Literature Review

All posts tagged with “Clinical News | Advanced Illness Management News.”



Major tuberculosis outbreak hits Kansas City area

01/30/25 at 03:15 AM

Major tuberculosis outbreak hits Kansas City area U.S. News & World Report; by Hannah Lang; 1/29/25 An outbreak of tuberculosis in the Kansas City area has grown into one of the largest ever recorded in the United States, with dozens of active cases of the infectious disease reported, according to health officials. As of Jan. 24, 67 active cases of tuberculosis, or TB, had been reported in Wyandotte and Johnson counties in Kansas. The outbreak began last year, the Kansas Department of Health and Environment said on its website. It did not specify a source of the outbreak. ... Tuberculosis replaced COVID-19 as the top cause for infectious disease-related deaths in 2023, according to a World Health Organization report published in October, highlighting challenges in the global effort in eradicating the disease.

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How a St. Louisan helps her community navigate death by filling out advance directives

01/30/25 at 03:00 AM

How a St. Louisan helps her community navigate death by filling out advance directives NPR - St. Louis on the Air; by Jada Jones; 1/28/25 When Vivial Lopez’s grandmother was on life support, her family was faced with many difficult decisions. Her grandmother did not have an advance directive, so her family did not know her final wishes. The experience of navigating her grandmother’s end-of-life plan without any direction led Lopez to advocate for families to prepare advance directives - especially those in Black and brown communities. Approximately only on ein three adults complete an advance directive for end-of-life care. Lopez works with the Gateway End-of-Life Coalition to empower members of the St. Louis community to navigate death through quality end-of-life care.  Editor's note: Click here for AARP - Find Advance Directives Forms by State, also available in Spanish.

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Palliative care may improve quality of life in esophageal cancer

01/29/25 at 03:15 AM

Palliative care may improve quality of life in esophageal cancer Cure; by Tim Cortese; 1/27/25 Palliative care consultations helped patients with esophageal cancer at end-of-life experience better quality of life and less financial strain by reducing the need for intensive interventions, according to a poster presented at the 2025 ASCO Gastrointestinal Cancers Symposium. The mean length of hospital stay was 7.5 days (plus or minus 11.3 days) for patients who received palliative care and 8.9 days (plus or minus 14.9) for those who didn’t; and total charges were $97,879 (plus or minus $195,868) and $146,128 (plus or minus $321,830), respectively. Patients who received palliative care consultation had a Charlson Comorbidity Index of 9.4 (plus or minus 3.3) versus 9.1 (plus or minus 3.5) for patients who did not.

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What can we learn from the dying?

01/29/25 at 03:00 AM

What can we learn from the dying? Newscastle's News Letter Journal (NLJ), Newcastle, WY; by Kelly Evans-Hullinger, MD; 1/26/25 For the last five years, I have had the great privilege of serving my local health system as Medical Director for Home Hospice. Every week I sit in a meeting with the multidisciplinary caretakers on this team ... Patients facing their own deaths want to talk about their lives. Our staff frequently tries to facilitate what they call a “life review” in which a patient can openly talk about their childhood, family, career, service, and sometimes their regrets. This is therapeutic for the dying patient and their loved ones.  ... I have recently thought about this particular human need – to reflect and remember one’s life. I take this as a reminder to both seek those stories from my own loved ones (I wish I had asked my grandmother more questions about her life) and, perhaps, to tell and write about the things in my own life I would want to be remembered after I am gone. For if there is another thing I’ve learned serving patients on hospice, it is that my death is also inevitable; but, I think, life’s finality is what gives it beauty and meaning. 

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You’re not imagining it. The ‘quad-demic’ is making everyone sick.

01/29/25 at 03:00 AM

You’re not imagining it. The ‘quad-demic’ is making everyone sick. New Jersey Advance Media; by Jackie Roman; 1/27/25 A quadruple threat of viruses is driving up emergency room visits and hospital admissions across the United States, including in New Jersey. Public health experts warn a “quad-demic” — a contagious combination of COVID-19, influenza, RSV and norovirus — has increased pressure on New Jersey hospitals this winter. Emergency department visits and hospital admissions remain elevated for COVID-19, influenza, and RSV, according to the state’s latest respiratory illness surveillance report. ... The Centers for Disease Control and Prevention estimates that there have been at least 16 million illnesses, 190,000 hospitalizations, and 8,300 deaths from flu so far this season. Thirty-one of those deaths were among children, according to the CDC. [Click on the title's link for more data and a national map, with updates by the CDC on 1/22/25.] 

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Health equity guide aims to improve care for Black patients with serious illnesses

01/29/25 at 03:00 AM

Health equity guide aims to improve care for Black patients with serious illnesses Healio; by Jennifer Byrne; 1/28/25 Black individuals in the U.S. with serious illnesses receive disproportionately poor pain management and health care communication, compared with white individuals, a focus group led by the Center to Advance Palliative Care showed. Black individuals with these illnesses — such as cancer, heart failure or dementia — also experience higher family caregiver burden, findings showed. To address these inequities, the Center to Advance Palliative Care (CAPC) issued a comprehensive guide titled, “Advancing Equity for Black Patients with Serious Illness.”

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Palliative care is essential for seriously ill patients—at any age

01/28/25 at 03:00 AM

Palliative care is essential for seriously ill patients—at any ageAMA (American Medical Association); by Kevin B. O'Reilly; 1/27/25 The AMA House of Delegates has adopted new policies outlining physicians’ ethical obligation to provide or seek optimal palliative care for patients with serious illnesses who can benefit from comprehensive management of pain and other distressing symptoms—not only those with terminal illnesses or on the precipice of death. “Physicians have clinical ethical responsibilities to address the pain and suffering occasioned by illness and injury and to respect their patients as whole persons,” says one of the new policies adopted at the latest AMA Interim Meeting, held in Lake Buena Vista, Florida. “These duties require physicians to assure the provision of effective palliative care whenever a patient is experiencing serious, chronic, complex or critical illness, regardless of prognosis.” 

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Former hospice physician alleges retaliation against nonprofit healthcare provider

01/28/25 at 03:00 AM

Former hospice physician alleges retaliation against nonprofit healthcare provider Northern California Record; by Northern California Record State Court; 1/23/25 In a gripping legal battle that raises questions about medical ethics and employee rights, a former hospice physician has filed a lawsuit against his previous employer, alleging wrongful termination and retaliation. The complaint was lodged by Kamaldip Ghei in the Superior Court of California, County of San Francisco, on January 10, 2025, targeting Sutter Visiting Nurse Association and Hospice dba Sutter Care at Home. ... Ghei claims he was wrongfully terminated after raising concerns about the organization's practices regarding patient care. Specifically, he alleges that he was pressured to keep patients in hospice care even when it was not medically justified. ...

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Children’s book written by Manheim Township mother finally published 3 years after she died of cancer [video]

01/28/25 at 02:00 AM

Children’s book written by Manheim Township mother finally published 3 years after she died of cancer [video] LNP Lancaster Online, Lancaster, PA; by John Walk; 1/27/25 As she battled a rare sarcoma cancer over the last two years of her life, Manheim Township resident Ginny McCreary struggled to find a children’s book she could read to her two young daughters to help them better understand what she was going through. So McCreary wrote the book herself, sometimes on a smartphone while laying in bed late at night, ... McCreary died Aug. 15, 2021. She was 34. She left behind a self-published manuscript of the children’s book that sat idle for about two years but was not forgotten. ... The book has also made its way inside four Hospice & Community Care locations in Lancaster as well as Penn Medicine’s Ann B. Barshinger Cancer Institute in East Hempfield Township. [Video with Ginny's mother] "I'd love to get it to some cancer centers and hospice centers ..." [Click on the title's link for more information.]

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Free Death Cafés provide a venue for difficult conversations

01/22/25 at 03:00 AM

Free Death Cafés provide a venue for difficult conversations The Northern Virginia Daily. Stephens City, VA; by Brian Brehm; 1/20/25... Blue Ridge Hospice, in partnership with Bowman Library, wants to spark the death-related conversations that many people want to have but are comfortable initiating. Starting this month, the two organizations will be hosting a Death Café on the fourth Thursday of every other month. ... According to a media release from Blue Ridge Hospice, “Death Café is not a grief support group or a counseling session, but rather a casual and welcoming space for people to reflect on death-related topics, with the aim of helping us live life more fully. Whether you’re curious, thoughtful or seeking meaningful conversation, come as you are and engage in this judgment-free, agenda-free discussion.”

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‘No One Dies Alone': How KMOX's Dave Glover turned personal loss into a mission of hope

01/21/25 at 03:00 AM

‘No One Dies Alone': How KMOX's Dave Glover turned personal loss into a mission of hope NBC 5, St. Louis, MO; by Mike Bush; 1/19/25 For 25 years, Dave Glover's voice has been a familiar presence on KMOX radio, but it was a personal tragedy that led him to his most meaningful role yet – as a volunteer bringing comfort to those in their final hours. ... While spending countless hours at his mother's bedside, Glover discovered something remarkable – an organization called NODA (No One Dies Alone). When his family was exhausted from their bedside vigil, the nursing staff told them, "You need to go home. And we have this organization of volunteers, called NODA." Julie Strassman, manager of Support Services with Bethesda Hospice Care, explains NODA's mission: ...

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Woman reveals terminally ill mom asked for just 'one thing' before passing

01/21/25 at 02:00 AM

Woman reveals terminally ill mom asked for just 'one thing' before passing Newsweek; by Jack Beresford; 1/17/25 A terminally ill woman asked for "one thing" from her adult daughter before she died: to let her be her mom one last time. ... "I had a torn meniscus in my knee that I had been putting off, hoping it would improve, but it was only getting worse," Johnson said.  ... [The mom] told her daughter: "I'm going downhill, and I know the end is coming, and if you don't hurry up and take care of this knee, then I'm gonna miss taking care of you in your recovery." ... "She didn't want me going through it without her," Johnson said. "She had already gone on hospice, and all treatments for her cancer had stopped. So, I called my orthopedic surgeon and told him I was ready to get it fixed. I was scheduled just a few days later." [Johnson's mom] cooked and cleaned despite being in a considerable amount of pain herself. She even slept in a chair by her daughter's bedside. That was her way of showing she cared.

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US dementia cases projected to double within 40 years

01/20/25 at 03:00 AM

US dementia cases projected to double within 40 years Medscape Medical News; by Pauline Anderson; 1/13/25 The number of US adults who will develop dementia each year is projected to increase from approximately 514,000 in 2020 to about 1 million in 2060, new research shows. In addition, the lifetime risk of developing dementia after age 55 is estimated at 42%. The research showed that the relative growth in dementia cases is particularly pronounced for Black adults. These new findings researchers say, “highlight the urgent need for policies that enhance healthy aging, with a focus on health equity.”

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Philips recalls remote cardiac monitoring software after 2 deaths

01/16/25 at 03:00 AM

Philips recalls remote cardiac monitoring software after 2 deaths Modern Healthcare; by Lauren Dubinsky; 1/14/25 Philips is recalling its remote cardiac monitoring software, which has been associated with 109 reported injuries and two reported deaths, according to the Food and Drug Administration. The agency labeled the action a Class I recall, its most serious designation. ... The recall is related to the company’s Monitoring Service Application, which processes and transmits symptomatic and asymptomatic cardiac events in electrocardiogram data received from the Mobile Cardiac Outpatient Telemetry device. The company and its subsidiary Braemar Manufacturing discovered that the software was not properly handling certain EKG readings between July 2022 and July 2024.

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How poor communication is killing patients and burning out doctors

01/16/25 at 02:15 AM

How poor communication is killing patients and burning out doctors Medpage Today's KevinMD.com; by Pamela Buchanan; 1/14/25 This week alone, I had two particularly heart-wrenching encounters [as an Emergency Room physician]: A 65-year-old man with metastatic lung cancer, convinced his shortness of breath was just pneumonia. When I explained the progression of his disease, he was shocked. No one had told him that his cancer was likely incurable. A 97-year-old woman brought in for “failure to thrive.” She was frail, pale, and not eating—classic signs of the final stages of metastatic cancer. When I suggested hospice care, she seemed blindsided, as if this reality was completely new to her. Both cases highlight a troubling trend: Patients often come to the ER not just for care, but for clarity. They don’t understand their diagnosis, prognosis, or treatment plan. ...

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Guidelines for evaluating, diagnosing, and disclosing dementia published by Alzheimer’s Association

01/16/25 at 02:10 AM

Guidelines for evaluating, diagnosing, and disclosing dementia published by Alzheimer’s Association Practical Neurology; 1/14/25 The Diagnostic Evaluation, Testing, Counseling, and Disclosure Clinical Practice Guideline (DETeCD-ADRD CPG) Workgroup, convened and funded by the Alzheimer’s Association, has developed new recommendations for clinicians to use when evaluating patients with possible Alzheimer disease (AD) or AD and related dementias (ADRD). An executive summary of the recommendations for use in primary care and other practice settings was published in Alzheimer’s & Dementia, along with a companion article summarizing specific guidance for specialists. The Workgroup included representatives from  primary, specialty, subspecialty, long-term, and palliative care disciplines as well as the fields of health economics and bioethics.  Editor's note: Click for open access to the Alzheimer's Association clinical practice guideline ..., executive summary of recommendations for primary care. 

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Hospice of the Chesapeake expands inpatient care with high-flow oxygen therapy

01/15/25 at 03:00 AM

Hospice of the Chesapeake expands inpatient care with high-flow oxygen therapy Southern Maryland News Net; by Hospice of the Chesapeake; 1/13/25 Hospice of the Chesapeake is proud to announce the addition of high-flow oxygen therapy to its inpatient care centers, enhancing the quality of care for patients with complex respiratory needs. ... High-flow oxygen therapy is designed to deliver precise oxygen levels, improving breathing efficiency and overall comfort for patients. ... “Adding high-flow oxygen therapy to our inpatient care centers represents our commitment to providing comprehensive, patient-centered care,” said Dr. Sonja Richmond, Vice President of Medical Affairs & Hospice Medical Director. “This advancement enables us to better meet the needs of our patients and their families during a challenging time.”

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Home … where we all want to be

01/14/25 at 03:00 AM

Home … where we all want to be The Journal; Dr. Sarah Phillips, Medical Director Hospice of the Panhandle; 1/12/25 Two days before Christmas, I arrived at the home of a patient who had been recently admitted to Hospice services. ... [Story of the patient being on a ventilator in a hospital.] This courageous and self-determined woman expressed the desire to be free from pain, suffering, and the complications and progression of her disease. Knowing that the ventilator was life-sustaining and essentially breathing for her, she made the decision to stop it. To ensure her comfort during discontinuation of the ventilator, the hospice team was present before, during, and after the procedure. Medications were used to ease shortness of breath, pain, and anxiety. ... “It’s a Wonderful Life” was playing on the TV, the Christmas tree was lit. I looked over and see the daughter wiping away her mother’s tears. Each reassured the other that everything will be OK and that they are at peace with this decision. As the medications took effect, the patient drifted off to sleep. The ventilator was stopped. Next, something happens that I will never forget. The daughter leans in and whispers to the patient, “Mom, the ventilator is off now, you are back in total control. This was profound to me on many levels. It certainly spoke to the power and importance of autonomy, the ability to make independent decisions that are aligned with one’s values and goals. ... Despite working in end-of-life care for over a decade, I still have these moments of being overwhelmed by the human spirit.

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My husband almost died. When I asked his doctor for help, I was appalled by the insensitive response.

01/14/25 at 03:00 AM

My husband almost died. When I asked his doctor for help, I was appalled by the insensitive response. HuffPost; by Carrie Severson; 1/13/25 ... The physician’s assistant came in and looked at Gavin [the author's husband]. As soon as she took her seat, I told her I wanted to schedule him for a feeding tube, expecting her complete understanding and compassion. Instead, she laughed. “I recommended a consult for a feeding tube last week, and you declined it,” she said sharply. “Now I have to start over from scratch and reach back out to the GI team to see how we can get him in.” My mouth dropped open. I stared at her, bewildered. “I wasn’t ready last week. I’m ready now,” Gavin mumbled, barely audible. “What did he say?” the physician’s assistant snarled. I very calmly repeated what Gavin said, my heart breaking for him and rage racing through my body. “Well, you certainly have made my job harder. And now I’ll have to see what I can do for you. You’ll hear from me about your next steps, and you better follow them. It might be too late because of your attitude,” she barked. I leaned in, looked at her straight on, meeting her nasty tone, and said, “No. Your attitude has made this harder. And it’s very much not appreciated right now. He’s in pain, and your job is to help us. In fact, you took an oath to do no harm, and what you’re doing in this room is harmful.” ...

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Hospice centers: Balancing comfort and controversy

01/13/25 at 03:00 AM

Hospice centers: Balancing comfort and controversy Crossroads Today, Victoria, TX; by Amaya Norman; 1/9/25 Hospice centers play a critical role in providing care for patients with terminal illnesses, focusing on comfort, dignity, and peace during life's most challenging moments. These centers are designed to support both patients and their families, but public opinions about their services often vary. ... While many see hospice centers as an essential support system offering much-needed relief and care, others express concerns about the quality of services or the emotional toll they can bring to families. These differing perspectives have sparked ongoing discussions about the role and perception of hospice care in society.

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Researchers compared hospital early warning scores for clinical deterioration—Here’s what they learned

01/11/25 at 03:15 AM

Researchers compared hospital early warning scores for clinical deterioration—Here’s what they learnedJAMA Network; Roy Perlis, MD, MSc; Jennifer Abbasi; 1/24This conversation is part of a series of interviews in which JAMA Network editors and expert guests explore issues surrounding the rapidly evolving intersection of artificial intelligence (AI) and medicine. Arecent head-to-head study at Yale New Haven Health System compared 6 different early warning scores designed to recognize clinical deterioration in hospitalized patients, including 3 proprietary AI tools. Among the best was the National Early Warning Score (NEWS), a publicly available non-AI tool, while the Epic Deterioration Index “was one of the worst” of the batch, the authors reported in October in JAMA Network Open.

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End-of-life care can be more aggressive for cancer patients with defibrillators

01/09/25 at 03:00 AM

End-of-life care can be more aggressive for cancer patients with defibrillators Medical Xpress; by UT Southwestern Medical Center; 1/8/25 Patients with advanced cancer who also had cardiac defibrillators were more likely than those without these implants to receive aggressive end-of-life care, a team led by UT Southwestern Medical Center researchers found in a new study. The findings, published in Cancer, could help physicians guide patients in this growing population toward care that better matches their goals. ... The findings showed that about 6% of patients with advanced cancer also had [implantable cardioverter defibrillators] ICDs. However, significantly more of the ICD patients received aggressive care during the last month of their lives compared to those without these devices.

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Human composting is rising in popularity as an earth-friendly life after death

01/02/25 at 03:15 AM

Human composting is rising in popularity as an earth-friendly life after death CNN; by Ella Nilsen; 12/29/24 The first time Laura Muckenhoupt felt a glimmer of hope after the death of her 22-year-old son Miles was the drive home from the Washington state facility that had turned his body into hundreds of pounds of soil. There was an empty seat in the family pickup truck where Miles should have been sitting. But riding with her husband and daughter on the 12-hour drive home, Laura felt her son’s presence clearly. ... Human composting turns bodies into soil by speeding up “what happens on the forest floor,” according to Tom Harries, CEO of Earth Funeral, the human composting company the Muckenhoupt family worked with. “What we’re doing is accelerating a completely natural process,” Harris told CNN. Human composting is emerging as an end-of-life alternative that is friendlier to the climate and the Earth — it is far less carbon-intensive than cremation and doesn’t use chemicals involved to preserve bodies in traditional burials.

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Hospice workers share the foods that bring patients comfort till the end

01/02/25 at 03:00 AM

Hospice workers share the foods that bring patients comfort till the end: Plus, they reveal how families can support their loved ones with scents, small bites and shared memories HuffPost; by Julie Kendrick; 12/30/24... We all live, we all die and we all enjoy food along the way. The memory and meaning of food, along with the bliss of being able to savor a cherished flavor, are still present in our lives, even as we head toward a last meal, a soothing sip of water or a final bit of sustenance. “Food often plays an emotional role in the last stages of life,” said Dr. Kurt Merkelz, the chief medical officer at Compassus, a home-based care company. “Some patients may reminisce about favorite meals or foods that connect them to fond memories and loved ones. There are instances where patients crave a specific dish that reminds them of their family or heritage, even if they can’t eat much.” ... People often ask for things like mashed potatoes, ice cream and chicken soup, according to Gail Inderwies, the founder and president of KeystoneCare, a hospice and home health provider in Pennsylvania. ... Sometimes, those comforts are part of a culinary heritage.

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Evolution in documented goals of care at end of life for adolescents and younger adults with cancer

12/28/24 at 03:30 AM

Evolution in documented goals of care at end of life for adolescents and younger adults with cancerJAMA Network Open; Rosemarie Mastropolo, Colin Cernik, Hajime Uno, Lauren Fisher, Lanfang Xu, Cecile A Laurent, Nancy Cannizzaro, Julie Munneke, Robert M Cooper, Joshua R Lakin, Corey M Schwartz, Mallory Casperson, Andrea Altschuler, Lawrence Kushi, Chun R Chao, Lori Wiener, Jennifer W Mack; 12/24Little is known about the nature of change in goals of care (GOC) over time among adolescents and younger adult (AYA) patients aged 12 to 39 years with cancer near the end of life. Understanding how GOC evolve may guide clinicians in supporting AYA patients in making end-of-life decisions. In this cross-sectional study of AYA patients who died of cancer, palliative goals were rarely documented before the last month of life, highlighting the need for timely and ongoing GOC discussions.

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