Literature Review

Y.C. Ho/Helen and Michael Chiang Foundation Fellowship Grant Program now open American Academy of Hospice and Palliative Medicine (AAHPM); Press Release; 3/25/25 We are pleased to announce that the Y.C. Ho/Helen and Michael Chiang Foundation has awarded AAHPM a grant to support fellowship training programs for the 2026-2027 academic year. [This grant] is available to partially support a fellowship training program that operates an adult accredited program offering a pediatric focused hospice and palliative medicine fellowship training program or pediatric hospice and palliative medicine fellowship training program accredited through the Accreditation Council for Graduate Medical Education (ACGME) preparing physicians to practice as a pediatric hospice and palliative medicine (HPM) subspecialist following training. This funding initiative is open to accredited hospice and palliative care fellowship training programs, not to individual applicants. Funding will go to support part of the salary and benefits of a single fellow. The application cycle is open now through Wednesday, April 23 at 5pm CT. Details on funding priorities, eligibility criteria, and the application are available on the AAHPM website. [From the AAHPM site:] One award of $45,000 will be presented for the 2026-2027 academic year with the opportunity to renew for one additional year following an evaluation. [Continue reading ...]

‘Show up and share’: How one UCLA ICU helps patients and staff live with dying Los Angeles Times; by Corinne Purtill; 3/20/25 

Palliative care clinic offers supportive care for patients with end-stage heart failure Yale School of Medicine; by Rachel Martin; 3/25/25 ... Michael Beasley, MD, [Yale] assistant professor of medicine (cardiovascular medicine), and Nora Segar, MD, [Yale] assistant clinical professor (general internal medicine) and director of palliative medicine at the Saint Raphael Campus of Yale New Haven Hospital, recently established a new outpatient clinic to provide dedicated palliative care for people with end-stage heart failure. ... “For many patients with advanced heart failure, hospice care does not meet their needs until very late in their course,” said Segar, an early champion of the clinic. “Instead, by providing early palliative care outside of the hospital, when it’s not a time of crisis, we can help patients accept and cope with their prognosis, manage their symptoms, and continue making plans for the future.” New patients receive longer appointments, which allows the team to hear their stories and start building relationships with them. [Continue reading ...]Editor's note: For all palliative and hospice leaders, we highlight this last statement: "New patients receive longer appointments, which allows the team to hear their stories and start building relationships with them."

Carolyn Hax: Does sibling love justify traveling to abusive mom’s deathbed?The Washington Post, Washington, DC; 3/24/25 Sister asks the letter writer to join her at their dying mom’s bedside — despite their PTSD-inducing childhoods. [The rest of this article may require a subscription to The Washington Post.]Editor's note: Even if you're not able to access the full article, what does this question stir in you? Be aware that many family caregivers (or simply family members) face complex, conflicted relationships with the persons they are tending--or in this case, even considering visiting or not. Be attuned to these common, everyday occurrences that your direct care interdisciplinary team members regularly navigate. What family systems' education and support do you provide for them?

HPNA mourns loss of founding member Hospice & Palliative Nurses Association; Press Release; 3/21/25 The Hospice and Palliative Nurses Association (HPNA) mourns the loss of founding member Madalon O’Rawe Amenta, RN, MN, PhD. Dr. Amenta was inspired to join the hospice movement in the 1970s after having read Elisabeth Kübler-Ross’ On Death and Dying. “Dr. Amenta’s unwavering dedication to hospice and palliative care inspired generations of nurses,” said HPNA President Masako Mayahara, PhD, RN, FAAN, CHPN®, FPCN®. “We are grateful for her leadership, which allowed us to grow our community to nearly 8,000 hospice and palliative care professionals. Her legacy will be honored through our mission to advance nursing expertise in hospice and palliative care through education, advocacy, leadership, and research.” [Continue reading ...]

‘Dying people are incredible teachers’: Hospice nurse leans on personal loss experience to speak about end of life, write children’s books Dayton Daily News, Dayton, OH; by Beth Anspach; 3/20/25 Kim Vesey has experienced more than her share of loss. Her husband, Les, passed away in 2006 of colon cancer. “He died at home with Hospice care,” Vesey said. “Having worked in this area and experiencing it myself, this took it all to a much deeper level and changed my understanding of the process of grief.” ... She was hired for her first Hospice job in 1985. “It’s taught me a lot about life and living and what is important,” she said. “Dying people are incredible teachers.” ... After losing her husband, Vesey continued her work in Hospice care. Then in 2017, her daughter Sarah, who had struggled with severe asthma her entire life, passed away after going into cardiac arrest. She was just 29 years old and left behind a 4-year-old son, Warren. She was also pregnant with her second child. “My experience of losing my daughter shined a light on the struggle for children who are grieving,” Vesey said.“ ... Today, Vesey has published four books with two additional scheduled to be published this year, including a book about losing a beloved pet. ...

Health care system adaptation and resilience during the wildfire crisisJAMA Network; by Attila J. Hertelendy, PhD, Jeremy Maggin, MD, MS, and Gregory Ciottone, MD; 3/19/25 ... Within a span of hours, the Palisades and Eaton fires, propelled by record-breaking Santa Ana winds reaching 150 miles per hour, consumed more than 37,000 acres, destroyed more than 16,000 structures, and claimed 29 lives. All told, greater than 186,000 residents were placed under evacuation orders. ... The experience in Los Angeles County demonstrates the value of maintaining dual-purpose resources: facilities and personnel who can transition between routine operations and emergency response functions. This approach is exemplified by Kaiser Permanente’s successful deployment of mobile health vehicles and the use of clinically trained administrative leaders in direct patient care roles during crisis events. Key elements of successful resource mobilization include:

From heroes to burnout: How we failed our frontline health workers MedPage Today's KevinMD.com, and excerpt from Health Care Nation; by Tom Lawry; 3/15/25 Of all the lessons learned from fighting a pandemic, none was more frightening or important than discovering how dependent the system is on how we treat our doctors, nurses, and frontline caregivers.  They were already in short supply, with burnout on the rise, when the pandemic hit. As multiple waves of COVID-19 variants washed over us, frontline health workers stepped in at great risk and personal sacrifice to care for highly infectious patients. ... Some witnessed more deaths on a double shift than they did in a normal year. They delivered the bad news to families and managed end-of-life care. They were often the last face and warm voice a COVID-19 victim saw and heard. In the end, they not only saved lives but saved the system from total collapse. ... We called them heroes. And we promised to do better in how we treated them once the COVID-19 crisis passed. Promises made should be promises kept. While we continue to talk about workforce burnout using polite terms with concern in our voices, let us be clear: A system with a mission of healing continues to harm in record numbers the very people in short supply who are there to take care of the rest of us. ... [Click on the title's link for more.]

AI scribes: Can technology do more than free doctors from data entry? Penn LDI - Leonard Davis Institute of Health Economics; by Hoag Levins; 3/17/25 Since the widespread adoption of electronic health record (EHR) systems in the 1990s, the health care industry has been on a relentless quest to digitally optimize the doctor-patient interaction. Today, many predict this pursuit will be dramatically changed by the integration of artificial intelligence (AI) into nearly all aspects of EHR systems, transforming patient care and clinical workflows in ever more revolutionary ways. AI-powered EHRs are now theoretically capable of automating administrative tasks, providing real-time clinical insights, personalizing treatment plans, and allowing health care providers to focus more on patient care and less on data entry.

MedPAC recommends Congress tie physician pay to inflation for 2026 Healthcare Dive; by Susanna Vogel; 3/17/25 Dive Brief:

Revamped tool can reliably assess pain symptoms in dementia patients: researchers McKnights Long-Term Care News; by Zee Johnson; 3/17/25 ... A team of researchers reconstructed the End-of-Life Dementia-Comfort Assessment in Dying, or EOLD-CAD, after a multifacility study showed that caregivers could adequately and reliably address a host of pain symptoms seen in end-of-life dementia patients. ... When clinicians working in the SNFs that were part of the trials used the EOLD-CAD, they were able to detect patterns in more than 600 residents that fell into four categories: physical distress, symptoms of dying, emotional distress, and well-being. Common symptoms observed across these categories were restlessness, shortness of breath, choking, gurgling, difficulty in swallowing, fear and anxiety. ...

End-of-life conversations: ‘When they open the door, you have to go in’ Oncology Nursing News; by Pattie Jakel, MN, RN, AOCN; 3/13/25Oncology nurses have a unique relationship with patients that allows for difficult but essential end-of-life conversations, says expert Patricia Jakel, MN, RN, AOCN. Jakel, one of the editors in chief of Oncology Nursing News, emphasized that following up with patients and ascertaining what answers and support they need comes with the close bonds that oncology nurses form with patients with cancer. ... [Jakel describes:] We play a really important role. And sometimes patients ask us difficult questions, and we have to be prepared for it. I remember a lovely young patient I had, she had 2 little girls, and she was very sick. And things weren’t going well for her in the hospital, and she just—she looked up at me and she said, "Am I dying today?" And I thought, "She’s opening the door. She needs to have this conversation.” And I said, “It’s not going to be today, but I think it’s going to be soon.” And she kind of chuckled, because her sister was at the bedside, and she said to her sister, “I need my makeup done. I want my makeup on today, if today’s not the day.” And that took us to a whole conversation about what dying would look like for her.Editor's note: Read and share this significant, sensitive video/article from its source, Oncology Nursing News. What communication education and support do you provide for your nurses? Explore this similar article from Oncology Nursing News, "APPs, Oncologists Work Together for End-of-Life Discussions," 11/2/24.

[International] Healthcare on the brink: Palliative Care Unit and Late Shift The 75th Berlin International Film Festival - Part 7, wsws.org; by Martin Nowak and Bernd Reinhardt; 3/16/25 Two films, the drama Late Shift (Heldin) and the documentary Palliative Care Unit (Palliativstation), featured at this year's Berlin International Film Festival, addressed the current situation in German and Swiss hospitals. The sold-out festival screenings reflected the burning public interest in this topic. This is particularly remarkable bearing in mind that Palliative Care Unit has a running time of more than four hours. ... [In the] documentary Palliative Care Unit by Philipp Döring, shot at the Franziskus Hospital in Berlin, ... [the] camera quietly observes the daily routine, staff consultations and the constant empathy of the head of the ward towards employees and seriously ill patients, who usually spend their last weeks here. The very calm, always discreet images emphasise the necessity of sufficient time for care and reflection when making life-critical decisions. ... How can the highest possible quality of life be achieved? The high ethical standard of treating incurable patients as active human beings ... is admirable and makes a lasting impression throughout the film.