Literature Review

Carolina Caring Foundation helps hospice patient fulfill dream at North Carolina Zoo Carolina Caring, Newton, NC; Press Release; 9/23/25 A hospice patient fulfilled her lifelong dream of meeting and feeding a giraffe thanks to the Life Enrichment Fund through the Carolina Caring Foundation. Deborah, a patient at Carolina Caring, has always been fascinated by the wildlife of Africa, the work of Jane Goodall, and the unique beauty of giraffes. ... Deborah has always had an adventurous spirit. In the past, she tried many new experiences—including a fun helicopter ride with her family during a beach trip—but one thing she always yearned to do was meet a giraffe. Her Carolina Caring social worker, Carley, recognized this dream and soon created a pathway for this wish to come true. . ... Carolina Caring gave this family more than just a trip to the zoo. They provided a celebration and memory-making that the family will now forever carry in their hearts and minds.

Study provides new insight into loneliness among home care recipients McKnights Home Care; by Paul Katz, MD and Barbara Resnick, PhD; 9/22/25 ... A team of international Investigators, led by researchers at the University of Waterloo, recently reported on the link between loneliness and mortality among home care recipients in Canada, Finland and New Zealand. The study can be found in the July issue of the Journal of the American Medical Directors Association (Vol 26 (7) 105687 July 2025). ... Home care recipients may be more prone to loneliness, given mobility and sensory problems that limit engagement in the community.  ... Interestingly, investigators noted that individuals with less informal care had the highest rates of loneliness. An explanation may be that those with less complex health needs requiring  less support from family members may lead to more social isolation.

New ‘action plan’ gives providers tools to prevent falls, minimize injuries  McKnights Home Care; by Adam Healy; 9/18/25 The National Council on Aging this week published its 2025 National Falls Prevention Action Plan, a report that offers strategies home care providers can use to protect their clients from injury. NCOA’s action plan has six goals: boosting awareness, expanding funding, promoting clinical interventions, enhancing care coordination, upgrading technological capabilities and improving data collection for fall prevention activities. While the action plan aims to inform policymakers about ways to protect older adults from falls, it also includes actionable strategies home care providers can employ to keep their clients safe.

What makes a good death? GeriPal - A Geriatrics and Palliative Care Podcast for Every Healthcare Professional; by Alex Smith with Karen Steinhauser, Rasa Mikelyte and Edison Vidal; 9/18/25What is a “good death”? How should we define it, and who gets to decide? Is the concept of a “good death” even useful? ... In today’s podcast, we are honored to have Karen join us to discuss this pivotal study and the nature of a “good death”. We are also joined by Rasa Mikelyte and Edison Vidal, co-authors of a recent study comparing the perspectives of people with dementia in the UK and Brazil on what constitutes a good death. In addition to exploring the nature of a good death and their individual studies, we will discuss:

[UK] Key themes and approaches in palliative and end-of-life care education for the general public: A systematic reviewBMC Palliative Care; by Muzeyyen Seckin, Rumandeep Tiwana, David Fry, Cara Bailey; 8/25 These [twenty] studies involved a total of 10,307 participants and identified 16 different educational programmes for the public, volunteers, and lay caregivers. The analysis revealed six main themes: foundational concepts and philosophies, communication and decision-making, planning and preparation, symptom management, end-of-life care practices, and caregiving support. This review highlights the importance of training programmes to improve community involvement in caregiving and enhance the quality of care for individuals with life-limiting conditions. Expanding access to such educational resources can empower more people to contribute confidently to end-of-life care in their communities.

O’Neill Healthcare Hospice creating Moments of Joy The Villager Newspaper, Bay Village, OH; 9/15/25 At O’Neill Healthcare Hospice, our mission goes beyond providing exceptional clinical care ... One way we do this is through our Moments of Joy program, an initiative devoted to creating meaningful experiences and lasting memories for those we care for. Recently, we had the privilege of honoring our patient, Frank, with a very special moment of joy outing, ... "back to the ballpark in person." ... Programs like Moments of Joy enable us to honor our patients’ stories and interests, celebrate their passions, and provide families with cherished moments to remember.Editor's Note: See our recent related posts, "Fulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care" and "Baptist Health Floyd's 'Three Wishes' project provides comfort during end-of-life process."

Family says bear attack victim to be transferred to hospice care KNWA/KFTA FOX-24, Little Rock, AR; by Justin Trobaugh; 9/9/25 The family of a Franklin County man says Sept. 8 that his condition has worsened and that he has been moved to hospice care. Vernon Patton, 72, is being held at the University of Arkansas for Medical Sciences after being attacked by a bear in the Mulberry Mountain area of Franklin County on Sept. 3. Patton was working on a gravel road with his tractor near Mulberry Mountain Lodge Park when the black bear attacked, according to Keith Stephens with the Arkansas Game and Fish Commission (AGFC). His son arrived to check on him and saw the bear actively attacking. Editor's Note: Executive leaders, traumatic events like this that lead to a hospice admission call for extra support for your clinical, direct care professionals and volunteers. They can experience secondary trauma as they tend horrific wounds, both physical (for the patient) and emotional (for family and friends). Also, what policies do you have in place to balance important community news and family privacy (e.g. staff or volunteers posting anything on social media).

Reducing family caregiver burden may prevent 30-day ED readmissions among community-dwelling older adults, study finds McKnights Long-Term Care News; by Foster Stubbs; 9/9/25 Alleviating caregiver burden may reduce returns to the emergency department for older adults up to 30 days after a discharge, according to research published in the Journal of the American Medical Association. The study examined 1409 dyads or duos of community-dwelling patients 65 years or older and their family caregivers. ... [Questions] included items about strain in the caregiver’s role and personal life associated with caregiving. ... "We interpret these findings as evidence that caregiver burden may contribute to a negative care transition, associated with 30-day ED revisits, ..."

The hidden crisis in serious illness care and how we fix itMedCityNews; by Dr. Mihir Kamdar; 9/7/25 Every year, millions of Americans with serious illnesses find themselves caught in a dangerous limbo: not sick enough to qualify for hospice, but far too ill to be served by our traditional healthcare system. The result is care that’s expensive, fragmented, and often traumatic. These patients are shuffled between a revolving door of emergency rooms and ICUs, enduring a cascade of aggressive interventions that don’t match their goals or improve their quality of life. This approach not only undermines quality, it drives healthcare spending through the roof, particularly in the last year of life. This is the hidden crisis in serious illness care. And it’s getting worse. At the root of the problem is what many in the field call the “hospice cliff.” ...

This is the one question leaders need to ask themselves: To avoid burnout, leaders need to pay attention to their energy levels Forbes - Work Life; by Tim Jack Adams; 9/1/25 You’ve carried the weight of big decisions, the pressure to perform, to lead and deliver, all despite what’s happening behind the scenes. You’ve navigated through uncertainty and change, providing the space for everyone else to thrive. It’s a feeling that the most capable leaders feel. It’s not quite burnout, but a kind of dullness. A slow drain. A fog that creeps in quietly and makes it harder to stay clear, connected, and grounded. ... It's not about time, it's about energy. ...Editor's Note: Twenty years ago, this concept revolutionized my workday, productivity, outcomes, and overall well-bing, via the book The Power of Full Engagement: Managing Energy, Not Time, Is the Key to High Performance and Personal Renewal, by Jim Loehr, published 2003. This author's content is fresh, dated September 2025.

[United Kingdom] Stories of unpaid carers supporting loved ones with dementia at the end of their lives ehospice, London, UK; by NIHR Applied Research Collaboration (ARC) South London; 8/30/25The artwork from Dementia Journeys, a powerful exhibition at Science Gallery London which ran from April to June 2024, can now be viewed online.The Dementia Journeys exhibition was created in response to Empowering Better End-of-Life Dementia Care (EMBED-Care) – a research programme that aims to generate a step-change in how care is provided for people at any age with any type of dementia. 

The Faith Care Family Project: A pilot intervention for African American dementia family caregiversAmerican Journal of Alzheimer's Disease and Other Dementias; Noelle L Fields, Ling Xu, Ishan C Williams, Fayron Epps, Samantha Tinker; 8/25The Faith Care Family (FCF) Project was a telephone based, volunteer-led intervention for African American Alzheimer’s disease and related dementias (AD/ADRD) family caregivers that was piloted in one predominantly African American church. Church volunteers indicated overall significant improvements knowledge of AD/ADRD after the training as well as after the intervention. Quantitative results indicated that caregivers increased their knowledge of dementia, reported improved coping skills, and reported increased positive aspects of caregiving. Feeling a connection, normalizing the challenges of caregiving, gaining or reinforcing knowledge, and sharing community resources were themes from qualitative interviews with the family caregivers.

Amid growing 'scandal' of elder homelessness, health care groups aim to help NPR, Bristol, RI; by Felice J. Freyer; 8/16/25 At age 82, Roberta Rabinovitz realized she had no place to go. A widow, she had lost both her daughters to cancer, after living with one and then the other, nursing them until their deaths. Then she moved in with her brother in Florida, until he also died. ... Rabinovitz joined the growing population of older Americans unsure of where to lay their heads at night. But Rabinovitz was fortunate. She found a place to live, through what might seem like an unlikely source — a health care nonprofit, the PACE Organization of Rhode Island.