Literature Review

World Hospice and Palliative Care Day Theme 2025 ehospice; by the Worldwide Hospice and Palliative Care Alliance (WHPCA) team; 2/18/25 Every year the second Saturday of October marks World Hospice and Palliative Care Day (WHPCD). This year WHPCD will be on Saturday 11 October 2025. Each year the WHPCD campaign has a theme that is carefully thought through and selected by the Worldwide Hospice and Palliative Care Alliance (WHPCA) team.  The theme for 2025 is Achieving the Promise: Universal Access to Palliative Care.... More than 60 million people both adults and children need palliative care services every year with over 80% living in low-middle-income countries (LMIC’s) countries. WHPCA has estimated that over half of the need for palliative care is being met in high-income countries while only 4% of the bigger need is met in LMICs, a continuing and shocking disparity.Editor's note: What can you do to help "Achieve the Promise" in your corner of our world? Click here for more information from ehospice/WHPCA.

The journey to elite leadership  with Mike Harbour Teleios Collaborative Network (TCN); podcast by Chris Comeaux; 2/26/25 In this episode of the Anatomy of Leadership podcast, Chris Comeaux and Mike Harbour explore the themes of leadership, personal growth, and the essence of elite leadership.  Mike shares his insights on perseverance, self-mastery, and evaluating experiences to foster growth.  They discuss the concept of elite leadership, emphasizing the need for integrity, vision, and empowerment in leadership roles. The conversation culminates in practical advice for aspiring leaders on developing traits contributing to elite leadership.  Then, it highlights Mike’s unique upcoming Elite Leadership Summit in Colorado in April, which aims to foster growth and connection among leaders in a unique and picturesque setting. Join us; many leadership pearls of wisdom are packed into this episode. 

‘Global problem’: Numerous factors, biases contribute to overtreatment at end of life Healio; by Josh Friedman; 2/26/25 Nathan I. Cherny, MD, has worked all around the world. At every stop — from Australia to Israel, and Memorial Sloan Kettering Cancer Center in between — he has seen people with cancer receive overly aggressive treatment at the end of life. ... In a review published in ESMO Open, Cherny and a cohort of multinational colleagues highlighted numerous reasons why overtreatment occurs among patients approaching the end of life, ... They listed more than 20 contributing factors, including desire for control of the cancer, denial and anger, family pressure and hope preservation. The two factors that contribute most to overtreatment are optimism bias and the “counterphobic determination to treat,” which involves clinicians having a difficult time introducing the suggestion of palliative care revert to offering further treatments, Cherny said. ... Responsibility for decisions does not need to fall solely on oncologists, Cherny added. Palliative care physicians, social workers, chaplains and others can be part of a team to assist patients with their choices. ... The number of patients who are overtreated differs at each institution. “Each institution has its own culture of care,” Cherny said. Editor's note: This article puts forth significant insights for all palliative and hospice clinicians, interdisciplinary teams, and palliative/hospice executive leaders. Apply Cherny's to your referral sources: "Each institution has its own culture of care." Apply these findings to your own palliative and hospice services. 

What is death positivity? Phaneuf Funeral Homes & Crematorium, New Hampshire & Vermont; by Phaneuf; 2/19/25 Death positivity is a growing movement that challenges the long-held taboos surrounding death. Rather than shying away from the subject, death positivity encourages individuals and communities to discuss mortality openly. It’s about accepting death as a natural part of life, reducing the fear and stigma often associated with it, and using that acceptance as a foundation for better end-of-life planning and living more fully. Historically, many cultures—including those in the New England region—often treated death as a private, somber affair. Today, however, a new narrative is emerging: one that celebrates the life lived, honors the memories left behind, and helps families make informed, compassionate decisions about the future.

This 1970s TV actor left his entire – surprisingly large – fortune to the state that made him world famous Celebrity Net Worth; by Paula Wilson; 2/12/25 When you pass away, what will be your legacy? ... For 1970s actor Jack Ward, greatness meant leaving behind a gift. A surprisingly large gift that would keep on giving for many years after he was gone, benefitting the people of the state that made him famous… and rich… In 1968, he began appearing as Steve McGarrett on the cop show, "Hawaii 5-0." The popular cop show ran for the next twelve years. ... By the time Jack died in 1998, they had given the [Hawaii Community Foundation] $750,000. ... [Among the foundation's recipients ...] Hospice Hawai'i and St. Francis Hospice have been bolstered by the Lord Fund, .... The stable annual support has helped hospice programs expand outreach and grief counseling services for island residents. 

Teleios announces completion of Boomer End-of-Life Care Survey Teleios Collaborative Network (TCN), Hendersonville, NC; by Tina Gentry; 2/12/25 Teleios Collaborative Network (TCN) announced the completion of its survey titled “What Baby Boomers Want in End-of-Life Care.” This survey aimed to gain insights into the healthcare preferences and needs of the Baby Boomer generation as they age, transition into retirement and seek end-of-life care. On February 5th, TCN’s Visioneering Council, which comprises member CEOs, C-Suite staff, and marketing managers, gathered to discuss the survey results and explore the best ways to utilize this information to enhance patient care. Before reviewing TCN’s survey findings, Matthew Wilkinson from NPHI and Bill Keane from Emergence presented results from NPHI’s “Aging and End of Life Care Survey.” Additionally, Dr. Terry Fulmer provided insights from the John A. Hartford Foundation’s survey titled “What Older Adults Want from Health Care.” TCN President and CEO Chris Comeaux said, “Over my career, we have been honored to care for the greatest generation. Now that we are at the dawn of the baby boomers being the majority of those we will be honored to care for as they enter their twilight years. Knowing what they expect, what they care about, what they do not want to worry about, all of this is such important data to ensure hospice over the next 30 years is providing an even greater service to patients and families. That’s what this study was looking to accomplish. It’s a great start in that direction.” 

How to live when you know you are dying Equity Atlas; 2/11/25 Living with the knowledge of impending death is an incredibly challenging and emotional experience. Whether facing a terminal illness or a life-threatening situation, the idea of living when you know you are dying can be overwhelming. However, it is possible to find peace, acceptance, and even joy in the midst of such difficult circumstances. In this article, we will explore how to navigate this journey with grace and courage. ... How does one navigate this difficult journey? We turned to professionals in the field for their insights on how to live when you know you are dying.

'We’re seeing these struggles.' Rainbow works to support end-of-life caregivers Daily Jefferson County Union, Jefferson, WI; by Hannah Brock; 2/10/25 Rainbow Community Care is facing a growing need in Dodge and Jefferson counties: the overwhelming burden placed on caregivers, both family members and healthcare workers, as they navigate end-of-life care. “There’s this need in the community to support caregivers, where whoever they are,” said Carol Brown, president and CEO of Rainbow Community Care. The backbone of the healthcare system isn’t just hospitals or insurance plans—it’s the unpaid, often invisible labor of family caregivers. ... The newest initiative, the respite care program, is being designed to give caregivers much-needed breaks. Many family caregivers go months—or even years—without a full night’s rest, a doctor’s visit for themselves, or even an afternoon off, according to Rainbow Community Care. To help address this, Rainbow Community Care secured the necessary funding for the program. 

How CNOs can manage change management Health Leaders; by G. Hatfield; 2/10/25 Crisp, clear communication is key for CNOs who are trying to handle their change management processes, says this CNO. ... According to Stefanie Beavers, chief nursing executive at OU Health, and HealthLeaders Exchange member, a key focus of the change management process is solidifying organizational identity.

'It's not about technology or dashboards': What health systems need from IT execs next Becker's Health IT; by Laura Dyrda; 2/4/25 Health system IT leaders are entering a new era of leadership amid transformational technology platform purchases, artificial intelligence integration and cybersecurity advancements. But being the most technically proficient no longer guarantees leaders the top role. ... Healthcare IT leaders can become distracted by the bells and whistles of new technology and move forward without considering the patient experience. ... Staying close to the health system's mission is critical for IT leaders, and [Christopher Hutchins, senior vice president and chief data and analytics officer at Lifepoint Health] ties the technology back to patient care. He prioritizes his teammates and colleagues, listening carefully to what they need. Notable mentions: James Forrester, Chief Technology Officer at University of Rochester (NY) Medical Center; Donna Roach, CIO of University of Utah Health; and Christopher Hutchins, senior vice president and chief data and analytics officer at Lifepoint Health 

Father keeping a promise to son to 'never miss a baseball game' despite entering hospice Fox 13 - Tampa Bay, FL; by Briona Arradondo; 1/30/25 A father diagnosed with cancer left hospice Thursday to spend the evening making final memories with his family on a baseball diamond in Tampa. Family and friends surrounded Steve Uhal and his wife Amy with love and support as he arrived to see his 9-year-old son Charlie play one last game.  ... 

Reflection on the Potomac River Crash Hospice & Palliative Care Today; by Joy Berger, Editor in Chief; 1/30/25We are absorbing unfolding news about Thursday night’s tragic plane and helicopter crash at the Potomac River. As with many of you, I’m flooded with memories of flying in and out of this same airport: gazing out the plane’s window to delight in DC’s historic sites; delighting in the diversity of my fellow travelers and whatever their stories might be. Many of these Washington DC trips were to be with our hospice and palliative colleagues at the (then) NHPCO Conferences or other related meetings. Today, I’m grateful for our safe journeys then. Today, I hope for renewed connections: the joy of each person’s unique life-journey; the relationships we’ve developed in moments at meetings, meals, and follow-up communications; the sacredness of this profound work we are privileged to share. And—with these current Potomac River tragic deaths—we are reminded of icy currents of own traumatic losses. For me, I’m struck with the pains of a beloved family in my childhood’s home church, whose adult son was killed in the 1982 Potomac River plane crash; with the heart-wrenching death of my grandfather when he was killed by a drunk driver; and more. For you? As news continues to unfold, may we treasure anew the unknown measure of our time on this earth. Of our connections with each other—whatever our differences—profit or nonprofit, political, and more. May we sensitively tune into the life-altering traumas carried within those we serve—and the healing compassion we can give. Humbly, Joy

The iatrogenic consequences of medicalising grief: Resetting the research agenda Sociology of Health & Illness: by Sarah Gurley-Green, Lisa Cosgrove, Milutin Kostic, Lauren Koa, and Susan McPherson; published 11/28/25, distributed via Evermore 1/28/25When the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was published in 2013, there was a firestorm of controversy about the elimination of the bereavement exclusion. Proponents of this change and of the proposed “complicated grief” designation believed that this change would help clinicians recognise major depression in the context of recent bereavement. Other researchers and clinicians have raised concerns about medicalising grief. In 2022 “prolonged grief disorder” (PGD) was officially included in the DSM-5-TR in the trauma- and stressor-related disorders section. ... As human rights activists have argued, bereavement support is an inalienable human right, one that is centered on the right to health and well-being, for “bereavement health is as intrinsic to our humanity as any other aspect of health and citizenship” (Macaskill 2022). That is why there are increasing calls for investing in bereavement as a public good and for “cultivat[ing] a bereavement-conscious workforce.” (Lichtenthal et al. 2024, e273). As Lichtenthal notes, it is not only clinicians but also institutions and systems that must “shift bereavement care from an afterthought to a public health priority.”Editor's note: "Iatrogenic" refers to unintentional consequences/condition from a medical intervention. In the hospice context, this means bereavement/grief from the hospice death. How many patients do you serve? The CMS Hospice Conditions of Participation identify "bereavement" and/or "grief" 155 times. What priority do you give to bereavement care before, at and after your patients' deaths?