Literature Review

WVU nursing faculty aim to enhance rural home care for chronically ill through NIH award WVU Today - West Virginia University, Morgantown, WC; Press Release; 2/26/25 Three West Virginia University nursing faculty know firsthand the difficulties faced by family caregivers and their chronically ill loved ones. With a $2.7 million award from the National Institutes of Health’s National Institute of Nursing Research that is one of the largest ever for the WVU School of Nursing, the faculty researchers aim to support these families while increasing access to care in the rural reaches of the Mountain State by testing an integrated, nurse-led intervention for family home care management of end-stage heart failure and palliative care. ... Through their lived experiences, as well as their previous studies using nursing science to develop and test nurse-led interventions, the three said they hope to improve family caregivers’ and their loved ones’ overall health and well-being, including reducing depression and anxiety, and monitoring and managing end-of-life symptoms.

Keeping cool when debate turns hot: Inaugural global Ethics Center conference features scholarship, presentations on fostering civil, productive dialogue The Harvard Gazette; by Christy DeSmith; 2/24/25 Americans today are wrestling with how to turn down the heat when discussing politically and morally charged topics. Students, professors, and education professionals from around the globe assembled at Harvard this month to chart their way to more productive discussions — and better relations. The inaugural Challenging Barriers to Civil Discourse conference, hosted by the Edmond and Lily Safra Center for Ethics, featured scholarship on fostering open, honest exchanges across deep divides. ... [Dr. Julia] Kolak told of mediating clashes that arose ... when the family of a critically ill patient ... resisted end-of-life care. She works to unearth the principles guiding all parties, without elevating those with medical expertise. “When we treat others as capable of dialogue,” she offered, “it really changes the affective grip of conflict. ... [Jeffrey Dunn] raised the critical question: “What is the long-term goal of this work?” ...

[Korea] 9 in 10 Koreans support ending life-prolonging treatment: study The Korea Times; by Kim Hyun-bin; 2/24/25 More than nine out of ten Koreans think that they would opt to forgo life-prolonging treatment if they were terminally ill, a new study has found, highlighting shifting attitudes toward end-of-life care in the country. According to a report released by the Korea Institute for Health and Social Affairs on Sunday, 91.9 percent of respondents expressed they would choose to discontinue life-sustaining treatment if they were diagnosed with a terminal illness or were nearing the end of life, based on a survey conducted last April and May on 1,021 men and women. 8.1 percent stated they would prefer to continue such treatment.

Over a quarter of adolescents, young adults with cancer who want to die at home do not Healio; by Jennifer Byrne; 2/20/25 More than one-fourth of adolescents and young adults with cancer who wished to die at home did not attain this goal, according to research published in JAMA Network Open. Researchers conducted a retrospective cohort study that included adolescents and young adults (AYA; age range, 12 to 19 years) with cancer who died between 2003 and 2019. The cohort included patients treated at Dana-Farber Cancer Institute, Kaiser Permanente Northern California or Kaiser Permanente Southern California. ... Healio spoke with Odejide about the rationale for the study, the importance of the findings, and strategies oncologists can employ to ensure more goal-concordant end-of-life care for AYA patients with advanced cancers. [Click here for Helio's discussion with the lead researcher, Oreofe O. Odejide, MD, MPH, associate professor of medicine at Dana-Farber Cancer Institute.]  Editor's note: Examine this JAMA article, which we posted in our Saturday Research issue, 1/18/25: "Preferred and actual location of death in adolescents and young adults with cancer."

People with depression develop long-term health conditions quicker than those without, study finds McKnights Home Care; by Kristen Fischer; 2/13/25 Adults who have experienced depression develop long-term physical conditions about 30% faster than those without depression, a new study finds. Authors of the report said depression needs to be viewed as a “whole body” condition, with treatment approaches that address mental and physical health. The report was published Thursday [2/13/25] in PLOS Medicine. Investigators evaluated the association between depression and the rate at which conditions accrued in midlife and older age.

Access tops list of Americans' healthcare concerns: 4 survey findings Becker's Clinical Leadership; by Erica Carbajal; 2/5/25A quarter of Americans rank healthcare access and affordability as the top public health priority they want government leaders to focus on, according to poll findings from Gallup and Emory University's Rollins School of Public Health. ... Four key findings:

Researchers outline new research priorities in neuropalliative care UNC Health and UNC School of Medicine, Chapel Hill, NC; by Winnie K. Lau, MD and David Y. Hwang, MD2/7/25... An emerging field, termed “neuropalliative care,” has taken shape over the past few years to help provide impactful, holistic care for patients with serious neurological disease. And now, experts in the field are seeking ways to improve the overall wellbeing of their patients and loved ones through the power of research. ... A special communication in JAMA Neurology, first-authored by Winnie K. Lau, MD, a neurocritical care physician and associate professor of neurology and senior-authored by David Y. Hwang, MD, professor of neurology and division chief of neurocritical care, describes needed research that can help advance patient care, including:

Palliative care slashes ED visits, hospitalizations in people living at home with dementia: study McKnights Long-Term Care News; by Kristen Fischer; 1/30/25 A program that provides palliative care to people with dementia and their caregivers lowered the number of emergency department visits and hospitalizations by approximately half in about a year, a new study shows. Those who benefitted the most from the Indiana Palliative Excellence in Alzheimer Care Efforts (IN-PEACE) initiative were Black people and those with lower incomes. A report detailing the findings was published in JAMA ... The 50% decrease in emergency department visits and hospitalizations among people who received the intervention shows that the program can keep some people with dementia out of the hospital, where they can develop complications and functional declines.

Grant renews funding for pain and aging center Cornell Chronicle; by Weill Cornell Medicine; 1/30/25 The Translational Research Institute for Pain in Later Life (TRIPLL), a New York City-based center to help older adults prevent and manage pain, has been awarded a five-year, $5 million renewal grant from the National Institute on Aging (NIA). ... The institute seeks to apply insights from psychology, sociology, economics and communications to develop and implement effective pain management techniques that are acceptable to and practical for older adults.

Up to $212,500 funding now available to researchers investigating health disparities CMS.gov - Health Equity - Grants & awards; Minority Research Grant Program; via email 1/21/25, retrieved from the internet 1/21/25 The Centers for Medicare & Medicaid Services Office of Minority Health (CMS OMH) is pleased to release the Minority Research Grant Program (MRGP) 2025 Notice of Funding Opportunity (NOFO). This grant awards funding to health equity researchers at minority-serving institutions (MSIs) investigating health disparities and improving the health outcomes of minority populations.As a grantee, you will enhance your impact and visibility in the research community, support our mission to advance health equity, and join a prestigious group of awardees whose collective MRGP-funded research has been cited in more than 190 publications. CMS will award up to six grants, totaling up to $1,275,000, in 2025. Review the notice of funding opportunity CMS-1W1-25-001 and submit your application on grants.gov by April 1, 2025.

CMS Health Equity Data Book U.S. Centers for Medicare and Medicaid Services - Office of Minority Health; by CMS Office of Minority Health; published December 2024, email notifications 1/15/25 One of the six pillars of the Centers for Medicare & Medicaid Services (CMS) 2023 Strategic Plan is to, “Advance health equity by addressing the health disparities that underlie our health system.” The CMS Office of Minority Health (OMH) aims to advance health equity by providing broader access to data about the state of health equity across CMS’ programs. This Data Book presents summary information on disparities within CMS programs as demonstrated by data related to prevalence. ... This Data Book is intended for use as a readily-available information source on health disparities within the Medicare, Medicaid, and the Health Insurance Marketplace populations. This Data Book is organized into five key sections – CMS at a Glance, Demographics, Chronic Conditions, Behavioral Health, and Social Determinants of Health – so that Data Book users can jump to the section most relevant to their data needs. Within each section, data are presented by each population type.

American Academy of Hospice and Palliative Medicine Next Gen Scholars for Equity in Hospice and Palliative Medicine Program receives grant from Adtalem Global Education Foundation PR Newswire, Chicago, IL; by American Academy of Hospice and Palliative Medicine (AAHPM); 12/30/24 The American Academy of Hospice and Palliative Medicine (AAHPM) is grateful to receive support from the Adtalem Global Education Foundation for the Next Gen Scholars for Equity in Hospice and Palliative Medicine. The Foundation supports programs and partners like AAHPM that strengthen the healthcare workforce, expand access to quality education and address healthcare disparities. The Foundation's sole member is Adtalem Global Education, the number one provider of healthcare education in the U.S. In May 2023, led by the Diversity, Equity, and Inclusion (DEI) Committee, AAHPM launched the inaugural Next Gen Scholars for Equity in Hospice and Palliative Medicine Program. This program was initiated as a response to the growing demand for HPM practitioners and the need to increase representation in the field.