, MS, and Xiaoying Chen, MS; 3/23/25 Individuals who do not show up for medical appointments can lead to unfavorable outcomes for both patients and health systems. Automated methods are available to confirm appointments in addition to patient service coordinator (PSC) telephone calls. This study aims to determine the no-show rates for automated methods of confirmation, in-person and virtual visits, and patients living in underserved areas.Conclusion: PSC telephone calls, individuals living within COZ and virtual visits had higher no-show rates.
Belief in an afterlife is increasing in the United States: Even among the non-religious
04/22/25 at 03:00 AMBelief in an afterlife is increasing in the United States: Even among the non-religious The Association of Religion Data Archives (The ARDA); by Ryan Burge; 4/17/25 This post has been unlocked through a generous grant from the Lilly Endowment for the Association of Religion Data Archives (ARDA). The graphs you see here use data that is publicly available for download and analysis through link(s) provided in the text below. ... I wanted to dig a bit deeper on the variations in those belief metrics today, with a question that I haven’t really probed a whole lot. The General Social Survey, which is available on the Association of Religion Data Archives website, contains a really straightforward question, “Do you believe there is a life after death?” And it has an even simpler set of response options - yes or no. It’s been asked with regularity since 1973, so we have nearly five decades of data on this one specific question. ... Even today, the share of Americans who believe in life after death is 82%. When people ask me, “Is the United States a religious country?” This is the stat that I’m going to trot out.
Advance care planning in the inpatient setting: The role of the hospitalist
04/19/25 at 03:40 AMAdvance care planning in the inpatient setting: The role of the hospitalistAmerican Journal of Hospice and Palliative Medicine; Nikhil Sood, MD; Rohini Garg, MBBS; Anthony D. Slonim, MD, DrPH, FCCM; 3/25Advance care planning (ACP) is critical to patient-centered health care, particularly in hospital settings where acute and end-of-life decisions often occur. As frontline providers, hospitalists are uniquely positioned to initiate and guide ACP discussions. This article explores the role of hospitalists in ACP, identifies barriers to its implementation, and highlights strategies to overcome these challenges. Key barriers include time constraints, lack of formal training, and uncertainty regarding the appropriate timing of discussions. To address these issues, hospitalists can benefit from structured communication training, integration of ACP prompts into electronic health records, and collaboration with multidisciplinary teams. While ACP has demonstrated benefits, including the alignment of care with patient preferences, reduced unnecessary interventions, and improved satisfaction for patients and families, challenges remain in ensuring consistent and culturally sensitive implementation.
TIEC, trauma capacity, and the moral priority of surrogate decision makers in futility disputes
04/19/25 at 03:35 AMTIEC, trauma capacity, and the moral priority of surrogate decision makers in futility disputesThe Journal of Clinical Ethics; Autumn Fiester; Spring 2025In the past 15 years, trauma-informed care (TIC) has evolved as a new paradigm in healthcare that recognizes the impact of past traumas on patients' and families' healthcare experience while seeking to avoid inducing new trauma during clinical care. A recent paper by Lanphier and Anani extends TIC principles to healthcare ethics consultation (HEC) in what they label "trauma-informed ethics consultation" (TIEC), which calls for the "addition of trauma informed awareness, training, and skill in clinical ethics consultation." While Lanphier and Anani claim that TIEC is "novel, but not radical" because it builds on the approach to HEC endorsed by the American Society for Bioethics and Humanities, I believe that TIEC has radical implications, particularly regarding ethical obligations to surrogate decision makers (SDMs). Given what I call the SDM's "trauma capacity," I argue that TIEC accords moral priority to SDMs over patients in certain types of end-of-life cases, particularly futility disputes, which is a radical departure from the conventional HEC approach to SDMs.
The physical side of grief: Physical symptoms in bereavement
04/19/25 at 03:30 AMThe physical side of grief: Physical symptoms in bereavementIllness, Crisis and Loss; Crystal L. Weeden, Nora P. Reilly; 3/25Both emotional and physiological responses to loss are normal reactions to bereavement. The aim of the study was to examine if the type of loss someone experienced was related to the magnitude of their expressed symptomology in a nonwidowed specific sample. Specifically, to determine if there is a difference in physical symptoms between participants who experienced grief due to an out-of-order loss (a death before the age of 55) versus those who experienced grief after a natural life progression loss (a death that occurs after the age of 80). Results confirmed that those who bereaved an out-of-order loss experienced significantly more symptomology, both emotional and physiological, than those who lost a loved one aged 55 or older. This study highlights the importance of identifying those at the highest risk for increased grief-related symptomology.
PEMF therapy: A non-invasive approach to enhance cancer treatment
04/19/25 at 03:25 AMPEMF therapy: A non-invasive approach to enhance cancer treatmentHope 4 Cancer Treatment Centers; by Antonio Jimenez, Subrata Chakravarty; 2/25The Earth’s magnetic field, a constant presence in our environment, has a subtle yet profound impact on human health. Operating at extremely low frequencies and low intensities, it is generated by electric currents in the Earth’s conductive iron-rich core. This magnetic field serves as a protective shield, deflecting solar wind—charged particles from the sun— that could devastate life on Earth. Beyond its protective role, It also helps regulate circadian rhythms and supports cellular function. Our cells exist within this dynamic electromagnetic environment, and by harnessing its properties, we can actively enhance cellular health, physiological balance, and overall well-being.Publisher's note: Hope 4 Cancer is a naturalistic / neuropathic healing center in Mexico exploring innovative cancer treatments. Additional articles readers might be interested in include Treating cancer with sound waves: An overview of sonodynamic therapy and Modulated TRPC1 expression predicts sensitivity of breast cancer to doxorubicin and magnetic field therapy: Segue towards a precision medicine approach.
Access to outpatient palliative care: Insights from Michigan
04/19/25 at 03:10 AMAccess to outpatient palliative care: Insights from MichiganAmerican Journal of Hospice & Palliative Care; by Andrew E Russell, Maria J Silveira; 4/25Outpatient palliative care provides supportive care to community-dwelling patients with serious illness who are not eligible or ready for hospice. Little is known about the services these clinics offer and the populations they serve. We conducted a cross-sectional study of outpatient palliative care clinics in Michigan to describe their services and identify gaps in care... There is limited access to outpatient palliative care in Michigan, especially in rural communities. Many clinics do not accept non-cancer or pediatric patients. Additionally, many clinics lack the full interdisciplinary team that is required to provide robust palliative care.
Pacemaker and defibrillator deactivation in competent hospice patients: an ethical consideration
04/19/25 at 03:05 AMPacemaker and defibrillator deactivation in competent hospice patients: an ethical considerationAmerican Journal of Hospice and Palliative Care; by Jennifer M Ballentine; 1/05In 2003, a Colorado hospice provider asked the DCBC for assistance in developing a policy on deactivation of pacemakers and defibrillators in competent hospice patients. The hospice had encountered concerns from some physicians and cardiac care clinicians that deactivating such devices treads the fine line between legitimate withdrawal of burdensome treatment and assisted death... This article summarizes contributions from the committee's discussion, as well as independent research undertaken by the author.Publisher's note: This older, yet still relevant and helpful, article recently came across my desk.
[Australia] Effectiveness of grief camps in supporting bereaved individuals: A systematic review
04/19/25 at 03:05 AM[Australia] Effectiveness of grief camps in supporting bereaved individuals: A systematic reviewOmega-Journal of Death and Dying; Jingyi Chi, Karolina Krysinska, Karl Andriessen; 3/25Experiencing the death of a loved one is a stressful and disruptive event that can have short-term and long-term detrimental effects on the grief, mental health, and social functioning of the bereaved individuals. Grief camps represent a relatively novel form of support. Narrative synthesis of the study findings indicated a positive impact of grief camps on the grief and psychosocial functioning of bereaved individuals, and participants’ feedback indicated that grief camps are an acceptable intervention. Further research in various locations and across different age groups may broaden our understanding of the effects of grief camps.
Concordance of 30-day mortality and in-hospital mortality or hospice discharge after sepsis
04/19/25 at 03:00 AMConcordance of 30-day mortality and in-hospital mortality or hospice discharge after sepsisJAMA Network; by Hallie C. Prescott, Megan Heath, Namita Jayaprakash, Raymund B. Dantes, Chanu Rhee, Patricia J. Posa, Scott A. Flanders; 4/9/25In this all-payer, multihospital cohort of patients with community-onset sepsis, the proportion of hospitalizations ending in death or hospice discharge was similar to 30-day mortality and substantially higher than in-hospital mortality alone. Concordance between this composite outcome and 30-day mortality was high and greater than in-hospital mortality alone at the encounter level. These data suggest that the composite outcome of in-hospital mortality or hospice discharge may be a useful measure for national benchmarking of sepsis outcomes. While not identical to 30-day mortality, this composite outcome is available in real time for all patients and appears to have minimal systematic bias from variable hospital discharge practices.Publisher's note: An interesting study that includes "hospital discharge to hospice" as an important variable for consideration.
Quality of nonprofit hospice affiliated with integrated healthcare systems
04/19/25 at 03:00 AMQuality of nonprofit hospice affiliated with integrated healthcare systemsJournal of Pain & Symptom Management; Gulmeena Khan, Emmanuelle Belanger, Joan Teno; 4/25Research shows hospice primary caregivers report better quality of care at Nonprofit (NP) than For-Profit (FP) hospices, but there is variation in quality across NP hospices. CAHPs hospice scores did not differ if a hospice was part of integrated healthcare system or not. Further research is needed on variation in quality in NP hospices.
[Netherlands] A care ethical perspective on family caregiver burden and support
04/19/25 at 03:00 AM[Netherlands] A care ethical perspective on family caregiver burden and supportNursing Ethics; Maaike Haan, Jelle van Gurp, Marianne Boenink, Gert Olthuis; 3/25Family care-when partners, relatives, or other proxies care for each other in case of illness, disability, or frailty-is increasingly considered an important pillar for the sustainability of care systems. Especially in a palliative care context, however, family care can be challenging. Witnessing caregivers' challenges may prompt compassionate nurses to undertake actions to reduce burden by adjusting tasks or activities. The question is then whether self-sacrifice is a problem that nurses should immediately solve. Therefore, we suggest that caregiver experiences should always be interpreted in an explorative dialogue, focused on what caring means to a particular family caregiver. Nurses do not have to liberate family caregivers from the situation but should support them in whatever overwhelms or drives them in standing-by their loved ones until the end.
Palliative care and advanced cardiovascular disease in adults: Not just end-of-life care: A scientific statement from the American Heart Association
04/18/25 at 03:00 AMPalliative care and advanced cardiovascular disease in adults: Not just end-of-life care: A scientific statement from the American Heart Association AHAIASA Journals - American Heart Association; by Lucinda J. Graven, PhD, APRN, FAHA, Lisa Kitko, PhD, RN, FAHA, Martha Abshire Saylor, PhD, MSN, BA, RN, Larry Allen, MD, MHS, FAHA, Angela Durante, PhD, RN, Lorraine S. Evangelista, PhD, RN, CNS, WAN, FAHA, Amy Fiedler, MD, James Kirkpatrick, MD, Lakeisha Mixon, MSW, and Rachel Wells, PhD, MSN, BA on behalf of the American Heart Association Complex Cardiovascular Nursing Care Science Committee of the Council on Cardiovascular and Stroke Nursing; and Council on Cardiovascular Surgery and Anesthesia; 4/17/25 ... This scientific statement (1) discusses the application of effective communication, shared decision-making, age-friendly care, and advance care planning in advanced cardiovascular disease palliative care; (2) provides a summary of recent evidence related to palliative care and symptom management, quality of life, spiritual and psychological support, and bereavement support in individuals with advanced cardiovascular disease and their care partners; (3) discusses issues involving diversity, equity, and inclusion in cardiovascular disease palliative care; (4) highlights the ethical and legal concerns surrounding palliative care and implanted cardiac devices; and (5) provides strategies for palliative care engagement in adults with advanced cardiovascular disease for the care team.
Prospects for artificial intelligence in health policy and practice
04/12/25 at 03:45 AMProspects for artificial intelligence in health policy and practiceJAMA Health Forum; John Z. Ayanian, MD, MPP; Zirui Song, MD, PhD; 3/25Solving complex diagnostic challenges is a natural application of AI [artificial intelligence] in health care and a compelling way to benchmark its capabilities. The more extraordinary test of AI will be its ability to unravel the ordinary—the everyday needs and struggles faced by patients and clinicians. Which words and what tone should a clinician use to motivate a patient to smoke less, exercise more, or adhere to medications? In these routine, imperfect moments, when the science of medicine morphs into an art of trust, and that art is an inherently human endeavor of caring, how could AI help clinicians choose the words, body language, and tone to deliver better care? The mystery no longer resides in putting together puzzle pieces of data, but rather in piecing together emotions, intuition, and tradeoffs. Improved chronic disease management, more efficient use of societal resources, and better quality of life are among the potential pots of gold at the end of the AI rainbow.
Hiding in plain sight: A narrative review of non-parental relatives' perinatal grief
04/12/25 at 03:30 AMHiding in plain sight: A narrative review of non-parental relatives' perinatal griefJournal of Social Work in End-of-Life and Palliative Care; Rennie Bimman, Nancy Graham; 3/25Perinatal loss frequently leads to disenfranchised grief, and members of family systems less proximate to the loss are at risk for additional disenfranchisement. Grandparents and siblings are especially vulnerable to complications in perinatal grief due to intersecting and disenfranchising factors of identity, including age, role within family, and type of loss. Evidence found attested to the uniquely complex grief experiences these populations face as a result of their confluent disenfranchisement, and their overwhelming lack of support and recognition. New insights uncovered may inform clinicians as they assess needs and provide support to these oft-ignored grievers. Significant research gaps remain in this subtopic, such as firsthand perspectives of nonparental grievers, data on other extended family members, and the effect of additional psychosocial stressors on nonparental perinatal grief.
Ambiguous loss: Implications for perinatal and neonatal nurses
04/12/25 at 03:25 AMAmbiguous loss: Implications for perinatal and neonatal nursesNeonatal Network; Rachel A Joseph, Mary Highton; 3/25Ambiguous loss, a term coined by Pauline Boss, is a state in which there is no actual "death" and, therefore, no "grieving" or closure associated with it. Pregnancy is a happy event most of the time; however, the loss of pregnancy can be distressing to the parents. While the birth of a child is expected to be a joyful event, premature birth and subsequent admission to the NICU for prolonged periods with fluctuating conditions force the parent to be in a constant crisis mode where the outcome is unknown. This can mentally, physically, and emotionally drain the parents and may cause depression or other mental health challenges. Perinatal and neonatal nurses are uniquely positioned to recognize the warning signs of emerging grief crises in the parents and support them appropriately.
Interventions for prolonged grief disorder in children and adolescents: A systematic review
04/12/25 at 03:20 AMInterventions for prolonged grief disorder in children and adolescents: A systematic reviewJournal of Child & Adolescent Trauma; Sarah Bondy, Haleigh Scott; 3/25 Prolonged Grief Disorder (PGD) was added as a new diagnosis to the Diagnostic and Statistical Manual of Mental Disorders 5 Text Revision (DSM-5-TR). There is a need to tailor interventions to children and adolescent populations, but there is a lack of consensus on best practices for treating PGD in these populations. Interventions were grouped by modality including group treatments, hybrid treatments (combined group or individual therapy with family therapy), family treatment, and individual treatment. Cognitive Behavior Therapy (CBT), Attachment Theory and Multidimensional Grief Theory were common theoretical bases for interventions and all shared elements of psychoeducation and integrating knowledge about the loss with existing knowledge. Results for each intervention were found to be generally positive in reducing PGD symptoms.
A mother’s goodbye-Barriers to microtransitions in care
04/12/25 at 03:15 AMA mother’s goodbye-Barriers to microtransitions in careJAMA Internal Medicine; Aval-Na’Ree S. Green, MD, MHA, CMD; Benjamin E. Canter, OTD; 3/25After a long, debilitating battle with lupus, my cousin died at the doorsteps of our health system. The funeral was at 11:00 am. I arrived at the facility at 8:45 am. Although the catheter was in place, my aunt was undressed, with remnants of breakfast on her gown. She had not been bathed. The staff and I wheeled my aunt outside and attempted to load her into the van. Once my aunt was in the chair, it could not fit through the van door. Because this transition was not a medical health care appointment, the facility did not coordinate the resources, including use of the van, that were necessary for it to occur successfully. In contrast, had this been a medical outing, such as a weekend dialysis appointment, the facility would have been required to provide transportation. If this microtransition had been treated like a major health care transition, perhaps it would have had a better chance of success. Nursing teams use checklists during major care transitions; similar procedures should apply to microtransitions.
“I Don’t Know What to Say”-A multimodal educational and environmental intervention to improve bedside nursing communication at end of life
04/12/25 at 03:10 AM“I Don’t Know What to Say”-A multimodal educational and environmental intervention to improve bedside nursing communication at end of lifeJournal of Hospice & Palliative Nursing; Wolownik, Gregory DNP, AGPCNP-BC, ACHPN; Wholihan, Dorothy DNP, AGPCNP-BC, ACHPN, FPCN, FAAN; 4/25... research shows inpatient medical-surgical nurses are not adequately trained to deliver end-of-life (EOL) care. This lack of foundational learning leads to gaps when communicating with patients and families and negatively impacts quality of care. A literature review and staff interviews identified barriers to communication, such as lack of formal education and experience; personal, cultural, and emotional challenges; and high workload. A multimodal intervention focusing on improving staff nurse communication skills was designed ...[including] environmental cues, engaging pocket cards, and an education module on communication techniques. Nurses demonstrated increased confidence and competence immediately following the education session, enduring at 4 weeks. Innovative, clinically relevant interventions can positively impact communication skills without requiring increased time commitments or high cost.