Literature Review
All posts tagged with “Clinical News | Caregivers - Caregiving.”
ALS and mental health: The importance of caring for the whole person
05/28/25 at 03:00 AMALS and mental health: The importance of caring for the whole person ALS Association; by Amber Johnstone, MSW, LISW-S; retrieved from the internet 5/27/25 ... May is ALS Awareness Month and also Mental Health Awareness month. ALS and Mental Health go hand in hand. One of the first things I tell newly diagnosed individuals that I work with is that ALS affects the whole family. And to be truthful, it affects many more than just that nuclear family unit. A person living with ALS is like a pebble thrown into a pond. That first splash is the biggest, but then the water ripples all the way out to the edges of the pond. Those ripples are all the people with which the person with ALS shares their journey. ... The ALS Association understands how important mental health can be. ... The ALS Association is proud to offer ALS Academy to community healthcare professionals and caregivers. ALS Academy is free, online, self-paced, catalog of ALS education videos.
"You're next": People are sharing the last words they heard someone say as they were dying, and they're not all inspiring
05/26/25 at 03:00 AM"You're next": People are sharing the last words they heard someone say as they were dying, and they're not all inspiring BuzzFeed; by Mike Spohr; 5/21/25There's so much we don't understand about the end of life. Recently, we shared a post where Quora users shared their experiences being present for the final moments of someone's life...and hearing their last words. Well, as it turns out, BuzzFeed's readers wanted to share their experiences hearing someone's last words too, so we rounded them up here:
Mount Sinai establishes Steven S. Elbaum Family Center for Caregiving
05/26/25 at 03:00 AMMount Sinai establishes Steven S. Elbaum Family Center for Caregiving Mount Sinai, New York, NY; Press Release; 5/20/25 Mount Sinai announced that it will establish the Steven S. Elbaum Family Center for Caregiving, a groundbreaking initiative designed to improve how America's health care system recognizes and supports caregivers. Allison J. Applebaum, PhD, an expert in the psychological needs of caregivers and a Professor of Geriatrics and Palliative Medicine at the Icahn School of Medicine at Mount Sinai, will lead the new Center. Dr. Applebaum joined Mount Sinai in early September from Memorial Sloan Kettering Cancer Center, where she was the founding director of the Caregivers Clinic, an innovative program providing targeted psychosocial care to family caregivers of patients with cancer, from diagnosis through bereavement.
New law will fast-track completion of hospice death certificates
05/23/25 at 03:00 AMNew law will fast-track completion of hospice death certificatesFlorida Politics; by Drew Wilson; 5/21/25 Grieving families will spend less time waiting on paperwork come July 1.Gov. Ron DeSantis has signed legislation that would take some stress off palliative care physicians who guide patients through their final hours, as well as the grieving families they leave behind. Sponsored by Republican Rep. Dana Trabulsy, HB 647 would allow Advanced Practice Registered Nurses (APRNs) to complete and file death certificates for hospice care patients. Valid death certificates must record both time of death and cause of death before the deceased’s remains can be turned over to a funeral director. Under current law, a doctor must determine the cause of death and sign the certificate. That will remain the case after Trabulsy’s bill goes into effect July 1 for non-hospice deaths.
What caregivers should know about end-of-life rallies
05/22/25 at 03:00 AMWhat caregivers should know about end-of-life rallies AARP; by Jamie Ducharme; 5/19/25People with advanced illnesses sometimes experience unpredictable bursts of energy or clarity. Here’s how caregivers should handle these episodes. Roughly a decade after her mother was diagnosed with Alzheimer’s disease, Liz Donnarumma got her back — but only for an instant. It happened one evening in 2021, more than a year after Donnarumma first realized her mother, Theresa, didn’t recognize her. Theresa took Donnarumma’s face in her hands, called her by her nickname and thanked her. “When she put her hands on my face and I looked into her eyes, she was totally there. It was my mother,” Donnarumma says. “It was like a second, just one second, and it was gone.” Donnarumma’s mother had an episode of “paradoxical lucidity” — that is, an unexpected burst of mental clarity, despite her advanced condition. While these moments are as unexplained as they are unexpected, experts say they are more common than many people realize. ...
Good grief: Personal stories show hope still exists after loss
05/21/25 at 03:00 AMGood grief: Personal stories show hope still exists after loss ABC KTRK-13; by Brittaney Willmore; 5/19/25 Stories are at the heart of the memorial garden at Bo's Place. The building, with its red brick entryway, tall trees, basketball court, and patio, was intentionally designed on the outside to look almost like two arms, reaching out and welcoming in those who find themselves there as guests, but leave feeling like it's home. Carmichael Khan is familiar with the garden, which isn't made up of plants in this particular case, but of rocks that serve a very distinct purpose. Resting in the palm of his hand is his daughter's rock, which says, "Just bee." "That's why you see bees there. You just want to become. You also want to sit with your grief and just be," Khan explains. Rocks represent, but don't replace late loved ones, and painting them with personality just one of the many ways meant to help grieving children, adults, and families at Bo's Place cope with one of the most difficult parts of life -- death.
Yes, you can die from a broken heart
05/21/25 at 02:00 AMYes, you can die from a broken heartMedscape; by F. Perry Wilson, MD, MSCE; 5/14/25 A patient comes crashing into the emergency room with severe chest pain. The EKG looks like this: A patient comes crashing into the emergency room with severe chest pain. The EKG looks like this: [graphic]. As a doctor, if you see this, you’re calling the cardiac cath lab. This is an ST-elevation myocardial infarction — the big one — indicative of a blood clot blocking blood flow to a large section of the heart. The sooner you get that blood clot out, the better chance the patient has to survive. So the patient is rushed to the cath lab, and they find… nothing. Clear coronaries. No blood clot. Further questioning reveals that the patient, an older woman, lost her husband recently. This is stress-induced cardiomyopathy, medically known as Takotsubo cardiomyopathy (TC). It’s the pathophysiologic manifestation of a broken heart. First described in 1991, Takotsubo syndrome occurs in the setting of deep psychological, emotional, or physical stress.
New standards could transform palliative care for dementia patients
05/19/25 at 03:00 AMNew standards could transform palliative care for dementia patients McKnights Long-Term Care News; by Donna Shryer; 5/15/25 An Invited Commentary published Wednesday [5/14/ in JAMA Network Open highlights vital new consensus on when to refer dementia patients to specialist palliative care. The commentary, authored by Laura J. Morrison, MD, from Yale University School of Medicine, analyzes the Delphi survey study, which established the first international agreement on palliative care referral criteria for dementia patients.The Delphi survey study, led by Yuchieh K. Chang, DO, and colleagues, brought together 63 experts from five continents who identified 15 major criteria for specialist palliative care referral, grouped into five categories: dementia type, symptom distress, psychosocial factors, comorbidities and hospital use. Each major criterion was considered sufficient on its own to warrant referral, even for patients expected to live more than two years. Additionally, the study outlined 42 minor criteria, which could be used in combination to justify a referral decision.
Unintended, percolated work: Overlooked collaborative opportunities during end-of-life care
05/16/25 at 03:00 AMExploring overlooked collaborative opportunities during end-of-life care Medical Xpress; by Institute of Science Tokyo; 5/14/25 [This study's researchers describe:] "Bereaved family members broadly recollected the mixed regretful actions and decisions that should have been taken during the end-of-life care process. Coordination and cooperation challenges that existed between health care professionals and family caregivers emerged as factors that impeded these actions at the time." [They identified three types of] unintended, percolated work (UPW). ...
Finding her strength in silence: CSU Pueblo student graduates twice, carrying her mother’s dream
05/16/25 at 03:00 AMFinding her strength in silence: CSU Pueblo student graduates twice, carring her mother's dream Colorado State University Pueblo, Pueblo, CO; by Soni Brinsko; 5/14/25 The porch was still new when the professors arrived that late November evening. Hand-laid tiles, each one carefully placed by a father during what should have been vacation time. He’d built it for his wife so she could sit outside, feel the Colorado breeze one more time. That night, the porch became something else entirely. It became a stage for a graduation ceremony that wasn’t supposed to happen until May. Alondra Solis Ayala is about to walk across the commencement stage at Colorado State University Pueblo this week. It will be her second graduation. The first one happened in her family’s living room, with her dying mother watching from a chair, too weak to stand but strong enough to declare “esa es mi hija”—that’s my daughter—as faculty members in full regalia handed over a diploma cover and stole in what became an impromptu, deeply personal ceremony.
[June 12-18, 2025] Why celebrating CNA Week is a big deal
05/16/25 at 02:00 AM[June 12-18, 2025] Why celebrating CNA Week is a big deal ShiftMed; by Sarah Knight; 4/23/25 National Certified Nursing Assistant (CNA) Week, which kicks off on the Thursday of the second full week of June, is an annual tribute to the dedicated individuals who form the backbone of our healthcare system. So, as we approach CNA Week 2025, we must recognize their tireless efforts and unwavering commitment. ... CNA Week 2025 kicks off on Thursday, June 12 and runs through Wednesday, June 18. This year’s theme, “We Are the Champions,” celebrates CNAs as the unsung heroes of frontline care—professionals who ensure patients feel seen, heard, and truly cared for every single day. ...
Living with grief caused by your child’s death
05/15/25 at 03:00 AMLiving with grief caused by your child’s death Bonner County Daily Bee, Sandpoint, ID; by Kathy Hubbard; 5/14/25 “The challenge for many people is to speak about their feelings after the death of a child,” Tami Feyen, RN, manager of Bonner Community Hospice said. “If you haven’t gone through it, you can’t imagine what it’s like.” We were talking about the “tree” with the heart-shaped “leaves” that “grows” in the Children’s Healing Garden. This memorial, designed by artist Betty Gardner was installed in 2019 with the idea that people who had lost a child would have a comforting place to come to remember their loved one(s).
CMS seeks public input on improving technology to empower Medicare beneficiaries
05/14/25 at 03:00 AMCMS seeks public input on improving technology to empower Medicare beneficiaries CMS Newsroom; Press Release; 5/13/25 The Centers for Medicare & Medicaid Services (CMS) is taking bold steps to modernize the nation’s digital health ecosystem with a focus on empowering Medicare beneficiaries through greater access to innovative health technologies. The agency, in partnership with the Assistant Secretary for Technology Policy/Office of the National Coordinator for Health Information Technology (ASTP/ONC), is seeking public input on how best to advance a seamless, secure, and patient-centered digital health infrastructure. The goal is to unlock the power of modern technology to help seniors and their families take control of their health and well-being, manage chronic conditions, and access care more efficiently. ...
I held my wife's hand as she died. It was the most painful moment in my life, but also the greatest gift.
05/14/25 at 02:00 AMI held my wife's hand as she died. It was the most painful moment in my life, but also the greatest gift.Yahoo!Life; by Juan Cruz, Jr.; 4/13/25
It's time to talk about LGBTQ+ elder care
05/12/25 at 02:15 AMIt's time to talk about LGBTQ+ elder care Psychology Today - Caregiving; by Stephanie Sarazin, M.P.P.; 5/6/25 A once-hidden story is helping us think about queer kinship and caregiving. Key points:
GRIEF VIDEO: Holes and Wholeness - Mother's Day 2025, Finding peace in the pieces, wholeness in the holes
05/09/25 at 03:50 AMVideo: Holes and Wholeness - Mother's Day 2025, Finding peace in the pieces, Wholeness in the holes Composing Life Out of Loss; by Joy Berger; 2018, updated 5/8/25Holidays, birthdays and anniversaries. They’re supposed to bring celebration, fun, food, gifts, rituals, and rich meanings. But, when our loved one is seriously ill, or has died, these same days of joy can become … holes of grief. It's already hard enough, but with the holidays, we fear that emotions will flood us, that memories will trigger us, like ...
What grieving moms want for Mother's Day
05/09/25 at 03:00 AMWhat grieving moms want for Mother's Day The Compassionate Friends - Supporting Family After a Child Dies; posted on 5/10/17, retrieved from the internet 5/8/25 Acknowledgement is what grieving mother’s want most for Mother’s Day, suggests a survey by wwwthecomfortcompany.net a website that specializes in meaningful sympathy gifts. The online survey asked, “What can others do to ease your pain on Mother’s Day?” Over 80 percent of the 200 respondents answered, “Recognize that I am a mother.” ... In response to the survey result, The Comfort Company has issued a list of ten simple ways to reach out to a grieving mother on this difficult holiday.
Hospice of Southern West Virginia to host grief support session ahead of Mother’s Day
05/09/25 at 03:00 AMHospice of Southern West Virginia to host grief support session ahead of Mother’s Day ABC WOAY-4, Oak Hill, WV; by Brandy Lawrence; 5/6/25 [posted for their community before the event] As Mother’s Day approaches, many individuals face a renewed sense of loss and sorrow. To provide comfort and support during this emotionally challenging time, Hospice of Southern West Virginia (HSWV) will hold a special grief support session focused on coping with the loss of a mother or maternal figure. The session is scheduled for Thursday, May 8, 2025, from 5:30 p.m. to 7:00 p.m. at Bowers Hospice House. The event is open to anyone in the community navigating the grief of losing their mother. The session aims to offer a safe, compassionate space for attendees to honor loved ones, share cherished memories, and find solace in the presence of others who understand their pain.
HOSPICE: [Nurse] Daughter embraces mom’s hospice journey
05/09/25 at 02:30 AMHOSPICE: Daughter embraces mom’s hospice journey City Sun Times, Phoenix, AZ; by Lin Sue Flood; 3/25/25 As a nurse, Robin Benton is used to caring for people who are ill. But it’s different when your mother is the one who is sick. Her mom, Charlotte Brewer, a former nurse herself, has multiple myeloma, a rare type of blood cancer. In March 2024, the 80-year-old Valley resident decided to stop curative treatments in favor of comfort care with Hospice of the Valley, where she worked for over 10 years, before retiring in 2007. ... Charlotte’s Hospice of the Valley nurse, Kelly Langston, admires the way the family is living this stage of life with great intention, creating new ways to deepen their love for each other. “They came up with an idea for a hug shirt,” shared Kelly. “Everyone in the family painted their arms then took turns hugging each other — stamping an imprint of encircled arms on the shirts. It’s a way to feel each other’s hugs even when they aren’t together.” [View this creative shirt.]
CAREGIVING: For 27 years, I had minimal contact with my abusive mother. Then she moved in with me.
05/09/25 at 02:15 AMCAREGIVING: For 27 years, I had minimal contact with my abusive mother. Then she moved in with me. HuffPost; by Carole Brodsky; 1/20/25 ... Living with my mom was the last thing I ever thought I’d be doing as an adult. Perhaps I accepted her back into my life because there were no other options available. Perhaps it was because I was the daughter of someone who in today’s vernacular would be called a “tiger mom,” and I’d been taught caring for an aging parent was what “good daughters” did. ... As a child, my mother was abusive. ... [Now, as] Mom’s verbal skills declined, we had to use our eyes, guts and hearts to discern the needs of a person whose tether to this world was fraying before our eyes. ... My partner has a saying: I always forgive, but I never forget. I have unequivocally forgiven my mother for everything. I have tried, with varying degrees of success, to let the vestiges of her abuse die with her and not invade the lives of my children, grandchildren and now, great-grandchildren. The work on forgiving myself will continue for the rest of my life.
CAREGIVING: Aging with adventure - The challenge of caring
05/09/25 at 02:00 AMCAREGIVING: Aging with adventure - The challenge of caring Daily Hampshire Gazette, Northampton, MA; by Eric Weld; 2/28/25 I made a mistake. I took a hiatus from writing in this space about aging with adventure because I thought I was taking a hiatus from adventure. Boy, was I wrong. I errantly thought that spending more than a year caring for my elderly mother in her final time on earth was taking me away from adventure. I am honored to have enabled my mother’s final days spent at home — not her home, but my sister’s private home — instead of in a public or private nursing facility. ... I assumed, in taking on the role of her co-caretaker, I would temporarily preempt my semi-retirement modus operandi of striking out on great adventures. To the contrary, what I learned from spending nearly two years co-caring for my aging mother is that end-of-life care is, indeed, every bit an adventure on many levels. And of course, it’s certainly about aging. Editor's note: This son defines adventure as having four key components: "challenge, risk, education and movement.
DEMENTIA: When they don’t recognize you anymore: Dementia study looks at loved ones’ responses
05/09/25 at 01:45 AMWhen they don’t recognize you anymore: Dementia study looks at loved ones’ responses Penn Live - Nation & World News; by Paula Span, KFF Health News; 5/4/25 It happened more than a decade ago, but the moment remains with her. Sara Stewart was talking at the dining room table with her mother, Barbara Cole, 86 at the time, in Bar Harbor, Maine. Stewart, then 59, a lawyer, was making one of her extended visits from out of state. ... “She said to me: ‘Now, where is it we know each other from? Was it from school?’” her daughter and firstborn recalled. “I felt like I’d been kicked.” Stewart remembers thinking, “In the natural course of things, you were supposed to die before me. But you were never supposed to forget who I am.” Later, alone, she wept.
SERIOUS ILLNESS: 10 ways to embrace Mother’s Day with a seriously ill mother
05/09/25 at 01:00 AM10 ways to embrace Mother’s Day with a seriously ill mother Roze Room Hospice, Culver City, CA; Website; retrieved from the internet 5/8/2025Spending Mother’s Day with a seriously ill mother can be emotional, but it’s also an opportunity to create meaningful and loving memories. Here are 10 ways to embrace Mother’s Day with a seriously ill mother:
Family caregiving for older persons with dementia at end-of-life: A comprehensive overview
05/03/25 at 03:30 AMFamily caregiving for older persons with dementia at end-of-life: A comprehensive overviewInternational Perspectives on Family Caregiving; Cynthia A. Hovland; 4/25 Family caregiving for older persons with dementia at the end of life is a perplexing, challenging, and growing concern across the United States and other developing countries. This overview looks at these epidemiological forecasts, scope, and impact of dementia on the family and caregiver. Using a bio-psycho-social theoretical framework helps to understand identified problems and issues for the caregiver and implications for the older adult with dementia. Caregiver issues include the burdens as well as positive aspects of this role, but the unknown trajectory of dementia poses significant challenges. Caregivers' responses are impacted by their individual resilience and supports, and recommendations for approaches, strategies, and interventions for caregivers and health professionals are provided.
Think you know what nursing research looks like? Think again
05/02/25 at 03:00 AMThink you know what nursing research looks like? Think again Boise State News, Boise, ID; 4/30/25 “Research” doesn’t just mean generating new discoveries through experimentation. Boise State supports Boyer’s model of scholarship, which expands the definition of research and creative activity to include applying and integrating knowledge into other settings, as well as teaching it. ... [An] interdisciplinary team is working to improve hospice and palliative care for refugees. ... Clinicians and refugees often do not share common cultures, languages or communication norms, so [Kate] Doyon has been building a community advisory board to create a communication guide. They’re working with stakeholders–including refugees and providers–to develop prompts that will enhance the care refugees receive, starting on the level of communication. Ornelas said the refugees they interviewed “gave us a lot of insight on different cultures and how we can go about and make prompts.” The prompts are short phrases to remind the healthcare team of best ways to interact with refugees and productively approach conversations.