Literature Review

The anonymous advantage: How anonymous patient surveys can improve healthcare outcomes Forbes; by Lauren Parr; 1/9/24 When it comes to improving patient care, feedback is the compass that guides healthcare providers in the right direction. But here’s the catch, traditional feedback often fails to capture honest patient opinions due to fear of judgment, privacy concerns and other potential repercussions. This is where anonymous surveys prove to be valuable. Studies have demonstrated that anonymous surveys yield more candid responses, leading to a deeper understanding of patient experiences. This increased transparency fosters trust between patients and healthcare providers, enabling a more collaborative approach to care. Free from fear of judgment or consequences, patients can provide honest feedback, highlighting strengths and identifying areas for improvement. This ultimately leads to better healthcare outcomes.

Human composting is rising in popularity as an earth-friendly life after death CNN; by Ella Nilsen; 12/29/24 The first time Laura Muckenhoupt felt a glimmer of hope after the death of her 22-year-old son Miles was the drive home from the Washington state facility that had turned his body into hundreds of pounds of soil. There was an empty seat in the family pickup truck where Miles should have been sitting. But riding with her husband and daughter on the 12-hour drive home, Laura felt her son’s presence clearly. ... Human composting turns bodies into soil by speeding up “what happens on the forest floor,” according to Tom Harries, CEO of Earth Funeral, the human composting company the Muckenhoupt family worked with. “What we’re doing is accelerating a completely natural process,” Harris told CNN. Human composting is emerging as an end-of-life alternative that is friendlier to the climate and the Earth — it is far less carbon-intensive than cremation and doesn’t use chemicals involved to preserve bodies in traditional burials.

Jimmy Carter, the 39th US president, has died at 100 Associated Press (AP), Atlanta, GA; by Bill Barrow; 12/29/24 Jimmy Carter, the peanut farmer who won the presidency in the wake of the Watergate scandal and Vietnam War, endured humbling defeat after one tumultuous term and then redefined life after the White House as a global humanitarian, has died. He was 100 years old. The longest-lived American president died on Sunday, more than a year after entering hospice care, at his home in the small town of Plains, Georgia, where he and his wife, Rosalynn, who died at 96 in November 2023, spent most of their lives, The Carter Center said. “Our founder, former U.S. President Jimmy Carter, passed away this afternoon in Plains, Georgia,” the center said in posting about his death on the social media platform X. It added in a statement that he died peacefully, surrounded by his family. ...

Increasing awareness of hospice services among Latinos on the border YouTube - Borderzine Reporting across fronteras; features Hospice El Paso; 12/25/24 El Paso's Latino Community is seeing a rise in the use of hospice care ... Hospice in Mexico is a place and so a lot of Hispanics--true Mexicans--feel that you're going to take a loved one out of their home when it comes to hospice care. ... Latino families make up a growing portion of hospice users, reflecting national efforts in bilingual outreach and cultural sensitivity programs I had heard. The term "hospice"--I didn't know I didn't know what it meant. I didn't know what it involved but after my dad was enrolled in hospice ... I realized [that it] provided emotional and medical support ... [and] comfort that respects their cultural values. We were very fortunate that the individuals that came in that met with us beforehand and after were bilingual. I noticed that they spoke in English and in Spanish so that they would look between myself, my mom my sister to make sure we were nodding, agreeing, listening, hearing. I think that made a difference. It was very comforting. My dad at one point even said, "They gave me a bath but they didn't get the bed wet." That was our big joke and the fact that he was very comfortable. As more Hispanic families turn to hospice they're finding it offers not just medical care, but a way to honor their loved ones with dignity respect and familiar comforts in their final days.Editor's note: For data on the Hispanic population in the areas you serve, click here for the 

An innovative take on transforming hospice spaces with Buildner for better well-being Arch Daily; 12/19/24 Buildner has announced the results of its Hospice - Home for the Terminally Ill competition, the third in a series of architectural idea challenges focused on creating compassionate spaces for individuals facing terminal illnesses. This competition encouraged architects to move beyond traditional medical models, designing environments that prioritize comfort, dignity, and community. Participants were tasked with envisioning a facility for up to 15 visitors and five staff members, incorporating essential spaces such as a library-equipped common area, gathering room, chapel, kitchen, dining area, nurse's station, and therapy room for psychological support. Designs were grounded in theoretical sites within participants' home countries, allowing for the integration of local cultural, social, and environmental contexts. The competition highlighted how innovative, thoughtful design can provide solace and strength during life's most difficult moments. ...

Watch: ‘Going It Alone’ — A conversation about growing old in AmericaKFF Health News; by Judith Graham; 12/11/24 KFF Health News’ “Navigating Aging” columnist, Judith Graham, spent six months this year talking to older adults who live alone by choice or by circumstance — most commonly, a spouse’s death. They shared their hopes and fears, challenges, and strategies for aging solo. Graham moderated a live event on Dec. 11, hosted by KFF Health News and The John A. Hartford Foundation. She invited five seniors ranging in age from 71 to 102 and from across the country — from Seattle; Chicago; Asheville, North Carolina; New York City; and rural Maine — to talk candidly about the ways they are thriving at this stage of life.

Fabric artist's new exhibition in Historic Overtown sheds light on 41 years of wrongful incarcerationThe Miami Times; by Morgan C. Mullings; 12/10/24Whether volunteering in hospice, designing the prison magazine or leading the drama team, Gary Tyler lived an eventful life in prison. After 41 years of living in a cell he didn’t deserve to occupy, he found new life as an artist.  “Grief Not Guilty: Reclaiming My Time” features Tyler’s original quilts, photos of his mother and floral wreaths created by Quantavia Love. The exhibit speaks to the resilience of the human spirit, and the importance of recognizing the names and faces of those yet to be freed. It is on display now at the Black Police Precinct and Courthouse Museum in historic Overtown, a space dedicated to Black police officers of the pre-civil rights era and primed for discussions on the U.S. prison system. ...  After an angry anti-busing mob attacked him and other Black students in St. Charles Parish, Louisiana, he was destined to live and die in prison. ... That prison would be one of the most notorious in the U.S. Louisiana State Penitentiary. ... Also known as Angola, Angola Plantation, The Farm, or Alcatraz of the South, Louisiana State Penitentiary is the largest maximum security facility in the country. Tyler refused to do the manual labor required at this prison farm, calling it “slave work.” 

Embracing well-being at the end of life Phaneuf Funeral Homes & Crematorium; by Phaneuf; 12/5/24At the 29th Annual Fall Hospice & Palliative Care Conference, Dr. Ira Byock delivered a thought-provoking keynote challenging the misconceptions surrounding hospice and palliative care and illuminating a brighter path forward for individuals, families, and caregivers. ... Far too often, hospice and palliative care services are seen as a last resort or equated with “giving up.” Dr. Byock pushed back against this notion, emphasizing that hospice and palliative care are not about death but about life. “Hospice and palliative care are about living as fully and as well as possible through the end of human life,” Dr. Byock said. Rather than signifying the end of healthcare options, palliative care provides comfort, dignity, and even joy for individuals facing life-limiting conditions. Dr. Byock shared that families often express relief and gratitude after beginning hospice care, lamenting that they hadn’t learned about it sooner. These experiences highlight a common issue: Hospice care is often introduced too late, preventing families and patients from reaping its full benefits. 

Marin County Office of Education, Novato Unified School District & By the Bay Health partner to address healthcare talent shortage PR Newswire, San Rafael, CA and Novato, CA and Larkspur, CA; by By The Bay Health; 12/3/24The Marin County Office of Education (MCOE), the Novato Unified School District (NUSD), and By the Bay Health, Northern California's largest independent nonprofit hospice provider, are joining forces to launch a strategic workforce initiative to address the growing healthcare talent shortage in the County. Starting in Spring 2025, MCOE, NUSD, and By the Bay Health will pilot a new Career Technical Education (CTE) course at San Marin High School in Novato to introduce students to healthcare careers. The CTE course, Introduction to the World of Healthcare, will be the first high school course of its kind in the County designed to provide a comprehensive introduction to career opportunities in the healthcare field, including a focus on careers in community-based care in the home. An elective for 11th and 12th grade students, the curriculum will cover a range of topics from healthcare professions to medical ethics, communication, public health, and emerging trends in healthcare.

People who genuinely afraid of getting old usually display these 8 behaviors (without realizing it) Baseline; by Lucas Graham; 11/25/24 One might think aging is all about the wrinkles, the sagging skin, and that stubborn gray hair that won’t stay hidden. But in reality, it’s not those things that get under your skin. It’s the quiet, creeping fear of what aging really means. Will I still matter? Am I losing my edge? We all have moments where we cling to something that keeps us feeling young, whether it’s trying to keep up with the latest slang ... or avoiding a birthday candle count that feels a little too honest. But what if these subtle habits are really signs of something deeper? Let’s unpack the little things we do when aging feels like a four-letter word, and see what they tell us about our relationship with time.

A guiding light: hospice care social workers provide support for dealing with the idea of death Scot Scoop - Carlmont High School's Student News Site; by Rei Baxter; 11/20/24 Death is a natural part of life, yet it is also terrifying. Being young and dying is especially difficult to accept. Regina Tong, a hospice social worker, has to deal with difficult cases. "The hardest parts for me are the young patients, like the moms with children, or younger people who are just not ready to die, but they get this terminal illness, and their parents are grieving. Those are really hard for me,” Tong said. ... Before starting in hospice, Tong worked in nursing homes and palliative care patients, who are people that aren’t quite hospice level but have chronic illnesses. However, when her mom died, she realized that she needed to stretch her boundaries and learn more about something she was uncomfortable with: death. “That’s why I’m here. The more I work in hospice, the more I realize how important inner peace is. I see a lot of patients who are at the end of their lives, and they really struggle with the idea of death, even though it’s a natural process of everything that has a life. So people who resisted end up suffering so much towards the end,” Tong said. Tong’s work doesn’t just help her patients and their families; it helps her connect more with herself. ...Editor's note: Rei Baxter--this article's author--is a high school senior. This beautiful article gifts us with a prelude into Thanksgiving week, as we gather with intergenerational families and tune into what matters most.

Dr. Andrew Mayo: Hospice leaders face ‘delicate balance’ in today’s regulatory, workforce climateHospice News; by Holly Vossel; 11/12/24Today’s hospice leaders need to take a wide view into the range of challenges facing their interdisciplinary care teams, according to Dr. Andrew Mayo, chief medical officer at St. Croix Hospice. ... The Minnesota-headquartered hospice provider is a portfolio company of the private equity firm H.I.G. Capital. ...He recently sat down in a Hospice News Elevate podcast to discuss what pulls workers towards the end-of-life care space — and the factors that are leading them away. While competitive compensation and work-life balance are important priorities for hospice workers, organizational culture is one of the most significant retention factors, Mayo stated. ... “One of the most important things is culture. As you grow as a hospice, I think [it’s about] paying particular attention to culture, because people want to work for an entity, a health care provider that has their heart in the right place. That goes a long way for retaining employees … Maintaining that culture is an easy thing to say, but a very difficult thing to do.”

Local veteran continues to serve by visiting hospice veterans Lundington Daily News, Lundington, MI; by Shanna Avery; 11/9/24 With love of service to their country, some veterans continue to find ways to serve and make a difference, and Ludington veteran Dick Gregaitis does just that when he visits other veterans as they approach the end of their lives. Gregaitis has been volunteering with Hospice of Michigan in the local area for eight years, where he visits veteran patients. Gregaitis served in the U.S. Navy from Aug. 1962 to 1965, then the U.S. Air Force until he retired in 1986 as senior master sergeant. Gregaitis said he has been around this area, and met his wife of 55 years at Round Lake. He traveled all over while in the military. It is through his own experiences, he shares a bond with other veterans. “To me, it is a way to give back to the community,” he said. “A lot of veterans don’t get people stopping by or talking. They like someone there that knows about the military. I even designed a badge that says, ‘military outreach.’ It is a win/win. I like to do it and I have the time to do it, and they like someone to say hi to.”