Literature Review

Advanced lung cancer: Studies explore palliative care delivered by telehealth and in a stepped-care approachThe ASCO Post - American Society of Clinical Oncology; by Alice Goodman; 6/25/24 Early palliative care can be integrated into the course of treatment for patients with advanced lung cancer via delivery by telehealth with outcomes similar to when palliative care is delivered via in-person visits, according to results of the REACH PC trial presented by Joseph Greer, PhD, of Harvard Medical School, Boston, at the 2024 ASCO Annual Meeting Plenary Session. A separate randomized noninferiority study presented at the ASCO meeting by Jennifer S. Temel, MD, FASCO, also of Harvard Medical School, Boston, found that stepped palliative care was noninferior to monthly visits with early integrated palliative care. Results of the stepped-care study were published in JAMA to coincide with the presentation at ASCO. [This article includes:]

Cancer therapy at end of life may not boost survival Cure; by Brielle Benyon; 6/17/24 Patients with advanced solid cancers who received systemic therapy toward the end of life typically did not live any longer than patients who did not receive treatment, according to research published in JAMA Oncology. Because cancer treatments can damper quality of life, it is crucial that patients and their loved ones discuss goals of care and prognosis with their oncology team, two experts emphasized. “I think once we progress to advanced and metastatic cancer when cure is no longer feasible, it’s important to consider goals-of-care conversations,” said study author Maureen Canavan, associate research scientist at Yale School of Medicine.

Lessons learned establishing the Palliative Care Research Cooperative's Qualitative Data Repository Journal of Pain and Symptom Management; Salimah H Meghani, Kim Mooney-Doyle, Amber Barnato, Kathryn Colborn, Riley Gillette, Krista L Harrison, Pamela S Hinds, Dessi Kirilova, Kathleen Knafl, Dena Schulman-Green, Kathryn I Pollak, Christine S Ritchie, Jean S Kutner, Sebastian Karcher; 5/31/24 ... The [Palliative Care Research Cooperative Group] PCRC Data Informatics and Statistics Core leadership partnered with the Qualitative Data Repository (QDR) to establish the first serious illness and palliative care qualitative data repository in the U.S. ... Specifically, we discuss how we co-designed the PCRC-QDR and created tailored guidelines for depositing and sharing qualitative data depending on the original research context, establishing uniform expectations for key components of relevant documentation, and the use of suitable access controls for sensitive data. ... This work advances the establishment of best practices in qualitative data sharing.

Telehealth delivers early palliative care as effectively as in-person careAJMC, American Society of Clinical Oncology; by Laura Joszt, MA; 6/2/24 Early palliative care can be delivered via telehealth with equivalent quality-of-life effects as palliative care delivered in person to patients with advanced non–small cell lung cancer (NSCLC), according to late-breaking results presented during [a] plenary session at the 2024 American Society of Clinical Oncology (ASCO) annual meeting. Whether the palliative care was delivered in person or via telehealth, the most common topics discussed during the visit were similar and included building and establishing rapport to create a relationship with the patient and their family, identifying symptoms and grading symptom management, and coping with serious illness, explained Joseph Greer, PhD, codirector of the Cancer Outcomes Research & Education Program at Massachusetts General Hospital Cancer Center and associate professor of psychology in the Department of Psychiatry at Harvard Medical School ...

Life support decisions are usually made within 72 hours. Is that too soon? Advisory Board; by Daily Briefing; 5/21/24After a patient suffers a traumatic brain injury (TBI) and is on a ventilator, when is the right time to withdraw life support? A new study published in the Journal of Neurotrauma suggests that doctors and patient family members should wait a bit longer than usual. ... The researchers found that the majority of patients whose life support wasn't withdrawn ended up dying in the hospital anyways within about six days. However, 42% of patients who continued life support recovered enough within the following year to have some level of independence, and a few even returned to their former lives.

Attitudes and beliefs regarding Pain Medicine: results of a national palliative physician survey Journal of Pain and Symptom Management; by Daniel K Partain, Wil L Santivasi, Mihir M Kamdar, Susan M Moeschler, Jon C Tilburt, Karen M Fischer, Jacob J Strand; 4/25/24 online ahead of print Objectives: To evaluate referral rates, co-management strategies, and beliefs of palliative physicians about the value of Pain Medicine specialists in patients with serious illness. Conclusion: This study shows that Palliative Care physicians have highly positive attitudes toward Pain Medicine specialists, but referrals remain low. Facilitating professional collaboration via joint educational/clinical sessions is one possible solution to drive ongoing interprofessional care in patients with complex pain.

Emory University receives $3.1 million NIH grant to improve quality of life for people with cystic fibrosis Emory University, by Brian Katzowitz; 4/16/24... A new five-year, $3.1 million grant from the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH) will help Emory researchers undertake a novel study combining biological, social, and clinical research methods to better understand the underlying processes of these symptoms – and identify opportunities to improve quality of life. ... Dio Kavalieratos, PhD, [is the] director of research for the Emory Palliative Care Center and the study’s principal investigator ... 

New study calls home health star ratings into question McKnights Home Care, by Adam Healy, 4/11/24A comparison of agency-reported functional measures and claims-based hospitalization measures raises doubts about the value of star ratings as a means of evaluating home health agency (HHA) quality. The study, published Wednesday in JAMA Network Open, analyzed differences between claims-based and agency-reported outcomes for nearly 23 million patient episodes before and after the introduction of the star ratings system to compare changes over time. 

Anti-DEI initiatives in medicine harm us all MedPage Today - Perspectives; by Aderonke Pederson, MD; 4/9/24I entered into medical school as a top student at the University of Chicago with a high GPA ... and a stellar CV exhibiting strong leadership qualities. I had beaten all odds, despite being a Black orphan migrant with no financial means. Medical school was a grueling process ... I would likely have felt even more socially isolated at my predominantly white institution if not for three essential factors. First, I was welcomed by Diversity, Equity, and Inclusion (DEI) administrators and participants ... Second, I had a dean of DEI who... said, "You can do this, Ronke." Finally, without my deep faith, ... I would not be where I am today. My experience is not unique from other underrepresented physicians of color. Despite this, DEI programs across the country are under attack.

Translation and validation of the Chinese version of Palliative Care Self-Efficacy ScalePalliative & Supportive Care; by Junchen Guo, Yongyi Chen, Boyong Shen, Wei Peng , Lianjun Wang, Yunyun Dai; 4/8/24[This] study aimed to translate, adapt, and validate the Palliative Care Self-Efficacy Scale (PCSS) among Chinese palliative care professionals. ...Significance of results: The findings from this study affirmed good validity and reliability of the C-PCSS [Chinese-PCSS]. It can be emerged as a valuable and reliable instrument for assessing the self-efficacy levels of palliative care professionals in China.

‘We’re the telescope looking forward’: Medical ethicists ask tough questions as part of $66 million research project CU Department of Medicine, by Mark Harden; 4/5/24 In the original “Jurassic Park” movie, after the process of bringing dinosaurs back to life is explained to a team of consultants, one of them voices a warning: “Your scientists were so preoccupied with whether or not they could, they didn’t stop to think if they should.” University of Colorado Department of Medicine faculty members will be asking the “should” question years before there’s an answer to “could.” They’ve joined in a nationwide study of whether tiny, battery-powered electric devices and genetic material, swallowed in capsule form, could one day replace surgery or injections as treatments for metabolic diseases such as diabetes and obesity.

How a CU biostatistician is helping improve palliative care research University of Colorado - Anschutz Medical Campus, by Tayler Shaw; 4/3/24