Literature Review

Davina McCall reveals 'end of life checklist' after devastating tumour news from doctor Express; by Emmanuella Ngimbi; 8/18/25 TV presenter Davina McCall opened up about the major action she took after being diagnosed with a brain tumour during a health check-up as part of her menopause advocacy work in November. Despite being told it was benign, the 57-year-old was convinced death was imminent and proceeded to make an end-of-life checklist, which she now says was “the best gift.” ... Davina revealed that in the end, her checklist came down to finding peace in the fact that her loved ones would survive without her.

Asking older adults with impaired cognition and care partners about serious illness experiences can elicit goals of care during advance care planning Americn Journal of Hospice and Palliative Medicine; by Glory H. Thai, BS, Valecia Hanna, MS, Peiyuan Zhang, MSW, Chase Mulholland Green, MPH, John Cagle, PhD, MSW, Jennifer L. Wolff, PhD, and Martha Abshire Saylor, PhD, RN; 8/13/25 Older adults with cognitive impairment and their care partners were able to respond to serious illness experience questions, with responses eliciting a spectrum of goals of care. Integrating such questions into advanced care planning (ACP) for older adults with cognitive impairment may clarify goals of care and improve decision-making for patients and families. 

Family Hospice, Alzheimer’s Association partner on ‘Check In’ program for dementia patients Hospice News; by Jim Parker; 8/11/25Family Hospice is working with the Alzheimer’s Association, Georgia Chapter, to improve safety for dementia patients through a new collaborative campaign. The #ICheckedIn campaign calls on community members to check on seniors in their community, particularly those who suffer from dementia or memory loss, through phone calls, visits or other modes of communication. Editor's Note: This article by Hospice News was reposted by the American Academy of Hospice and Palliative Medicine (AAHPM) under the title, "Hospice encourages public to check on older neighbors."

Blindsided: Some nursing homes across the country aggressively pursue friends and relatives for a loved one’s unpaid bill 14 News; by Jill Riepenhoff and Chris Nakamoto; 8/11/25 Toni Cook opened the letter from her mother’s nursing home and cried in horror. Lynn Marie Witt dropped to her knees and sobbed when she read the letter from her mother’s nursing home. Both women — stiff and grief-stricken over the loss of their beloved mothers — learned from those letters that the nursing homes intended to collect their mothers’ unpaid debts from them. Neither had any financial control over their mother’s bank accounts or assets after their deaths, court records say. They simply were loving daughters who signed paperwork to have their mothers admitted to a nursing home.

Implementation of the Pressure Injury Prevention Care Bundle at a home based hospice program: A quality improvement project The Texas Medical Center (TMC) Library Health Sciences Resource Center; by Adaeze U. Amechi-fannin; 8/11/25 Pressure injuries remain a common and serious problem in hospice care, especially among patients who are immobile or confined to bed. Although effective prevention methods are known, inconsistent use of these methods, limited caregiver training, and poor documentation have continued to prevent success in many hospice settings. These wounds cause pain, increase infection risk, and reduce quality of life, making prevention especially important in end-of-life care. ... This project demonstrates that combining structured training, evidence-based care steps, and attention to individual patient needs can successfully reduce pressure injuries in home hospice environments.

Field notes from the end of life: My thoughts on living while dying Texarkana Gazette, Texarkana, TX; 7/26/25 As friends are quick to tell me, we are all living with dying. True enough. Especially because I'm 76, or, as my late husband, Alec, would say, "too old to die young." But it's still disturbing to get official notice of your imminent demise. ... In a series of stories, I'll be sharing my field notes as I make my way from here to there, in the hope that others might find it useful. ... When I start feeling grim about my situation, I'm finding it useful to take a "Would it help?" moment to consider whether my response can improve the situation or help me cope. 

Sovereign Hospice highlights nutrition's role in hospice home care services News Channel Nebraska (NCN), reprinted from Aubrey, TX; Press Release; 8/8/25 Eating becomes more than a necessity during serious illness—it becomes a part of daily care that supports comfort, strength, and emotional connection. At Sovereign Hospice in Aubrey, Texas, nutrition is integrated into the services hospice offers, especially for patients receiving hospice at home services. The goal is to use food as a gentle tool to improve quality of life. Serious illnesses can change how patients eat. Appetite loss, difficulty swallowing, and taste changes are common, but they can be managed through small adjustments. 

Why terminal cancer patients still receive aggressive treatment MedPageToday; by M. Bennet Broner; 7/31/25 Recently, researchers examined whether there had been any changes in the way terminal cancer patients died from 2014 to 2019, given the increased information available on hospice, palliative care, and advanced end-of-life planning (EOLP). They asked whether those who were terminal continued aggressive treatment until their demise. The authors anticipated a decrease in this, but found that the frequency of cancer patients who continued aggressive therapy had not declined. The study did not examine decision-making. Still, the researchers, based on other studies, theorized that the lack of change resulted from a confluence of physician and patient factors. ... [Physicians] might predict a more optimistic prognosis than justified, avoid discussing EOLP, support (over)intensive treatment, and/or overemphasize treatment effectiveness while minimizing its side effects. Oftentimes, given their statements, physicians will offer treatments they know to be of little value, believing that patients expect them to propose something rather than admit there was nothing realistic left to offer.Editor's Note: Pair this with our recent post, Doctors’ own end-of-life choices defy common medical practice.

Hearing loss, loneliness may contribute to cognitive decline in older adults McKnights Senior Living; by John Roszkowski; 7/28/25 Hearing loss and loneliness can contribute to dementia in older adults, and simple interventions to address hearing loss, such as hearing aids, may reduce cognitive decline in some cases, new research finds. ... Results of the study showed that higher levels and worsening self-reported hearing impairment were associated with steeper decline in episodic memory issues and executive functioning (verbal fluency). Further, the researchers found that individuals who were not socially isolated but still felt lonely saw their cognitive decline accelerate if they were deaf.

A woman in hospice granted a wish of one last swim WEAU-13 News, Bloomer, WI; by Danile Gomez; 7/16/25 Often times the small things are taken for granted. Like a dip in the pool. For Barbara Melby, it was on the final list of things to do as she lives out her time in hospice care. “Barbara has been doing pretty well. She has had some fatigue and some tiredness,” said Leah Grace, the registered nurse with St. Croix Hospice assigned to Melby’s case. ... Grace worked hard to make sure Melby’s last dip in the pool would come to fruition. She cleared it with Melby, her family and the managers at the hospice center. The aquatic center helped in granting the wish too. ... “The way the chair put me in down the water was very nice,” said Melby. Of those in Melby’s family that jumped in the pool with her included Stoll and her kids Colby, Sydney and Brody. “I grew up swimming in my grandmother’s pool. ...” said Stoll. She is happy to be there for her grandmother’s last swim. “Just a pretty special memory we will all hold on to for a pretty long time.” Melby was a swim instructor, ... It was something she always loved and it made her happy to have had her wish granted.

Caring for a difficult elderly parent during a transitionPsychology Today - Caregiving; "Personal Perspective" by Franne Sippel, EdD, LP; 7/21/25 I am the only child of an only child who lives in an assisted living facility thousands of miles away. I unofficially diagnosed Mom with obsessive-compulsive personality disorder after struggling for years with a relationship fraught with guilt and frustration. ... It’s difficult enough to care for a frail parent when their health is failing. However, the added OCD personality, with its micromanaging, rules, and demands, tests patience beyond compare.  ... A good friend suggested I call hospice to evaluate her. Jim, a hospice RN in his 70s, arrived and instantly assessed the situation with laser-like precision. ... I spend many months going back and forth between South Dakota and Arizona to see my mom. Hospice continues to visit her three to four times a week at the assisted living facility, and a dear family friend also visits her several times a week. ... Editor's Note: Keep reading this article to its end. The insightful, practical, sensitive care from these hospice clinicians generated life-long transformations for this burdened caregiver-daughter. 

Ok, please help calm my anxiety. My mother has drastically improved in the last couple of days since goin on hospice. Aging Care; by Oedgar23; 7/17/25 So in the hospital, my mother was in kidney failure. The last couple days after stopping vancomycin for about five days, her GFR had come up to 19. That’s the most recent Number and then they stopped drawing labs because we placed her on Hospice. We consulted with palliative care team. They wanted to do a feeding tube and we said no. They said she had advanced dementia. [Describes improvements since hospice.] ... What if she gets taken off hospice? ... What if she no longer qualifies for hospice, passes as normal cognitively, starts demanding to go home, does not qualify for long-term care, Medicaid, etc. ... But I am super unnerved because she looks a whole lot better than she has been looking. ...Editor's Note: Yes, we all know that the person can get better with hospice care, because of holistic person-centered care, caregiver education and support, and many more factors. This can be confusing. The dying trajectory may have been interrupted or simply calmed with better symptom management and quality of life. This daughter is asking normal, crucial questions which the hospice team needs to be addressing with her. Examine your live discharge data, Policies and Procedures, communication practices with the patient and family about recertifications, Incident Reports from upset caregivers/families, and CAHPS Hospice scores.

Hospice of the Ozarks: 2026 Pet Peace of Mind Calendar  KTLO.com, Mountain Home, AR; by Hospice of the Ozarks; 7/16/25 Hospice of the Ozarks is excited to continue our Pet Peace of Mind Pet Calendar. This tradition of an annual pet calendar continues to support the Hospice of the Ozarks Pet Peace of Mind Program. From July 10th to July 24th pet lovers will have the opportunity to upload a digital photo of their beloved companion to enter the contest for the 2026 wall calendar. Voting will be held between August 1st to August 15th. ... All funds raised will help support our Pet Peace of Mind Program. The Pet Peace of Mind’s mission is to enrich the quality of life and well-being of hospice patients and their families by caring for the pets they love.Editor's Note: What a creative, fun way to raise funds to support this extra program! Pet Peace of Mind is a registered trademark for Pet Peace of Mind, Inc. "the only national program providing a care model for the pets of seriously ill patients, including helping orphaned pets find a loving new home when necessary." Click here for its locations in 43 states (plus Washington DC) and the over 250 organizations they serve.