Literature Review

How to live when you know you are dying Equity Atlas; 2/11/25 Living with the knowledge of impending death is an incredibly challenging and emotional experience. Whether facing a terminal illness or a life-threatening situation, the idea of living when you know you are dying can be overwhelming. However, it is possible to find peace, acceptance, and even joy in the midst of such difficult circumstances. In this article, we will explore how to navigate this journey with grace and courage. ... How does one navigate this difficult journey? We turned to professionals in the field for their insights on how to live when you know you are dying.

Kamloops Hospice's Messages of Love Campaign runs all month long Castanet - Kamloops.net, Kamloops, British Columbia, Canada; by Eagle Anderson, 2/9/25 Kamloops residents are being invited to stop by a cafe, grab a cup of coffee and share some positive words as part of Kamloops Hospice’s Messages of Love Campaign, which is running all month. Four local eateries — 5 Bean Brew Bar (Sahali), The Vic, Cafe Motivo, Yew Street — and the Kamloops Hospice will each provide sticky notes, pens and a board for posting. “It’s essentially an awareness campaign,” Kamloops Hospice’s Fund Development Lead Sarah Irvine said. ... Participants are encouraged to write a positive message on each note. They can then keep the note, stick it to a board or give it away. Messages can be written to friends, family, community groups, lost loved ones and even to themselves.

How CNOs can manage change management Health Leaders; by G. Hatfield; 2/10/25 Crisp, clear communication is key for CNOs who are trying to handle their change management processes, says this CNO. ... According to Stefanie Beavers, chief nursing executive at OU Health, and HealthLeaders Exchange member, a key focus of the change management process is solidifying organizational identity.

'It's not about technology or dashboards': What health systems need from IT execs next Becker's Health IT; by Laura Dyrda; 2/4/25 Health system IT leaders are entering a new era of leadership amid transformational technology platform purchases, artificial intelligence integration and cybersecurity advancements. But being the most technically proficient no longer guarantees leaders the top role. ... Healthcare IT leaders can become distracted by the bells and whistles of new technology and move forward without considering the patient experience. ... Staying close to the health system's mission is critical for IT leaders, and [Christopher Hutchins, senior vice president and chief data and analytics officer at Lifepoint Health] ties the technology back to patient care. He prioritizes his teammates and colleagues, listening carefully to what they need. Notable mentions: James Forrester, Chief Technology Officer at University of Rochester (NY) Medical Center; Donna Roach, CIO of University of Utah Health; and Christopher Hutchins, senior vice president and chief data and analytics officer at Lifepoint Health 

Father keeping a promise to son to 'never miss a baseball game' despite entering hospice Fox 13 - Tampa Bay, FL; by Briona Arradondo; 1/30/25 A father diagnosed with cancer left hospice Thursday to spend the evening making final memories with his family on a baseball diamond in Tampa. Family and friends surrounded Steve Uhal and his wife Amy with love and support as he arrived to see his 9-year-old son Charlie play one last game.  ... 

Reflection on the Potomac River Crash Hospice & Palliative Care Today; by Joy Berger, Editor in Chief; 1/30/25We are absorbing unfolding news about Thursday night’s tragic plane and helicopter crash at the Potomac River. As with many of you, I’m flooded with memories of flying in and out of this same airport: gazing out the plane’s window to delight in DC’s historic sites; delighting in the diversity of my fellow travelers and whatever their stories might be. Many of these Washington DC trips were to be with our hospice and palliative colleagues at the (then) NHPCO Conferences or other related meetings. Today, I’m grateful for our safe journeys then. Today, I hope for renewed connections: the joy of each person’s unique life-journey; the relationships we’ve developed in moments at meetings, meals, and follow-up communications; the sacredness of this profound work we are privileged to share. And—with these current Potomac River tragic deaths—we are reminded of icy currents of own traumatic losses. For me, I’m struck with the pains of a beloved family in my childhood’s home church, whose adult son was killed in the 1982 Potomac River plane crash; with the heart-wrenching death of my grandfather when he was killed by a drunk driver; and more. For you? As news continues to unfold, may we treasure anew the unknown measure of our time on this earth. Of our connections with each other—whatever our differences—profit or nonprofit, political, and more. May we sensitively tune into the life-altering traumas carried within those we serve—and the healing compassion we can give. Humbly, Joy

The iatrogenic consequences of medicalising grief: Resetting the research agenda Sociology of Health & Illness: by Sarah Gurley-Green, Lisa Cosgrove, Milutin Kostic, Lauren Koa, and Susan McPherson; published 11/28/25, distributed via Evermore 1/28/25When the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was published in 2013, there was a firestorm of controversy about the elimination of the bereavement exclusion. Proponents of this change and of the proposed “complicated grief” designation believed that this change would help clinicians recognise major depression in the context of recent bereavement. Other researchers and clinicians have raised concerns about medicalising grief. In 2022 “prolonged grief disorder” (PGD) was officially included in the DSM-5-TR in the trauma- and stressor-related disorders section. ... As human rights activists have argued, bereavement support is an inalienable human right, one that is centered on the right to health and well-being, for “bereavement health is as intrinsic to our humanity as any other aspect of health and citizenship” (Macaskill 2022). That is why there are increasing calls for investing in bereavement as a public good and for “cultivat[ing] a bereavement-conscious workforce.” (Lichtenthal et al. 2024, e273). As Lichtenthal notes, it is not only clinicians but also institutions and systems that must “shift bereavement care from an afterthought to a public health priority.”Editor's note: "Iatrogenic" refers to unintentional consequences/condition from a medical intervention. In the hospice context, this means bereavement/grief from the hospice death. How many patients do you serve? The CMS Hospice Conditions of Participation identify "bereavement" and/or "grief" 155 times. What priority do you give to bereavement care before, at and after your patients' deaths?

Stillwater Hospice CFO: A winning recipe for improving rural hospice care Hospice News; by Holly Vossel; 1/23/25 Montana-headquartered Stillwater Hospice has found a successful rhythm to strategic rural-based growth and sustainability. The strategy hinges on building culture, staffing resources and a reputation for quality, according to CFO and Co-founder Chris Graham. Launched in 2017, the hospice company serves predominantly rural-based populations in Montana, northern Wyoming and South Dakota. ... What are the most significant concerns among rural-based hospice providers currently? How have the challenges of rural care delivery evolved in recent years? "Staffing is very hard. You’ve got to find staff who are willing and like to travel because they have a lot of windshield time. It’s also the logistics of remote care. We have patients that live 75 miles or more outside of a town, then once you get there it’s another 20 miles on a dirt road that could be covered in snow and ice. ..." [Click on the title's link to continue reading.]

The number 1 mistake people make when trying to live a meaningful life with zero regrets, from a hospice doctor NBC 7 San Diego, CA; by Dr. Jordan Grumet; 1/24/25... As a hospice doctor, I spend a lot of time with people facing the end of their lives. I've seen firsthand why this belief can lead to anxiety in up to 91% of people at some point in their lives. My response is always the same: You don't find purpose — you create it. It's not about stumbling upon a fully formed sense of purpose. Instead, it's about identifying the inklings in your life that light you up. I call them "purpose anchors" — and they're clues you can use to build a meaningful life with few or no regrets.  ...

DeKalb library to host memorial pillow workshops Jan. 25 Shaw Local News Network, Dekalb, IL; by Kate Santillan; 1/19/25 The DeKalb Public Library will partner with Northern Illinois Hospice to host two workshop sessions for patrons to create pillows out of a loved one’s shirt. ... Participants can create up to two pillows out of a T-shirt or button-down shirt. Seamsters will be available to assist. Attendees should not bring jackets, thick fabrics or denim. Bereavement support and information will be provided.Editor's note: Do you know that healing grief actually begins with "accepting realities" and its later, ongoing "Task of Mourning" is to develop "enduring connections" or "continuing bonds" with the person or thing that has been lost? [J. William Worden, Grief Counseling & Grief Therapy; 5 editions since 1982] Similar memorials have been created by other hospices using the deceased person's clothing (ie., teddy bears, etc.). This simple, practical method can be adapted easily, with years of meaningful connection and generations of storytelling ahead.

CMS Call for Nominations: 2025 CMS Health Equity Award U.S. Centers for Medicare and Medicaid Services; by CMS Health Equity; via CMS email 1/13/25Nominations for the 2025 CMS Health Equity Award are now open to organizations working to advance health equity, showing others how to reduce disparities in health care access, quality, and outcomes. Nominations are due February 18 at 11:59 pm PT.  ... Health equity is defined by CMS as the attainment of the highest level of health for all people, where everyone has a fair and just opportunity to attain their optimal health regardless of race, ethnicity, disability, sexual orientation, gender identity, socioeconomic status, geography, preferred language, and other factors that affect access to care and health outcomes. 

Introduction: ‘Those who have made death their life’The Daily Yonder - Keep It Rural; by Hannah Clark; 1/15/25 Hannah Clark spent six months riding along with the nurses and certified nursing assistants (CNAs) of Hearth Hospice who provide in-home care to those living in Northwest Georgia and Southeast Tennessee. These hospice workers often drive up to a hundred miles a day to visit a handful of patients scattered across the Appalachian landscape in both rural towns and urban centers. What will follow this introductory essay is her photo reportage in three parts, documenting what she has witnessed accompanying these caregivers. The intimate portraits and vignettes show tender moments at different stages towards the end of one’s life. Their beauty lies in the companionship Clark captured in moments of need and vulnerability. 

Hospice centers: Balancing comfort and controversy Crossroads Today, Victoria, TX; by Amaya Norman; 1/9/25 Hospice centers play a critical role in providing care for patients with terminal illnesses, focusing on comfort, dignity, and peace during life's most challenging moments. These centers are designed to support both patients and their families, but public opinions about their services often vary. ... While many see hospice centers as an essential support system offering much-needed relief and care, others express concerns about the quality of services or the emotional toll they can bring to families. These differing perspectives have sparked ongoing discussions about the role and perception of hospice care in society.