Literature Review

Grandad rehearsed his funeral 10 years ago – Now his final wishes come true after his passing Good News Network; 7/28/24; published in our newsletter 8/1/24A British senior who pre-planned his funeral and rehearsed it on TV in 2013, had his final wishes come true after peacefully passing away in June. Malcolm Brocklehurst, who is a renowned aircraft expert, commissioned an orange airplane-shaped coffin ten years ago from Crazy Coffins, an offshoot of a Nottingham-based traditional coffin and urn maker in England that helps people customize their funeral. The grandfather-of-nine was filmed sitting in the coffin on Channel 5’s Bizarre Burials, which also featured a rehearsal of the ceremony that the former aerospace engineer coordinated to the last detail. The plane was aptly called Tango One and numbered with MB 1934—his initials and year of his birth. He also announced that he wanted the funeral procession to leave from the stadium pitch where his favorite football team, Blackpool FC, plays. ... But speaking about the rehearsal in 2013, he said it was all “light-hearted fun.” 

Couple marry in ICU an hour before bride’s father takes his last breath Our Community Now, North Providence, RI; by OCN staff; 8/22/24, published in our newsletter 9/1/24A Rhode Island hospital held an emergency wedding that had to be performed before the bride’s father died from muscular dystrophy. Sabrina Silveira-DaCosta says her father, 58-year-old Frank Silveira, was Portuguese-born and raised, a serious chef and a five-star dad. ... With Silveira’s health rapidly declining, his family realized he wasn’t going to make it his daughter’s wedding on Sep. 7, so plans changed. “Everyone was able to bring the wedding to him in the hospital, and he got to walk me down the aisle,” Silveira-DaCosta said. From his intensive care unit bed, Silveira escorted his daughter down the hospital hallway Monday into the hands of her fiancé, Sam DaCosta. ... Silveira-DaCosta’s father died about an hour after he walked her down the aisle. “It’s very complex. It’s a lot of emotion. Our community hospitals don’t get enough credit because any big hospital couldn’t have done this for us,” she said.

His sick wife asked him to kill her. Now that she's gone, he says the loneliness is worse. USA Today; by Madeline Mitchell; 6/11/25 Ever since his wife died in December, David Cook feels like a stranger in his own home. ... The loneliness “is a problem,” Cook said, and sometimes he slips into dark, depressive episodes he can only shake with sleep. He avoids the living room, with the framed photos of the two of them smiling together, the new plush carpet, the television where they'd watch tennis and golf and the ghost of the recliner she used to sit in. Patricia Cook died there, so for now − maybe forever − it's off limits. ... When she went into hospice in their living room, adamant that she’d die in her own home, the pain was excruciating. “She actually, several times, asked me to kill her," Cook said. "And I didn’t even have to think about it, I just said, ‘I’m sorry.’ I said, 'I just can’t do that.’” “Do you know how hard that is?” Cook said. “When someone asks you to kill them?” ... Editor's note: Spoiler alert. David Cook did not kill his wife. Still, he asks, "What more could I have done?" Read this story to develop your understanding of the profound depths of loss for spouses/partners, especially when they have served as caregiver through challenging needs.

SCI Waymart meets needs of aging incarcerated population by training inmates in hospice care PBS WVIA News, NPR, Pittston, PA; by Lydia McFarlane; 6/8/25 Nurses and their inmate aides care for hospice patients. Some are bedridden, needing help with eating, changing and using the bathroom. The patients have recently signed do-not-resuscitate (DNR) forms. Some have just a few more months to live. The medium security prison's hospice unit looks like a nursing home. SCI Waymart is one of two prisons, along w ith SCI Laurel Highlands, in the Commonwealth that has a personal care unit. Waymart receives medical transfers from institutions across the state, making its population older than most of Pennsylvania’s state prisons. The average age of a Waymart inmate is 45.5, according to SCI Waymart’s superintendent, Mark Wahl. About 36% of inmates are over the age of 50, and 10% are over 65 out of a total of 1,122 as of April of this year, he said. Wahl said SCI Waymart averages one death per month.

Understanding hospice care: Eligibility, cost and purpose Emmanuel Hospice; 6/5/25 How do you want to live? It may be surprising to learn that’s the first question Emmanuel Hospice asks every new patient. Isn’t hospice about dying? While hospice is often associated with death, Melissa Wedberg will tell you it’s more about living, especially at Emmanuel Hospice, where she serves as vice president of community relations. With more than a decade in the hospice industry, Wedberg has spent years dispelling this and many other myths. Despite having roots in the U.S. dating back to the 70s, there remains a lot of mystery about hospice. Common questions Wedberg hears include: What is hospice and who’s eligible? How does hospice work? How is hospice paid for? Editor's note: This simple question jumps to the core of person-centered care, "How do you want to live?"

Therapy dog offers comfort, brings calm for family and patients at the Center for Hospice wn.com, South Bend Tribune, South Bend, IN; 6/8/25 Teddy brings comfort and smiles at the Center for Hospice Care in Mishawaka. His full name is Theodore H. Bode. However, he answers to the shorter version of the name. He bounds down a hallway and stops to greet a nurse or a family member. Those big brown eyes will win you over immediately. In the hospice rooms in the Ernestine M. Raclin House, the dog knows to follow commands and not run in recklessly. Teddy is a mini Australian Labradoodle and he has been the hospice therapy dog for about 18 months. He is two years old and has been on staff for slightly more than a year.Editor's note: When looking for pet therapy volunteers, ensure that the dog has been certified through a reputable organization. Their certification process needs to include training, evaluation of both the pet and the handler/owner, proof of current vaccinations, proof of insurance (carried by the certifying organization), and ongoing requirements for maintaining the pet's viability. For example, examine www.kywags.org (serving healthcare, schools, and other community needs in the Louisville, KY region). 

Sister Grace spent her life helping the homeless. Now in hospice, she reflects on legacy and lessons WXXI News NPR, Rochester, NY; by Gino Fanelli; 6/6/25Sister Grace Miller smiles as she props herself up in her hospice bed and gently teases her strands of chestnut brown hair. “How does my hair look?” she asks. It’s the type of remark one would expect from Miller. Sister Grace is many things: a radical compassionate, a devout follower of the Catholic faith, a civil disruptor, and a wielder of a sharp, slightly sardonic wit. ... The 89-year-old champion for the homeless and destitute is dying, in hospice care at a congregation home on Carter Street. But her spirit is alive and well. “I would fight with them over whatever, whatever the people needed,” Miller said, referring to the county and city administrations she often tangled with over the years. “I would fight for the people. ... She said it was, ultimately, an undying, uncompromising commitment to the work she does as a fierce and fearless advocate for the poor.

Terminally ill woman, 35, cancels plans - best friend’s reaction backed Miami Herald, Miami, FL; by Lydia Patrick, Newsweek Life; 6/5/25 A woman has sparked an outpouring of support online after admitting she felt relieved when her terminally ill best friend canceled their remaining plans. The anonymous Reddit user, ... shared her emotional experience ... where her confession received over 8,000 upvotes and hundreds of comments. She explained that her best friend, Sarah, 35, had been diagnosed with an aggressive form of pancreatic cancer and her condition rapidly worsened. ... In an effort to make the most of her time, Sarah created an ambitious bucket list, which included a trip to the coast, a party, and a final hike to her favorite mountain. However, after halting treatment, she transitioned into hospice care and most of the planned activities were either canceled or significantly scaled back. ... [Serving as primary caregiver, she wrote,] "And I'm relieved. I'm utterly, profoundly ashamed to admit it, but I'm exhausted. Mentally, emotionally, financially. ..." ... Dr. Terri Daniel, a grief counselor and hospice chaplain at Forest Park Hospice, told Newsweek the Redditor's experience is not uncommon and far from selfish.

Cleveland Clinic virtual care service expands throughout US Becker's Health IT; by Giles Bruce; 6/4/25 The Clinic by Cleveland Clinic, a virtual second opinion service, is expanding its licensure to thousands of additional providers across the nation. The Clinic partnered with credentialing company Baton Health to grow its provider licenses to more than 10,000, spanning the entire country. The Clinic, a joint venture between Cleveland Clinic and telehealth company Amwell, offers quick access to physicians and subspecialists for virtual second opinions. 

Provider MiraSol Health launches new Behavioral Health Program Hospice News; by Jim Parker; 6/3/25 MiraSol Health has launched a new behavioral health program designed to amplify emotional and psychological support for its hospice and palliative care patients. Branded as Rays of Hope Behavioral Health, the program offers individual and group therapy sessions, both in person and via a secure telehealth platform. Through Rays of Hope, MiraSol’s licensed therapists will help address anticipatory grief, caregiver stress, loss and other struggles that patients and families face during a time of chronic, serious or terminal illness.

Death behind bars: Prisons routinely ignore guidelines on dying inmates’ end-of-life choicesKFF Health News / Times Daily; by Renuka Rayasam; 5/31/25Brian Rigsby was lying with his right wrist shackled to a hospital bed in Montgomery, Alabama, when he learned he didn’t have long to live. It was September 2023, and Rigsby, 46, had been brought to Jackson Hospital from an Alabama state prison 10 days earlier after complaining of pain and swelling in his abdomen. Doctors found that untreated hepatitis C had caused irreversible damage to Rigsby’s liver, according to his medical records. Rigsby decided to stop efforts to treat his illness and to decline lifesaving care, a decision he made with his parents. And Rigsby’s mother, Pamela Moser, tried to get her son released to hospice care through Alabama’s medical furlough policy, so that their family could manage his end-of-life care as they saw fit. But there wasn’t enough time for the furlough request to be considered...

The importance of humanity in internal medicine I.M. Matters from the American College of Physicians; President's Message by Jason M. Goldman, MD, MACP; June 2025I recently attended the funeral of one of my long-time patients, who had required hospice care after a long battle with heart disease. Many of us have had the experience of telling a patient and their family that their disease has progressed and we have reached the limits of medical science. In training, we are taught to be compassionate but professional, maintaining a certain level of emotional detachment ... As internal medicine specialists, we have the awesome responsibility and privilege to be the doctor for our patients through decades of their life experiences and to offer them not just medical science, but also humanity and comfort. ... One of the greatest acts of charity a person can perform is to attend someone's funeral, as it is the only act of kindness that cannot be reciprocated. This patient had been in my practice for almost two decades, and I had the privilege of taking care of both her and her husband.Editor's note: Re-read this powerful statement, "One of the greatest acts of charity a person can perform is to attend someone's funeral, as it is the only act of kindness that cannot be reciprocated." 

Hospitalists should champion hospice as ‘life with dignity’ Medscape; by Julie Peck; 5/29/25 If anyone can put a positive spin on the end of life, it’s Charles Vialotti, MD, director of Hospice Care at Holy Name Medical Center’s Villa Marie Claire in Bergen County, New Jersey. Violotti, who at the age of 80 lives at the 20-bed Villa Marie Claire to serve its residents full-time, says the hospice industry needs hospitalists’ help with sort of a rebrand, one that will almost certainly have a positive effect on patient and family satisfaction. “Providers used to stress offering people death with dignity. And if you think about that, who is ever going to choose anything that offers death? Death in any form is still death,” Vialotti said. “So, we really like to focus on offering people life with dignity, giving people back choice, giving them the option to structure their final days, weeks, or months the way they would most like to see it happen."