Literature Review

[UK] Supporting the bereaved child in the adult ICU: A narrative reviewIntensive Care Medicine; Annelies Rowland, Carole Boulanger, Louise Dalton; 2/25Childhood bereavement is a significant issue globally, affecting millions of children each year, with incidence rates significantly increasing following the COVID-19 pandemic. The loss of an important adult, particularly in the ICU environment, can lead to lasting psychological and behavioural challenges for children. Both families and healthcare professionals (HCPs) often feel unprepared and uncomfortable engaging in honest, supportive conversations with children about bereavement, further complicating children's grief processing. This narrative review examines the pivotal role ICU HCPs can play in facilitating child-centred bereavement support, focusing on promoting honest communication, supportive visitation practices, creating a child-friendly and humanised ICU environment, and encouraging child involvement during end-of-life care. The review also advocates for specialised training to equip ICU staff with the necessary skills to support grieving children and families.

Improving knowledge, confidence, and skills in perinatal bereavement care through simulation in baccalaureate nursing studentsState Nurses Associations - Kansas State Nurses Association; by Shelby True, MSN, RN; Libby Rosen, PhD, RN, IBCLC; Ashley Seematter MSN, RN; Jeri Harvey & Karly Lauer, MSN, RN; 2/20/25Many baccalaureate nursing programs throughout the United States thread concepts of bereavement and end-of-life care throughout their curriculum. However, a standardized education program for nursing students that increases the knowledge, confidence level, and application of skills a nurse must possess when providing perinatal bereavement care is often absent from the curriculum (Sorce & Chamberlain, 2019).  Perinatal loss can have a profound impact on parents and their loved ones, leading to emotional, psychological, physical, and spiritual trauma that deeply affects the lives of those involved. The nursing care each parent receives at the time of the loss may be remembered for years to come and is crucial to determining the nature of the grieving process (Sorce & Chamberlain, 2019). ... To improve the knowledge, confidence, and skill level of nurses providing perinatal bereavement care, a role-play perinatal bereavement simulation was developed and implemented in two Midwestern universities’ baccalaureate nursing programs in the maternal/newborn courses. Editor's note: Having served our hospice's Pediatrics Team for four years, the grief of parents, grandparents, siblings affected me deeply. I remember vividly a young mom unable to physically leave her baby's body with the hospital's nurse. Gently, we held her baby together. Over the course of about 15 minutes, the mother gradually shifted the weight of holding her baby over to me, before the hardest task of her life--leaving the hospital without her child. (It was Christmas week. I bawled when I got home.) Visiting them at the funeral home and after in their home, I experienced horrible, disenfranchised comments and attitudes from others (especially a local preacher). Leaders: tune into your pediatric hospice and palliative team members. What specialized support and education do they need? And, we never know what personal stories of perinatal bereavement those around us continue to carry. 

Still Waters Hospice hosts "Sweet Treats Celebration" for Valentine’s Day ABC KLAX 31, Alexandria, LA; by Sarah Drell; 2/17/25Still Waters Hospice in Alexandria, Louisiana, hosted a "Sweet Treats Celebration" on Valentine’s Day, bringing joy to patients and their families. ... Sarah Zito, Owner, Nurse Practitioner, and Administrator of Still Waters explained why they hosted this lovely event. “We wanted to put this on today because not everyone's Valentine's Day looks the same. And we have a lot of people in our community that are celebrating their first Valentine's Day without their loved ones. And we have a roomful of people and that situation. And so we wanted to take this opportunity and show them that they are still love and we value them and we grieve with them.” ... The "Sweet Treats Celebration" was more than just an event; it served as a testament to the hospice’s dedication to holistic care. 

Harbor Foundation expands mission with support for Southeast Texas students The Examiner, Beaumont, TX; by Barbara Davis; 2/18/25 Hope from heartache: For nearly two decades, the Harbor Foundation has been operating as a nonprofit dedicated to enhancing the quality of life for individuals in hospice care, as well as the patients’ families. ... In 2024, the foundation’s efforts grew to include educational support, awarding $20,000 in scholarships to area seniors. As a result of donations and fundraising success, the Harbor Foundation reported that it will award 25 $1,000 scholarships to Southeast Texas seniors this year. This one-time $1,000 award is granted to graduating high school seniors who have lost a parent. Recognizing the financial challenges that accompany such a loss, the foundation aims to alleviate some of the burdens associated with pursuing higher education. ...Editor's note: These significant "one-time" awards for high school seniors who have lost a parent can provide life-changing opportunities of support at a most critical time for these teens. Consider how your hospice--or another nonprofit--might replicate this innovative, meaningful program.

Witnessing a living funeral Parkview Health; by Tim O'Sullivan, MA, Spiritual and Social Services Supervisor, Parkview Hospice; 2/16/25 ... Rather than planning services after they pass and miss out on a gathering of the people who are most precious to them, some are choosing to schedule a "funeral" while they are still living so they can be a part of the ceremony. These events are known as Living Funerals. As a hospice caregiver, I have seen a rise in the number of these pre-death celebrations of life. While this may not be for everyone, it can be a meaningful experience for those who have chosen to remember a life in this way. I was invited to one of these events and witnessed firsthand the power of acknowledging death while fully living in the moment. ... [Click on the title's link to continue reading.]

Father of 3 stages 'Grief Photo Shoot' to remember wife who died of cancer (exclusive): CJ Infantino and his late wife Ariana were high school sweethearts People; by Jordan Greene; 2/13/25 There are many moments forever etched in CJ Infantino’s memory, but one stands out above the rest. It was Sept. 5, 2020, when CJ and his wife, Ariana, sat their three kids down at the kitchen table in their California home and told them that Ariana, 35, was going to die. ... Ariana was diagnosed with stage 4 breast cancer in 2015 — coincidentally, on CJ’s 30th birthday. "We spent the next five-and-a-half years trying to live as much life as we could. We wanted to pack 30 years into 10," CJ says. ... After her last breath, he recalls that everyone "just went silent." ... Right away, the father of three felt isolated, as if no one could relate to his experience. He found that the things people said were often unhelpful and, at times, unintentionally harmful.  ... "I really just wanted to show my kids that, even though she’s not physically here, it’s okay to talk about her. We’re still allowed to laugh, even when we’re in so much pain," he says. "I remember the first moment I laughed or felt a hint of joy, and I thought, 'Are we allowed to do this?' " ... [Click on the title's link for the inspirational story and family photos before and after Ariana's death.] 

Men to share stories of grief on charity walk BBC News, West of England; by Dawn Limbu; 2/8/25 Hundreds of men from Somerset and Wiltshire are being encouraged to share their experiences of grief and bereavement on an eight-mile (12km) charity walk. Dorothy House Hospice Care is hosting its annual 'Men's Walk to Support' to raise funds to help the charity continue to provide free end-of-life care. The walk on 8 March will take participants from the charity's hospice in Winsley, Wiltshire, to Bath Pavillion in Somerset. Dan Varley, community and events fundraiser, said the walk can be really "powerful" for men who have experienced bereavement. 

In the wake of California fires, a hospice opens its arms to help a community heal Pasadena Now, Pasadena, CA; 2/8/25 A Los Angeles hospice organization announced Thursday it has extended its expertise in grief counseling to help residents process the collective trauma of the recent destructive wildfires. In the Arms of Grace Hospice, based in Los Feliz, will begin offering free weekly drop-in support groups for those affected by the Eaton and Palisades fires starting February 4. The open-format sessions at St. Gregory Church in Pasadena will be led by Dr. Ani Karayan, PhD, a clinical psychologist with more than two decades of experience in trauma-informed care. “The fires have caused significant disruption in the lives of many in the community,” said Kevin Tutunjian, president of In the Arms of Grace Hospice. “We wanted to create a safe and supportive space that validates the complex and nuanced emotions this community is going through.”

Garlock: How to prepare children for hardships and tragedies The Citizen; by Dr. Victor Garlock; 2/4/25 All of us must face hardships and tragedies. How well we are able to get through difficult times is a major factor affecting the overall quality of our lives. Sometimes these challenges arrive individually, as in a sudden serious illness, an accident, or the death of a loved one. Sometimes — as in last fall’s devastating floods in North Carolina or the recent wildfires in Southern California — entire communities must find a way to move forward. ... Resilience is the capacity to recover from challenges and adversity. Tragic optimism is the determination to remain optimistic and find meaning and purpose in the face of tragedy. [With children:]

Reflection on the Potomac River Crash Hospice & Palliative Care Today; by Joy Berger, Editor in Chief; 1/30/25We are absorbing unfolding news about Thursday night’s tragic plane and helicopter crash at the Potomac River. As with many of you, I’m flooded with memories of flying in and out of this same airport: gazing out the plane’s window to delight in DC’s historic sites; delighting in the diversity of my fellow travelers and whatever their stories might be. Many of these Washington DC trips were to be with our hospice and palliative colleagues at the (then) NHPCO Conferences or other related meetings. Today, I’m grateful for our safe journeys then. Today, I hope for renewed connections: the joy of each person’s unique life-journey; the relationships we’ve developed in moments at meetings, meals, and follow-up communications; the sacredness of this profound work we are privileged to share. And—with these current Potomac River tragic deaths—we are reminded of icy currents of own traumatic losses. For me, I’m struck with the pains of a beloved family in my childhood’s home church, whose adult son was killed in the 1982 Potomac River plane crash; with the heart-wrenching death of my grandfather when he was killed by a drunk driver; and more. For you? As news continues to unfold, may we treasure anew the unknown measure of our time on this earth. Of our connections with each other—whatever our differences—profit or nonprofit, political, and more. May we sensitively tune into the life-altering traumas carried within those we serve—and the healing compassion we can give. Humbly, Joy

The iatrogenic consequences of medicalising grief: Resetting the research agenda Sociology of Health & Illness: by Sarah Gurley-Green, Lisa Cosgrove, Milutin Kostic, Lauren Koa, and Susan McPherson; published 11/28/25, distributed via Evermore 1/28/25When the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was published in 2013, there was a firestorm of controversy about the elimination of the bereavement exclusion. Proponents of this change and of the proposed “complicated grief” designation believed that this change would help clinicians recognise major depression in the context of recent bereavement. Other researchers and clinicians have raised concerns about medicalising grief. In 2022 “prolonged grief disorder” (PGD) was officially included in the DSM-5-TR in the trauma- and stressor-related disorders section. ... As human rights activists have argued, bereavement support is an inalienable human right, one that is centered on the right to health and well-being, for “bereavement health is as intrinsic to our humanity as any other aspect of health and citizenship” (Macaskill 2022). That is why there are increasing calls for investing in bereavement as a public good and for “cultivat[ing] a bereavement-conscious workforce.” (Lichtenthal et al. 2024, e273). As Lichtenthal notes, it is not only clinicians but also institutions and systems that must “shift bereavement care from an afterthought to a public health priority.”Editor's note: "Iatrogenic" refers to unintentional consequences/condition from a medical intervention. In the hospice context, this means bereavement/grief from the hospice death. How many patients do you serve? The CMS Hospice Conditions of Participation identify "bereavement" and/or "grief" 155 times. What priority do you give to bereavement care before, at and after your patients' deaths?

Children’s book written by Manheim Township mother finally published 3 years after she died of cancer [video] LNP Lancaster Online, Lancaster, PA; by John Walk; 1/27/25 As she battled a rare sarcoma cancer over the last two years of her life, Manheim Township resident Ginny McCreary struggled to find a children’s book she could read to her two young daughters to help them better understand what she was going through. So McCreary wrote the book herself, sometimes on a smartphone while laying in bed late at night, ... McCreary died Aug. 15, 2021. She was 34. She left behind a self-published manuscript of the children’s book that sat idle for about two years but was not forgotten. ... The book has also made its way inside four Hospice & Community Care locations in Lancaster as well as Penn Medicine’s Ann B. Barshinger Cancer Institute in East Hempfield Township. [Video with Ginny's mother] "I'd love to get it to some cancer centers and hospice centers ..." [Click on the title's link for more information.]