Literature Review

Stillwater Hospice hosts month LGBTQ+ grief group Northeast Indiana Public Radio, 89.1 WBOI, Fort Wayne, IN; by Ella Abbott; 12/5/24 Stillwater Hospice has a grief support group for those in the LGBTQ+ community, offering a safe, affirming space to open up about the challenges of loss. ... The group was started in 2022, following the opening of the Fort Wayne Pride Center downtown. Stillwater director of communications Bonnie Blackburn-Penhollow said people in the LGBTQ+ community can have additional stressors added onto their grieving. “They may not feel like they can have grief, or express their grief, if their family is not approving," she said. "They need to be able to talk to people who understand what those kind of constrictions on life are like.” The goals of the group are to create coping strategies for navigating grief, build resilience while honoring loved ones and address the unique experiences and challenges faced by LGBTQ+ individuals while grieving.

From grief to giving: Volunteer Jules Sebek finds her way to Hospice of the Western Reserve The News-Herald, Ohio; by Jean Bonchak; 11/28/24 After retiring from a lengthy and successful career at a local company, Jules Sebek was inspired by her past positive experiences with Hospice of the Western Reserve to pursue a volunteer position with the agency. ... “I truly get more than I give,” she said. Sebek’s introduction to hospice came about when the agency supported her parents during their end-of-life journeys and also provided care for her husband, who died eight years ago. ... A year after his death, Sebek joined hospice volunteers as a receptionist and found the experience helpful in terms of becoming familiar with the staff and other aspects of the agency. Throughout the years, she has supported a wide range of situations and finds working with married couples particularly relatable because of her own experiences. ... “I can say ‘I know what you’re going through. I’ve been there,’” she said. “If there’s a wedding picture I’ll look at the spouse and ask them to tell me their love story. Their eyes light up.” ... “I’m constantly inspired,” she said. ... Over time she has come to realize that her work with hospice holds significant importance in her life. “I can’t not do it. It’s a calling,” she said.

If my dying daughter could face her mortality, why couldn’t the rest of us? DNYUZ, appearing first in The New York Times; Ms. Wildman; 11/25/24 The first week of March 2022, I flew to Miami with my 13-year-old daughter, Orli; her 8-year-old sister, Hana; and my partner, Ian. We were, by all appearances, healthy. Robust, even. In reality, we were at the end of a reprieve. Orli’s liver cancer had by then been assaulted by two years of treatments — chemotherapy, a liver transplant, more chemotherapy, seven surgeries. Now new metastases lit up a corner of one lung on scans, asymptomatic but foreboding. We asked her medical team if we might show her a bit of the world before more procedures. Our oncologist balked. Hence, this brief weekend away. When we arrived at the beach Orli ran directly to the water, then came back and stretched out on a lounge chair. She turned to me and asked, “What if this is the best I ever feel again?” Three hundred and seventy-six days later, she was dead. In the time since she left us, I have thought often of Orli’s question. All that spring, Orli asked, pointedly, why did we think a cure was still possible, that cancer would not continue to return? Left unspoken: Was she going to die from her disease? It was a conversation she wanted to have. And yet what we found over the wild course of her illness was that such conversations are often discouraged, in the doctor’s office and outside it. ... [Click on the title's link to continue reading this profound story.]Editor's note: While families are gathered for Thanksgiving, many health changes will be observed since this time last Thanksgiving, with countless unknowns to unfold until Thanksgiving next year. Tune into the wide scope of conversations that people do want to have, don't want to have, and--perhaps--that your own family needs to have, with grace and care for all.

Lamar Area Hospice’s grief programs are made possible from BBB donations The Prowers Journal, Lamar, CO; by Barbara Crimond; 11/20/24 The words “good” and “grief” don’t commonly go together.  At the Lamar Area Hospice, however, they not only go together but, when combined, embrace the idea of a place to go which allows children and adults to normalize their grief, receive support from others experiencing similar emotional struggles and education in healthy ways to move through their grief.  They learn that they can tell their stories in a safe, loving and nurturing environment.  I recently met with Deb Pelley (Executive Director of Lamar Area Hospice). Roni Vallejos (Children’s Good Grief Coordinator) and Kelsie Cedeno (Adult Bereavement Coordinator) to learn more about these programs.  I could immediately sense the compassion and love for their jobs that all three women have. Before telling me about the programs though, they told me that it was only because of the generous donations from the BBB each year that the programs can even exist. They wanted to express how extremely grateful they are to BBB for enabling them to continue Jillian Sweet Tinnes’s legacy. ...

Bringing stories to life, and death: Why animated movies are more than entertainment for kids The Stony Brook Press; 11/19/24 ... Whether it is the parents of the protagonist dying in the first few minutes in Frozen or the epic finale where the villain succumbs to a fatal fate like in The Hunchback of Notre Dame or The Princess and the Frog, it is somewhat of an oxymoron to call animated movies “childish,” as they often deal with serious topics. These movies are not outliers; there are videos dedicated to Disney’s “body count,” which counts how many characters have died in Disney movies. While these films may be magical or fantastical in plot, the moral truths of death and life covered in them often stir conversations about mortality. “Despite the fact that we would love to have people or animals or our loved ones forever, death is inevitable,” explained Bonnie Nickels, co-writer of the study End-of-Life in Disney and Pixar Films: An opportunity for Engaging in Difficult Conversation. “We can use these films as opportunities to introduce our young viewers and our young children to this idea.” To Nickels, these movies can create a dialogue between parents and children about dying and even model coping methods. “The fact that it’s a common feature in these films, kind of reiterates this idea that it’s common in life.” Editor's note: What movies will your intergenerational family watch through the holidays? This article's referenced study--"End-of-Life in Disney and Pixar Films"--describes, "A content analysis of 57 movies resulted in a total of 71 character deaths. For different generations, what reactions do you remember having experienced yourself, or from others? Bambi's mother. The Lion King's Mufasa. Frozen's parents of the two sisters. Coco's family members. Click here for a related article, "15 Saddest Disney Death, Ranked." 

Navigating the aftermath of natural disasters Teleios Collaborative Network (TCN); by Lara McKinnis; 11/15/24 This morning I woke up to two bears outside, a little cub sitting on our front steps eating the pumpkin that my daughter recently carved, the mom nearby completely sprawled out lounging in the sun in a bed of freshly fallen yellow and orange oak leaves.  This is the “fall” that I look forward to every year in Asheville. I wanted to hold onto this feeling, all of us standing at our screened-in window talking to the bears as if they understood us, our dog enthusiastically joining in the conversation.  This feeling is alive and vibrant; however, so is the visceral awareness of the horrific despair that has engulfed my beloved community and so many communities in Western North Carolina. ...  Adjusting to a natural disaster is nuanced and layered.  [Click on the title's link to continue reading this hospice leader's reflections and professional guidance.]

[Switzerland] A French-language web-based intervention targeting prolonged grief symptoms in people who are bereaved and separated: Randomized controlled trialJMIR Formative Research; Anik Debrot, Liliane Efinger, Maya Kheyar, Valentino Pomini, Laurent Berthoud; 10/24Losing a loved one, through death or separation, counts among the most stressful life events and is detrimental to health and well-being. About 15% of people show clinically significant difficulties coping with such an event. Web-based interventions (WBIs) are effective for a variety of mental health disorders, including prolonged grief. However, no validated WBI is available in French for treating prolonged grief symptoms.

Blue Ridge Care expands bereavement care with new Center for Hope & Healing Hospice News; by Jim Parker; 11/1/24 Blue Ridge Care has unveiled its new Center for Hope & Healing, a facility dedicated to offering comprehensive grief care. The Virginia-based nonprofit hospice, palliative care and PACE provider financed the center through philanthropic donations. The facility is located in the same building as Blue Ridge’s PACE program, according to CEO Jason Parsons. At the center, Blue Ridge bereavement care staff will offer specialized programs, workshops, support groups and individual counseling. “The center is a central organizing unit of our mission fulfillment in the areas of grief, family support and loss in a place people can come to that’s welcoming, inviting and centered around hope and healing,” Parsons told Hospice News. ... The center was built to create a relaxing atmosphere to help put visitors at ease, according to Parsons, with a sky blue color palette and several murals depicting natural scenes. In one display, a collection of rocks symbolizes the weight of grief. Visitors can write a message on the rocks to “leave that weight behind,” Parsons said. They can also paint their loved ones’ names on a mural of a branching tree in the lobby area. 

Dia De Los Muertos can provide powerful healing for anyone who is grieving a loved one Santa Barbara Independent; by Hospice of Santa Barbara; 10/29/24 Many of those who have lost a loved one are looking for ways to manage their grief and Hospice of Santa Barbara (HSB) helps to navigate this often-painful journey in a variety of ways.  This may include grief counseling, support groups, and healing modalities such as poetry and art.  ... Day of the Dead (Dia de Los Muertos) has become an increasingly popular holiday in the United States as it is seen as a valuable way to reconnect with those who have died and relieve grief in an individual and shared ritual of celebration. Dia De Los Muertos is a two-day holiday that reunites the living and dead, November 1 and 2. Families create ofrendas (offerings) to honor their departed family members that have passed. These altars are decorated with bright yellow marigold flowers, photos of the departed, and the favorite foods and drinks of the one being honored. The offerings are believed to encourage visits from the land of the dead as the departed souls hear their prayers, smell their food and join in the celebrations. Day of the Dead is a holiday for celebrating death and life where mourning is combined with celebration.  

The usage of family audiobooks as a legacy for grieving children — an exploratory quantitative analysis among terminally ill parents and close persons Springer Nature Link - Open Access; by Gülay Ate, Michaela Hesse and Henning Cuhls; 10/25/24Since 2017, terminally ill parents with dependent children under the age of 18 have been able to record an audiobook for their dependent children. This service allows them to narrate how they would like to be remembered in their voice. The family audiobook is a professionally supported, voluntary, free service that is unique in Germany. ... Conclusions: The family audiobook provides a valuable opportunity for terminally ill parents with dependent children under the age of 18 to tell their own biographical story, offer support to the bereaved in remembering, and preserve the voice of the deceased for the children. In addition, this approach could help healthcare professionals to reduce the stress associated with providing end-of-life care for terminally ill parents. Editor's note: While this service and this evaluation are located in Germany, it can be replicated easily with today's user-friendly technologies. First and foremost are patient empowerment, privacy, and ownership of these most personal messages. Examine using your spiritual care, social work, and/or grief counselors to facilitate this project.

Video: North Hawaii Hospice holds lantern floating ceremony Big Island Video News; 10/15/24 The annual floating lantern ceremony was held Sunday evening at the Fairmont Orchid. ... The event was organized by North Hawaii Hospice, ... “The goal is to honor and remember those who have passed, in a group setting,” said North Hawaiʻi Hospice executive director Faye Mitchell. “We get to share in our grief, but also in our joy about the people that we’ve loved and who are no longer with us.” ... “When people come, they have a lantern paper which they get to decorate and write messages for their loved ones. And then they put that lantern paper onto a base, and at sunset we helped them light a candle in that lantern. ... “I am an organizer of this event, but I am definitely also a participant,” Mitchell said. “I lost my son Geno in February of this year. He was 24 years old. I have to say, one of the key things I learned from the experience is that grief shouldn’t be kept to myself. ... There’s something about sharing your grief with others who know what it’s like. So that’s why I share it even now, with everyone watching, because if … you’ve lost someone you’re not alone, and if you share this experience with others you’d be surprised how many people have gone through this. It’s so much better not to be alone in this."

Kaiser Health Care: Navigating Aging: Older men’s connections often wither when they’re on their own Tahlequah Daily Press; by Judith Graham; 10/12/24 At age 66, South Carolina physician Paul Rousseau decided to retire after tending for decades to the suffering of people who were seriously ill or dying. It was a difficult and emotionally fraught transition. … Seeking a change of venue, Rousseau moved to the mountains. … Soon, a sense of emptiness enveloped him. … His work as a doctor had been all-consuming. Former colleagues didn’t get in touch, nor did he reach out. His wife had passed away after a painful illness, … His isolation mounted as his three dogs, his most reliable companions, died. Rousseau was completely alone — without friends, family, or a professional identity — and overcome by a sense of loss. “I was a somewhat distinguished physician with a 60-page resume,” Rousseau, now 73, wrote in the Journal of the American Geriatrics Society in May. “Now, I’m ‘no one,’ a retired, forgotten old man who dithers away the days.” In some ways, older men living alone are disadvantaged compared with older women in similar circumstances. Research shows that men tend to have fewer friends than women and be less inclined to make new friends. Often, they’re reluctant to ask for help.