Literature Review

All posts tagged with “Clinical News | Advanced Illness Management News.”



2 nursing staff practices tied to safety risks: Study

04/09/25 at 03:00 AM

2 nursing staff practices tied to safety risks: Study Becker's Clinical Leadership, Washington, DC; by Mariah Taylor; 4/3/25 Washington, D.C.-based George Washington University and Premier researchers found overreliance on agency nurses and nurse overtime was associated with lower patient safety. The study, published April 2 in JAMA Network Open, analyzed data on quality measures for pressure ulcers and nurse staff overtime and agency use from 70 U.S. hospitals from January 2019 through December 2022. Researchers found that nearly half of the hospitals in the study utilized more nurse overtime and agency hours than was safe. The average hours exceeding safe thresholds for agency staff reached 140% and 63.6% for nurse overtime. Overuse of agency nurses and overtime hours was associated with increased rates of pressure ulcers. [Continue reading ...]

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Terri Schiavo's death 20 years ago sparked lingering debate about death and politics

04/07/25 at 03:00 AM

Terri Schiavo's death 20 years ago sparked lingering debate about death and politics USA Today; by Marc Ramirez; 3/31/25 Monday [March 31st marked] 20 years since the death of Terri Schiavo, whose landmark case became the symbol of the "right to die" movement, generated political controversy and sparked public outcry as her husband and family members took their fight over her fate to the courts. Schiavo died on March 31, 2005, after a dragged-out legal and political battle ... The case thrust discussions about end-of-life care into the public consciousness, a topic that continues to provoke heightened emotions among Americans. “It became the most reviewed, debated end-of-life case in history,” said Arthur Caplan, who heads the division of medical ethics at New York University’s Grossman School of Medicine. [Continue reading ...]

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‘The most someone wants is to be heard’: Students foster connection, create memoirs for hospice patients

04/07/25 at 03:00 AM

‘The most someone wants is to be heard’: Students foster connection, create memoirs for hospice patients The Daily Texan - University of Texas, Austin, TX; 4/3/25 ... Brought to UT in 2023, Last Writers is a service organization where student volunteers interview hospice patients over the course of several months to write a memoir that is then printed and given to the patients and their families. The process is intended to bring comfort to hospice patients and create a physical memento for the families, representing their lives once they pass. ... “It’s not often that you’re a college student and you get to meet someone who is going to pass away in the next few months,” Nguyen said. “To be with them in that very vulnerable point, it gives you a lot of perspectives. A lot of our members come out of it realizing how much they have to live for. … It makes us more grateful in life and puts our mortality into perspective.” [Continue reading ...]

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Practical tools and heartfelt hope: How Nancy Y Treaster is empowering dementia caregivers worldwide

04/07/25 at 03:00 AM

Practical tools and heartfelt hope: How Nancy Y Treaster is empowering dementia caregivers worldwide Thrive Global; by Stacey Chillemi; 4/2/25 In this empowering interview, dementia care expert Nancy Y Treaster shares practical strategies, emotional insights, and vital resources to help family caregivers navigate the challenges of caregiving with confidence and compassion. ...

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A rapid review of psychedelic-assisted therapy in the context of palliative care

04/05/25 at 03:15 AM

A rapid review of psychedelic-assisted therapy in the context of palliative careJournal of Hospice & Palliative Nursing; Miller, Megan PhD, RN; Meyers, Molly BSN, RN; Martin, Annona MSc; Napolitano, Stephanie MA, LMHC; Dorsen, Caroline PhD, FNP-BC; Penn, Andrew MS, PMHNP; Rosa, William E. PhD, MBE, APRN, FPCN; 4/25Psychedelic-assisted therapy (PAT) involves supported experiences with psychedelic medicines in carefully curated environments. Results support safety and initial efficacy of PAT for psycho-spiritual-existential outcomes among carefully screened and highly homogonous samples of patients with serious illness (predominantly cancer). Additional work is needed to (1) explore PAT's safety and efficacy within more diverse samples and contexts, (2) train palliative care providers on PAT, (3) determine systems of care delivery best suited for translation of PAT into practice, and (4) begin developing policy solutions to support safe and equitable access to PAT. Because many patients lack access to basic psychosocial-spiritual-existential care, careful consideration is needed around integration of PAT. The psychedelic substances which are the topic of this article are not currently FDA approved for use in the United States.

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Navigating the intersection of heart failure and palliative care: A holistic approach to improving quality of life

04/04/25 at 03:00 AM

Navigating the intersection of heart failure and palliative care: A holistic approach to improving quality of life Cureus; by Awanwosa V. Agho, Fatimot Disu, Efeturi M. Okorigba, Okelue E. Okobi, Safiyya Muhammad, Toheeb Bakare, Chioma Ezuma-Ebong, Nneka Muoghalu; 3/30/25 ... Historically, palliative care has often been perceived as a last-resort option, introduced only when curative treatments have failed, creating a false dichotomy between life-prolonging therapies and symptom management. However, modern palliative care frameworks emphasize its integration throughout the disease trajectory, particularly for chronic, progressive illnesses like heart failure. ... Palliative care should ideally be initiated at diagnosis of advanced heart failure or with early signs of significant symptom burden to ensure timely, patient-centered support, as recommended by ACC, AHA, and HFSA guidelines

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Hospice of the Chesapeake leader aims to think outside the box on hospice, palliative care

04/02/25 at 03:00 AM

Hospice of the Chesapeake leader aims to think outside the box on hospice, palliative care McKnights Home Care; podcast by Liza Berger with Rachel Jordan; 3/27/25 As the director of legislative affairs and advocacy at Hospice of the Chesapeake, the largest independent not-for-profit hospice provider in the state of Maryland, Rachel Jordan strives to treat the patient and not the disease. This helps explain why she worries less about the line between “curative” and “noncurative” care and more about whether a particular treatment helps to make a patient feel more comfortable. Jordan spoke to McKnight’s Home Care about her views of hospice and palliative care for a Newsmakers podcast. [Continue to the podcast ...]

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Study raises questions about GUIDE model’s helpfulness for caregivers of loved ones with dementia

04/02/25 at 03:00 AM

Study raises questions about GUIDE model’s helpfulness for caregivers of loved ones with dementia McKnights Home Care; by Adam Healy; 4/1/25 The Guiding an Improve Dementia Experience may need to be fine-tuned to better serve caregivers of those living with dementia, according to a new study published in Alzheimer’s & Dementia. The researchers identified 565 older adults and 555 caregivers eligible for GUIDE using data from the 2022 National Health and Aging Trends Study and National Study of Caregiving. They found that approximately half of GUIDE-eligible people with dementia received care from two or more caregivers, and about a third of these caregivers reported experiencing high caregiving strain. [Continue reading ...] 

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What to know about palliative and hospice care

04/01/25 at 03:00 AM

What to know about palliative and hospice care Association of Health Care Journalists (AHCJ); by Liz Seegert; 3/28/25 ... [Palliative care] is fundamental to health and human dignity and is a basic human right, according to the FXB Center for Health and Human Rights at Harvard.  When reporting on serious illnesses, journalists can help demystify palliative care and encourage more people in need to take advantage of it by clearly explaining the differences, and benefits, and incorporating anecdotes to further illustrate how these types of care make a difference in the lives of patients and their families. [Continue reading ...] Editor's note: Share this article--written for health care journalists--with your communications and marketing leadership, with your community newspapers' journalists, and your employee/volunteer educators. Too often, new hospice/palliative care employees at all levels of roles and responsibilities begin their roles without clear knowledge, comprehension, and application of distinctions between standard healthcare, palliative care, and hospice care.  

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MaineHealth Memorial Hospital leverages telehealth in unexpected ways

04/01/25 at 02:00 AM

MaineHealth Memorial Hospital leverages telehealth in unexpected ways MaineHealth, North Conway, ME; Press Release; 3/312/25 When a patient presenting with stroke symptoms arrives at MaineHealth Memorial Hospital's emergency department, time is of the essence. It could take hours to arrange for medical transport and get that patient to a tertiary care center like MaineHealth Maine Medical Center to see a stroke neurologist. Using telehealth, these patients can receive this specialized care if it is necessary in less than 30 minutes. While telehealth is often associated with remote home visits, MaineHealth Memorial Hospital also uses it to enhance on-site care. Using remote consult technology, MaineHealth specialists can offer local care teams expert advice at the bedside or in the exam room. [Continue reading ...]

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Honoring a young girl’s love of nature on her final day

03/31/25 at 03:00 AM

Honoring a young girl’s love of nature on her final dayMayo Clinic News Network; by Mayo Clinic Staff; 3/27/25 On a Saturday evening in September of 2024, Mae Helgeson arrived at Mayo Clinic in Rochester, her small body reeling from the trauma of a life-threatening accident. Although she was intubated and sedated, it didn't take long for the care team to learn what made this little girl special. ... "I often ask parents to tell me about their child. Is there anything you think is important or that I should know about your family?" says Paige Dighton, one of the Child Life specialists who partnered with Mae's family. "This allows them to share the special things — those unique qualities that make them a family. You learn more than just what's in their chart." ... It was only a couple of days later that Mae's family was faced with the devastating decision they'd hoped to avoid. ... The question shifted from "Can we save her?" to "How do we say goodbye?" Following their lead, the team began focusing on end-of-life care. "Dr. Schiltz gave us the space to think and process our emotions — it didn't feel rushed," says Matt. 

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Hospital workers share 26 deathbed regrets they’ve heard that changed their lives

03/31/25 at 02:00 AM

Hospital workers share 26 deathbed regrets they’ve heard that changed their lives Boredpanda; by Ruta Zumbrickaite; 3/28/25 While painful, regret can also be a motivator for learning and growth, encouraging us to avoid repeating past mistakes and make better decisions in the future. We guess that’s why self-help author Debbie Ford once said, “Pain can be our greatest teacher.” Someone on the web asked hospital workers, “What regrets do you hear from dying patients?”, and folks who’ve been there in people’s last moments shared the words that hit them the hardest. Here’s a list of some of their most profound responses.  

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Bioethics Artificial Intelligence Advisory (BAIA): An Agentic Artificial Intelligence (AI) framework for bioethical clinical decision support

03/29/25 at 03:25 AM

Bioethics Artificial Intelligence Advisory (BAIA): An Agentic Artificial Intelligence (AI) framework for bioethical clinical decision support Cureus; by Taposh P. Dutta Roy; 3/12/25 Healthcare professionals face complex ethical dilemmas in clinical settings in cases involving end-of-life care, informed consent, and surrogate decision-making. These nuanced situations often lead to moral distress among care providers. This paper introduces the Bioethics Artificial Intelligence Advisory (BAIA) framework, a novel and innovative approach that leverages artificial intelligence (AI) to support clinical ethical decision-making. The BAIA framework integrates multiple bioethical approaches, including principlism, casuistry, and narrative ethics, with advanced AI capabilities to provide comprehensive decision support. 

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Racial disparities in ALS progression: Time to clinical events observed in a single center

03/29/25 at 03:10 AM

Racial disparities in ALS progression: Time to clinical events observed in a single center Wiley Online Library; by Shanshan Chen, Demetrius Carter, Jillian Prier, JoBeth Bingham, Shital Patel, Manisha Kotay, Paula Burke Brockenbrough, Kelly Gwathmey; 3/10/25 Studies examining racial differences in ALS have previously focused on diagnostic delay and disease severity. Time to critical clinical events has rarely been investigated, despite its importance in revealing differences in ALS patients' disease courses. This study explores racial disparities in time to specific clinical events in Black and non-Hispanic White ALS patients at a single center. ... Our single-center findings demonstrate a large racial difference in time to clinical events for Black versus White ALS patients referred for NIV, AAC, hospice, and wheelchair, suggesting more advanced disease at the time of presentation or more rapid progression.

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Population-based payments to deliver health care to unhoused individuals

03/29/25 at 03:05 AM

Population-based payments to deliver health care to unhoused individualsJAMA Health Forum; Sudhakar V. Nuti, MD, MSc; Amanda K. Johnson, MD, MBA; Theodore Long, MD, MHS; 3/25The 770,000 people experiencing homelessness in the US have a high prevalence of disease and high health care utilization. Compared to the general population, unhoused individuals in the US have a 3.5 times higher mortality rate and 27-year reduced life expectancy. To this end, we propose population-based payment models (PBPs) as a novel mechanism to provide increased, stable, and predictable funding for health care for unhoused individuals. PBPs are the most advanced category of value-based alternative payment models, where health care organizations are given a prospective payment to care for a population of patients, with the flexibility to tailor care without incentivizes to optimize billable encounters, while being held accountable for improved outcomes and costs. The flexibility in how to invest and earn funding is essential for focused investment in these models, as increased reimbursement alone is insufficient.

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[Switzerland] The use of artificial nutrition at the end-of-life: a cross-sectional survey exploring the beliefs and decision-making among physicians and nurses

03/29/25 at 03:00 AM

[Switzerland] The use of artificial nutrition at the end-of-life: a cross-sectional survey exploring the beliefs and decision-making among physicians and nursesSupport Care Cancer; by Christophe Pala, Claudia Gamond, Steffen Eychmuller, Francois Herrmann, Sophie Pautex; 3/17/25 Background: The use of artificial nutrition in the last month of life raises many concerns for patients, relatives, and healthcare professionals. Conclusion: Whereas decisions on artificial nutrition at the end of life are common they may be mostly guided by physicians and nurses' beliefs, and patients' requests more than by robust evidence. Fostering palliative care education is pivotal. Our results emphasize the need to improve physicians and nurses' awareness of the complex interplay between values and evidence when decisions concerning artificial nutrition are taken.

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Quality of life in heart failure. The heart of the matter. A scientific statement of the Heart Failure Association and the European Association of Preventive Cardiology of the European Society of Cardiology

03/29/25 at 03:00 AM

Quality of life in heart failure. The heart of the matter. A scientific statement of the Heart Failure Association and the European Association of Preventive Cardiology of the European Society of CardiologyEuropean Journal of Heart Failure; Maurizio Volterrani, Geza Halasz, Stamatis Adamopoulos, Pier Giuseppe Agostoni, Javed Butler, Andrew J.S. Coats, Alan Cohen-Solal, Wolfram Doehner, Gerasimos Filippatos, Ewa Jankowska, Carolyn S.P. Lam, Ekaterini Lambrinou, Lars H. Lund, Giuseppe Rosano, Marco Metra, Stefania Paolillo, Pasquale Perrone Filardi, Amina Rakisheva, Gianluigi Savarese, Petar Seferovic, Carlo Gabriele Tocchetti, Massimo Piepoli; 3/25 Patients with heart failure (HF) experience much worse QoL [quality of life] and effort intolerance than both the general population and people with other chronic conditions, since they present a range of physical and psychological symptoms, including shortness of breath, chest discomfort, fatigue, fluid congestion, trouble with sleeping, and depression. The importance of QoL for patients with HF is highlighted in a survey showing that 61% attached more weight to QoL over longevity, with 9% and 14% willing to trade 6 and 12 months, respectively, for perfect health and better QoL.It is for these reasons that the Heart Failure Association is developing a new score for QoL in HF, sensitive to mechanism-specific interventions and tailored to be sensitive to changes within individual patients. 

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Saying goodbye to Dad

03/28/25 at 03:00 AM

Saying goodbye to Dad MidlandsLife; by Jeff Becraft; 3/27/25 I know my last article talked about my Dad moving on to Higher Ground, but while it is still fresh on my mind, I’m going to delve into the process of saying goodbye.  Perhaps it will resonate with someone who has already been down this path… or maybe someone who will be going down this path. I know that many people have been on a longer road than what I am going to describe. I won’t try to cover everything and there are some very significant things that are left out because of space; I will be simply giving my perspective on the overall experience of the last days. [Continue reading ...]Editor's note: If you have to dive into only one article today, this is the one. If you have experienced the vigil of a loved one's final days, this likely gives voice to your journey: "Each day we thought was going to be Dad’s last. It was certainly a time of changing emotions." If you have not experienced this, read to learn common rhythms and themes, dissonances harmonies, and final release into death. Thank you Jeff Becraft for your meaningful reflection.

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‘Show up and share’: How one UCLA ICU helps patients and staff live with dying

03/27/25 at 03:00 AM

‘Show up and share’: How one UCLA ICU helps patients and staff live with dying Los Angeles Times; by Corinne Purtill; 3/20/25 

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Hidden battles: Keeping cancer secret

03/27/25 at 03:00 AM

Hidden battles: Keeping cancer secret Harvard Health Publishing - Harvard Medical School; by Maureen Salamon; post is dated 4/1/25, retrieved from the internet 3/25/25 Some people choose to conceal their diagnosis and treatment. Here's why — and reasons that approach can sometimes backfire. ... [In addition to privacy motives, Cristina Pozo-Kaderman, a senior psychologist at Harvard-affiliated Dana-Farber Cancer Institute] says cancer patients may also wish to:

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Avoidable mortality rises in US, bucking global decline

03/27/25 at 02:00 AM

Avoidable mortality rises in US, bucking global decline Becker's Clinical Leadership; by Mackenzie Bean; 3/26/25 Avoidable mortality has increased in the U.S. for more than a decade, contrasting decreases seen in many other high-income countries, according to a study published March 24 in JAMA Internal Medicine. For the study, researchers at the Brown University School of Public Health analyzed mortality data from the CDC and World Health Organization for people 74 and younger between 2009 and 2021, spanning all 50 states and 40 high-income countries. Avoidable mortality includes deaths that could have been prevented through effective public health measures or timely, high-quality healthcare. [Continue reading ...]

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The COVID mistake no one talks enough about

03/26/25 at 03:00 AM

The COVID mistake no one talks enough about The Atlantic; by Sunita Puri; 3/25/25 Deaths in isolation have been treated as a painful memory, not as a problem that hospitals need to address. He was one of the few ICU patients whose face I saw in early 2021, when COVID raged through Los Angeles. As a palliative-care physician, my job was to meet, over Zoom, with the families of intubated patients to ensure that they had complete medical updates and to help them make difficult medical decisions on behalf of their loved one, particularly when that person faced death. But in a surreal departure from my usual practice, I’d never once seen these patients myself: At the time, to minimize exposure to COVID, the only people permitted to enter the ICU regularly were members of the ICU team. ... His wife told me that during his many previous illnesses, she had slept every night in his hospital room, making sure he asked for pain medications and watching movies with him to pass the time. “He fought harder to live when I was there,” she told me. [Continue reading ... full access may require a free trial or subscription]

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Pope Francis was so close to death that doctors considered ending treatment

03/26/25 at 03:00 AM

Pope Francis was so close to death that doctors considered ending treatment Reuters, Vatican City; by Joshua McElwee; 3/25/25 Pope Francis came so close to death at one point during his 38-day fight in hospital against pneumonia that his doctors considered ending treatment so he could die in peace, the head of the pope's medical team said. After a breathing crisis on February 28 ... "there was a real risk he might not make it," said Sergio Alfieri, a physician at Rome's Gemelli hospital. "We had to choose if we would stop there and let him go, or to go forward and push it with all the drugs and therapies possible, running the highest risk of damaging his other organs," Alfieri told Italy's Corriere della Sera in an interview published on Tuesday [3/25]. "In the end, we took this path," he said. [Continue reading ...]

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Assisted ventilation withdrawal in motor neuron disease: updated results

03/26/25 at 03:00 AM

Assisted ventilation withdrawal in motor neuron disease: updated results BMJ Supportive & Palliative Care; by Lucy Bleazard, Jonathan Palmer, David Wenzel, Thomas Jeffery, and Christina Faull; 3/24/25 Introduction: Patients with ventilator-dependent motor neuron disease (MND) may request withdrawal of their assisted ventilation. Facilitating this process as a healthcare professional (HCP) can be emotionally and practically challenging. The Association for Palliative Medicine (APM) issued guidance to support HCPs and invited anonymised accounts of the withdrawal process to provide an update on the guidance. ... Results: Younger patients tended to need higher doses to achieve adequate symptom management prior to withdrawal. Practices of weaning the ventilator varied significantly between respondents. The median time to death following withdrawal of ventilation was 30 min, with three-quarters of patients dying within 2 hours. Conclusion: This is the largest data set to date regarding the withdrawal of assisted ventilation in MND. This updated analysis reaffirms that a personalised, titrated approach remains appropriate and effective. The revised APM Guidance 2025 incorporates new sections on recommendations for managing the ventilator. [Continue reading ...]

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Carolyn Hax: Does sibling love justify traveling to abusive mom’s deathbed?

03/25/25 at 03:00 AM

Carolyn Hax: Does sibling love justify traveling to abusive mom’s deathbed?The Washington Post, Washington, DC; 3/24/25 Sister asks the letter writer to join her at their dying mom’s bedside — despite their PTSD-inducing childhoods. [The rest of this article may require a subscription to The Washington Post.]Editor's note: Even if you're not able to access the full article, what does this question stir in you? Be aware that many family caregivers (or simply family members) face complex, conflicted relationships with the persons they are tending--or in this case, even considering visiting or not. Be attuned to these common, everyday occurrences that your direct care interdisciplinary team members regularly navigate. What family systems' education and support do you provide for them?

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